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Help My Aunt...Repost for GYBOWMAN
gybowman Posts: 1 Joined: Apr 2013 Apr 09, 2013 - 5:43 pm Help my aunt My aunt had cancer and had half of her tongue removed. I suggested maybe I could give her some interesting soup recipes, since that might be easier. She said the radiation burned her tongue and ruined her tastebuds. She says I should imagine what it…
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checking out of Phrannies pocket bc NED is here!!!!!
Met with onc MD and surgical MD yesterday who said that PET was clean and clear, nothing lit up, no cancer cells reared their ugly heads. He did say that the landscape has changed and that there was "junk" left over from the enlarged lymph node that had a large tumor. But he said it was not cancer...just junk. THe surgical…
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Insurance denial
I have BCBS insurance. Not old enough yet for medicare. Even though most of my lower teeth were extracted to remove my jaw (cancer of the mandible) they are denying a claim for implants to replace them. They are even denying a denture. Wondering if anyone has had their medical insurance pay to replace the teeth taken as a…
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Thank all of you and question about neck dissection
My husband and I are brand new to all of this. I want to thank you all for posting to this site (and for being brave survivors who are willing to share their stories). It has helped so much to read other's experiences. We feel like we have more questions to ask and more knowledge about what lies ahead. Can anyone share how…
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Neck dissection pain
My husband had a radical neck dissection 15 months ago. He is cancer free and we are so thankful. He has been fighting head and neck cancer for 5 years. What I am wondering is, does the pain ever go away. We have asked numerous Doctors, Neurologist, Surgeons etc and never have gotten a straight answer. I have seen on the…
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Completely Obstructed
Hello, my 82 year old mother was diagnosed with hypopharangeal cancer T3 N0 October 4, 2012. She was an alcoholic most of her life, she fought it and was not a bad mother but never overcame the disease. She has managible emphysema from smoking which she quit 10 years ago. She had a debulking of the cancer in early October…
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Evoxac - Generic
I want to share some good news for those of you using Evoxac. I just had mine refilled and was plesantly surprised that it is now available in a Generic. It was costing me a $90.00 co-pay because it was not on my insurance company formulary. The co-pay is now $8.00 for the generic. The Gernic is Cevimeline. The next time…
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Severe nausea, any suggestions
My husband is in the middle of week 5 of radiation treatment, 10 more treatments to go. Done with 2 big rounds of Cisplatin. He is so nauseated and everything gags him, that he isn't getting much nutrition in. Getting 1 liter of IV fluids 3 times/week. Compazine, Zofran and Ativan not a lot of help. No feeding tube and at…
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Help!!!
I need help. Hubby took Ambien(5 mg) Monday night and has been asleep almost constantly since then. He is in and out of lucidity, no strength in arms or legs, can't hold onto anything and can't stand. I'm putting water and now Glucerna into the tube. Managed to help him urinate a tiny bit in a prone position. MDA navigator…
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Update on Best Friends Husband and all
Hi all: Beki's husband Steve has finished treatment but did spend last Mon-Fri in hospital as he was very dehydrated and not eating or drinking much. Also want to ask y'all. They have given Steve morphine pills for throat pain and I have kinda wondered about that at this point. Now part of the idea I understand is to take…
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Round 2 And Still Standing
Hello All, Hubby finished his second round of chemo today. I have learned that Erbitux is actually called Biotherapy, while Taxol & Carboplatin are Chemotherapy. The plan, as it stands now, is to get the Erbitux every week for 9 weeks and every third week to get all three. The doc agreed to no Benadryl, but did have some…
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Anyone had a deep bone or muscle infection in the jaw??
Hi again, I have been randomly viewing the posts for the past few months and not really getting in the conversation fray. John (Skiffin) does a great job of keeping everyone informed and in a good mood. He and I speak the same language, so why duplicate!!!??? However, I woke up Saturday morning with my left cheek swollen…
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spindle cell squamous (sarcomatoid) carcinoma
My sister 34 was just diagnosed with spindle cell squamous sarcomatoid carcinoma after a dentist apt for what we thought was an ulcer. If anyone has information on specialist please post.
