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FIRST FOLLOW UP WITH RADIATION ONCOLOGIST SINCE TREATMENT ENDED
Went to the doctor today for my 1st followup since ending radiation and chemo. He said I was doing great. Didn't scope me but looked in my mouth and throat and felt my neck and said everything looked and felt good. Get my feeding tube out next Wednesday since I haven't used it in 2 weeks and have maintained my weight. Pet…
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Possible New Cancer and/or Metastasis !!??
Hello all, I am totally freaking out. Over the last three weeks lumps started forming under my skin. The first one was under my scalp and a nurse told me that it was an ingrown hair and to apply a warm cloth to help. Then one showed up just to the left of my belly button. then one under my left breast. I alerted my…
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OHIO HERE WE COME
Hi everybody me and my family are taking a much needed vacation to NorthField Ohio we fly out today there be time spent at the club which will include a clam bake yummy,some ski shooting,the zoo and whatever else we can find to do my uncle is a 33 year survivor of vastecular,testecular,lymphoma cancer at the age of 22 he…
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Thought I'd add to the NED posts!
I switched ENTs. I was really unhappy with the one I've been seeing. I am so happy with my new Dr! He was really well versed in my type of cancer(ACC) and he wanted to have an MRI done ASAP b/c I had never had one and my cancer tends to spread along nerves. Spent over an hour in the tube because the MRI was for my brain…
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NED!!!
Jason had his first PET scan post treatment for oropharyngeal scc last Thursday and got the results today. His doc said the cancer is gone! Such a relief. The treatment was ROUGH, as you all know, and it's amazing to come out of it clear of cancer. Follow up scan in 6 months.
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SMALL PORTIONS
I am 5 weeks out now and have been fortunate to be able to eat without to much of an issue. Although I have not tested many of the foods I ate before being dx with cancer and treatments the ones I have are ok. My question is how long did it take to eat a full portion/plate of food. I used to eat a full plate of food and…
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another NED
I am six months out from finishing radiation and had my second CT Skan. It was NED....all looks good. The 3 lymph nodes on the left side of my neck have gone from 12mm to 7mm. They are no longer larger the normal. They are shrinking and they suspect all that is left is scar tissue. I am feeling great. I feel like I am…
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Crazy hospital
Well David is supposed to have his surgery tomorrow using the Davinci robot. The problem is they told us we would get a call this evening to tell us when we need to be at the hospital and where we need to go tomorrow. OK it is 10:30 and they have not called us. I am concerned that maybe he isn't on the schedule after all.…
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CSN ~ What It Means To Me.....Share Your Story
I've been thinking about this lately, and myself and some close survivor/caregiver friends have been discussing these same things. What CSN Means To Me CSN is a place that I find comfort in... I can vent, I can share, I can throw out things in my life that are cancer related, survivor related, or just life after…
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NED (and: a song for all y'all)
Had another PET/CT scan result today. As with all the others (with the exception of an initial false positive confirmed as such by biopsy) it was NED (oddly, none of my actual reports have ever used "no evidence of disease," but it's the accepted shorthand here), thank heavens. While en route to the doc office, in the…
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How long did it take to eat spicy food
I am 9 weeks post rad and can taste most things ( sweet is less) but cannot handle even 1% spicy. Anything spicy really burns my tongue. Flouride stings too. How long will flouride sting and how long for spicy food. I know everyone will be differnt but just looking for some examples so i know what to expect. Thanks, Sam
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Esophagus problems
I just had my 10th treatment of 2 GY and am having a big problem with my esophagus swallowing food. They gave me a med for taking just before eating and this helps a little. Not enough. I have had Gerd for 40 years and worry that this treatment will cause cancer or Barretts in my esophagus. I have no sores or breaks in my…
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Davinci surgery Thursday
My husband goes in to have the primary cancer, which was found on the right side of the base of his tongue removed using the Davinci robot on Thursday and to get the feeding tube placed. We have been anxiously awaiting getting started, now I have to admit it is all getting so real. I guess it is time to saddle up and be…
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jaw replacement: bone alternatives
Hi There, My father was diagnoised with oral cancer 4 1/2 yrs ago and he underwent lower jaw replacement surgery (where a bone from the leg was removed and fitted in lower jaw) followed by radiation theraphy. All his teeth were removed. He then had a few plastic surgeries in an attempt to get dentures. That failed, and it…
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My Voice Saga
Visited my voice therapist yesterday, and she got my voice prosthesis working again. For those that do not know: I've had my voice box removed and had a tracheal-esophogeal puncture (TEP) at the time. A one-way valve is fitted so when I cover my stoma (hole in the neck) air is forced into the esophagus, which vibrates to…
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I'm praying NED come November ?
