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Husband going for surgery next week
Hi there; I am new to this group so please excuse me if I have posted this wrong. My husband, age 40 was diagnosed in Sept. 05 with stage 3 colorectal cancer after being told for over a year that he had colitis. We received the news from the doctor when I went to pick him up from his colonoscopy with my 3 young kids with…
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problems with illiostomy
Hi again, you were all so wonderful to our recent posting yesterday, I was wondering if anyone had information on illiostomies. Mike had an operation for one just a week after treatments had started (finished treatments now). That was over 2 months ago. Our concern is that he is having SO many problems with it. The nurses…
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One week in the sun
Tim and I are cruising to the Carribean tomorrow. Celebrating the start of a groovy new year. HAPPY NEW YEAR TO ALL. Love, Louise
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My good fortune continues
Hi my friends, I want to share my story on this last day of 2005 with you all to hopefully inspire you that you can kick this **** in the arse. It is going to be long because a 2 plus year journey is long. History, dx Feb 2004, stage IV with 2 mets to my liver and 1 to my lung. My colon had perforated 4 months earlier. I…
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Happy New Year!
Just wanted to wish you all a Happy and Healthy New Year. 2006 has got to be better than 2005 was!! Linda
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Sore toe and Erbitux
Hi Everyone, Hope everyone had a great Christmas/Holiday/Whatever. Has anyone had trouble with the Erbitux making their toes sore? I have the usual rash (which isn't too bad anymore) and the cramping from the CPT 11, but lately my big toe is very sore on the side by the nail and just putting socks and shoes on is a killer.…
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Any opinions from those taking Xeloda would be appreciated
Hi all and Happy 2006 to you all ! My father has been on Xeloda 500mg (3 tabs in the AM and 4 tabs in the PM) since 11/2/05 for Stage 3 Colon Cancer. I'm very concerned about him. He has no appetite and eats very little and sleeps alot. He's been OFF the Xeloda (he takes it Days 1-14, then Off it for 7 days, then restarts…
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new year
The new year is coming, so friends gather round, Hold hands and be thankfull, for the love that we've found. I've touched you with rainbows, Kanga's love that is free, For all that are ailing like you and like me. It's filled with my love and Jen's love as well, We know you'll reciprocate and that would be swell. So…
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husband going for surgery next week
WOW! We are completly overwhelmed with all the quick responses we have recieved from all of you wonderful people giving us lots of hope, which is sometimes hard to have. He had to have an illiostomy done back when he first started treatments due to the fact that there was blockage. That was very hard for him to deal with.…
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no chemo low wbc
Hi- My husband was unable to have his 4th treatment of folfiri and avastin because his neutrophil (wbc) count was too low. So now he has to wait a week for it to hopefully go up and then when it does they will reduce the dosage of his chemo as per his clinical trial protocol...His blood counts had stayed fine before when…
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New's Article ( Dec 22 )
Thursday, December 22, 2005 - Page updated at 03:45 PM E-mail article Print view Blood test shows promise in detecting colorectal cancer By Benjamin J. Romano Seattle Times business reporter Sorry, men and women over 50. This isn't a replacement for the colonoscopy. But a blood test developed by researchers at Epigenomics…
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Went home to be with the Lord
I am sorry I never came back on this site to let you all know that my little brother; Jesper Sorensen (29 yrs old)that had small cell in the colon passed away on Aug 11,2005 my only peace I have with this is knowing he received the Lord Jesus Christ as his Savior and went home with him...The battle was only for 8 months…
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1.5 years NED and counting
Hello all. I feel like I haven't been here in ages. ( guess that's true) Well, I had a sigmoidoscopy this morning. Everything continues to be great. NED. I have to tell you, this was a really nerve racking visit. Guess it just got to me. These first two years post surgery really have my head spinning. It's so scary. Well,…
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MERRY CHRISTMAS & A NED-LY NEW YEAR!
To all of my wonderful extended family members here at CSN (including Jose, Dana & Greta!), I just want to wish each of you a joyous Christmastide and a healthy and happy new year. Peace & happiness to your homes. - SpongeBob
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new primary cancer but NED on colon cancer
Hi ! Wanted to let you guys know that the mass that was found on my breast was breast cancer, not colon...which is GREAT news !!!I'm sure you have never met anyone been so happy because Dr. told her that was breast instead of colon. The other good news is that is SOOO small that i will NOT need chemo, only radiation for 5…
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number of rounds with oxaliplatin???
