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Still Cancer Free
Kenny had a CT scan last month and they saw something in his right cheek. He was sent for a PET the beginning of this month and they said they saw nothing in the PET, so we had a fine needle asperation done yesterday. NO SIGN OF CANCER. Such a relief, I was really worried and he didn't say, but I know he was also. Now we…
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My first post (Today is a gift)
Not sure how or why i ended up here today but i truly believe everything happens for a reason. I just had my 12 year anniversary surviving throat cancer :-) I forget all the fun technical terms about my cancer but it was advanced. Stage4, Radical neck dissection, tumor left tonsil, golf ball sized lump in my left lymph…
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Needing serious prayer
So David was having some hallucinations and visual distortions and today we found out why. He has three lesions on his brain. One on the right frontal lobe, one right cerebellum, one left cerebellum. Now they are deciding whether to do a biopsy to find out if it is plasma cell leukemia or head and neck cancer. Neither are…
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SSI..DENIED
UGH, I have done my best to remain positive and upbeat. I tried to naively believe the system would work fairly, well IT DOESN'T! SSI has informed me I am Not Disabled and although I might not be able to perform as I did in the past I can perform to economic status of now. So apparently I have severe hearing lose requiring…
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Our New Journey finishes one course and starts another
2 days Post Treatment!!!! Hi All! The radiation and chemo treatments have come to an end HOORAY!!!!! The next course on our jouney has me on the road to recovery and healing from the side effects of the rads and chemo. The burns on my neck have started to heal and I no longer have to use the silverdean (I know that isn't…
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NED
Had my 3 month post treatment scan yesterday and got clean relults...sort of in shock...for those of you staring the journey remember there is a light at the end of the tunnel.....I am still struggling with some radiation related issues and major weight loss, but trying to get back to work 1/2 days...The beast can be…
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Kent Cass ~ Gone Blog
Not sure if you realize it or not... But apparently our long time brother has posted a Gone Message on his blog... While I can understand, I really hate to see Kent go. He is one of the best, one that makes this site what it is...one that always reminds us to BELIEVE. Has been interesting, and did me a lotta good thinking…
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1-year, good update
H&N Gang, Sorry about the delay, but my ENT is on vacation. He just happened to pop-in to the office today and heard I was interested in the results from my CT scan on Monday (maybe, just a little). Anyway I just got a phone call from him. In a nutshell, he said the enlarged area of the neck was nothing (did not elaborate…
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GREAT NEWS
I had the second neck dissection on Thursday and got some great news. The node that lit up in the scan earlier this month - the one that was supposed have been removed in the first dissection in October - turned out to be benign, so no modified radical dissection, no new disease found. They did take some additional nodes,…
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Sinunasal unadifferential carcinoma
hi My younger sister has been diagnosed with SNUC. Begins chemo tomorrow, followed by radiography. Anyone offer any insight into what we can expect or hope for please thanks bigbruv
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Tumor profile done
Well I received word that my profile was done. I was in to our primary w/Rolie yesterday and asked if they had received it. And I just giggled at our doctor. He looked at me dumb founded and said oh, that's what that was. I wasn't sure how to take that at first. And when he said it's just a bunch of #'s and codes I did…
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Hi From the SW Desert of Arizona
Hi Everyone, While I don't post often anymore, I do try to read the post(s) everyday. All has been well, I'm now almost 15 months out of treatment, all scans to date have been good. My Ent, Oncologist , and Radiologist have cut back my every 3 month vists now to 6 months, they just don't all fall back to back to back, but…
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Saying hello, and unexpected worries
Hey, everyone! I haven't been posting quite as much the past few weeks but I've been here every day. :-) I just wanted to check in to say hi and see how everyone is doing! I'm doing better, for the most part. I still have a little trouble swallowing, but my saliva is a bit better and I think my taste is too. I've started…
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The Good, The Bad and The Ugly
First the good. I had a test yesterday that shows in real time what happens when you swallow. If anything leaks into the lungs it is instantly apparent. 99.9% of what I swallowed wound up in my stomach. That's a real improvement over the last time and they cleared me to have soups (pureed) and semi-solids like yogurt,…
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Checking In...Sorry for the absence
I'm so sorry but bad news is hard to give Here is an overdue update in october i had a biopsy on a lung nodule and had to spend 4 days recoveing from a pnuomthroax. Then i went in for surgey at the end of october and spent 10 days in the hospital after they removed the lower right lobe of my lung that had 5 nodules . they…
