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Blackswampboy....Where are you?
Wondering if anyone has heard from him and how he's doing. Haven't seen him post in a while and always miss a regular Warrior..
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Swallowing exercises
EVERYONE GOING THROUGH OR ABOUT TO BEGIN TX: I know its beat in your head, but I'm gonna beat it some more: DO YOUR EXERCISES OR YOU WILL SUFFER CONSEQUENCES If these had been available to me 12 yrs ago more than 85% of my problems wouldn't exist, and 1 may not exist. My head moves and turns like the worst stiff neck…
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1st PET Scan After Treatments
Hi Friends! I wanted to offer hope to others with my good news. My 1st scan results brought me good news...NED!! I finished chemo and radiation on Dec 19th 2012 for tonsil cancer on the left side with 1 lymph node involvement on the same side. I know that I am not really out of the woods but this is great news and I am…
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alil support, no judging please
Good morning all, I'll start my story 4 yrs ago when my husband was diagnosed with stage 4 SCC, tonsal and 1 lymphnode. He went through 4 rounds of Cisplatin, and 39 radiations tx's. No surgery. He did great, pushed through every tx, still working. Missed 3 days total. 5 months after his last tx, a chest CT showed a spot…
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Olybee and Laralyn
Just wanted to let you guys know we are thinking about you. Have not seen an updated post from you all (unless I just missed it). You are NOT forgotten (and many others on here as well). You are still on the prayer list and praying all is going well :) Best, Tim
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recommened radiologists
Can anyone recommend a radiologist(for a 2nd opinion) in the Orange County or Riverside County CA areas?
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Excess salivation and mucous remedy?
I just finished chemo and 33 rads for cancer of the mandible with fibula free flap. Towards the end i was blessed with excessive salivation and mucous which would inevitably lead to me throwing up. Many people have experienced this, so i will just let you know what works for me so far. Wal-Act from Walmart dried me up…
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1-year, not what I hoped (yet)
H&N Gang, I come to you partially deflated. Not to put the cart before the horse, but my 1-year (routine) exam was not (yet) the stellar exam I had hoped for. It is possibly not serious “at all” but my ENT found a small enlarged spot while palpitating my neck, I could not feel anything. After his in office ultra sound he…
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Thanks for responding to my previous post
Thanks to everyone who responded to my previous post about whether to wait and see versus going ahead with surgery and radiation. Overwhelmingly, the response from people was that the treatment is worth it and the risks of not getting treatment are too high to take the chance. I am getting a final recommendation from my…
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ChefDaddy 3/18 Update ~
Dawn (Sweetblood), just got word from ChefDaddy concerning his son..., not so good news and prayers needed his way... I know that ChefDaddy was on here long before a lot of the current crowd... He had all kinds of hurdles with dealing with cancer himself, custody of his son and daughter from a physcho, stalking ex-wife..,…
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More bad news
I am not sure if any of you remember a young couple who posted here a few years ago. The Guy’s wife was having a recurring of NCP cancer for a second time and they were looking some advice. Well they did the second treatment of Chemo & Rad only to have the NPC come back 4 months later for a 3rd time. She did a lot of the…
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~ SweetBlood22 - Dawn - Out of Surgery - March 20 PM
SweetBlood22 - Dawn has had some issues for awhile... Just talked to her and unfortunately she has to do battle with the beast again. Not a recurrence, different issue, different area, but still SCC. From what I gather, surgery is on the agenda and if all works out after scans that could be it. If not, then additional…
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Anybody heard from?
Forgive me if I get their screen names wrong, but has anybody heard from Nick770 or BarefootBob? I know Nick was supposed to have a biopsy, but haven't seen him post anything. Also am curious how Bob is doing. If anybody ever wonders if your posts matter & people really care, trust me they do! I don't post as much as…
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Our New Journey finishes one course and starts another
2 days Post Treatment!!!! Hi All! The radiation and chemo treatments have come to an end HOORAY!!!!! The next course on our jouney has me on the road to recovery and healing from the side effects of the rads and chemo. The burns on my neck have started to heal and I no longer have to use the silverdean (I know that isn't…
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NED Is Still My Friend
Doc called me at 8:20 this morning to let me know everything is still clear. I have two modules in the lower part of my left lung but they have remained unchanged since Day 1 and show no indication of malignancy so I'm not going to worry about that. So far, so good!
