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Radiaderm
Hi, Just wanted to know if anyone used radiaderm radiation relief system. If yes, is it a good product to use during radiation? Thanks, Jane.
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Get my results tomorrow from my CT scan / swelling in neck
Hey all, I guess I had kind of the same thing civil Matt did recently. My neck below my ear has a bit of swelling, can't really call it a lump, but noticable puffy :) ...does not hurt, does not seem hard, but semi-hard and I had some ear pain, not continous but shooting pains off and on real sharp...but none the last few…
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Do I have cancer or I had cancer?
Kenny and I were on our way home from the hospital yesterday. We found out that the Cancer had not spread, which they thougt it may have. But all test came back clean. Anyway, Kenny said he didn't know whether he should tell people when they ask if he has Cancer or if he had Cancer. What do you think? Cindy
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Problems after two years NED
I feel bad, haven't been on here in sometime, but I have been a creeper checking out peoples posts. Now here I am humbly crawling back for advice. I recently celebrated two years NED. I had high grade MEC in my submandibular salivary gland. It was removed along with the floor of my left mouth with reconstruction. All nodes…
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Great Scan Results
Hi Folks, Thought I'd drop in and say Hi and pass along some great and encouraging news (great for me and encouraging for those currently in treatment). This past weekend I had a clean PET/CT scan and check up. That puts me at 2 yrs and 7 months post treatment. I had been diagnosed with BOT Stage IV, underwent rads/chemo…
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VERY BAD MUCUS PROBLUM
CAN ANYONE HELP ME IT’S BEEN 3 YEARY SENCE TREATMENT AND THE MUCUS IS WORSE IT WAKE’S ME UP IN THE MORNING CHOKING ME THEN I HAVE TO GET UP BLOWING MY NOSE AND MY NOSE RUNNING. MY CANCER DOCTOR TOLD ME TO TRY MUCINEX DM. BUT IT HAS NOT HELPED. ONE LADY SAID WAL-ACT FROM WALLMART DRIDED HER UP DOES SOMEONE KNOW OF ANYTHING…
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ONE MORE THING TO SHARE FOR ANYONE STARTING OUT
I forgot to share this in my post yesterday but in my visit with my ENT yesterday, he was telling me how amazing the skin on my neck looks after having radiation. He said it is so smooth and soft, so many get thick and leathery. I used Aquaphor on my neck 3 times a day everyday from the 1st day of treatment until I started…
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Last day of radiation
Tomorrow is my husband’s last day of radiation and he is done with all chemo and red. The last chemo hit him very hard lots of nausea and more mucus and lost nearly 7 pound in last 4 day. He can’t swallow anything since Monday. He will have pet scan after 3 months and hopefully he will be recover by then. We will be…
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ChefDaddy... Son Mason has Passed...
Just wanted to pass a message from Dawn, that ChefDaddy Mike sent her last night... "We lost Mason Lloyd after a valiant brave battle at 8:55PM." Thoughts and prayers for Mike, his daughter and family.... It's been a long hard fought battle..., but now Mason is pain free and getting to enjoy a life he never had here on…
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Cisplatin Fears
My husband is in the first six days of treatment for SCC of the larynx with cisplatin and radiation. He is down to 98 pounds and sleeps about 20 hours. He runs a fever every evening just at 99.5. He says everything tastes disgusting even water. He has another cisplatin treatment in 2weeks and radiation every day. We ahve…
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Say Hello to Tackstrip!
I'm sure there's a better way to do this - - - I just dunno what it may be. Tackstrip's posting was at the bottom of an old thread - trying to start a Forum topic for Tackstrip. Here's tackstrip's post: VoiceNew Well its been almost 3 months since I last posted here. Made it through my Radiation Treatment. It got tough,…
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Ensure/Boost for veteran survivors
Here is some good information for veterans who supplement their diet with Ensure or Boost. These items are available at the VA pharmacy. In our area, the items are expensive at the drug store. I now have it as a prescription item and can receive two cases (48) every 24 days with a minimum co-payment. For your information,…
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Submandibular salivary gland transfer
Does anyone have experience or information about submandibular salivary gland transfer procedure that is done prior to radiation to protect the salivary glands during treatment. The salivary glands are moved to a different location. Research studies found 83% of patients who received this procedure retained their salivary…
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Erbitux infusion...with or without radiation...side effects, success stories?
