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More bad news
I am not sure if any of you remember a young couple who posted here a few years ago. The Guy’s wife was having a recurring of NCP cancer for a second time and they were looking some advice. Well they did the second treatment of Chemo & Rad only to have the NPC come back 4 months later for a 3rd time. She did a lot of the…
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~ SweetBlood22 - Dawn - Out of Surgery - March 20 PM
SweetBlood22 - Dawn has had some issues for awhile... Just talked to her and unfortunately she has to do battle with the beast again. Not a recurrence, different issue, different area, but still SCC. From what I gather, surgery is on the agenda and if all works out after scans that could be it. If not, then additional…
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Anybody heard from?
Forgive me if I get their screen names wrong, but has anybody heard from Nick770 or BarefootBob? I know Nick was supposed to have a biopsy, but haven't seen him post anything. Also am curious how Bob is doing. If anybody ever wonders if your posts matter & people really care, trust me they do! I don't post as much as…
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Our New Journey finishes one course and starts another
2 days Post Treatment!!!! Hi All! The radiation and chemo treatments have come to an end HOORAY!!!!! The next course on our jouney has me on the road to recovery and healing from the side effects of the rads and chemo. The burns on my neck have started to heal and I no longer have to use the silverdean (I know that isn't…
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NED Is Still My Friend
Doc called me at 8:20 this morning to let me know everything is still clear. I have two modules in the lower part of my left lung but they have remained unchanged since Day 1 and show no indication of malignancy so I'm not going to worry about that. So far, so good!
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How To Reply To A Topic
Sorry for being so dense, but I can not figure out how to reply to a thread. I clicked on my first post and did not see anything on the bottom of the page like 'add reply' . Thanks for any help. Dennis
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Dad going to rehab
Dad should be going to in-patient rehab tomorrow. He is doing amazing. He already has about 50 percent use of his arm and leg again. So far no problems with his feeding tube. Thanks for all the prayers. Kathy
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Speech Therapy UPDATE!
Hello my friends, I am so excited to tell you all that at me swallow study today, I DID NOT ASPIRIATE anything! I closed my wind pupe, my muscles all worked and moved up. I still have a very slow swallow, so still keeping peg and no food or liquids yet, more therapy and exercising needed to strengthen my swallow. But there…
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Diagnosis: Tx, N2c, M0 squamous cell carcinoma metastatic to cervical lymph nodes on both sides wit
Thanks, everyone for being so helpful in response to my previous posts. I got my official diagnosis today: Tx, N2c, M0 squamous cell carcinoma metastatic to cervical lymph nodes on both sides, with unknown primary As I have posted before, the Mayo Clinic surgeon is recommending robotic surgery to remove the cancerous lymph…
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Technical Problems, No Response from CSN
I've had a "friend request" staring at me when I log on to the site since last week. When I try to click it an error message tells me it can't be linked, and if it persistst to contact for help. Sent email on Saturday, no response. Sent email on Tuesday, no response. What up with this?
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levothyroxine and psa levels
hi everyone i am a two year survivor of scc.just had a routine physical that included screening for prostate cancer. the psa nunbers came back very high 24 and 10 days later 41. i have been on levothyroxine therapy which has recently been increased. this leads to my question has anyone experienced elevated psa levels due…
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Life After Cancer ~ Fun Times
Again, I know and realize, been there, done that, cancer and treatment just plain sucks, totally not fun. But soon many of you will be doing the things you love, and it'll all be worth the pain and suffering you have, are and will suffer...; My wife doesn't care for fishing much, but she has a friend that likes it so I…
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Stupid question?
Hey Guys, Those of you that have feeding tube or had, and had to do it yourself... I get delivery of my Ensure once a month, I get food, syringes, and 2 bottles of Saline solution along with qauze bandges for the peg. Question is, WHAT THE HECK IS SALINE FOR? I have been flushing with 1 60cc of tap water, food, and than 3…
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Tube Out... Problems One Year Later???
It will be one year next month since my husband had his feeding tube removed. He continues to have stomach problems and projectile vomiting on a daily basis. Is this normal? Is this a permanent side effect? Please share your knowledge/experience with this.
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advice on tattoo post treatment
Hello Everyone, It has been a while since I posted. It will be a year that my husband Robert finished treatment on April 2nd. He has been thinking of getting a tattoo redone and would like to hear any advice or thoughts on the idea. Thanks, Denise
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Late effects to lungs - check!
