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Cisplatin 3 weekly or weekly
I'm curious if your MO made a strong case in favor of one or the other. I wonder how many people were able to take the last of the 3 big doses. Our RO seems to think the weekly is better tolerated and just as effective, and she thinks our MO may make a case for the 3 big bags. it seems that studies show the results are…
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David signed his own hospice papers
I left the hospital for two hours so my mother in law and brother in law could spend a little time alone with David. I think that is important especially since David has a couple of things to say to Scott. While I was gone hospice came with the paperwork. To my surprise when I got back to the hospital he had signed them.…
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Happy Easter
Happy Easter, all
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Some good news for a change
I've posted that my most recent scan found more areas of concern, which prompted a second neck dissection. I had the surgery last week and the first piece of good news was that the immediate biopsy of the most troublesome node turned out to be negative, so they did not do the more invasive modified radical dissection. They…
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I need a do over
I was just thinking that last year at this time I was a completely normal ( whatever that is) person. Just coating along- working , going to the gym a few vacations a year- life is good. Then wham! Right over the head with a sledge hammer. Then you hear " we got it early - your strong and young- stay strong. Ten hear ya go…
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Inflammation under the chin
Ok - I am going to the ENT on Wednesday because I have total hearing loss in my left ear. We drained the fluid once and I had an infection so he gave me antibiotics and ear drops. I will be done with the antibiotics tomorrow. I have noticed a swelling under my chin. Reading the posts it would appear a lot of people with…
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Clear Scan
After some more chemo and radiation I got a clean PET/CT this week! Coming up on the 3 years docs gave me to live at the most. Unless I fall in a river or off a cliff looks I get to say "I told you so". Never give up. AB
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How bad will it be?
My husband, Doug, was diagnosed with metastasized squamous cell carcinoma the day after Thanksgiving. His primary is the base of his tongue and the epiglottis. We live a little more than an hour from MD Anderson Cancer Center so that is where we went for treatment. Doug went into a clinic trial at the beginning of January…
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still NED three years post diagnosis for Stage III/IV hypopharyngeal
Jim was scoped yesterday at his ENT's office. Although there is still swelling and scarring, there is no evidence of active cancer. This is a really good thing for this particularly nasty form of H&N. Just wanted to share with and, hopefully, give some encouragement to others on this path. Praising God for a good team of…
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So many judges
I am so frustrated with some people who are so determined to see David that they would say mean things and/or try to manipulate me. I woke up this morning to a couple of texts that were not received well by me. I have never wanted to take David away from anyone. I don't want him to leave me, but this his solitary adventure…
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Ok, a really small success but, YES!
I know, this is a tiny thing but I went out to lunch today. Haven't gotten to do that for 4 months. I got a cup of cream of mushroom soup and managed to get almost half of it down, with not all that much water. What the big success for me was I took the centers out of the white bread, buttered it up and soaked it in the…
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ALl right its been 3 months
And the dang peg tube still annoys the heck out of me. I really just want to go to hospital find the son of a gun who thought it was funny to place tube directly under my breast not allowing me to wear undergarment of choice due to pain, and its constantly getting bumped around so I keep getting granulated tissue that…
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Can't Remember
I can't remember if I came back to share my clean PET results or not. Anyway, NED! However, I have a bump on the side of my tongue that's worrying the heck out of me. It popped up when I had thrush last month and is still there. I'm going next week to have it looked at in case it's something nasty that was too small for…
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Questions About Miracle Mouth Wash
Hello all ! I had my rad and chemo treatments Monday. Both Doctors looked at my throat and determined it was scorched pretty bad. My Chemo Doctor gave me a prescription for Miracle Wash. I tried it for the first time last night before dinner. I follwed the instructions and this is how things came out. It numbed my gums and…
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Phrannie today....Me tomorrow
Ugh it's time for my 9 mo scans tomorrow! When they called me last week to schedule my stomach immediately starting hurting! I hope they won't make me wait for too long to give me the results. I could use some good juju Billie
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P's middle name....
is NEDette. That's right.....phrannie Nedette Stevens.....Oncologist just called.....I'm clean and clear.....Damn, what a relief. p
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Port a cath for chemo
Hello, my mom is scheduled for a port next Thursday and forgot to ask the Doctor a question. She would like to know if they will take the port out after treatment? If so how is it done? In office or surgery?
