-
Hypothyroidism: My newest development 1 yr 3 months post treatment
Not sure how long I have had this issue during or post treatment, but my ONC had my thyroid tested in December. Test results were not covered with me until this past Thursday when I had my yearly with my PCP and asked him if everything had turned out ok. Guess my counts were off on my TSH..normal between .36 -…
-
NMES THERAPY?
Hey guys, Lots of bad news on website this past week, humbled me yet again. Vivian and David, Chefdaddy, Wolfen just to name a few, my heart is heavy but my spirit is strong that God will bring peace and solace to all of those suffering, and remind all of us that Life is precious and never forget it! Prayer for everyone on…
-
nothing can be done!
Dear All i am typing this with tears, my dad cancer has replease and there no more chemo or drug for him now. i don know what will happen in future, i am scare and worry. the cancer has spread to his lung and liver and accordingly to the Doc, he will feel more weak, more bloated more yellow in future and could lead to…
-
Choices none I like
The doctor just came in and said the plasma cell leukemia is back. We have two oThe doctor just came in and said the plasma cell leukemia is back. We have two options go to hospice where David may have a few weeks. Do the radiation then go to hospice and he may have a little longer or do the radiation and the chemo which…
-
Seeking Info
I was diagnosed about two weeks ago with cancer of my voice box. I am in my second week of radiation and cannot swallow without great pain. Also, have developed mouth sores but they do not hurt. They are talking about putting a feeding tube in next week. Maybe I made the wrong decision when I told then no surgery???
-
Long term effects of radiation/ chemo
have been out of treatment for almost three months. Just had my first pet scan and it was negative. I had a partial neck dissection and removal of one lymph node under my jaw left side. My primary was diagnosed as occult primary, so they radiated everything in my head and neck and I had three chemo treatments of cisplatin.…
-
Hair Today... Coming Back Nicely...
Just a quick post for those going through treatment... Though I lost all...ALLL (if you get my drift) hair during chemo, and the famous back of the neck strip from rads... I just wanted to post an update that after nearly four years, my hair is coming back nicely....whatcha think... Oh and BTW.... It's Friday...., let the…
-
Submandibular salivary gland transfer
Does anyone have experience or information about submandibular salivary gland transfer procedure that is done prior to radiation to protect the salivary glands during treatment. The salivary glands are moved to a different location. Research studies found 83% of patients who received this procedure retained their salivary…
-
Smeller
I know that I am only a few weeks out of treatment but some things are different this time. The first time I had radiation, my nose ran for months after treatment, Kleenex everywhere. This time radiated higher, I think sinus was involved. I smell things that are not there and gag very easily and things that I liked before…
-
Guaifenesin
Recently, I've made a couple posts about Guaifenesin. It occurred to me that I may not have been clear on its use. It is used for breaking up chest congestion due to mucous. It's not to dry up sinuses or do anything with nasal congestion. Guaifenesin used to be a prescription drug that now can now be found in OTC…
-
Your follow-up schedule after tx...
Hi All, I was wondering if you each would mind telling me what your schedule of follow-up visits consisted of/and how often after tx. I know Kreg will be seen every 6-8 weeks with scope by his ENT, but he was unclear of his scan schedule, just that it was head to chest. I'm waiting to get some clarification on that and in…
-
new here
My name is mike I was diagnous with tounge cancer 5-16-12 , this last year has been just unbeleivible I went from being 216# able to lift weights to 159# . I have lost about 60% of my strenght. I used to live to eat now food is just something that is required to stay alive. I have been in remission for about 3 months and…
-
Scanxiety today....
scan tomorrow morning at 8:45....then probably two days wait to hear the results. I sure can get myself into a dither.... . Not so much thoughts rolling thru my head, but a knot in my gut that makes sleep, eating, even thinking clearly hard to do. Keep catching myself holding my breath, too....which makes me dizzy! The…
-
humor anyone
Well I am sitting in the hospital watching David sleep which he has done all day. I could use a chuckle if you could amuse me.
-
Such a hard night
I am having a very hard Night. David has been hallucinating on and off since 2:00 today. Then tonight when he was praying it started out fine and then his mind was somewhere else. I just started weeping. About that time the nurse came in. She is really worried about me. The nurse before her was worried about me and I am…
-
Medical insurance for dental care?
Someone here, some time ago, posted or responded to a post that they managed to get dental care covered by their medical insurer. I visited ENT Man (ToothDude was concerned about ulceration in the oral cave but ENT Man proclaimed it non-cancerous and probably long-term radiation effect) and he said that if I could get more…
-
First bilateral IDC, now SCC
I was diagnosed with bilateral breast cancer in Aug 2012. I finished my last round of chemo on Dec 10, 2012. Less then two weeks later a bump appears on my chin. I really thought it was just a blind pimple that was going to heal slowly due to my immune system being down from the chemo. It stayed the same for weeks then one…
-
Anyone have any suggestions for seeing eye doctor?