Got a preliminary written report on my CT Thorax from my oncologist (still not the lung doc) which stated two conclusions of note: (1) Multiple nonspecific pulmonary nodules measuring up to 4 mm in the right upper lobe, and (2) Biapial ground glass opacities, likely representing postradiation change. First response -…
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Robotic surgery recommended
Today, I saw a Mayo head and neck cancer surgeon. Despite several MRIs, PET scans, and scope examinations of my oral cavities, they still have not found the primary site of the cancer. The only place it has shown up is in the lymph nodes, both sides. Their recommendation is robotic surgery where they would biopsy each…
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Newly diagnosed SCC in lymph nodes but primary source unknown- Should I get tonsillectomy biopsy?
Hi, everyone. I was just diagnosed with metastatic squamous cell carcinoma -- head and neck cancer. I am 59 yr old male in good health...not a smoker or heavy drinker. My lymph nodes on both sides are affected, but they could not identify a primary cancer site through MRI, PET scan or ENT exam. The ENT is recommending more…
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Finally a desicion from Social Security
Hey everyone, I have been waiting patiently since mid January for Social Security to make a decision, I expected that they would request that I be seen by their doctors(but no request came). I could log in everyday and check status and it always said "No decision, processing your medical information", well yesterday it…
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Donna B ~ To Radiate or Not To radiate...That's the Question...
Reposted for a first time poster,,, donna b Posts: 1 Joined: Mar 2013 Mar 18, 2013 - 1:07 pm This is my first time on this New This is my first time on this sight. My case is a bit different from those I've read, although similar enough for someone out there to help, I'm sure. In january, I had surgery for stage 1 tongue…
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Hearing Aids
I don’t know how many of you use hearing aids, but I been using them now for almost 9 years. This is my 3rd set I got a few weeks ago and by far the best one’s I ever had. I can hear so well that I can play my Guitar again because I can now hear the music. The ones I am now using is the ReSound Verso, if you want to hear…
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Less is a Good Thing!
I met with my MO today. She's pretty cool and really pretty too (so is my Nurse Practitioner Manager) ;) We spoke about the treatment and I'll be getting a hearing test next week. Hearing loss, if it happens, occurs after several treatments so we'll have a baseline to compare with as the weeks go by. I have all the…
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Our New Journey
30 Rads Down 3 to go!!!!!!! Taking a day off tomorrw to have PEG placed. Nutrition is way down, throat and mouth very sore, can't seem to drink anything thicker than water. Going to get fluids everyday now. Not to sure about chemo. There is a possibility of continuing on for a few weeks post rad treatment. I should know…
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Glossectomy and radical neck dissection
Looking for someone who has dealt with almost a complete glossectomy and radical neck dissection. Has been 3 months since surgery and don't see much progress. Getting extremely discouraged. Wondering if anyone has been through this.
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Attitude is everything.....
how often do we hear that phrase, from medical professionals, counsellors, caregivers, friends and even within our Head and Neck family? I've always tried to be a 'glass half full' person and recently I got to thinking how I've been able to adopt and keep such an outlook. While searching my archived files the other day, I…
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Loosing Weight: PEG Tube
I have lost about 5 lbs over the last month in spite of eating quite well. I did have a boost in my thyroid meds and I do not feel freezing all of the time. Perhaps, I'm just burning more calories and need to adjust intake. I really would rather avoid the PEG Tube, if at all possible. Did you guys have trouble taking food…
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Still struggling after 3 years in remission
Today I am officially in remission for 3 years after having stage 4 cancer in my maxillary sinus on the left side of my face and had 30 sessions of radiation after major surgery. I was just at the doctor a week ago and everything looks goand but I'm still struggling a lot with all the repercussions after my surgeries,…
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Happy Saint Patricks Day!
I said to my husband this morning,"you know, it seems so much colder than it was when we use to go to the Saint Paddy's parade in Dublin ( Ohio ). He " I don't remember ever going to a Saint Paddy's Day parade, we use to go to the 4th of July parade all the time.............hummmm, maybe that's why it seemed so much warmer…
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Okay, Icky Subject, But Looking For Suggestions
For quite a while, hubby has had nasty tasting drainage from his tumor. It's the primary reason he can't eat. He spits constantly. Surgical Onc suggested Mucinex DM, but that appears to be for coughing things up from congested lungs, so he won't try it. Did anyone have this going on and what did you use to alleviate it?…
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Ready To Get Off The Merry-Go-Round Now
What a day! During MDA Internest appt. this morning, G-tube wound started pouring blood. Son noticed blood coming through hubby's shirt. Doc said "I'll get the nurse". No nurse. Then no doc. Hallway was empty. Finally snagged another doc who found the nurse. She cleaned him up and rebandaged. Continued on to Rad #9.…