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I can breathe now!
While at my sons baseball game I got the call! I'm Phrannies sister.....Billie "NED~ina ", so nice to meet you all! Funny thing is that my oncologist is actually out of town and so he hasn't read the report yet. The nurse said it was driving her crazy to not call me so she broke down and did it without his ok. She said the…
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surgery is behind me and I'm back home
Hi, everyone! Thanks for all your information and advice after I was first diagnosed. Last Friday I received trans-oral robotic surgery at the Mayo Clinic. They removed lymph nodes on both sides of my neck, did biopsies of the tongue, tonsils and adenoids, and removed my right tonsil and part of my left all for the purpose…
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underwent Thyroid nodules
My husband recently had his first post treatment CT scan and the ENT surgeon called last week and said he saw a small (1cm. ) area on his thyroid and so he needed a biopsy of this. We had the biopsy done but , of course, I am back in worry mode. Trying not to but you know how it is... this cancer thing has really messed…
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Classifying Scanxiety
I was thinking this morning that there are different stages of Scanxiety. First, there's When-Is-My-Next-Scanxiety, when you're not sure what the next step is. Next, there's Waiting-For-My-Scanxiety, when the appointment is scheduled and you start to experience phantom symptoms while waiting. Then you experience…
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Can not take much more
Hey guys, I just needed to talk. This was the worst Easter ever. I was on my way home in my brand new truck I got New Year's Eve and an unlicensed uninsured driver ran a red light an totalaled my beautiful truck. I have pulled muscles in my back, arm and shoulder. I was after dark and raining. I stood in the ran for over…
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Drum Roll!!!
Finally, a somewhat positive post! Fourth attempt at first chemo was successful. Slight two hour delay as lab nurse thought port was infected, so we saw the surgeon. He said all was okay. He was given saline, Benadryl, Zofran, & Pepcid. Next came the long Erbitux infusion, followed by Taxol. Big trouble with the Benadryl.…
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Concentration issues
I keep trying to get on CSN and read some of the posts and get up to date with others, but I find my mind gets diverted and I am having trouble reading long posts. Its not that you guys aren't important to me, I am just totally full I guess. Nevertheless it makes me feel bad.
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So not to get Relgious but...
Alright going up on soap box again So I spent the last 5 weeks watching The Bible on the History Channel, being Catholic there were some things I don't agree happened the way they showed it, but all in all Obama Satan look alike controversy aside. The very detail flogging, beating of our Savior as he tried to walk wealend…
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Checking in on a positive note
Hi everyone, Sorry i have not been visiting lately. Full time job, kids and additional cooking is taking up all my time. We will be empty nesters in 3 years and i will definately be a active memeber of this wonderful forum. It has been 1 year since diagonisis and 9 months since last rad. I have no complains except dry…
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One hell of a week
Hi all: Just got back home from Chatt. for the past week. Remember my best friends Steve and Beki and Steve is finishing up lung cancer treatment this week? Well, last Sun. nite 3/24 their house burned down and Beki's 95 year old father was staying with them and he did not make it out! I was up there as soon as I could get…
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Neck Lotion Suggestions
Hello all ! I had my 15 th rad treatment this morning ( 20 more to go) and my neck is starting to itch a bit. I checked the mirror and both sides are showing a small amount of redness. I have read that this situation can get bad and I am wondering if there is a pro-active approach I can take to possiibly head off or at…
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Questions about Tonsil Biopsy
Rob had a tonsil biopsy on Thursday and today has been his worst pain. We thought it would have started to get better by now. When do you think his pain from the biopsies will end? And befroe this he had no visual sign of cancer inside his mouth like the pics we have seen and now it looks just like them. Very swollen,…
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Questions About PEG Tube Feeding
Happy Easter to all ! I have been holding out on using my PEG tube, but the time has come to where I think it is time to use it in combination with feeding by mouth. I am able to get food down if I take some medicine prior to eating but the taste/pain is so crappy after a few bites that I tend to give up on it. I have lost…
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TMI Warning - My boys did it again!!!!
