Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Excessive mucus
I have mucus dripping out of what looks like my uvula constantly from the time I wake in the morning 24/7 that has the most awful foul/sweet taste. This is whether I eat anything or not. I have been to several ENT and gastro doctors both locally and get the same answer when they say they cannot find anything - late…
AMIFOSTINE
Did you have it and if so, how effective do you feel it was and how were the side effects?
Staging-- what do the letters and numbers mean
I am trying to help Barefoot Bob figure out what the TxNxMx means in the staging of our tumors. I seem to remember someone had posted an explanation on here at one time (ratface, skiffin ?). I cannot remember myself and don't want to give bob the wrong info.
Olfactory neuroblastoma - how often do you have scans
Hi I am a 2 year survivor of ENB living in the UK. I haven't found anyone in the UK with this very rare tumor on any online forums, since my diagnosis, so I often check into your great site in the USA. I have found it to be really helpful and everyone is so friendly. I wanted to check how often you are offered MRI scans…
Numbness, Tingling...when will it end?
Hi All, My father finished treatment (35 rads & 3 rounds of cisplatin chemo - 7 weeks period) for laryngeal cancer on the 7th of Feb (Stage 3) his Pet scan came back clear and he has recovered well very so far. However in the past 2 months the tingling, pins & needles in his feet & legs has become an issue and some…
Losing Weight in Recovery
This is not a big problem, mostly just a minor concern. I finished my RT on April 3,2012. On my last weigh-in they had me down at 164lbs. Three weeks later at my Onc consult I weighed in at 161. No need for explanation there as I was still eating fairly light food. But now it is almost two months out and I am down to 158.…
Pharmacy Carry Prescription Fluoride Gel
Has anyone had trouble getting prescriptions for prescription fluoride gel filled? Through mail-order pharmacy (Medco). I'm always surprised by what my local pharmacy doesn't have, so this seems like an odd thing to get. I actually found some on Amazon (even though it requires a prescription) but I want to be "legit" about…
Its been 21 days so
it must be chemo day tommorrow, yes how time flies when you are having fun. The Dittos will be celabrating our 17th Anniversary tommorrow why I do one more Cistoplan (spell check aisle 1) then in about 3 weeks Erbitux and then Rads. I have just about gotten bored with the MASK since I have been thinking about it for so…
Question
Hi. I'm new to this group, but I was wondering if anyone could give me some information about the effects of radiation on the esophagus? My mother has had cancer for years (at least 15+). It began as breast cancer, but has manifested in several different areas of her body. The most recent, she has developed a tumor in her…
CT / PET results back
The findings of the CT: There is a soft tissue density lesion of slightly higher attenuation than normal tongue tissue, measuring apprx. 4.8 x 1 x 5.3 cm and involves the left lateral tongue as well as crossing midline at the tip of the tongue and extends to the floor of the mouth. This lesion does not appear to invade the…
laryngeal cancer
My dad had his larynx removed in May. Although it seems that all the cancer is gone, he still is having a very difficult time recovering emotionally. He isn't making much effort to learn to use his electrolarynx device. He seems to be very withdrawn. Has anyone had any experience with a support group for laryngectomees?…
Cataracts and corticosteriods--anyone know about this?
Blurred vision is a temporary side effect from hyperbaric oxygen treatments, so when my eyesight didn't get back to normal after a few months I went to see an eye specialist. He says this is not from the hyperbarics, but could likely be from the corticosteroids I was given during rads to control swelling in my neck. "This"…
After Radiation and Chemo for a few years
I'm checking back in and wanted to know what everyones aftermath, that had radiation to there neck, or larnyx area...i suffered l/s paraylis, kept my voice box, but have a very tight breathing line..for some reason the muscles in my neck seem thicker, and sometimes seem to lock, the nerves in my throat are still resistant…
RADIATION + CHEMO
Hi, Mike here. I was diagnosed a couple of months ago with Squamous Cell Carcinoma on my larynx. God has healed that, no sign whatsoever at this point. Ive had 3 chemo treatments with Carboplatin/Taxotere. Im now doing radiation treatments 5 days a week for 7 weeks. Not sure about that at this point, but doing it to make…
HYPERTHERMIA???
Has anyone on here done this? If so, how long ago and what are your thoughts?
Well....darn it all....the rad machine is on the fritz....
