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Phrannie today....Me tomorrow
Ugh it's time for my 9 mo scans tomorrow! When they called me last week to schedule my stomach immediately starting hurting! I hope they won't make me wait for too long to give me the results. I could use some good juju Billie
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P's middle name....
is NEDette. That's right.....phrannie Nedette Stevens.....Oncologist just called.....I'm clean and clear.....Damn, what a relief. p
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Port a cath for chemo
Hello, my mom is scheduled for a port next Thursday and forgot to ask the Doctor a question. She would like to know if they will take the port out after treatment? If so how is it done? In office or surgery?
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My dad - update
Hello my dear friends!! I don't post much because I'm trying to live life between scans and check-ups without thinking all the time about it. But I read your posts almost daily and keeping my fingers crossed that you all will be ok. My dad is 6,5 months out of treatment (Cisplatin with 35 rads). On January he had his first…
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So thankful for my fellow warriors
This has been the most hellish ride I've ever been on, but I want to thank all my CSN friends. I have had so many drop out of my life since David got sick. Of course now that he is dying everyone wants to come to my rescue. Well I'm sorry I am coming for support from the people who have stuck with David and I through thick…
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Billie
Are we still waiting to hear Billie's NED or did I miss it ? Peggy
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not to get political..but
Hi friends, Sorry for my soapbox time, This week has been joyous for some and I don't want to steal fro anyone, but for others and all of us who care its been Hell. I was watching some stupid show Splash tonight where celeberties are in a diving competition, run out of ideas for reality TV I suppose, but the trainer is…
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Week 3 and feeling it
My 43 year old healthy, non smoking husband was dx on Feb 5th with SCC in the base of his tongue with mets to lymph nodes on right side. hPV+. Started with 1st Che 3 chemo's (Cisplatin 200mg) on March 6 concurrent with 35 rad's. after his 15th treatment he has hit a wall. Can't eat, drinking is not easy, and the poor guy…
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NED!!!
I had the appointment with the oncologist for the 6 month post radiation (3 post chemo) follow-up this morning, and everything was normal. During the exam the oncologist reviewed the H&N MRI performed 1 week before (I didn’t know the results until this morning) and scoped the areas involved. I was really worried, not that…
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Dad in Rehab
Dad is doing pretty good in rehab. He is getting a lot of motion back in his arm. It still takes to people to help him walk. He will be in there until at least April 12th. He is not having any major issues with his peg tube, just some nausea right after feeding. The doctor in rehab ordered a CT because she did not…
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I Have My Eyesight Back
About a week ago I posted about my eyesight trouble. ( http://csn.cancer.org/node/256493 ) Since then it has gotten worse. For example if I looked at the TV screen I would see three of them. I suppose that would not be so bad during the playoffs if there were three different games going on. Kidding aside, I thought for…
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How's Vivian today?
Vivian, Just checking in with you to see how you bare holding up? I somehow was wide awake at 2:45am, my time and felt this strong pull to pray for you. So prayed I did! I prayed for peace again and for warmth in your heart. Billie
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NED and Good Friends
Hey Everyone, I haven't posted here much lately but I do still see a few of you on the Head and Neck Warriors site on Facebook. The main reason I pulled away was because of reading some posts that were heartbreaking. It's hard when one of us don't recover. The news really pulls me down so I stop coming. Yes it is selfish…
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recurrent nasopharyngeal cancer (NPC) info and PET scan levels
Hello My mom 68 years old, was diagonosed with Nasopharyngeal Cancer back in April 2012. It was biopsied as keratinized squamous cell carcinoma. Stage 2b, no mets, no lymph node involvement. PET diagnosis was NPC with a FDG sugar uptake level of 3.5 She underwent 7 weeks of IMRT radiation (35 treatments) in conjunction…
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One Year Scan NED !!!
1 year CT Skan all clear.....no evidence of cancer! Yea!! Doctor says everything looks perfect. I am so thankful to God and for all people for helping me to get here. Ann
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Still At Square One!
