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Lymphedema
My mom was recently diagnosed with lymphedema. She's currently doing neck therapy which seems to be helping with some of the symptoms. Has anyone else experienced lymphedema after treatment?
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9-11
Please take a moment today and say a prayer for all of those who lost their lives on this day...blessing to them,their families and loved ones left behind to deal with the devistating loss.
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CT SCAN DONE
hey everybody i had my ct scan done on Thursday and they said that there is some residual scar tissue left and they are thinking that's all it is but will not know till i get pet scan done which will be Oct 24 i guess this is normally the case when your getting radiation i just wasn't sure if i need to be worried or not…
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We are off to the Paralympics woo hoo
Just thought I'd post a feel good. We're off to Europe on Friday and making our way to London to watch our son race at the Paralympics. His name is brad scott (representing Australia ). He's racing in the. T37 800 and 1500m. I know how patriotic all you Americans are but give a little cheer for him. He won silver in…
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Second opinion Tomorrow afternoon
Hi group, Well will be heading to Mpls., late morning. My appt, isn't til 2 at the Masonic. And I still feel pretty much like doo-doo. Was given meds for it...but yeah not working. They didn't do alot of testing on me at my primary (local) dr., but the ones they did came back all good. Were thinking I'd be poked and…
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False positive on PT scan????
I had SCC in 2006 (left side of neck-tonsil)and again in January of this year(right side of neck-base of tongue)....went through chemo and radiation and finished 4 months ago.....now i have developed a hard lump on left side that has been there for a month....had a PT scan and now they say I have a hot spot on scan and…
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17 Rads Down...13 to go
Hello all, I am sorry I have been away for awhile but I had some complications and lumps were found near my belly button and up near my left breast. I have to go into the hospital again tomorrow for a bit of a stay and more test. I have been struggling with the radiation. I am in more pain than i ever thought. I am not…
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treatable and cureable
One year ago the doctors told my wife and I that my cancer was not cureable but treatable. Theysaid my cancer was too far advanced and had spread to other parts of my body--Lungs to neck and tounge.It was stage 4 and crossed center line to both nodes. Treament was 8 chemo and 36 rads on lungs and 36 rads to neck. I was 76…
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New Kid on the Block with Squamous T1 & more questions than answers....
I'm a newly diagnosed Squamous Cell, base of the tongue, T1 with uptake in the lymph nodes of one side. I've just had my first round of meetings with doc's (surgeon, Oncologist, Radio) and am really not sure what to do. I've been accepted as a patient at MD Anderson in Houston so I will be traveling down there next week to…
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Wishing he didn't hurt so much
I haven't kissed my husband passionately since he had the first surgery to remove what we were told would be a bronchial cleft cyst on July 26. I really miss his physicality in our relationship. I forgot today and hugged him and was going to give him a peck on the cheek and then he stiffened up and grimaced in pain. I…
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Still not healing and completed treatment in December.
My husband completed his treatment for HPV+ tonsil concer w/spread to lymph nodes December 14th 2011. Treatment plan included removal of both tonsils, 7 weeks of radiation and 2 chemo sessions. He had a clean pet scan in April and was feeling pretty good. At the end of April his voice changed and throat was hurting. They…
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To all my friends, NED again !!!!!
Hi Everyone Just wanted all of my CSN friends to know that I am now 2.5 years out and am NED once again on my recent PET scan. I am happy as H*LL. We all have that shoe waiting to drop feeling, don't we? This was probably the best NED, since the first one, as I was beginning to wonder about a recurrence,(that other shoe.)…
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The end of treatment is just around the corner
Hello everyone! I decided to post a little update about my dad's treatment. To summarize again: He is SCC Base of tongue, stage 4. His treatment plan was 35 rads and 7 weekly Cisplatin chemo. Well, treatment is coming to the end, only 5 more rads and 1 chemo!!! Oh, I'm soooooooo glad that soon it will be over. He is having…
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Just researching...Cancer in the lining of the cheeks?
Just curious if you can actually get cancer in the cheeks of your mouth and what it looks like? What are the direct symptons and signs?
