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Facial Hair Follies
Over the last year, I feel like I've had 10 different facial hair patterns. During the first radiation, I lost my beard (which I'd had for 15 years). I was left with a moustache and goatee combination, with hair on my sideburns but not enough for a beard. After the second radiation (Cyberknife) I lost the moustache and…
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DPNS
Deep Pharyngeal Neuromuscular Stimulation Just wondering has anyone heard or tied DPNS. It is very interesting to me and anyone who may have been affected by C treatment and can’t swallow. DPNS If the link don't work go to http://dysphagia.com/maillist/1997-January/msg00113.html Thanks Hondo
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Feeding tube removed
Hi all, recently I got my feeding tube surgically removed. No stitches needed (not sure why), but now it looks like I have 2 belly buttons. Does it ever close completely?
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Hi All....Opinions Sought on Overdose of
Cispatin apparently. My last treatment. I ended up in acute renal failure, creatine 21, wbc <1 rbc? Low, I was too sick to remember. Only I was told by the nurse "I don't want to scare you but you need to go to the hospital NOW because you can die from this". Fast foraward, I am Almost at my 2 yr post treatment mark!…
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my little son tumor
my little son who has 2.5 years old struggle with a enhancing mass at right parietal lobe, doctors just order for take mri and reviw the growth of the tumor please help me how i can fase with the matter, everyday i have just wating for some trowble will be happen
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PET Results update
Get Jim's PET results tomorrow Please pray they are clear this time Debbie
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FEELING SO HELPLESS... a tongue cancer surgery for a father-to-be
Hi, my name is nancy. 3 yrs ago, my 32yrs old husband had stage 3 nose cancer. went through radiation and chemo treatment. He has fully recovered and has been eating very carefully. I'm now 7 months pregnant. We were both happily preparing and waiting for the arrival of our baby in July. BUT last week, he was diagnosed…
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Just wanted to say "Hello"
Hi Everyone, I have not been here in a long time and just wanted to update everyone on Connie's condition. She has done very well with clean scans and we have returned to life as normal as possible. She had her feeding tube removed in February after one year and has been eating pretty well although she is way below her…
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Just an update
on where I am. Gained 2 lbs back of the 10 that I lost, white counts back up. And over all energy level and eating ok. I guess this is what we need to know there is survival of treatment. I know it was just the 1st Chemo and it was a rough start and I have many more bumps in the road. I also have to work on being positive…
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Exposed Bone
I just got back from my radiation onco and she says I have exposed bone in my mouth. I had what I thought was a sore that is pretty painful, she said it's bone coming through the skin near my surgical site. I have to have a CT and panoramic xray to make sure it's not cancer in the bone and then go from there. Anyone else…
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PET SCAN TOMORROW
Im pretty nervous. I already know I will be stage 4 from the CT results but I pray it's only in the nodes I already know about. Actually, pretty nervous is an understatement...
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Half through
and counting the days!! The side effects have racheted up and I'm hoping THIS is as bad as it gets! I had posted a week ago that I was hoping that was as bad as it was getting....nope!!! I can still eat a little and I'm learning to cope, eat smaller bites and chew and chew and chew!! :) I did finally use the lidocaine mix…
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Final chemo is done!
I went in for my final chemo today. To be honest, I was filled with dread because I still haven't been able to keep anything in my stomach reliably. I'm pretty sure it's the mucous making me throw up, and it's been happening anywhere from 3-5 times a day. The nurse at radiation this morning said she would be OK with…
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HAPPY FATHERS DAY
I did not want to miss this opportunity of wishing all of you Guys a Happy Father Day. Question: What would you wish for on Father Day if you could wish for anything in the world?
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Where's aluo?