The rad-onc called and canceled my radiation today because the machine isn't working. They told me to call tomorrow morning, to make sure it's working before coming in. I'm trying to see this as a day off...but I'm SO wanting to get to the single digits for my number of treatments....after today it would have been 9... p
My sister made me some Magic Mineral Broth
this weekend....OMG a real taste treat (one I could taste the whole way thru). She made enough to get me thru two weeks (we froze some)...I'm just so amazed that it was so tasty....to her, it seemed bland, like most of the normal food is to me. Anybody wanting a high nutrient broth, that doesn't leave your taste buds after…
HALLELUJAH!!!
HALLELUJAH!!! PET showed no other signs of the big C anywhere but where we already knew about PLUS in 2 less lymph nodes than the CT radiologist identified!!! The only bummer is just because I didn't think about it but the tonsil cancer cells spread out a bit. No biggie though. That's what the chemo is for. Overall, I am…
Do You Ever Get Your Taste Buds Back - How Long Does It Take?
My 77-year-old Dad was diagnosed with stage 2 squamous base of tongue cancer last summer and had 7 weeks of daily radiation which ending the second week of October 2011. He was in oustanding shape before the radiation. He tolerated the radiation well and did not need a feeding tube. He lost some weight but still kept…
Done with treatments!
As of this morning, I'm officially done with treatments! I celebrated by sleeping the whole day, LOL! I've been feeling really dizzy and tired today, probably because I was up all night throwing up again, but regardless, I'm glad to be past this milestone. I'm looking forward to healing! To everyone on the bus behind me:…
What food do you eat with no taste
I was wondering what foods do you eat with no taste ? I have tried following and able to eat it Chobani yougurt : mango or peach, do not like any other, 13 gms of protein Mango smoothie from costco with protein powder Water melon (like the cooling juicyness, cannot taste the sweet) Banana: oddly i can taste some sweetness!…
I will be starting Monday Radiation and Wednesday Chemo
Hi everybody the time has finally come to get the treatment started and get this behind me they told me Monday i will start radiation and Wednesday will start my chemo if you have any words of advice please let me know i got all my nausea meds for the chemo i also got a nurse that dropped off IV fluids for after treatment…
My Husband - About to Start Sixth and Final Week
Wanted to give an update. My husband is doing pretty well. Frankly, I am quite surprised at how well he is holding up to this brutal treatment, especially considering this is his second time to get radiation. He is extremely fatigued, has very dry mouth, had thrush, a bit of a sore throat (and I mean a BIT - nothing like…
just sharing last couple weeks npc
my last couple weeks of rad n chemo treatments were the hardest time. saliva becoming thickenning that make you gag. even going to my rad treatment becoming hassle feeling am gonna choke on my own thick saliva. I ask my oncology to cut out the mouth part of my mask and suction all the gunk out prior treatment, and numb my…
done w/ chemo and rad is recovery time!!
What to do for quick and painless recovery??
MY FIRST APPOINTMENT WITH RAD. ONC. DOC
We really like the doctor today. I was originally going to get a second consult at Mayo but now I don't know if I should even bother. Loved the doc and the staff, the facility is convenient and, quite honestly, from being on here I knew what to expect as far as treatment protocol. SInce I am dealing with something that…
The First Day
Hubby started his teatment today for Stage III SCC tonsil cancer HPV+. I have been lurking on these boards for a few weeks since we got the diagnosis. The wisdom you each share in your posts made this experience a lot less scary. It went exactly the way many of you said it would. Treatment plan is cisplatin 3x 21 days…
Facial Hair Follies
Over the last year, I feel like I've had 10 different facial hair patterns. During the first radiation, I lost my beard (which I'd had for 15 years). I was left with a moustache and goatee combination, with hair on my sideburns but not enough for a beard. After the second radiation (Cyberknife) I lost the moustache and…
DPNS
Deep Pharyngeal Neuromuscular Stimulation Just wondering has anyone heard or tied DPNS. It is very interesting to me and anyone who may have been affected by C treatment and can’t swallow. DPNS If the link don't work go to http://dysphagia.com/maillist/1997-January/msg00113.html Thanks Hondo
Feeding tube removed
Hi all, recently I got my feeding tube surgically removed. No stitches needed (not sure why), but now it looks like I have 2 belly buttons. Does it ever close completely?

Head and Neck Cancer

Discussion List

Discussion Boards