Well, got all psyched up(NOT) for third try at first chemo infusion today. Nurse tried to use port for labs, but pain during attempted flush about knocked hubby off chair. She said "It's not supposed to do that". When she drew back syringe, it was full of black blood. So blood draw from hand and then on to chemo doc. He…
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One year anniversary
Tomorrow( March 28th) will mark a year since I was diagnosed with cancer. I had an MRI yesterday and heard from my Dr this morning that it was completely normal. Praise God ! This year has been rough, but I'm more thankful than ever for the ordinary now.
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hard time
My husband finished his treatment end of October 2012. February 26 he had a modified radical neck dissection on the right side removing 9 lymph nodes. After biopsy it showed they were negative for cancer cells. He is still losing weight and in the last week he lost 4 pounds. On Friday he went to walk in clinic because he…
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From Chefdaddy
New My lovely dear friends, Your kind words are giving my weakened knees strength to stand. Today, during a non-destinational drive, I told my very sad and crying daughter that because Mason had such an incredible personality that had deeply touched and affected several doctors, nurses and CNA's over the last seven years…
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Tim6003 Scan Results UPDATE: ALL CLEAR!!!! :)
Hi All ... Scan came back all clear!!! :) Lungs and neck look "great" was the word my Oncologist used. He did see the puffing of the neck....no concerns and nothing on scan that would alarm him. As always ...I can never thank you all enough for making me always feel cared for and of course all the prayers and well wishes…
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Christine Gabrielle - try new thread as introduction
Christine Gabrielle ... I found your "Hello everyone!" post here at the bottom of this thread that is several days old and started by another new member. It would be a good idea to start an entirely new thread just for yourself so that your questions do not get lost way down here. If you click on "Topic" at the upper left…
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Introduction
Hello- I've been lurking since I received official word of my Cancer on February 28th. I've been diagnosed with Nasopharngeal Carcinoma(Poorly differentiated, nonkeritinizing, HPV+, EBV-, stage III T1,N2,MO) Whew! Since diagnosis I've had multiple consultations, Blood work, PET scan, Contrast MRI, Radiation mask fitting…
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Hypothyroidism: My newest development 1 yr 3 months post treatment
Not sure how long I have had this issue during or post treatment, but my ONC had my thyroid tested in December. Test results were not covered with me until this past Thursday when I had my yearly with my PCP and asked him if everything had turned out ok. Guess my counts were off on my TSH..normal between .36 -…
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NMES THERAPY?
Hey guys, Lots of bad news on website this past week, humbled me yet again. Vivian and David, Chefdaddy, Wolfen just to name a few, my heart is heavy but my spirit is strong that God will bring peace and solace to all of those suffering, and remind all of us that Life is precious and never forget it! Prayer for everyone on…
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nothing can be done!
Dear All i am typing this with tears, my dad cancer has replease and there no more chemo or drug for him now. i don know what will happen in future, i am scare and worry. the cancer has spread to his lung and liver and accordingly to the Doc, he will feel more weak, more bloated more yellow in future and could lead to…
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Choices none I like
The doctor just came in and said the plasma cell leukemia is back. We have two oThe doctor just came in and said the plasma cell leukemia is back. We have two options go to hospice where David may have a few weeks. Do the radiation then go to hospice and he may have a little longer or do the radiation and the chemo which…
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Seeking Info
I was diagnosed about two weeks ago with cancer of my voice box. I am in my second week of radiation and cannot swallow without great pain. Also, have developed mouth sores but they do not hurt. They are talking about putting a feeding tube in next week. Maybe I made the wrong decision when I told then no surgery???
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Long term effects of radiation/ chemo
have been out of treatment for almost three months. Just had my first pet scan and it was negative. I had a partial neck dissection and removal of one lymph node under my jaw left side. My primary was diagnosed as occult primary, so they radiated everything in my head and neck and I had three chemo treatments of cisplatin.…
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Hair Today... Coming Back Nicely...
Just a quick post for those going through treatment... Though I lost all...ALLL (if you get my drift) hair during chemo, and the famous back of the neck strip from rads... I just wanted to post an update that after nearly four years, my hair is coming back nicely....whatcha think... Oh and BTW.... It's Friday...., let the…
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Submandibular salivary gland transfer
Does anyone have experience or information about submandibular salivary gland transfer procedure that is done prior to radiation to protect the salivary glands during treatment. The salivary glands are moved to a different location. Research studies found 83% of patients who received this procedure retained their salivary…