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Does anyone know?
I just wanted to make sure that tongue cancer is part of the head and neck cancer? That cancer ribbon is burgundy and ivory or white correct? How has everyone been doing? I have been doing great! Feeling blessed and praying for you all each and every night.
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2 more days
of radiation. Finished Chemo last week. So let the healing begin. It has been a long ride and we are ready to get off. I know the ride will continue for a while, but maybe not so bumpy. lol We have an appt. with our EMT on Friday. Hopefully we will get some good news. He will be scoped again then. We are trying to eat by…
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Where do I start....
Well first off I love this site and I'm so glad I found it about 10weeks ago when I finished rads. I wished I'd found it sooner. So here I am 10 weeks out from rads, 12 weeks out from Erbitux for SCC IV larynx HPV negative. I see my ENT on Friday and should get a schedule for my first PET post treatment. Here's my concern…
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Ups and Downs
I am having trouble with all the emotions I am feeling concerning my husband's cancer. Some days I feel good and hopeful and other days like yesterday I feel so helpless. How have other caregivers and survivors dealt with this issue. It is still so new and the fear of the unknown is even making it worse. I know there are…
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SoccerFreaks ~ Skiffin16 - Going At It Head2Head...
Well, actually we were more shoulder to shoulder, LOL... SoccerFreaks & Skiffin16 - Going At It Head2Head... I met Joe and his lovely wife Corrine recently...awesome and geniune people. I'm very honored to have met them, and have that experience in my memory banks. Cheers, John
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Mouth has a funky
feel to it, its not painful just icky (medical term?) 3 weeks out now, still a red neck but with no pain. Maybe getting Erbitux revenge since Im getting something that looks to be a rash and pimple combination. But its this nasty taste in mouth or what feels like pudding mouth ?? just scum on sides. I brush daily and…
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Severe Edema...developed lumps on my neck...anybody experience this?
I had a Stage 2 tonsil tumor in 2006 on the left side of my neck and just got radiation....experienced severe post rad pain for 6 to 8 months...had a new Stage 4 tumor in January of this year on the other side of my neck...got radiation/chemo.....now 4 months post treatment and have a large lump on my throat and very…
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Total Laryngectomey
Just wanted to check in. Had a total laryngectomy for the return of cancer on Nov 18. Was in hospital for a week and have been home now for a week. Eyesight acuity is shot; hard to focus on anything, even with large fonts. Using nasal-gastric tube. It takes all day for my wife and I to get thru all the medications and…
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Buzz has lost his battle
Buzz passed away August 19, at home. I was at his side. His tongue cancer recurred in May and despite palliative chemo, the cancer still grew. He was placed on Hospice a month ago. I want to thank everyone on the forum who helped me through the difficult times during his treatment and illnesses. God bless you all. Karen
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Another Peg Tube Question:
I have the long peg tube type with a clamp and it works very well except the skin under where the tube goes in is always raw looking, it bleeds sometimes and hurts but there are no infections. I showed this to the GI doctor and he said it is normal, it just don’t seam right to me. Is it normal to have raw looking skin that…
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Numoisyn™ Lozenges
Has anyone tried this? Looks pretty good. I am going to ask my doc after long week end. Thanks, Sam
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What to do???grrrrr
Woke up this morning (that's a plus ) neck is swollen a lot where nodes were removed, feels extremely tight, no pain...I'm 10 months out from surgery that removed my epiglottis, should this be going down, not reballooning up?( will deal with this Tuesday) Feel like Macy's Thanksgiving Day Parade balloon(minus) Have a great…
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Neck massage therapy
I read about neck massage therapy here and inquired to my ONC. I had my 1st 40 minute massage this morning and it was delightful. My neck is not nearly as tight or swollen and I actually feel like my speech is better. Insurance is covering it. Thanks to whoever posted about it.
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Cholesterol/sugar worry with extra calorie diet
Since we are taking extra calories which at times comes as fat or sugar, do we have to worry about cholesterol increase or blood sugar? I am taking so many extra calories but not able to gain any weight. I do have energy. Before treatment my cholesterol and sugar were border line, i am worried that i might increase it more…
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PET and Thyroid
Hi to all my good cyber friends here at CSN. After reading a lot of the posts today I almost didn't post this because so many are suffering with this disease and I'm not all that sick anymore. But then again, don't we all post PET results? On the way to my rad Onc's office I realized that I hadn't obsessed about this first…
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CHECKING IN
Hi everybody i'm going on 6 weeks out of treatment and everything is going pretty good swallowing is good and food taste pretty good not everything but most i started back working out very slowly and I've even been working on and off so i can't complain feeding tube was removed last week that wasn't too bad a lot easier…
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I Need Your Opinions
I'll try to make this short. My regular ENT found my tongue tumor and referred me to the best H&N surgeon in the city. He is the only one to use the TORS too so this was a no brainer. Here is the problem with him treating me. As far as a surgeon, he saved my life. Very skilled and takes his time. He did the partial tongue…
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Turkey Neck
I realize we all have been thru or are going thru some tough treatments and side effects. Recently I posted On Fire about neck burns. Made it thru the heavy pain but between my weight loss 30lbs and treatments I guess, I have this amazing turkey neck. Not sure what the term is for the portion of the turkeys neck that has…
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I'm new here. My mom is a neck cancer survivor.
