There is no such thing as whining......

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phrannie51
phrannie51 Member Posts: 4,716
on this board. Everybody has gone, thru....is going thru...or about to go thru a horrible cure in order to beat cancer. The side effects are enough to make a mountain man shutter, yet here we all are doing it...not everyone has the same side effects, the same duration, or the same depth of misery.....but we are all here to support one another in whatever is happening at the moment.

So you guys who apologize for whining....cut it out....there is NO such thing! :)

p

Comments

  • Sam999
    Sam999 Member Posts: 319 Member
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    Ok sounds good:)
    Yes this

    Ok sounds good:)

    Yes this group definately lifts one up when we are feeling down.

    Thanks everyone for being there

    Sam
  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
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    does this count?
    Phrannie51,

    My first PEG tube became a big problem during week 5 of treatments. The last time my wife and I tried to use it, I sobbed like a baby it was so terribly painful. Here I was on the verge of needing the PEG for all my meals and the darn thing would not work. As luck would have it, I was scheduled for a new one and a few days later went back to the hospital for a new and improved version. The new PEG was great, always worked and I was glad to have it removed at 2 weeks post.

    There’s my horrible PEG story, whining included.

    It really, really HURT!

    Matt
  • phrannie51
    phrannie51 Member Posts: 4,716
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    CivilMatt said:

    does this count?
    Phrannie51,

    My first PEG tube became a big problem during week 5 of treatments. The last time my wife and I tried to use it, I sobbed like a baby it was so terribly painful. Here I was on the verge of needing the PEG for all my meals and the darn thing would not work. As luck would have it, I was scheduled for a new one and a few days later went back to the hospital for a new and improved version. The new PEG was great, always worked and I was glad to have it removed at 2 weeks post.

    There’s my horrible PEG story, whining included.

    It really, really HURT!

    Matt

    But it's not whining............
    it's explaining a painful experience. And let me tell ya, the third time I tired to use my PEG (and I have only had to use it sparingly), the stuff wouldn't go down. I was in a panic...scared to death, that this PEG that I might have to depend on, suddenly didn't work...You all know what I'd done....forgot to unclip it....LOL....but you should have heard me crying...so scared.

    Matt, I believe it was horribly painful, and doesn't fall into any type of whining catagory!

    p
  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
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    But it's not whining............
    it's explaining a painful experience. And let me tell ya, the third time I tired to use my PEG (and I have only had to use it sparingly), the stuff wouldn't go down. I was in a panic...scared to death, that this PEG that I might have to depend on, suddenly didn't work...You all know what I'd done....forgot to unclip it....LOL....but you should have heard me crying...so scared.

    Matt, I believe it was horribly painful, and doesn't fall into any type of whining catagory!

    p

    sorry phrannie51
    Phrannie51,

    OK, Sorry, but I was sobbing and it hurt and the clip was undone. Now I have to man up and quit whining, I mean man up and start whining.

    You’ll have to excuse me this is prePET scan humor, very unlike me.

    So long,

    Matt
  • phrannie51
    phrannie51 Member Posts: 4,716
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    CivilMatt said:

    sorry phrannie51
    Phrannie51,

    OK, Sorry, but I was sobbing and it hurt and the clip was undone. Now I have to man up and quit whining, I mean man up and start whining.

    You’ll have to excuse me this is prePET scan humor, very unlike me.

    So long,

    Matt

    Sending you prayers....and massive
    positive thoughts on the PET, Matt........will be tucking you into my pocket!!

    p
  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
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    Sending you prayers....and massive
    positive thoughts on the PET, Matt........will be tucking you into my pocket!!

    p

    made me smile
    Phrannie51,

    Thanks, I like that.

    Matt
  • Pam M
    Pam M Member Posts: 2,196
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    Hmmmmmm
    OK - so three of us have "is this whining?" stories about - - PEG tubes!! Let me start by saying I don't know of anyone else this has happened to. . .