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8 MONTH OUT FOLLOW UP APPT WITH ENT AND GOOD NEWS
Saw my ENT today, almost 8 months out of treatment. Got the wonderful scope down the nose and throat and he said everything looked great!!And he wrote those 3 wonderful letters on my chart, NED. Praise God! He thinks everything is just going great. Will see him in 4 months after I have my cat scan in June. And then I come…
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bad smell after radiation treatment and naseau
Have had about 7 treatments af radiation so far and 2 chemo treatments,every radiation treatment seems to leave me feeling naseau with a bad smell surronding me,not sure if its the stuff they use to clean my mask or the table or what.I tried to shower as soon as I would get home and put on fresh washed clothes still no…
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Checking In
Hi all: Thought I'd better check in! Went to Chatt. last week to be with my best friend (her husband Steve is the one undergoing lung cancer tx) a few days. Steve (her husband) is doing pretty good with lung ca tx. No bad side effects from weekly chemo but really really fatigued from the radiation. He has one more chem…
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1st PET Scan After Treatments
Hi Friends! I wanted to offer hope to others with my good news. My 1st scan results brought me good news...NED!! I finished chemo and radiation on Dec 19th 2012 for tonsil cancer on the left side with 1 lymph node involvement on the same side. I know that I am not really out of the woods but this is great news and I am…
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Advice needed -- doctors disagree
Hi, everyone. I have received two different treatment recommendations for my Tx, N2c, M0 metastatic squamous cell carcinoma with unknown primary. Do any of you have advice on the pros and cons of the two options? Here they are: 1. Mayo Clinic is recommending doing a single robotic surgery to remove affected lymph nodes on…
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Blackswampboy....Where are you?
Wondering if anyone has heard from him and how he's doing. Haven't seen him post in a while and always miss a regular Warrior..
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Swallowing exercises
EVERYONE GOING THROUGH OR ABOUT TO BEGIN TX: I know its beat in your head, but I'm gonna beat it some more: DO YOUR EXERCISES OR YOU WILL SUFFER CONSEQUENCES If these had been available to me 12 yrs ago more than 85% of my problems wouldn't exist, and 1 may not exist. My head moves and turns like the worst stiff neck…
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1st PET Scan After Treatments
Hi Friends! I wanted to offer hope to others with my good news. My 1st scan results brought me good news...NED!! I finished chemo and radiation on Dec 19th 2012 for tonsil cancer on the left side with 1 lymph node involvement on the same side. I know that I am not really out of the woods but this is great news and I am…
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alil support, no judging please
Good morning all, I'll start my story 4 yrs ago when my husband was diagnosed with stage 4 SCC, tonsal and 1 lymphnode. He went through 4 rounds of Cisplatin, and 39 radiations tx's. No surgery. He did great, pushed through every tx, still working. Missed 3 days total. 5 months after his last tx, a chest CT showed a spot…
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Olybee and Laralyn
Just wanted to let you guys know we are thinking about you. Have not seen an updated post from you all (unless I just missed it). You are NOT forgotten (and many others on here as well). You are still on the prayer list and praying all is going well :) Best, Tim
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recommened radiologists
Can anyone recommend a radiologist(for a 2nd opinion) in the Orange County or Riverside County CA areas?
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Excess salivation and mucous remedy?
I just finished chemo and 33 rads for cancer of the mandible with fibula free flap. Towards the end i was blessed with excessive salivation and mucous which would inevitably lead to me throwing up. Many people have experienced this, so i will just let you know what works for me so far. Wal-Act from Walmart dried me up…
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1-year, not what I hoped (yet)
H&N Gang, I come to you partially deflated. Not to put the cart before the horse, but my 1-year (routine) exam was not (yet) the stellar exam I had hoped for. It is possibly not serious “at all” but my ENT found a small enlarged spot while palpitating my neck, I could not feel anything. After his in office ultra sound he…
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Thanks for responding to my previous post
Thanks to everyone who responded to my previous post about whether to wait and see versus going ahead with surgery and radiation. Overwhelmingly, the response from people was that the treatment is worth it and the risks of not getting treatment are too high to take the chance. I am getting a final recommendation from my…
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ChefDaddy 3/18 Update ~
Dawn (Sweetblood), just got word from ChefDaddy concerning his son..., not so good news and prayers needed his way... I know that ChefDaddy was on here long before a lot of the current crowd... He had all kinds of hurdles with dealing with cancer himself, custody of his son and daughter from a physcho, stalking ex-wife..,…