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Words don't come easily anymore
Hey everyone ! Was just pondering if anyone else is having this issue ? I have been having issues during a coarse of a normal conversation, when a normal every day word eludes me. Can't even find a word that will replace it....kinda like a HUGE brain fart ! Or I'll say something I think is right....and everyone looks at me…
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3.5 week update
things are moving right along. i'm still using the PEG but i sense a bit of taste returning. last night at my arents house i took some tiny bites of pork roast and mashed potatoes with gravy. the gravy didn't thrill me because anything with fat in it feels really gross in my mouth but the meat was actually tasty. not the…
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Got my fiducials done for Cyber Knife - 24Karat Gold!
Wish I could do a "reply all" to the post I did last week about Cyber Knife http://csn.cancer.org/node/244921. (Ick I hate that they have "node" in their URL/web address). I tried to reach out to each and everyone of you that sent good thoughts my way but I didn't think this was an option on this site. Apologize if I…
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Help me with my father's terminal Head and Neck cancer please
It's a very long story, but I am now taking care of my father who is in the terminal stage of Head and Neck cancer. He's about to be released from oncology and we had our first appointment with the palliative doctor last Thursday and he was no help. My dad hasn't been eating for some time, he gets his nutrition though a…
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2 week rollercoaster
TWell after 7 relatively quiet radiation weeks things changed drastically. Last 2 days of rads and next few wife unable to handle her ensure and even water. Got severely dehydrated and lost 7 lbs. On Monday appt with oncologist she recommended a feeding tube. Started fluids that night and was admitted. Procedure for peg on…
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Squamous Cell Carcinoma - brother in law who is mentally handicapped diagnosed
Hi, my brother in law was just diagnosed with Squamous Cell Carcinoma, stage 4. He is 52 and mentally disabled---it is hard because he is highly functioning so often we aren't quite sure how much he is actually grasping. At times he seems totally in tune with us, but then he will say something like "I gargled with salt…
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1 week out
Still doing ok, neck burn coming along, got good responses on my Im on Fire Blog. Hopefully another week or two and it may be in my rearview mirror. Eating ok can swallow, I was a No Pegger so all goes via the mouth. Not to bad but for now it feels like a little wad of something just sitting at the base of the thoart,…
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Thank you for the link for the most asked questions feeds H/N
I've been trying to find the link for awhile ! But always just got an amazing amount of listings on everything ! Had my link turned off some how...but fixed now and WOW...great work on this one ! You're amazing ! I will definately point people to this site and also refer to it myself ! I had to move my second opinion to…
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Im on fire
I tried to look at old post did not find a discussion on RAD Neck Burns so I apologize if its there. Since my last RAD on Friday my neck has been to say the least likely a 2nd degree burn, serious sun burn what ever it hurts and Im hoping to find out if someone can give me suggestions. Matt I will be getting the Silver…
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Are we Infecting our Love ones with Radiation?
Very Interesting story I found about Cancer Patients and Radioactive iodine WASHINGTON (AP) — Cancer patients sent home after treatment with radioactive iodine have contaminated hotel rooms and set off alarms on public transportation, a congressional investigation has found.…
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newby w/ undifferentiated sarcoma of the tongue
Hello, as the subject says... I'm new here. I'm a 24 year old white male with sarcoma of the tongue. They're not sure what kind. I've gone thru chemotherapy (5 - three week cycles) and radiation (35 treatments) with less than spectacular results and now it's come time for surgery. I'll be posting about my recovery via…
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Travel
Sitting in sky harbor / Phoenix taking a "red eye" to hot-lanta then to Aruba. Meeting my kiddos there can't wait to see the hats my granddaughter picked out for me to wear ... All I'm told is they are big and colorful. Life is good today...
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Parotid Gland Cancer Stage 4-2nd opinion
Hi, My husband has been diagnosed with Parotid Gland Cancer that they are saying it has spread to his lungs. We are looking for 3rd opinion because our Kaiser Doc and 2nd opinion USC Dr. Sinha are saying different things. We are waiting for a biopsy of the lungs to make sure it has indeed spread or is a different cancer or…
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Happy update: Cancer free + Wedding day success
I finished my treatment for cancer in the left parotid gland and some lymph nodes on 06/22/12. The first week and a half after was horrible. But after that, each day was better. I was so scared that I would be able to make it to my wedding day. I was able to have a wonderful wedding on August 11, 2012!!! My health was…
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9 weeks out tomorrow
I will be 9weeks post rads tomorrow and 11 weeks post erbitux. I was feeling pretty good, of course I'd tire easily and my throat is still sore. No peg anymore so eating is all done by mouth. All along I've noticed a little cough and assumed it was all part of the healing. Then 2 days ago I started feeling really achy,…
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My cancer is back - Cyber Knife is the new treatment
I am soooooooooooo happy for all those who recently posted their NED (clean scan or No Evidence of Disease). Can't get enough of those! Unfortunately my scan in July showed an 8mm mass on my left lung. Treatment Background: I've had radiation last summer, 2 chemos and three surgeries (including removing 30% of my right…
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Putting things in perspective
Although it is not my habit to post a lot about my follow-up, I had my six month post rads exam yesterday. Thusfar, all is negative. I was reflecting on this on the long drive home from St Louis, and again the obvious occured to me. For those who dont know my background, I was treated with radiation for BOT cancer in 1998,…
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Mets??