Hi everyone. I'm new here. My name is Erica. My mom was diagnosed with neck cancer earlier this year and just finished up her 35 rounds of radiation about 4 weeks ago. She also had 2 rounds of chemotherapy. This has been a very rough journey, made worse by my sister causing so much drama over things that aren't important.…
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Coping with the ups and downs and all the hurry up and waiting
I am curious how everyone handles the initial diagnosis and then the constant hurry up and waiting. I am having such a hard time with all of this. I guess some would say I'm a control freak, most would agree that I am a bit obsessive compulsive and most who know me would say that if you need something done well call me. So…
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Throat swelling starting to affect my breathing
My throat seems to be more swollen after each rad. sometimes I feel like my breathing is being affected. I have 11 more rads and 1 big chemo. It's hard to believe that this is happening to me, and I wonder if I will ever be back to a normal person with a normal life.
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ANYBODY TAKING SUPPLEMENTS?
HI EVERYBODY I'M ABOUT 5 WEEKS OUT OF TREATMENT AND I'M DOING PRETTY GOOD STILL HAVE A SORE THROAT BUT IT WILL PASS EVENTUALLY BUT MY QUESTION IS WHAT IS EVERYBODY TAKING TO HELP BUILD IMMUNE SYSTEM,I'M TAKING IP6 INNOSTOL,BETA GLUCAN,AND MILK THISTLE THIS IS WHAT A HOMEOPATHIC DOCTOR RECOMMENDED TO ME ALSO I'M LOOKING AT…
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SuperThread....Now Always On Top...
I'm not sure if you have noticed..... I had asked Greta awhile back if there was away to pin or make the SuperThread stay on top of our posts in this forum. This would free up Dawn - Sweetblood22 of having to periodically bump it up every week or so, and I and/or others wouldn't neet to link to it anymore either. Now…
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Estuation tube problems
Anyone else have problems with their estuation tubes due to tumor or radiation therapy. There was a tumor or node that grew next to mine on the left side that closed the “E” tube and cause fluid build up in the ear. I had radiation to destroy the tumor and the radiation worked and fluid disappeared, but since than, my ear…
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Caregiver to newly diagnosed Stage IV base of the tongue cancer
I just want to say how thankful there is a site that I can go to to be around people who understand what my husband and I are going through. I married my husband in May of this year and he had what appeared to be a cleft cyst on the right side of his neck. He had a needle biopsy in October 2009 that came back inconclusive…
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Wedding Anniversary
Today is my wedding anniversary. A magic date for declaring love to a magical woman. The date 8/27/88. Which is: 2-cubed/3-cubed/2-cubed 2-cubed. For those who are mathematically challenged: 2-cubed is 2 X 2 X 2 = 8. 3-cubed is 3 X 3 X 3 = 27. We did not pick the date for its magical number. I think our Spirit Guides got…
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Last chemo tomorrow.....
...the last of treatment all together, actually!! Damn, I've been doing this chemo every three weeks since April 24, and I'm tired of it. Course I'm also nervous cuz the last two treatments have hated me so much...takes the 3 weeks to get a little better, and boom chemo day is upon me again. Also, having suffered the…
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Flounder Pounder - Fresh From The Salt
Those flounder I caught last week made for a good article in a local angler magazine; Flounder Pounder - Fresh From The Salt Also on my friends web site; Fresh From The Salt Hopes and prayers for all of my CSN Family to get awesome reports, and continue getting back to normal with the activities and people you love. I'm…
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enlightened denial
Hello friends! Even though I'm not reading posts daily, I think of you guys every single day, really. After finishing treatment I fell in a beautiful oblivion. I've been following up regularly with my docs and exploring my mouth and neck once a week to make sure that everything is alright, but apart from that I'm living as…
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One Week PosT Radiation
I am one week post radiation. I have oral mucositis real bad. Constant burning mucus in my mouth. The only thing I can eat is Insure. I am constantly rinceing with Baking Soda and Salt. I ordered a bottol of Ora Soothe to try. http://www.orasoothe.com/Home.html I hope it will give me some relief. I have tried to sip soda,…