Tomorrow we are going to have our eyes checked. It's my yearly visit as I wear the glasses. And after having radiation so close to the eyes, I decided it wouldn't hurt to get Dan's checked. He's worn the cheaters from the drug store for reading before, but getting his eyes checked by an opthamologist can't hurt. Did anyone…
-
Lung MicroNodules - A Good Story
Here’s a story for those of you on the precipice vis a vis lung nodules identified in a CT scan. It’s a positive story of the kind I was scouring this board for over the weekend. Heaven knows that I’ve read anything touching on this subject over the weekend and collected anecdotes and timelines and found real hope and sage…
-
Radiaderm
Hi, Just wanted to know if anyone used radiaderm radiation relief system. If yes, is it a good product to use during radiation? Thanks, Jane.
-
Get my results tomorrow from my CT scan / swelling in neck
Hey all, I guess I had kind of the same thing civil Matt did recently. My neck below my ear has a bit of swelling, can't really call it a lump, but noticable puffy :) ...does not hurt, does not seem hard, but semi-hard and I had some ear pain, not continous but shooting pains off and on real sharp...but none the last few…
-
Do I have cancer or I had cancer?
Kenny and I were on our way home from the hospital yesterday. We found out that the Cancer had not spread, which they thougt it may have. But all test came back clean. Anyway, Kenny said he didn't know whether he should tell people when they ask if he has Cancer or if he had Cancer. What do you think? Cindy
-
Problems after two years NED
I feel bad, haven't been on here in sometime, but I have been a creeper checking out peoples posts. Now here I am humbly crawling back for advice. I recently celebrated two years NED. I had high grade MEC in my submandibular salivary gland. It was removed along with the floor of my left mouth with reconstruction. All nodes…
-
Great Scan Results
Hi Folks, Thought I'd drop in and say Hi and pass along some great and encouraging news (great for me and encouraging for those currently in treatment). This past weekend I had a clean PET/CT scan and check up. That puts me at 2 yrs and 7 months post treatment. I had been diagnosed with BOT Stage IV, underwent rads/chemo…
-
VERY BAD MUCUS PROBLUM
CAN ANYONE HELP ME IT’S BEEN 3 YEARY SENCE TREATMENT AND THE MUCUS IS WORSE IT WAKE’S ME UP IN THE MORNING CHOKING ME THEN I HAVE TO GET UP BLOWING MY NOSE AND MY NOSE RUNNING. MY CANCER DOCTOR TOLD ME TO TRY MUCINEX DM. BUT IT HAS NOT HELPED. ONE LADY SAID WAL-ACT FROM WALLMART DRIDED HER UP DOES SOMEONE KNOW OF ANYTHING…
-
ONE MORE THING TO SHARE FOR ANYONE STARTING OUT
I forgot to share this in my post yesterday but in my visit with my ENT yesterday, he was telling me how amazing the skin on my neck looks after having radiation. He said it is so smooth and soft, so many get thick and leathery. I used Aquaphor on my neck 3 times a day everyday from the 1st day of treatment until I started…
-
Last day of radiation
Tomorrow is my husband’s last day of radiation and he is done with all chemo and red. The last chemo hit him very hard lots of nausea and more mucus and lost nearly 7 pound in last 4 day. He can’t swallow anything since Monday. He will have pet scan after 3 months and hopefully he will be recover by then. We will be…
-
ChefDaddy... Son Mason has Passed...
Just wanted to pass a message from Dawn, that ChefDaddy Mike sent her last night... "We lost Mason Lloyd after a valiant brave battle at 8:55PM." Thoughts and prayers for Mike, his daughter and family.... It's been a long hard fought battle..., but now Mason is pain free and getting to enjoy a life he never had here on…
-
Cisplatin Fears
My husband is in the first six days of treatment for SCC of the larynx with cisplatin and radiation. He is down to 98 pounds and sleeps about 20 hours. He runs a fever every evening just at 99.5. He says everything tastes disgusting even water. He has another cisplatin treatment in 2weeks and radiation every day. We ahve…
-
Say Hello to Tackstrip!
I'm sure there's a better way to do this - - - I just dunno what it may be. Tackstrip's posting was at the bottom of an old thread - trying to start a Forum topic for Tackstrip. Here's tackstrip's post: VoiceNew Well its been almost 3 months since I last posted here. Made it through my Radiation Treatment. It got tough,…