NMES THERAPY?

rachel12yrsuv

Hey guys, Lots of bad news on website this past week, humbled me yet again. Vivian and David, Chefdaddy, Wolfen just to name a few, my heart is heavy but my spirit is strong that God will bring peace and solace to all of those suffering, and remind all of us that Life is precious and never forget it! Prayer for everyone on this site! I have just been given my new treatment plan NMES therapy, I think it stands for Neuro Motorized Electronic Stimulation Therapy? I was wondering if any of you had it and if you can tell me what to expect, not afraid curious, ok if pain is involved would like to know up front... so if you get a chance during your day to respond that would be great. Billie and Phrannie I am sure your scans are fine, T keep pushing on, Matt don't disappear like that again or ill find you and kick you in the butt, and Jeff you just keep being Jeff. And Deb, ladylacy,peggy,new people Jayne and Micheal and anyone I forgot, I think about all of you all the time. God Bless! Rachel

phrannie51

I think Hondo did this....

but I could be wrong....somebody did it for swallowing.  One of the members will remember, and get you a name....

p

CivilMatt

NMES is it

Rachel,

 

NMES, sound made up to me, but it is not, it is cool way to stimulate the muscles for swallowing.

 

Now about kicking my butt, get in line.  I mentioned that my ENT was on vacation, it is his butt that needs kicking, but then again he did call.

 

I promise to not leave anyone (H&N members) hanging.

 

Good luck on the NMES!

 

Matt

rachel12yrsuv

CivilMatt said:

NMES is it

Rachel,

 

NMES, sound made up to me, but it is not, it is cool way to stimulate the muscles for swallowing.

 

Now about kicking my butt, get in line.  I mentioned that my ENT was on vacation, it is his butt that needs kicking, but then again he did call.

 

I promise to not leave anyone (H&N members) hanging.

 

Good luck on the NMES!

 

Matt

Matt and Phrannie,
Thanks for
Matt and Phrannie,

Thanks for responding, I hope it feels good and works to strengthen, I am being about as brave as I can be, but between phlemand desert dry mouth and throat its hard. Still smile, still grateful.

Phrannie pay attention to me threatening Matt if he, or his ENT, keep us hanging, I got some pounds on you don't make me kick your butt, post when you know and NED has arrived.


Take care friends,

Rachel

rachel12yrsuv

CivilMatt said:

NMES is it

Rachel,

 

NMES, sound made up to me, but it is not, it is cool way to stimulate the muscles for swallowing.

 

Now about kicking my butt, get in line.  I mentioned that my ENT was on vacation, it is his butt that needs kicking, but then again he did call.

 

I promise to not leave anyone (H&N members) hanging.

 

Good luck on the NMES!

 

Matt

Matt and Phrannie,
Thanks for
Matt and Phrannie,

Thanks for responding, I hope it feels good and works to strengthen, I am being about as brave as I can be, but between phlemand desert dry mouth and throat its hard. Still smile, still grateful.

Phrannie pay attention to me threatening Matt if he, or his ENT, keep us hanging, I got some pounds on you don't make me kick your butt, post when you know and NED has arrived.


Take care friends,

Rachel

peggylulu

Rachel

Thank you Rachel , you are a precious sweet person ! I've had electric stimulation on my back and it doesn't hurt , maybe it's kinda like that . I pray that it works for you and am betting that it does .

and Matt please don't ever quit posting on here . We would miss your humor and all of the good information you share . I love reading your post.

Peggy 

peggylulu

rachel12yrsuv said:

Matt and Phrannie,
Thanks for
Matt and Phrannie,

Thanks for responding, I hope it feels good and works to strengthen, I am being about as brave as I can be, but between phlemand desert dry mouth and throat its hard. Still smile, still grateful.

Phrannie pay attention to me threatening Matt if he, or his ENT, keep us hanging, I got some pounds on you don't make me kick your butt, post when you know and NED has arrived.


Take care friends,

Rachel

Rachel

I just sent you a post but for some reason I got booted off. I think because it was taking to long . ? Anyway I was thanking you for your first post. You are such a sweet precious person . I am praying this new treatment will work for you and betting that it will !

and Matt please don't ever stop posting on here because we would miss your humor and all the information that you share . I love reading your post .

Peggy

p.s. I just wish I had a way with words as all of you guys and girls on here do ! I would post a lot more if I was as smart as you guys are !

rachel12yrsuv

peggylulu said:

Rachel

I just sent you a post but for some reason I got booted off. I think because it was taking to long . ? Anyway I was thanking you for your first post. You are such a sweet precious person . I am praying this new treatment will work for you and betting that it will !

and Matt please don't ever stop posting on here because we would miss your humor and all the information that you share . I love reading your post .