Has anyone heard from him this week? p
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Squamous Cell throat and oral carcinoma
I was recently diagnosed with Squamous Cell carcinoma of the throat and mouth. It began by me noticing a lump on the left underside of my neck on April 25. It is growing rapidly. A CT Scan and later 4 “conscious” biopsies of the tumor provided the diagnosis. The surgeon is doing a biopsy in the operating room this Thursday…
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Voice Box Prosthesis & Dialation
I had my surgery for Total Laragectomy approximately 10 weeks ago. I had my 1st voice box prosthesis installed three weeks later. It did not work at all so my surgeon swaped it out for the next size larger & it worked just a little & I was having to work so hard to produce any sound at all. I just had my appointment with a…
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THE IRONY OF TIMING?
for the last 12 years i was a top performer and very sought after in my company. then pretty suddenly everything changed and i just started to hate everything about what i was doing. i couldn't figure out why. my blood pressure was up and my spirits were down. so i went on medical leave for 6 months. i ended up resigning…
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HPV-transferrable
I have been asking and researching whether HPV+ can be transferred to your partner. After my husband was diagnosed, I went to my gynecologist and was tested. I was HPV+, high risk. I was worried if I passed it on to him or if he passed it on to me. And now since we are both positive, what happens about passing it back and…
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Taste buds gone..cant wait for their return...:(
I had my 8th rad on friday and thought i might have good long week-end....i was sooo wrrong! I knew i would lose them but could not it have waited two more days! Water tasts bad....but trying to get used to new taste. Fruits taste bland ...but i am okay eating them..does not tase nasty like water does. Will it stay this…
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QUESTION FOR THE LADIES
Just sitting here wondering if any of you have had any other cancers prior to the head and neck stuff? I had cervical cancer about 8 years ago. So far, my docs haven't voiced any concern with this being my second time around. I'm kind of scared to ask if this has any bearing on my prognosis.
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I AM SIGNING OFF
To all of the grest friends and confidants here on OUR SITE, I have decided to leave. I have gotten from this site what I needed when I needed it but have also battled some serious depression trying to get back to my new normal while also coping with a personal tragedy with my son. In all honesty I am struggling with the…
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New to the group and question for caregivers
Hi everyone, I just joined a few days ago and figured I'd introduce myself. My 38 year old husband has hpv+ oropharyngeal scc and started treatments about 2 weeks ago. His treatment is 35 rads and 6 chemo - cisplatin. So far he's doing reasonably well aside from some fatigue, discomfort in his neck, and a little…
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3rd attempt at getting my mask made
hi everybody well tomorrow will hopefully be the day to get the mask made 1:40pm and get this thing going if they can make the mask tomorrow then the following Monday i should be starting the chemo treatment 3 cycles of cysplastin and 7 weeks of rads i want to get it started so i can get it over with i'm hoping for no…
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Had this great idea, today....
Yesterday, the rad-onc said they were shortening up my radiation "scope" after the next three sessions. My throat will now be out of the radiation, and they will be concentrating on my nasopharnyx. I thought..."well, could this get me out of amifostine treatment everyday???" Asked both the oncologist and the…
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anyone tried Hallelujah Diet for cancer
Jim and I were going to try the Hallelujah Diet just before he was diagnosed. When he was diagnosed we didn't think about it again until the recent news that his cancer spread to the lungsit. The website has many testimonies from cancer survivors. We were thinking of trying it since the oncologist said he wouldn't survive…
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First Treatment and What can I do this summer???
Hey everyone, I just had my first Chemo treatment this week (Friday May 25) So far so good, no nausea or fatigue yet. The only side affect I really felt was on day 3, some intense joint pain in my knees, ankels, hips, lowerback, elbows wrists, and neck (all joints). It was a soreness like it was stiff to move but after…
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Recently diagnosed with metastatic melanoma facing Radical neck Dissection and have questions
I have been dx'ed with metastatic melanoma which is baffling the Dr.s as it 1st showed up in a lymph gland. They are doing radical neck dissection at the end of the month followed by radiation and immunosuppressive therapy as they say my kind of melanoma does not respond to chemo. I know not to believe everything I read on…
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Update on feeling rough ....
Hey all ....just wanted to give a quick update on the "feeling rough" post I did last week (I think it was last week). I was in the ER yesterday (Saturday) with a pretty ugly peg tube infection ...just seem to explode over a 2 day period.... ..anyway... the ER doctor called my docs in Boise and he / they decided to take it…
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Pneumonia / Peg Tube
Well I have been in the hospital for the last few days fighting my first pneumonia problem. I had another bad attack of aspiration last week, got sick but had no idea what the problem was till my Wife brought me to the emergency room later Friday night, when the check Pneumonia. What sucks is that they will not let me eat…