My husband is on the schedule to begin Erbitux infusion treatments beginning this Wednesday (March 27). Quick back story: H&N SCC of the base of tongue in 2005 successfully radiated and treated with chemotherapy; healthy and active for 7 1/2 years, the SCC came backon the side of his oral tongue; surgery and partial…
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Sub-Mandiibular Carcinoma
Positive Diagnosis; Awaiting exam by ENT & Tests. Gonna be a long road, with a happy ending I'm praying. Drawing strength from all of you, also, very helpful advice, thanks!
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Now I'm Really Confused!
We saw the Surgical Onc today so stitches at the G-tube could be removed. I brought up the subject of "swallowing" exercises to determine when he felt the appropriate time for starting these would be. He asked if we had seen the Speech Therapist yet. No, not yet. So an appt. will be scheduled with her. I guess she is…
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sphenoid and ethmoid malignant melanoma
Hi there I feel blessed that I have found this site my mum recently had a mass removed from her sphenoid and ethmoid sinus as it turned out it was invasive malignant melanoma. My mum has her first oncologist apointment on Friday Sept 18, 2009. I talk to my mum twice a day morning and evening she sounds fantastic. My mum…
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Posting a picture
Am just checking on posting a picture using TinyPic [IMG]http://i45.tinypic.com/29ictx.jpg[/IMG] AND it did not work.
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David & Vivian - updated
Just wanted to bring this to the surface again for Vivian and David today. They met with their doctor this morning, the hemotologist, and David's transplant is no longer a possibility. David will be receiving pallative care as they determine which of his cancers is the source of his brain leisions. Vivian is beside herself…
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Eustachian tube issues
Hi, Dan has been having left ear issues for a couple of weeks. His last treatment was Jan 15th, his treatment was primary left sided. So we are 9 and half weeks out of treatment.. After a week of complaining the RO prescribed antibiotics, 4 days later the ENT said that's fluid behind the ear drum, and prescribed steroids,…
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Cancer Sucks!
After looking at the board today, just had to say it (again). Not that I need to remind anyone here!
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Still Cancer Free
Kenny had a CT scan last month and they saw something in his right cheek. He was sent for a PET the beginning of this month and they said they saw nothing in the PET, so we had a fine needle asperation done yesterday. NO SIGN OF CANCER. Such a relief, I was really worried and he didn't say, but I know he was also. Now we…
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My first post (Today is a gift)
Not sure how or why i ended up here today but i truly believe everything happens for a reason. I just had my 12 year anniversary surviving throat cancer :-) I forget all the fun technical terms about my cancer but it was advanced. Stage4, Radical neck dissection, tumor left tonsil, golf ball sized lump in my left lymph…
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Needing serious prayer
So David was having some hallucinations and visual distortions and today we found out why. He has three lesions on his brain. One on the right frontal lobe, one right cerebellum, one left cerebellum. Now they are deciding whether to do a biopsy to find out if it is plasma cell leukemia or head and neck cancer. Neither are…
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SSI..DENIED
UGH, I have done my best to remain positive and upbeat. I tried to naively believe the system would work fairly, well IT DOESN'T! SSI has informed me I am Not Disabled and although I might not be able to perform as I did in the past I can perform to economic status of now. So apparently I have severe hearing lose requiring…
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Our New Journey finishes one course and starts another
2 days Post Treatment!!!! Hi All! The radiation and chemo treatments have come to an end HOORAY!!!!! The next course on our jouney has me on the road to recovery and healing from the side effects of the rads and chemo. The burns on my neck have started to heal and I no longer have to use the silverdean (I know that isn't…
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NED
Had my 3 month post treatment scan yesterday and got clean relults...sort of in shock...for those of you staring the journey remember there is a light at the end of the tunnel.....I am still struggling with some radiation related issues and major weight loss, but trying to get back to work 1/2 days...The beast can be…
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Kent Cass ~ Gone Blog
Not sure if you realize it or not... But apparently our long time brother has posted a Gone Message on his blog... While I can understand, I really hate to see Kent go. He is one of the best, one that makes this site what it is...one that always reminds us to BELIEVE. Has been interesting, and did me a lotta good thinking…
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1-year, good update
H&N Gang, Sorry about the delay, but my ENT is on vacation. He just happened to pop-in to the office today and heard I was interested in the results from my CT scan on Monday (maybe, just a little). Anyway I just got a phone call from him. In a nutshell, he said the enlarged area of the neck was nothing (did not elaborate…
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GREAT NEWS
I had the second neck dissection on Thursday and got some great news. The node that lit up in the scan earlier this month - the one that was supposed have been removed in the first dissection in October - turned out to be benign, so no modified radical dissection, no new disease found. They did take some additional nodes,…