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Caringbridge
What is caringbridge and how do I get to the site ? Peggy
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Dad coming home Friday
Wanted to update you guys with some good news. Dad is getting out of rehab on Friday. He still needs a wheelchair. But, his walking is getting better. He can stand really good with his cane. When he is getting out of the wheelchair he only needs me to guide him. He is still using the feeding tube, but doing good. Thanks…
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Funeral went well
Thankfully the funeral went well. I am sure David was smiling down from heaven as we celebrated his life. Everyone consistently talked about his faith and acts of love. He did so much behind the scenes. It was all about loving people and letting them know they were not alone. He will be greatly missed. I am so glad it is…
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spindle cell carcinoma
Last week my father in law was diagnosed with spindle cell carcinoma located on the top of his scalp. Today, he went to see a dermatological oncologist, who confirmed the diagnosis and said that she did not see anything in the lymph nodes. She did however say that she could not confirm anything until they had removed the…
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Allergies
My throat has been acting up the last few days. Hard swallowing, sores on the roof of my mouth. I have always had allergy symptoms around this time of year but I can't really tell if its allergies or not. Foods with. Tomatoe sauce seem to be particulary hard to get down recently- even though it has been going down pretty…
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spindle cell squamous (sarcomatoid) carcinoma
My sister 34 was just diagnosed with spindle cell squamous sarcomatoid carcinoma after a dentist apt for what we thought was an ulcer. If anyone has information on specialist please post.
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PAMY had a question on Proton Therapy -
Hey all....looks like Pamy posted a quetion on an old thread by Sam999...so I am reposting here for her. Question below.. +++++++++++++++++++++++++++++++ Proton therapy? Hi John- Just researching treatment options and wondered if you had Proton vs IMRT. Although they have not confirmed it improves outcomes, I believe they…
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Chemotherapy-induced Peripheral Neuropathy
Last two fingers on both hands numb all last week and continuing. Just starting 4th week of cisplatin. Any suggestions? Thanks.
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now what?
My husband’s treatment was over 14 days ago and I think he is feeling much better and even started his job just part time. He started to drink liquid and little bit solid food and beside not opening wide open mouth and few mouth shores he is not complaining about anything. Today we had his ENT doctor appointment and ENT…
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My angel David
My David truly is an angel. He was pronounced dead at 2:24 am EST. he fought a glorious battle and touched many lives in the process. I am so thankful that God spared his mind at the end and he got to say all of his good byes. I will miss him, but he has helped me in so many ways. Just as each of you has helped me. God…
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I'm Back...
I have been remiss in not visiting this site for several months and realized how easy it is to become self-absorbed. I know that as a throat cancer survivor I can contribute to helping newly diagnosed patients who want to hear from others who had the same experiences. I completed my treatment in August 2010; it was (as it…
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I say it's time!
What's everyone doing this weekend? I say we all meet at a central location and have a little get together. I'll bring the chips and salsa and some cold beer. Now each of you bring something and we'll have ourselves a nice little party :-) Ok....reality check...I guess that's not gonna happen. Wishful thinking. Dang it, it…
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Turkey Neck Solution
Hi all, At Dan's visit to the ENT Surgeon this week, Dan made a snide comment about his turkey neck. The doctor cracked up at the name.. we picked it up here! :) Anyway, he said he has been telling patients to buy this support hosery for the neck, and Dan's going to give it a try. It is suppose to help the water collected…
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Taxol - 2nd Round
I'm in the middle of the second round of chemo. I gained a half pound on the weekly official weigh-in. So if I keep up the good work, I may be able to avoid the PEG. (I of course, would use a PEG if it became necessary.) Most of the blood was good so I started on 2 weekly injections of Taxol and Erbitux. However, my…
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Is it possible to have almost no side effects of tongue radiation?
Hi Everyone, I am so glad to find this site. Everyone is so helpful and inspiring. I have been reading lot of things for past two days. I am 45 years old and was diagnosed with Squamous Cell Cancer of the oral tongue (front bottom part of the tongue). I had surgery to remove it two weeks back. Also had a neck dissection to…
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Slightly OT, but have you noticed
I was watching TV tonight and over a period of about 2 hours I saw at least four commercials for cancer treatment. Is it just me being oblivious or has the competition for cancer patients gotten kicked into high gear. I haven't gotten a firm handle on what my treatment has cost (bunch of EOB's not in yet) but I'm pretty…
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Mask Anxiety and Panic
Yesterdays mask fitting did not go well. Rob said it was like he was choking and they thought it might be because his tonsils are still swollen from the biiopsies last Thursday. Last night he had a bit of a panic attack just thinking about it. Pretty sure the realization of every thing is hitting him at once. We will go…