Skiffin16 - Update December 2014
Just an update as Tim, and a few inquired...
First and foremost, Merry Christmas upcoming... You are family...
I haven't been posting much as I'm still trying to recover from the Whipple in April... It's been a battle, but overall I'm pretty good...
I've lost a total of 77#, but finally stabled out..., and I'm not skinny.., 6' and 192#, so I'm actually pretty good considering.
I do have to go back in this Tuesday, 12/6 for another surgery to try and close my leaky hole in my stomach. The conservative approach of waiting, just isn't working.
So yet once again, please keep Shelley and myself in your prayers please...
I'll definitely keep you posted...
Also, please realize this has nothing to do with the tonsil cancer I had finishing out six years ago..., clean and clear.
So for you newbies, I was Dx STGIII Tonsil Cancer, a lymphnode, HPV+.. January 2009.
So you also can survive and thrive.., hang tough, and NEGU...
Never Ever Give Up...
and be Abi-Normal every chance you get..., bawahahahaaa..
John
Comments
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Hey John!
Merry Christmas back at ya!
Man this Whipple was one tough surgery...sending prayers and positive thoughts that this will finally clear the leak up. The weight loss would be wonderful if you didn't have to get it this way. Keeping you and Shelley in my thoughts. We miss you around here!
p
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Johnphrannie51 said:Hey John!
Merry Christmas back at ya!
Man this Whipple was one tough surgery...sending prayers and positive thoughts that this will finally clear the leak up. The weight loss would be wonderful if you didn't have to get it this way. Keeping you and Shelley in my thoughts. We miss you around here!
p
Good to read your post. Like you, I will be going under the knife in the near future too. PETS have been clean amd I had a pectoral flap done but the darn fistula didn't close up. I start hyperbarics again Monday to vitalize the tissue to give surgery the best chance. I lost an additonal 38 pounds since April so in Sept. had to get another feeding tube. Two hospital stays as I could not tolerate Jevity and got dehydrated. Am on Ensure Plus 5-6 cans and managed to gain 10 back. I had been scheduled early in Nov. for surgery but my husband had a stroke, actually two of them. He has moved from rehab to skilled nursing. Continuing to make progress but it is slow. Biggest deficiency seems to be with vision and his mind wanders to the past allot. That can be very confusing for someone who has had five wives! My hope is that he will eventually be able to return home with some in-home care to help me during the day. Time will tell. My husband was the best caregiver I could have hoped for and I want to make sure I am every bit as good to him.
Will continue to keep you & Shelley in my prayers and ask the same of you. I keep going back to my favorite poem "Footprints in the Sand" for strength. Having lost one of my sisters and my Mother this year has taken it's toll. I know you lost your sister as well.
Wishes for a Merry Christmas and a much awaited Happy New Year!
Candi
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fishingCivilMatt said:right coast to left coast
Skiffin,
I am glad you are getting it fixed, I liked the “no leak” John better.
A few more patches and you will be all better. All better means showing up to the Abi-normal meetings…bawahahahaa (secret code).
Heal on brother!
Matt
You gotta get well to come out on Irish Sea mate!
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Like an old car
As we get older we can be compared to an old car. We develop leaks and have to go in for repairs a bit more than ussual. Probelm is your not that old and I'm sure Shelley is thankful your still under warranty. (Just make sure she doesn't utilize the lemon law) Go in and get that leaky fuel tank repaired and get well for Christmas and the New Year. Shelley, if he doesn't pas your pre-trip inspection (Truck driver terminology) write him up and take him to the garage if it's a safety issue.
Maybe Matt and I should come down kick the tires, full ya up with some high octane and go out for a spin.
See ya on Fakebook my friend.
Enjoy the day
Jeff
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Good luck
on your coming surgery, I hope this is the last time you have to go through such ordeals, and may the New Year bring you health and happiness
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Skiffin 16 Update
John,
Merry Christmas to you and your family. I'm sorry you have to go in for another surgery, but I hope this will be your final step on the road to recovery.
Hang in there old friend. You were always an inspiration to me and to all the others that followed your thoughtful postings. You're in my thoughts and prayers.
Rush
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Merry Christmas....
Merry Christmas John & Shelley. Been thinking of you guys and I'm sure you will be "patched up" in no time!
~C
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Merry Christmas, Johncureitall66 said:Merry Christmas....
Merry Christmas John & Shelley. Been thinking of you guys and I'm sure you will be "patched up" in no time!
