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My Mom - 2nd opinions are good!
Well my mom was given a few weeks to live by her onc. that said her liver was taken over by cancer and going to fail soon. Thank god we got her to Georgetown and it was determined that most likely her bile duct is clogged and she will be having it opened on Monday. Apparently she will get almost instant relief and be…
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Stomach Cramps and CPT11
Hi all, I've been on Erbitux and CPT11 for 21 weeks now. I was on CPT11 and FUDR for 6 months before that. I had 60% of my liver removed a year ago in September, things are going well except I have some mets in my lungs that are responding very well to the Erbitux and CPT11 mix. the only major problem I have is with the…
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erbitux and avastin
My mom's new onc. has suggested ironetecan + erbitux + avastin. Anyone used this combo?
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BMS-582664
Anyone know anything about this trial or plan to be involved? Also what are your opinions on doing a phase one trial? Thanks!!!
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chemotheapy delivery
Has anyone ever heard of a box that the surgeon inserts under the skin that delivers chemo on a time release system?
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pain and bloating
i just came back to China to visit my brother. To fill you in he has stage IV colon cancer with peritoneal carcinomatosis. The biggest mass being in the mesentery 3.6 inch by 3.2 inch, another big one in the transverse colon about 2.5 by 2.4 inch. He went through 2 chemos already. I have started him on immunopower (the…
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Needing some prayers
Hi all, Well, you will really not believe this. At least, I don't really yet. There was this bump on my head. Given the fact that I'm on erbitux and dealing with the rash, I figured (along with my mother and oncologist) that it was a sebaceous cyst. Anyways, we biopsied it and it turns out to be cancer. Yep, I have a scalp…
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just asking for encouargement
well tomarrow will be my 10th treatment of folfiri. still no ct has been ordered. in the meantime my granny is getting worse everyday as she nears the end of her life here on earth. it has been a blessing to take care of her and i will continue until that day. i hate treatment anymore and after dealing with this since 1998…
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Giving Thanks for NED
Hi all, What a day! 2 years ago this time, I was awaiting surgery for removal of my cancerous polyp. Now, I am nearly 2 years out, (stage 3, 1 positive node, 6 months of chemo). My colonoscopy and CT scans last week came back NED!! That first year was a blur; now, I feel like a new improved me! While I would not recommend…
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Stage 4 treatments ?
Hi everyone. My friend's mom was just diagnosed with stage 4 Colon CA with mets to liver and lungs. She is in her late 70's. Any idea's what treatments may be used? I was stage 3, so am not up on the current protocols. I believe they are not looking at surgery or radiation. At least not yet. Chemo options? Thanks. I gave…
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good and bad news...please advise
Hi..if you all remember me, I was dx with colon cancer stage iv in jan. Just had a ct scan which was NED... but today i received the biopsy results from my left breast and it was positive. they still dont know if is a new cancer or not...what should i expect in either case? I'm very scared.....cant stop crying and I'm…
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naturopathic Dr in dallas ?
any recomendations ??? Thanks again Ileana
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hubby sick, coughing and sleeping
do you ever really get a day now and then of not worrying so much that as a caregiver I feel so helpless. My hubby started folfiri with avastin almost 2 wks ago- it went fairly well and we are scheduled for round 2 this week- but he seems to be getting worse during the week off and not better...??? He has a fairly steady…
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worrying about my care
Hi everyone. I have been doing Erbitux weekly and Cpt11 every other week for the past 8 weeks for mets to my liver and abdominal lymph nodes. I skipped one week because of chest and shoulder pain to go to the hospital to take a chest CAT scan and an EKG. All was found to be well. My onc said at the time that maybe the…
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Happy birthday to me.