First and foremost thanks for all the prayers ! I am soooo relieved I switched clinics and now have an onc, that knows and works with my dx. He won't say for positive until my next PET in November but is leaning towards no evidence of disease. My dx will return eventually, (no clear margins, and perineural invasion) and he…
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Pain medications can be a pain. An update
I apologize for the delay in my updates but it’s been rough It all started with last week’s infection had doubled my throat pain. so I increased my pain medication, when the pain subsided i simply quit taking my oxy, which threw me into almost a weeks worth of withdrawal symptoms i didn’t realize that stopping my…
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Swallowing
I finished my last radiology treatment April 12th (squanamous cell base of tongue, surgery removing cancerous lesion, both tonsils, and 4 lymph nodes,then 35 rad and 7 chemo). Since then I've gone thru 2 sessions (15 treatments each) of Vital Stem Therapy and still having trouble swallowing anything with any texture other…
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Long time no write! Have a question about a problem...
Hey gang! BFD here and while I haven't posted in a few months, I guess that's kind of a good thing. My "success story" continues. In remission and NED for 20 months now, approaching the 2-year mark, and that's good. Fibrosis down around 90%, L'Hermittes gone, range of motion back to normal thanks to my great chiropractor.…
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Lymphedema
My mom was recently diagnosed with lymphedema. She's currently doing neck therapy which seems to be helping with some of the symptoms. Has anyone else experienced lymphedema after treatment?
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9-11
Please take a moment today and say a prayer for all of those who lost their lives on this day...blessing to them,their families and loved ones left behind to deal with the devistating loss.
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CT SCAN DONE
hey everybody i had my ct scan done on Thursday and they said that there is some residual scar tissue left and they are thinking that's all it is but will not know till i get pet scan done which will be Oct 24 i guess this is normally the case when your getting radiation i just wasn't sure if i need to be worried or not…
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We are off to the Paralympics woo hoo
Just thought I'd post a feel good. We're off to Europe on Friday and making our way to London to watch our son race at the Paralympics. His name is brad scott (representing Australia ). He's racing in the. T37 800 and 1500m. I know how patriotic all you Americans are but give a little cheer for him. He won silver in…
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Second opinion Tomorrow afternoon
Hi group, Well will be heading to Mpls., late morning. My appt, isn't til 2 at the Masonic. And I still feel pretty much like doo-doo. Was given meds for it...but yeah not working. They didn't do alot of testing on me at my primary (local) dr., but the ones they did came back all good. Were thinking I'd be poked and…
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False positive on PT scan????
I had SCC in 2006 (left side of neck-tonsil)and again in January of this year(right side of neck-base of tongue)....went through chemo and radiation and finished 4 months ago.....now i have developed a hard lump on left side that has been there for a month....had a PT scan and now they say I have a hot spot on scan and…
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17 Rads Down...13 to go
Hello all, I am sorry I have been away for awhile but I had some complications and lumps were found near my belly button and up near my left breast. I have to go into the hospital again tomorrow for a bit of a stay and more test. I have been struggling with the radiation. I am in more pain than i ever thought. I am not…
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treatable and cureable
One year ago the doctors told my wife and I that my cancer was not cureable but treatable. Theysaid my cancer was too far advanced and had spread to other parts of my body--Lungs to neck and tounge.It was stage 4 and crossed center line to both nodes. Treament was 8 chemo and 36 rads on lungs and 36 rads to neck. I was 76…
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New Kid on the Block with Squamous T1 & more questions than answers....
I'm a newly diagnosed Squamous Cell, base of the tongue, T1 with uptake in the lymph nodes of one side. I've just had my first round of meetings with doc's (surgeon, Oncologist, Radio) and am really not sure what to do. I've been accepted as a patient at MD Anderson in Houston so I will be traveling down there next week to…
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Wishing he didn't hurt so much
I haven't kissed my husband passionately since he had the first surgery to remove what we were told would be a bronchial cleft cyst on July 26. I really miss his physicality in our relationship. I forgot today and hugged him and was going to give him a peck on the cheek and then he stiffened up and grimaced in pain. I…
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Still not healing and completed treatment in December.
My husband completed his treatment for HPV+ tonsil concer w/spread to lymph nodes December 14th 2011. Treatment plan included removal of both tonsils, 7 weeks of radiation and 2 chemo sessions. He had a clean pet scan in April and was feeling pretty good. At the end of April his voice changed and throat was hurting. They…