I finished my second radiation 4 months ago for recurrence nasal and orbital cancer. Started having fluid around the right lung..plueral effusion. They drained me and 2 weeks later the effusion was back in my lungs. They did an X ray..it was fine. Then they did a ct which shows nodular lesions and asseliates. Today they…
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New battle plan.. Need some advice
Ladies and gentleman....... Need some advice, after a profound response to one of my post I realized he was exactly right.... "the fight is not against the cancer it's against the treatment..... So far my biggest problem with the "chemo cocktail" is my ability to stay fueled up ...missed several days of work because I was…
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Is it shrinking tumor?
My husband was diagnosed NPCA stage 3. After 4 days of radiation he spit out bloody mucus with some sort of flesh on it. I dont know what to do because blood came out from his nose for about five minutes. Anyone have experience this? Im so nervous about his condition. Thanks, Mitch16
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A Loved One ~ Melissa Gail
Another side of me....the Father I just wanted to share with you a very special girl of mine.... My lovely daughter Melissa Gail... Hard to believe an old crusty Marine could have part in the making of such a beautiful person.... Melissa Gail She's my love.... ~John
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I am surprised at how long I have been off work!
I had my tonsil surgery on May 30, radical neck disection at the same time. i figured I would be back to work the last of Aug., instead I am just on my 17th rad. I still have 16 more rads and 1, 6 hour chemo. From what I have heard it will still be good while before anyone returns to work even after all treatments stop.
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OK ~ PET ~ Now It's Official
OK, thanks to all for your thoughts, prayers and concerns. This afternoon around 2:00PM, I did pick up the results from my PET scan I had yesterday morning. This was my 4th post Tx PET scan since finishing up treatment in June 2009. So far I can't really say the scanxiety gets much better...well I'm sure my first few were…
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5 Rads Down...
Hello my fellow warriors, I am now through the first 'week' of radiation and all I can say is, WOW. All of you that have come THIS far, you are my heros and you will give me strength to make it through the next 5 weeks, cause there is NOTHING fun about this at all. Knowing that it really only gets worse too, does not make…
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2 WEEK POST RAD CHECK IN
Heres where I'm at: - vision seems to have cleared up - energy level a little better. Made it through a tile buying excursion to home depot without needing a nap when I came home. - lemon sized lymph node is down to size of a pecan. Still a little nervous. - seems to be an increase in watery saliva. Less foamy and I can…
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Muscle Spasms
Hi all. I am now about 6 weeks post-op and starting my first week of Radiation. In the last week or so, I have been experiencing muscle spasms that will result in my arm or leg tossing itself out of a resting position. Very weird? I also have been getting cramping in my muscles around the heel up to my calf...very similar…
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Still kickin!!!
Hello everyone! I haven't been on here for a very long time, which is good because that means I've been busy living again! Just a quick refresher: I was diagnosed with Metastatic Squamos Neck Cancer with Occult Primary in my right tonsil which had spread to all of my right lymph nodes and my left tonsil on December 1st,…
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Infusion port troubles
Here's something that I've not seen posted to these boards. I have an infusion port that developed a clot in my jugular vein. I've been prescribed an inject-able anti coagulant, two self administered shots a day for two weeks and then 6 months on anti coagulant pills. I was not told that clots could be a complication and…
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Saliva question
Hello All, I have a question for anyone who can answer. I am 8 weeks out today from my last rad. Up until a few days ago I had very little saliva but my mouth wasn't desert dry like it sometimes is in the morning. A few days ago I started feeling super dry. For instance I couldn't even moisten the seal on an envelope by…
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PEG QUESTION
I ve been having problems with my PEG, nothing serious just annoying, everything I eat seems to wind up in the tube, is there supposed to be clamp? Seems like that would make a difference.