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My dad - update
Hello my dear friends!! I don't post much because I'm trying to live life between scans and check-ups without thinking all the time about it. But I read your posts almost daily and keeping my fingers crossed that you all will be ok. My dad is 6,5 months out of treatment (Cisplatin with 35 rads). On January he had his first…
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So thankful for my fellow warriors
This has been the most hellish ride I've ever been on, but I want to thank all my CSN friends. I have had so many drop out of my life since David got sick. Of course now that he is dying everyone wants to come to my rescue. Well I'm sorry I am coming for support from the people who have stuck with David and I through thick…
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Billie
Are we still waiting to hear Billie's NED or did I miss it ? Peggy
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not to get political..but
Hi friends, Sorry for my soapbox time, This week has been joyous for some and I don't want to steal fro anyone, but for others and all of us who care its been Hell. I was watching some stupid show Splash tonight where celeberties are in a diving competition, run out of ideas for reality TV I suppose, but the trainer is…
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Week 3 and feeling it
My 43 year old healthy, non smoking husband was dx on Feb 5th with SCC in the base of his tongue with mets to lymph nodes on right side. hPV+. Started with 1st Che 3 chemo's (Cisplatin 200mg) on March 6 concurrent with 35 rad's. after his 15th treatment he has hit a wall. Can't eat, drinking is not easy, and the poor guy…
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NED!!!
I had the appointment with the oncologist for the 6 month post radiation (3 post chemo) follow-up this morning, and everything was normal. During the exam the oncologist reviewed the H&N MRI performed 1 week before (I didn’t know the results until this morning) and scoped the areas involved. I was really worried, not that…
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Dad in Rehab
Dad is doing pretty good in rehab. He is getting a lot of motion back in his arm. It still takes to people to help him walk. He will be in there until at least April 12th. He is not having any major issues with his peg tube, just some nausea right after feeding. The doctor in rehab ordered a CT because she did not…
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I Have My Eyesight Back
About a week ago I posted about my eyesight trouble. ( http://csn.cancer.org/node/256493 ) Since then it has gotten worse. For example if I looked at the TV screen I would see three of them. I suppose that would not be so bad during the playoffs if there were three different games going on. Kidding aside, I thought for…
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How's Vivian today?
Vivian, Just checking in with you to see how you bare holding up? I somehow was wide awake at 2:45am, my time and felt this strong pull to pray for you. So prayed I did! I prayed for peace again and for warmth in your heart. Billie
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NED and Good Friends
Hey Everyone, I haven't posted here much lately but I do still see a few of you on the Head and Neck Warriors site on Facebook. The main reason I pulled away was because of reading some posts that were heartbreaking. It's hard when one of us don't recover. The news really pulls me down so I stop coming. Yes it is selfish…
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recurrent nasopharyngeal cancer (NPC) info and PET scan levels
Hello My mom 68 years old, was diagonosed with Nasopharyngeal Cancer back in April 2012. It was biopsied as keratinized squamous cell carcinoma. Stage 2b, no mets, no lymph node involvement. PET diagnosis was NPC with a FDG sugar uptake level of 3.5 She underwent 7 weeks of IMRT radiation (35 treatments) in conjunction…
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One Year Scan NED !!!
1 year CT Skan all clear.....no evidence of cancer! Yea!! Doctor says everything looks perfect. I am so thankful to God and for all people for helping me to get here. Ann
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Still At Square One!
Well, got all psyched up(NOT) for third try at first chemo infusion today. Nurse tried to use port for labs, but pain during attempted flush about knocked hubby off chair. She said "It's not supposed to do that". When she drew back syringe, it was full of black blood. So blood draw from hand and then on to chemo doc. He…