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Putting things in perspective
Although it is not my habit to post a lot about my follow-up, I had my six month post rads exam yesterday. Thusfar, all is negative. I was reflecting on this on the long drive home from St Louis, and again the obvious occured to me. For those who dont know my background, I was treated with radiation for BOT cancer in 1998,…
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Mets??
I finished my second radiation 4 months ago for recurrence nasal and orbital cancer. Started having fluid around the right lung..plueral effusion. They drained me and 2 weeks later the effusion was back in my lungs. They did an X ray..it was fine. Then they did a ct which shows nodular lesions and asseliates. Today they…
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New battle plan.. Need some advice
Ladies and gentleman....... Need some advice, after a profound response to one of my post I realized he was exactly right.... "the fight is not against the cancer it's against the treatment..... So far my biggest problem with the "chemo cocktail" is my ability to stay fueled up ...missed several days of work because I was…
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Is it shrinking tumor?
My husband was diagnosed NPCA stage 3. After 4 days of radiation he spit out bloody mucus with some sort of flesh on it. I dont know what to do because blood came out from his nose for about five minutes. Anyone have experience this? Im so nervous about his condition. Thanks, Mitch16
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A Loved One ~ Melissa Gail
Another side of me....the Father I just wanted to share with you a very special girl of mine.... My lovely daughter Melissa Gail... Hard to believe an old crusty Marine could have part in the making of such a beautiful person.... Melissa Gail She's my love.... ~John
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I am surprised at how long I have been off work!
I had my tonsil surgery on May 30, radical neck disection at the same time. i figured I would be back to work the last of Aug., instead I am just on my 17th rad. I still have 16 more rads and 1, 6 hour chemo. From what I have heard it will still be good while before anyone returns to work even after all treatments stop.
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OK ~ PET ~ Now It's Official
OK, thanks to all for your thoughts, prayers and concerns. This afternoon around 2:00PM, I did pick up the results from my PET scan I had yesterday morning. This was my 4th post Tx PET scan since finishing up treatment in June 2009. So far I can't really say the scanxiety gets much better...well I'm sure my first few were…
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5 Rads Down...
Hello my fellow warriors, I am now through the first 'week' of radiation and all I can say is, WOW. All of you that have come THIS far, you are my heros and you will give me strength to make it through the next 5 weeks, cause there is NOTHING fun about this at all. Knowing that it really only gets worse too, does not make…
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2 WEEK POST RAD CHECK IN
Heres where I'm at: - vision seems to have cleared up - energy level a little better. Made it through a tile buying excursion to home depot without needing a nap when I came home. - lemon sized lymph node is down to size of a pecan. Still a little nervous. - seems to be an increase in watery saliva. Less foamy and I can…
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Muscle Spasms
Hi all. I am now about 6 weeks post-op and starting my first week of Radiation. In the last week or so, I have been experiencing muscle spasms that will result in my arm or leg tossing itself out of a resting position. Very weird? I also have been getting cramping in my muscles around the heel up to my calf...very similar…
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Still kickin!!!
Hello everyone! I haven't been on here for a very long time, which is good because that means I've been busy living again! Just a quick refresher: I was diagnosed with Metastatic Squamos Neck Cancer with Occult Primary in my right tonsil which had spread to all of my right lymph nodes and my left tonsil on December 1st,…
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Infusion port troubles
Here's something that I've not seen posted to these boards. I have an infusion port that developed a clot in my jugular vein. I've been prescribed an inject-able anti coagulant, two self administered shots a day for two weeks and then 6 months on anti coagulant pills. I was not told that clots could be a complication and…
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Saliva question
Hello All, I have a question for anyone who can answer. I am 8 weeks out today from my last rad. Up until a few days ago I had very little saliva but my mouth wasn't desert dry like it sometimes is in the morning. A few days ago I started feeling super dry. For instance I couldn't even moisten the seal on an envelope by…
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PEG QUESTION
I ve been having problems with my PEG, nothing serious just annoying, everything I eat seems to wind up in the tube, is there supposed to be clamp? Seems like that would make a difference.
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Round one highlights
First round started off slow as we circled and sized each other up....I got a little over confident and led with my chin..... Was rocked.... Manged to hang on using the old"rope a dope"... Saved by the bell... This cancer dude is a little tougher than I thought..... 2 rounds to go.... Won't lead with my chin again
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What can I eat at this point?