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Grouper - From Tampa Bay
Oooops, sorry the just caught grouper didn't make the photo... Grouper Nuggets But the nuggets did.... Here's to my fishing buds....Greg, Hondo, Matt, Pat, Dan, Tuff, AllMost60, Katie, VickieSam, Sea6, BoardwalkGirl....and many more... Oh, and Ditto John
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Long-term radiation damage for throat cancer
Hi everyone, this is a follow up to my first threaed "Squamous Cell Carcinoma - brother in law who is mentally handicapped diagnosed." I haven't posted much since joining because thing shave been a whirl wind of activity. We found out that Bobbie's cancer has spread further down his throat to right above his lungs. They…
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Pain management question
So as some know my husband is diagnosed with Stage IV base of the tongue cancer. He is going in on September 13 to have surgery using the davinci robot. He hates taking pain meds so my question is what pain management strategies have you used. He will start chemo/radiation in 4-6 weeks and may have a neck dissection if…
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Help needed
My husband was diagnosed with esophageal cancer at the cervical of his espohagus. This was after being treated for laryngeal cancer(laryngectomy and throat reconstruction 3/2011). He was told that due to the location of the tumor that surgery would be very hard due to his previous radiation and surgery. He has since…
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First meeting for me in support group !
Hello everyone ! It won't be til Oct. 1st...but living in a small rural community they have one 3x's a year. I asked if there was anything I could bring...we women around here like baking or at least always think we need to bring something to contribute. The little gal said yes, good information and good topics. This is…
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PET SCAN COULD HAVE BEEN MUCH WORSE, BUT IS NOT GOOD
I had my PET earlier today, and of course it came back worse than I had hoped, but no uptake in my Liver or other soft vascular organs in my abdomen. As expected I had uptake in the 3 nodules in my right lower lobe, and also had uptake in a Lymph Node in the Subcarinal and Right Hilar area. A Transbronchial procedure is…
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Another PET
It seems since I started my journey with the beast we all know that time seems to pass so quickly for me. Tomorrow I will be going for my 3rd PET scan since completing tx last December..I don't know where the time went since the one I had in June. Is it because I'm living my new but different life , does anyone else have…
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Here's lookin at you, kid... sort of
Ah, radiation and chemo; the gifts that keep on giving. My ophthalmologist told me Friday that I have 'radiation-induced' cataracts... After a peek at the eyes, he noted that my cancer had most likely been base-of-tongue (correct) and he was seeing the result of radiation scatter. I was a stage 4, with multiple lymph node…
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Honey I shrunk the food
Tonight went with Diane and family to local Pub, 1st time I have been in a food establishment since I started treatment in May. I ate a portion of a baked potato and about a 1/4 of Dianes hamburger, and 1 fried pickle and lots of water. Taste was not 100% but not zero either. I post this that there is the other side and to…
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FIRST CT SCAN TOMORROW
Hi everybody well tomorrow will be my first CT scan since treatment i'm not going to lie i'm pretty nervous they said if i get a good clean ct scan the pet should be clean as well i'm sure they will be doing the scope i hate that thing well please keep me in your prayers i feel like i'm starting to get back to normal.Thank…
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Sad this mornig.
I know this is a little off topic but I just had to write this. Yesterday we had our beloved dog "Shandy" a soft coated wheaten terrier put to sleep, she was only 10years old. The past week or so she had not been eating and all she did was throw up and lost weight, , Vet gave nausia meds, no good so we did blood work…
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Blood panel and probably IV fluids again...grrrr !
Hey everyone, Have been fighting with myself on this one for 6 wks. Since rads back in Feb., my body has gone in what I deemed cycles. Feel really wonderful for 3 days and down for 3. Was told to get use to the new me. Thought o.k. But now my internal self...the one we don't realize kicks our butts outta the clear blue has…
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Sweetblood
Sent you an email, CSN.
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MILESTONES ARE GOOD
Hi everybody! For 2 days I've exceeded 1200 calories by mouth with no cans going into the feeding tube! Tonight we went to Steak n SHake after the movie and I actually ate a Frisco Melt. I can hardly believe it. The milkshake hurt my throat but the sandwich was fine. Taste still not 100% but I'm very thankful that I have…
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Need oppinion-biopsy now, later or never???????
I have now been physically examined and scoped by my ENT, Radoncologist and surgeaon. None of them can see anything abnormal in my mouth, throat, tongue etc.however a small spot that came up hot on my PET has the tumor board concerned. They gave me a choice: 1) monitor the spot with another PET in 3 months or 2) biopsy…
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radiation - how much should be given
I had a lump behind my ear and it was SCC from a skin cancer that was not taken care of by my dermatologist. I had a fna, pet scan and surgery to remove the lymph node attahed to the parotid that had the scc in it. Surgeon also removed one more node that looked bad and a little section of skin where it all started. Surgeon…