~C
Good to see your post!
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Jaw Stiffness
John I hope you faired well after your surgery. I haven't posted in a while. My husband started out with head/neck cancer. He had 4 surgeries for recurring Squamous cell. I thought that is what you had. He had 6 weeks of intense radiation at MD. Almost two years later he is having major issues with teeth and jaw. Jaw is constricting so much he can hardly put a spoon in to feed himself. He is receiving chemo for lung cancer which complicates things. The dentist feels it is too dangerous to remove his teeth due to infection. He has done his exercises but in great deal of pain. Do you know of anyone with these issues?
laurabeau
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Laura Beaulaurabeau said:Jaw Stiffness
John I hope you faired well after your surgery. I haven't posted in a while. My husband started out with head/neck cancer. He had 4 surgeries for recurring Squamous cell. I thought that is what you had. He had 6 weeks of intense radiation at MD. Almost two years later he is having major issues with teeth and jaw. Jaw is constricting so much he can hardly put a spoon in to feed himself. He is receiving chemo for lung cancer which complicates things. The dentist feels it is too dangerous to remove his teeth due to infection. He has done his exercises but in great deal of pain. Do you know of anyone with these issues?
laurabeau
Just had to reply to your post about your husbands jaw issue. I am almost 5 years out of Base of tongue cancer with 36 rads and 6 chemo sessions. I did great for 3+ years and then my jaw opening got very tight and I was in pain. After about 4 months of tests, and Dr's opinions, I found out I had ORN (Osteoradionecrosis) and after another 6 months of trying to deal with and understand it, i had surgery to replace part of my jawbone. I am now 16 weeks out of surgery and doing quite well. So, have someone look into ORN as a possible issue with your husband. This surgery is a big one, but it is a solution possibly.
All the best,
steve
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Jaw stiffnesshawk711 said:Laura Beau
Just had to reply to your post about your husbands jaw issue. I am almost 5 years out of Base of tongue cancer with 36 rads and 6 chemo sessions. I did great for 3+ years and then my jaw opening got very tight and I was in pain. After about 4 months of tests, and Dr's opinions, I found out I had ORN (Osteoradionecrosis) and after another 6 months of trying to deal with and understand it, i had surgery to replace part of my jawbone. I am now 16 weeks out of surgery and doing quite well. So, have someone look into ORN as a possible issue with your husband. This surgery is a big one, but it is a solution possibly.
All the best,
steve
Thanks so much for your reply Steve. We had an appointment with an oral surgeon today and they put him on muscle relaxers. I pray it works. This would be surgery number 6 If it doesn't. We will do a ct if meds don't work. As bad as his teeth are due to radiation it wasn't the teeth and the jaw wasn't broken. We shall see.
Thanks again,
laurabeau
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HONDOlaurabeau said:Jaw Stiffness
John I hope you faired well after your surgery. I haven't posted in a while. My husband started out with head/neck cancer. He had 4 surgeries for recurring Squamous cell. I thought that is what you had. He had 6 weeks of intense radiation at MD. Almost two years later he is having major issues with teeth and jaw. Jaw is constricting so much he can hardly put a spoon in to feed himself. He is receiving chemo for lung cancer which complicates things. The dentist feels it is too dangerous to remove his teeth due to infection. He has done his exercises but in great deal of pain. Do you know of anyone with these issues?
laurabeau
He has had similar problems as you mention also....
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Jaw stiffnesshawk711 said:Laura Beau
Just had to reply to your post about your husbands jaw issue. I am almost 5 years out of Base of tongue cancer with 36 rads and 6 chemo sessions. I did great for 3+ years and then my jaw opening got very tight and I was in pain. After about 4 months of tests, and Dr's opinions, I found out I had ORN (Osteoradionecrosis) and after another 6 months of trying to deal with and understand it, i had surgery to replace part of my jawbone. I am now 16 weeks out of surgery and doing quite well. So, have someone look into ORN as a possible issue with your husband. This surgery is a big one, but it is a solution possibly.
All the best,
steve
well, Steve after x-Rays they ruled out the tooth issues and the jaw bone is not broken. The pain got more intense and no sleep for days. He had a CT several days and as you can well imagine we were holding our breath. The Dr. Called at 6:00. Pm to say two radiologists confirmed the CT was clear.Pain subsided yesterday(no pain meds) and later today the pain came back. Tomorrow we go back to the oral surgeon for injections into the jaw. Dr still thinks it is muscle relatEd.
Laurabeau
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