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How To Reply To A Topic
Sorry for being so dense, but I can not figure out how to reply to a thread. I clicked on my first post and did not see anything on the bottom of the page like 'add reply' . Thanks for any help. Dennis
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Dad going to rehab
Dad should be going to in-patient rehab tomorrow. He is doing amazing. He already has about 50 percent use of his arm and leg again. So far no problems with his feeding tube. Thanks for all the prayers. Kathy
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Speech Therapy UPDATE!
Hello my friends, I am so excited to tell you all that at me swallow study today, I DID NOT ASPIRIATE anything! I closed my wind pupe, my muscles all worked and moved up. I still have a very slow swallow, so still keeping peg and no food or liquids yet, more therapy and exercising needed to strengthen my swallow. But there…
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Diagnosis: Tx, N2c, M0 squamous cell carcinoma metastatic to cervical lymph nodes on both sides wit
Thanks, everyone for being so helpful in response to my previous posts. I got my official diagnosis today: Tx, N2c, M0 squamous cell carcinoma metastatic to cervical lymph nodes on both sides, with unknown primary As I have posted before, the Mayo Clinic surgeon is recommending robotic surgery to remove the cancerous lymph…
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Technical Problems, No Response from CSN
I've had a "friend request" staring at me when I log on to the site since last week. When I try to click it an error message tells me it can't be linked, and if it persistst to contact for help. Sent email on Saturday, no response. Sent email on Tuesday, no response. What up with this?
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levothyroxine and psa levels
hi everyone i am a two year survivor of scc.just had a routine physical that included screening for prostate cancer. the psa nunbers came back very high 24 and 10 days later 41. i have been on levothyroxine therapy which has recently been increased. this leads to my question has anyone experienced elevated psa levels due…
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Life After Cancer ~ Fun Times
Again, I know and realize, been there, done that, cancer and treatment just plain sucks, totally not fun. But soon many of you will be doing the things you love, and it'll all be worth the pain and suffering you have, are and will suffer...; My wife doesn't care for fishing much, but she has a friend that likes it so I…
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Stupid question?
Hey Guys, Those of you that have feeding tube or had, and had to do it yourself... I get delivery of my Ensure once a month, I get food, syringes, and 2 bottles of Saline solution along with qauze bandges for the peg. Question is, WHAT THE HECK IS SALINE FOR? I have been flushing with 1 60cc of tap water, food, and than 3…
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Tube Out... Problems One Year Later???
It will be one year next month since my husband had his feeding tube removed. He continues to have stomach problems and projectile vomiting on a daily basis. Is this normal? Is this a permanent side effect? Please share your knowledge/experience with this.
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advice on tattoo post treatment
Hello Everyone, It has been a while since I posted. It will be a year that my husband Robert finished treatment on April 2nd. He has been thinking of getting a tattoo redone and would like to hear any advice or thoughts on the idea. Thanks, Denise
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Late effects to lungs - check!
Got a preliminary written report on my CT Thorax from my oncologist (still not the lung doc) which stated two conclusions of note: (1) Multiple nonspecific pulmonary nodules measuring up to 4 mm in the right upper lobe, and (2) Biapial ground glass opacities, likely representing postradiation change. First response -…
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Robotic surgery recommended
Today, I saw a Mayo head and neck cancer surgeon. Despite several MRIs, PET scans, and scope examinations of my oral cavities, they still have not found the primary site of the cancer. The only place it has shown up is in the lymph nodes, both sides. Their recommendation is robotic surgery where they would biopsy each…
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Newly diagnosed SCC in lymph nodes but primary source unknown- Should I get tonsillectomy biopsy?
Hi, everyone. I was just diagnosed with metastatic squamous cell carcinoma -- head and neck cancer. I am 59 yr old male in good health...not a smoker or heavy drinker. My lymph nodes on both sides are affected, but they could not identify a primary cancer site through MRI, PET scan or ENT exam. The ENT is recommending more…
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Finally a desicion from Social Security
Hey everyone, I have been waiting patiently since mid January for Social Security to make a decision, I expected that they would request that I be seen by their doctors(but no request came). I could log in everyday and check status and it always said "No decision, processing your medical information", well yesterday it…
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Donna B ~ To Radiate or Not To radiate...That's the Question...
Reposted for a first time poster,,, donna b Posts: 1 Joined: Mar 2013 Mar 18, 2013 - 1:07 pm This is my first time on this New This is my first time on this sight. My case is a bit different from those I've read, although similar enough for someone out there to help, I'm sure. In january, I had surgery for stage 1 tongue…