Hi all. I am on folfox4 and am scheduled for 12 rounds (stage 3 rectal cancer with high lymph node involvement). i am going through my fifth round now, woo hoo! have had some neuropathies with the oxaliplatin (jaw tightens when eating, finger tingle, sensitivity to cold, etc) but nothing i can't handle....give it all to me…
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Post
Peace On Earth Bob... Bud (anyone else having trouble replying?)
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Just Need Support
Hi everyone, first I want to say Happy Holidays. I just had a couple of bad days. My dad has Stage 4 Colon Cancer and I was talking to my mom yesterday and her and my dad are coming for Christmas Eve. I asked her yesterday if she was still comming and she said she didnt think so and I said you better we want to see you and…
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UPCOMING PETSCAN
Hello to all and Merry Christmas. Even though I do not post often I still read the messages. Brief update. Dx.ca/colon Aug.2003.8/20 nodes positive. Stage 4 locally advanced ca. Still have a illeostomy bag on right side and a draining mucous fistula on the left side(part of the disconnected colon). Since June of 2004 after…
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Merry Christmas from Canada
We would like to wish everyone a very Merry Christmas and nothing but good health and happiness for 2006. Andy & Lisa
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got 2nd and 3rd opinions
I have just finished getting my second and third second opinions. This doctor said that my original oncologist gave me a 5 instead of a 10 dose of Avastin. Therefore, he doesn't feel that I failed Avastin and it is clear that I didn't fail oxaliplatin. He feels that I should do Xelox with Avastin next. He feels that xeloda…
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NED stays for Christmas!
Hi all - Thanks for all the good thoughts. I got last Friday's PET/CT results today and both PET and CT are clean! No sign of liver met that was found last May. So, Merry Christmas to me! And, now I can stop jumping out of my skin everytime the phone rings (which I have been doing since last Friday afternoon!) Thanks all…
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Christmas downunder
Hi to all,It is Christmas eve here already and we are looking at temps over 100 for the next three days .Makes you really look forward to a hot roast dinner NOT! We will have our usual all day snack of prawns ,ham and nibblies. It has been a mixed year with some wonderful triumphs balanced by the sadness of losing some…
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Wonderful News For Christmas
Hello Everyone, My Dad got the results of his latest scans this morning. The Camptosar/Erbitux combo has succeeded in making some of the spots disappear and the rest of them show signs of continuing to shrink. The Dr. is going to keep him on this current treatment plan until everything has disappeared or plateauted. At…
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Happy Holidays!!
Hi all, just wanted to wish you all Happy Holidays. I found this poem and wanted to share it with you. I have dedicated it to my children from Scott and to anyone who has lost a loved one. I see the countless Christmas trees around the world below, With tiny lights, like Heaven's stars, reflecting on the snow. The sight is…
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I was told not to worry.................
But, as you all know it doesn't take much for any of us to get concerned about any testing we have done. I had a routine cat scan in Nov., there was an area in the presacral space in my pelvis that was a little larger than my last scan. My oncology surgeon was not overly concerned. The area lit up on a pet scan last Jan.…
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working on my second opinions
I have been busy lately taking new PET and CAT scans and working on second opinions. I have been on Erbitux and CPT11 for the past ten weeks and Avastin and CPT11 for twelve weeks before that. Three weeks ago, my oncologist freaked when my CEA went up to 49. She said there is nothing more she can do for me and its not…
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What now?
After 12 years of NED, my recent blood work was not good. I had an abdominal and liver scan today, now have to wait a week for the results. My CEA has risen to 8 just out of the blue and I have lost 5 kilos without trying. Wish I could loose 20 more, I would feel a lot more healthy. Had a chest x-ray which came back normal…
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Low Platelets
Hi everybody, It's been a long while since my last post. It gets very busy around here, but I do love following your positive progress. I have a question for you all.. My husband finsihed 12 rounds of FOLFOX with Avastin in August, then went on to have his colon resected. He Had 95% liver involvement and the tumors could…
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Nutrition during chemo
Can anyone suggest a good book on nutrition during chemo? I have heard that certain nutrients can often play an adjunctive role to more aggressive forms of treatment by increasing tumor response and decreasing toxicity. Anybody got any info.