Peggy

p.s. I just wish I had a way with words as all of you guys and girls on here do ! I would post a lot more if I was as smart as you guys are !

Peggy,
Who said I was smart?
Peggy,

Who said I was smart? Trust me if you knew me personally and seen choices and mistakes I made you would definitely not think I am smart...lol

When I send a message it just my heart speaking not my head. I spell like crap, I don't know all the technical junk that happened to me or anyone else for that matter when they post, t3nj45gh?! Or whatever else. Post what's in your heart, only been here a few months and as far as I can tell noone judges anyone, we just help,pray,support,cry,and love each other as you would do in any family, this is a family none of us would haven chosen, but none the less are thrilled to be apart of. Don't take from us a chance to know you better because of that, and don't ever think so lowly of yourself, not to me anyway, you are my sister, be proud of who you are and what you've done.

Luv,

Rachel

peggylulu

rachel12yrsuv said:

Peggy,
Who said I was smart?
Peggy,

Who said I was smart? Trust me if you knew me personally and seen choices and mistakes I made you would definitely not think I am smart...lol

When I send a message it just my heart speaking not my head. I spell like crap, I don't know all the technical junk that happened to me or anyone else for that matter when they post, t3nj45gh?! Or whatever else. Post what's in your heart, only been here a few months and as far as I can tell noone judges anyone, we just help,pray,support,cry,and love each other as you would do in any family, this is a family none of us would haven chosen, but none the less are thrilled to be apart of. Don't take from us a chance to know you better because of that, and don't ever think so lowly of yourself, not to me anyway, you are my sister, be proud of who you are and what you've done.

Luv,

Rachel

What the heck ?

 

Something is deffently going on, on this site ! I just posted a long message and all that I see right now is the subject ? Well I will start over. Rachel I was saying everyone makes mistakes because we are all human and I sure don't know any of the tech. stuff about my treatments either ! Anyway thanks again for your kindness and I will try to do better.

I love all of the family on this great board .

Peggy

 

 

rachel12yrsuv

peggylulu said:

What the heck ?

 

Something is deffently going on, on this site ! I just posted a long message and all that I see right now is the subject ? Well I will start over. Rachel I was saying everyone makes mistakes because we are all human and I sure don't know any of the tech. stuff about my treatments either ! Anyway thanks again for your kindness and I will try to do better.

I love all of the family on this great board .

Peggy

 

 

Peggy,
XXOO
Rachel
Peggy,

XXOO

Rachel

michdjp

Vital stim therapy

Hi rachel. My dad went for 12sessions of vital stim therapy which I think they also call nmes they hooked up electrodes right under his chin and a little down from that. 4 electrodes altogether Then they stimulate them for 1 hour while doing swallowing exercisetowards we progressed we also ate with the electrodes on.  Unfortunately I did not see a drastic change in his earthing when we finished.  

My dad had tonsil and lymph cancer stage 4a and he had chemo and radiation.  He could not swallow soup when treatment was over.we went to wake forest baptist hospital in n.c. And had the tread procedure done and 2 more throat stretches.  This took almost 3 months.  With this and a lot of exercise daily my dad is enjoying most foods with the exception of some meats.  

i wish you the best.

michelle

rachel12yrsuv

michdjp said:

Vital stim therapy

Hi rachel. My dad went for 12sessions of vital stim therapy which I think they also call nmes they hooked up electrodes right under his chin and a little down from that. 4 electrodes altogether Then they stimulate them for 1 hour while doing swallowing exercisetowards we progressed we also ate with the electrodes on.  Unfortunately I did not see a drastic change in his earthing when we finished.  

My dad had tonsil and lymph cancer stage 4a and he had chemo and radiation.  He could not swallow soup when treatment was over.we went to wake forest baptist hospital in n.c. And had the tread procedure done and 2 more throat stretches.  This took almost 3 months.  With this and a lot of exercise daily my dad is enjoying most foods with the exception of some meats.  

i wish you the best.

michelle

Michelle,
Thank you, I
Michelle,

Thank you, I thought I was fine, I was 12 yrs out and got violently ill in Dec 2012, I don't even recall the first few days in hospital between malnourished and lack of oxygen I was diagnosed with pnuemonia that after swallow study change to silent aspiriation pnuemonia. I knew I had difficulty swallowing just assumed it was normal, I don't believed I "silently" did I coughed like a champ, or choked shall I say. So since then I was doing two totally different sets of exercises, after inital consultation with new speeech therapist I went for swallow study and it all went down right tube, but not strong. So still no food, but hopefully this therapy will help. My esphogus is not compromised so dilateing won't help.

Glad your Dad can eat I will be thrilled to one day be at the level he is.

God Bless you,

Rachel