Hi everyone, I need some advice, I've gotten my throat dilated out to 9 mm and the doc said I could start eating soft foods. Problem is he couldn't or wouldn't give me any guidance as to what that would be. Has anybody else been at this point? What would anyone suggest that I start eating. I'm afraid to go too fast too…
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Evoxac or salagen for dry mouth?
My doc has prescribed evoxac for dry mouth but i am hesitant to take it becuase of potential dry mouth. I read some old threads here and some folks had good results and some did not. Any opinion on this? Thanks, Sam
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advice needed
Monday is Jim's CT. We are debating on canceling it and going to our local cancer center for second opinion on the lung cancer. We are now an hour away from the original oncologist and the drive makes Jim super stressed. Jim original decided to not recieve any further treatment (erbatox being the only option) because he…
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Say a little prayer please
Hi everyone, My cousin is in for surgery this am for lung mets. Her dx is not H/N but to me it's all cancer. Also her Mom, my Fathers sister just finished up rads on her lung tumors. And my brother goes in for a biopsy on a tumor in his chest. I hate, hate, hate, hate cancer and the effects it has on EVERYONES family's.…
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FIRST FOLLOWUP APPT WITH ENT SINCE TREATMENT
Went to see my ENT today for first visit since completing treatment. He said everything looks good, throat and tongue still swollen but improving. Said he didn't see anything abnormal or feel anything so he was happy. Of course so was I. See him again in 3 months. See the radiation oncologist Sept 11th and will have pet…
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DONE!!!
THIS JUST IN!!! Met with chemo doc today. Had an in depth discussion and did the math regarding how many mg of chemo I've received. End result... I'm done with the chemo!!! He said I've already received more than the dosage which has proven to be effective and since my radiation is complete, there's really no compelling…
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First PET after treatment
I had my first PET scan after treatment yesterday, and got the results today. There are a few "hot spots" where I had radiation, but no sign of cancer. My doctor called it "a clean scan." Thanks again to everyone here. This would have been SO MUCH harder without you guys! I know it's the first scan of many but it's a great…
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PET Scan
It's that time again, how these 3 months fly by, next PET/CT is scheduled for Sept 4th. After a clean PET in March, a clean PET in June, and my persistance all along with ENT, ONCO & RAD Dr's to find out the small spot on the left side of the tongue was scc, but too small for the pet to pick up,and not related to the…
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ACID Vs ALKALINE
While there is always argument over veracity of whether our body pH state (Acid/Alkaline) affects our health, this post is to find if anyone has tested themselves and also monitored change. I was told for many years I was very 'acidic' i.e my bodies pH was very low 5.0 to 6.0. Neutral is 7.0 so above 7.0 is Alkaline and…
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Just Checking in Chemo and Radation completed!!!!!!!
hi everybody i have finished my treatments as of July 27 it was a rough road but at least there is light at the end of the tunnel i'm back to working out in the morning and taking a 2 mile walk with my son ie he gets pushed in the stroller i'm trying to eat by mouth may not taste the best but i really don't like the…
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NED!
Robert got his first clean Pet Scan results from Sloan Kettering in Manhattan today! It is 7 months to the day from his diagnosis. We are so relieved to have some breathing room. This passed week was agony waiting for results. Now it is time to celebrate!
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Wish me luck
Tomorrow is my 9 1/2 month check up and scope...I'm wondering if He'll order a scan, haven't had one yet, I have complete trust in my Dr Carrau and His team. Still having feeling of something in my throat, don't know if it's mucus, but unable to cough it out~~~ Thanks all for always being here for me
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Best treatment for Epiglottis Cancer
Hello Everyone, My father was recently diagnosed with cancer of the epiglottis. The doctors are saying that he has stage 1 cancer, but could go up to stage 3 if they find lymph nodes infected. The doctors are currently suggesting surgery, but people I spoke with are saying we should go for radiation. The doctors are saying…
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7 long wks-over
Wife finished her last radiation yesterday and chemo past Monday. Glad it's over but the last week has been the roughest she has faced. I feel fortunate to be among the living --I hid the dangerous weapons. Mouth sores/mucous seem to be major culprits along with some pain. On fentenyl low dose (12) with a hydrocodene boost…
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1 year out and my husbans is still ned
Yippy!!! He went for his scope yesterday. He is one year out and still NED.. He has other problems going on, but with the steroids he is feeling much better.