    Me, I had issues, thought it must in in wrong because it was still painful after I got home from the hospital. the Gastro doc's evil Nazi-nurse/phone screener assured me that I could not just make a "squeeze in" appointment, because I wasn't a patient. I let her know that I WAS a patient - the guy had just put in a feeding tube a few days earlier, and I was supposed to schedule a follow up appointment with him - I just needed to come in today, because something was wrong, and I was in pain, not discomfort. She told me that I could not come in until after I'd had a "regular" appointment, and to go to the emergency room if I was concerned. I told her I HAD been to the emergency room two days earlier on the weekend, they xrayed me, and told me to see my gastro for follow up. THEN nurse Ratchett says "and why didn't you make an appointment then? Before you left the hospital?" I said "Ma'am, I was on a chemo fanny pack, and felt ill, and wanted to go home to rest - I truly thought it'd be OK to call in a day or so". Have I mentioned she told me it would be three weeks before my follow up visit that would enable me to use the title "regular" patient?

    Woke up the next day, New Year's Eve, at about six thirty, in a puddle of blood - my daughter out-law said my bed looked like a murder scene. My other docs were at a loss when it comes to feeding tubes, so they couldn't help (even though they had kind, loving office staff members). I called for a ride to ER, then called my RO's office and let them know that the bleeding had stopped, I was feeling more mentally alert, and not so weak as I was when I woke, and I just couldn't go back to the hospital that day.

    Normally not a complainer, I did make sure I let my MO and RO offices both know about my treatment. I wondered if I was a whiner when I told MO's nurse that I was worried about having lost some of my precious chemo with the blood loss.

    Wow - didn't intend a novella when I started this - just realized the memory still makes me feel bad.

    By the way - - the last two times I went to that doc's office, I looked at all the name tags I could find on staff members - didn't see her name or hear her voice.

    So, STILL whining - all this time later (two and a half years later) - no apologies.
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
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    Pam M said:

    Hmmmmmm
    OK - so three of us have "is this whining?" stories about - - PEG tubes!! Let me start by saying I don't know of anyone else this has happened to. . .

    Me, I had issues, thought it must in in wrong because it was still painful after I got home from the hospital. the Gastro doc's evil Nazi-nurse/phone screener assured me that I could not just make a "squeeze in" appointment, because I wasn't a patient. I let her know that I WAS a patient - the guy had just put in a feeding tube a few days earlier, and I was supposed to schedule a follow up appointment with him - I just needed to come in today, because something was wrong, and I was in pain, not discomfort. She told me that I could not come in until after I'd had a "regular" appointment, and to go to the emergency room if I was concerned. I told her I HAD been to the emergency room two days earlier on the weekend, they xrayed me, and told me to see my gastro for follow up. THEN nurse Ratchett says "and why didn't you make an appointment then? Before you left the hospital?" I said "Ma'am, I was on a chemo fanny pack, and felt ill, and wanted to go home to rest - I truly thought it'd be OK to call in a day or so". Have I mentioned she told me it would be three weeks before my follow up visit that would enable me to use the title "regular" patient?

    Woke up the next day, New Year's Eve, at about six thirty, in a puddle of blood - my daughter out-law said my bed looked like a murder scene. My other docs were at a loss when it comes to feeding tubes, so they couldn't help (even though they had kind, loving office staff members). I called for a ride to ER, then called my RO's office and let them know that the bleeding had stopped, I was feeling more mentally alert, and not so weak as I was when I woke, and I just couldn't go back to the hospital that day.

    Normally not a complainer, I did make sure I let my MO and RO offices both know about my treatment. I wondered if I was a whiner when I told MO's nurse that I was worried about having lost some of my precious chemo with the blood loss.

    Wow - didn't intend a novella when I started this - just realized the memory still makes me feel bad.

    By the way - - the last two times I went to that doc's office, I looked at all the name tags I could find on staff members - didn't see her name or hear her voice.

    So, STILL whining - all this time later (two and a half years later) - no apologies.

    Well...I think...
    It's okay to share some of our stories....though we all try and keep positive, if nobody ever said it hurt or they neve cried....newbies would really get discouraged.

    I won't go into detaisl about my neck...you can just look at my picture. Suffice to say in hte end when my wife would clean and bandage my neck ...I was close to if not what Matt did. :)

    Best,

    Tim
  • Pam M
    Pam M Member Posts: 2,196
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    Sending you prayers....and massive
    positive thoughts on the PET, Matt........will be tucking you into my pocket!!

    p

    I like that
    "tucking you into my pocket"
  • katenorwood
    katenorwood Member Posts: 1,912
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    Tim6003 said:

    Well...I think...
    It's okay to share some of our stories....though we all try and keep positive, if nobody ever said it hurt or they neve cried....newbies would really get discouraged.