Hello Today is my birthday. I always feel special on my birthday. i am 46 years young today. On Thursday 1st Dec, I have a scan to check progress of liver growth. Is there anybody out there who had inoperable liver mass, size c4cm, and it disappeared with Avastin? So far it has shrunk 40% from 6cm during folfiri treatment.…
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update
Hi everyone, I finally saw the alternative medicine dr. today. I got answers to my questions and they actually made sense. I will be implementing some of his suggestions, diet, supplements and accupuncture along with chemo to try to achieve a better immune system and healthier life style. I start my 3rd session of folfox…
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Would You Eat This???
hey all you Semi-Colons! So my question to you all is would you eat this? 1,6 - dichloro - 1,6 - didoxy - beta-D-fructofuranosyl - 4 - chloro- 4 deoxy-alpha - D - galactopyranoside Wow, can you even swallow the name??? Can anyone guess what this chemical is that many are ingesting every day? Did anyone guess SUCRALOSE??…
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My mom... please respond
Hi all my mom is no longer responding to any chemo related therapy. We are looking for trials that may accept her QUICKLY!! Any ideas out there? I have made some calls regarding vaccine trials. Her onc. said she may not be a candidate for any trials b/c her liver function is poor. Her bilirubin is currently 15. Anyone with…
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Oh my!! I'm having a GOOD day!!!!!
Hi everyone, The past three years of advanced stage colon/uterine cancer combined with the death of my husband and now being alone without an income waiting for the disabled widows benefits to begin has been more difficult to survive than I can discribe here. So when I have a good day I just have to share it. Not that…
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Zena Warrior
Hi dear friends....geeez...I hope tha glitch on here has taken a dive. I could not login for a while. I just wanted to share with you all. I just got off the phone to Wanda and want to tell you how wonderfull it was to talk to her. I can tell from those 30 minutes that our warrior has an incredible sense f inspirational…
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Shaped-beam radiation therapy **NEW
FYI.....this is the new procedure I told Erika (themis01) about. I don't think it is clinical trial anymore. The article is below: Sounds good. Rochester's Precision Radiation Therapy Yields Rare Success for Liver Tumors Robert J. Flavin Shaped Beam Surgery Center at the Wilmot Cancer Center offers expanded treatment…
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A Belated Happy Thanksgiving to ALL!!
Hello Everyone!!! I just wanted to wish everyone a Happy Thanksgiving!!! I only have one thing to be thankful for this year and that is ALL OF YOU!!!! Thank You for thinking of my Bob on your special day!!!! Again, Thank You!!!! Love Always!!! Sue
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to moesimo
I have tried emailing you at your personal address 4 times. A couple of times responding to your emails and once or twice sending you a fresh one. i keep getting messages from my server saying they are unable to connect with your server. Go figure. Anyway...I had a nice thanksgiving. hope you did too. tolerating chemo…
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New cancer!
Hello everyone, just wondering if anyone with primary colorectal cancer out there has had a new primary cancer? thanks Virginia.
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question about annual colonoscopy
My annual colonoscopy is in 2 weeks. Does anyone have any suggestions on how to make the stuff you have to drink more palatable. Just thinking about it makes me gag. I wish you all a very nice Thanksgiving tomorrow. Regards, Arlene
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Newbie
Hi everyone! I`m recently diagnosed stage 3 and had surgery 9/27 . Got my port and have my 1st apt. for folfox at sloane-kettering on Wed. I`m 55 and just retired from the Post Office after 32 yrs. It all has happened so fast that I still can`t believe that the doctor is talking about me when he`s speaking!I`m not scared…
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Rising CEA
My husband, dx July 2003 stage 111C rectal cancer and doing well has had CEA levels of 3.1, 2.9 and 2.6 and considered acceptable. His oncologist told us that levels can "wobble around " a bit. Now it is 3.3 and he is still being told that this is OK and that he should have another one early January to make sure this is…
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Need inspiration
I am newly diagnosed with stage III colon cancer and am 43 with 3 children. I have had a sigmoid colon resection that went well, have had the porta-cath implanted last week which still is very strange, and am scheduled to start the FulFox routine (with oxilaplatin) Nov. 28. I am very scared about the prognosis and need to…
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My Mom
Well if you have been following my mom she had a folfox treatment last week kind of as a last ditch effort since her liver has gotten so bad so fast while on folfiri that didn't work. She has been VERY jaundiced for a week or so and her bilirubin was 16 a few days ago. The onc. told me this past Wed. to watch for my mom to…
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newbie
Thanks to Kerry,Maura,Ross&Jen,Maureen,Margo,Ali and Howard for your encouragement! Just got back this evening from my first chemo. It went quite well ! I am feeling just a few side effects i.e tingling on ends of fingertips and feet but otherwise good.Ross&Jen you asked details of my surgery. I was totally suprised by…