As most of you know I have four boys and one daughter. The boys are ages 2 - 12 (my daughter is the oldest at 14). And I have posted on here before my "bathroom" experiences having so many "people" in the house and just one bathroom. Sometimes when I first get home and the boys are upstairs, I try and steal some quiet time…
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Cisplatin 3 weekly or weekly
I'm curious if your MO made a strong case in favor of one or the other. I wonder how many people were able to take the last of the 3 big doses. Our RO seems to think the weekly is better tolerated and just as effective, and she thinks our MO may make a case for the 3 big bags. it seems that studies show the results are…
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David signed his own hospice papers
I left the hospital for two hours so my mother in law and brother in law could spend a little time alone with David. I think that is important especially since David has a couple of things to say to Scott. While I was gone hospice came with the paperwork. To my surprise when I got back to the hospital he had signed them.…
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Happy Easter
Happy Easter, all
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Some good news for a change
I've posted that my most recent scan found more areas of concern, which prompted a second neck dissection. I had the surgery last week and the first piece of good news was that the immediate biopsy of the most troublesome node turned out to be negative, so they did not do the more invasive modified radical dissection. They…
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I need a do over
I was just thinking that last year at this time I was a completely normal ( whatever that is) person. Just coating along- working , going to the gym a few vacations a year- life is good. Then wham! Right over the head with a sledge hammer. Then you hear " we got it early - your strong and young- stay strong. Ten hear ya go…
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Inflammation under the chin
Ok - I am going to the ENT on Wednesday because I have total hearing loss in my left ear. We drained the fluid once and I had an infection so he gave me antibiotics and ear drops. I will be done with the antibiotics tomorrow. I have noticed a swelling under my chin. Reading the posts it would appear a lot of people with…
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Clear Scan
After some more chemo and radiation I got a clean PET/CT this week! Coming up on the 3 years docs gave me to live at the most. Unless I fall in a river or off a cliff looks I get to say "I told you so". Never give up. AB
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How bad will it be?
My husband, Doug, was diagnosed with metastasized squamous cell carcinoma the day after Thanksgiving. His primary is the base of his tongue and the epiglottis. We live a little more than an hour from MD Anderson Cancer Center so that is where we went for treatment. Doug went into a clinic trial at the beginning of January…
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still NED three years post diagnosis for Stage III/IV hypopharyngeal
Jim was scoped yesterday at his ENT's office. Although there is still swelling and scarring, there is no evidence of active cancer. This is a really good thing for this particularly nasty form of H&N. Just wanted to share with and, hopefully, give some encouragement to others on this path. Praising God for a good team of…
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So many judges
I am so frustrated with some people who are so determined to see David that they would say mean things and/or try to manipulate me. I woke up this morning to a couple of texts that were not received well by me. I have never wanted to take David away from anyone. I don't want him to leave me, but this his solitary adventure…
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Ok, a really small success but, YES!
I know, this is a tiny thing but I went out to lunch today. Haven't gotten to do that for 4 months. I got a cup of cream of mushroom soup and managed to get almost half of it down, with not all that much water. What the big success for me was I took the centers out of the white bread, buttered it up and soaked it in the…
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ALl right its been 3 months
And the dang peg tube still annoys the heck out of me. I really just want to go to hospital find the son of a gun who thought it was funny to place tube directly under my breast not allowing me to wear undergarment of choice due to pain, and its constantly getting bumped around so I keep getting granulated tissue that…
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Can't Remember
I can't remember if I came back to share my clean PET results or not. Anyway, NED! However, I have a bump on the side of my tongue that's worrying the heck out of me. It popped up when I had thrush last month and is still there. I'm going next week to have it looked at in case it's something nasty that was too small for…
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Questions About Miracle Mouth Wash
Hello all ! I had my rad and chemo treatments Monday. Both Doctors looked at my throat and determined it was scorched pretty bad. My Chemo Doctor gave me a prescription for Miracle Wash. I tried it for the first time last night before dinner. I follwed the instructions and this is how things came out. It numbed my gums and…
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Phrannie today....Me tomorrow
Ugh it's time for my 9 mo scans tomorrow! When they called me last week to schedule my stomach immediately starting hurting! I hope they won't make me wait for too long to give me the results. I could use some good juju Billie
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P's middle name....
is NEDette. That's right.....phrannie Nedette Stevens.....Oncologist just called.....I'm clean and clear.....Damn, what a relief. p