    I won't go into detaisl about my neck...you can just look at my picture. Suffice to say in hte end when my wife would clean and bandage my neck ...I was close to if not what Matt did. :)

    Best,

    Tim

    As a newbe...
    Hi everyone,
    This thread has given me inspiration....yes whinning or as I say...letting our human show is good for us as a whole. Thank you all for showing the new kid on the block we are allowed to do this. I'm sure the knowledge you all have with different treatments will help us, just beginning this trip. And I'm sure I'll be whinning alot come July, LOL ! Hugs to all the whinners, I think your all winners, Katie
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
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    As a newbe...
    Hi everyone,
    This thread has given me inspiration....yes whinning or as I say...letting our human show is good for us as a whole. Thank you all for showing the new kid on the block we are allowed to do this. I'm sure the knowledge you all have with different treatments will help us, just beginning this trip. And I'm sure I'll be whinning alot come July, LOL ! Hugs to all the whinners, I think your all winners, Katie

    Whining?
    Fortunately, I don't whine. I just cry a lot! Uh...

    kcass
  • tuffenuff
    tuffenuff Member Posts: 277
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    Pam M said:

    Hmmmmmm
    OK - so three of us have "is this whining?" stories about - - PEG tubes!! Let me start by saying I don't know of anyone else this has happened to. . .

    Me, I had issues, thought it must in in wrong because it was still painful after I got home from the hospital. the Gastro doc's evil Nazi-nurse/phone screener assured me that I could not just make a "squeeze in" appointment, because I wasn't a patient. I let her know that I WAS a patient - the guy had just put in a feeding tube a few days earlier, and I was supposed to schedule a follow up appointment with him - I just needed to come in today, because something was wrong, and I was in pain, not discomfort. She told me that I could not come in until after I'd had a "regular" appointment, and to go to the emergency room if I was concerned. I told her I HAD been to the emergency room two days earlier on the weekend, they xrayed me, and told me to see my gastro for follow up. THEN nurse Ratchett says "and why didn't you make an appointment then? Before you left the hospital?" I said "Ma'am, I was on a chemo fanny pack, and felt ill, and wanted to go home to rest - I truly thought it'd be OK to call in a day or so". Have I mentioned she told me it would be three weeks before my follow up visit that would enable me to use the title "regular" patient?

    Woke up the next day, New Year's Eve, at about six thirty, in a puddle of blood - my daughter out-law said my bed looked like a murder scene. My other docs were at a loss when it comes to feeding tubes, so they couldn't help (even though they had kind, loving office staff members). I called for a ride to ER, then called my RO's office and let them know that the bleeding had stopped, I was feeling more mentally alert, and not so weak as I was when I woke, and I just couldn't go back to the hospital that day.

    Normally not a complainer, I did make sure I let my MO and RO offices both know about my treatment. I wondered if I was a whiner when I told MO's nurse that I was worried about having lost some of my precious chemo with the blood loss.

    Wow - didn't intend a novella when I started this - just realized the memory still makes me feel bad.

    By the way - - the last two times I went to that doc's office, I looked at all the name tags I could find on staff members - didn't see her name or hear her voice.

    So, STILL whining - all this time later (two and a half years later) - no apologies.

    Yeah, she would have been
    Yeah, she would have been the recipient of a great big powerful **** slap if I would've found her...
  • ratface
    ratface Member Posts: 1,337 Member
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    tuffenuff said:

    Yeah, she would have been
    Yeah, she would have been the recipient of a great big powerful **** slap if I would've found her...

    Mountainmen and crying
    These two references stood out to me from Phrannie and Kent. I was a Chicago cop for 27 years. Tough as nails, been through some scary life threatening situations and physically looked like a mountainman. Head and neck cancer not only brought me to my knees but floored me! The treatment is brutal, could be the worse in the cancer world. Personally I don't think I handled it very well and more than once cried like a red headed stepchild in a Chicago ghetto. The bigger they are the harder they fall. I'm just happy to be off my knees for a while longer.