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Bert & Mom
Hi everyone. We've been holding our own out here in unbelievably hot, sunny Southern California. Just thought I'd let you all know what's been going on. Bert continues to do well :o ). Two PETs, three CATs, and a recent colonoscopy have all shown no evidence of disease :o )....thank you God! He has now completed four…
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New Member
Hi, Everyone... I just found this forum tonight. I thought that perhaps I could be of help to someone who may be going through what I went through 18 years ago after I was diagnosed with cancer of the mesentary at age 37. The mesentary is the blood supply to the small intestine. The cancer was wrapped around the majority…
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Grim Outlook
Hi folks. What a wonderful resource you have assembled here. I am hoping to bend your ears for a moment because It seems I am running out of options for survival. I am a 27 year old male, otherwise in good health, who was diagnosed with an "Adenocarcinoma of the Descending Sigmoid Colon" in Feb. of this year. My tumor was…
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One year ago...
One year ago today I was celebrating my 50th birthday in Hawaii unaware that in 3 weeks I'd be diagnosed with colon cancer and spend New Years Eve in the hospital after having a laprascopic right hemicolectomy. Over the past year there were challenges learning to cope with the emotions of cancer, and challenges at work. In…
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Happy Birthday Stacy Gleason
Hi Everyone, Let's all join in and wish Stacy a very Happy Birthday. This wonderful lady turns 38 years young on December 2nd... So girlfriend have a great Birthday and who know's maybe we'll go for that drive in a convertible in 2006... Also, We have reached an agreement with Hotel Delta Halifax for Palooza 4 on room…
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question about annual colonoscopy
My annual colonoscopy is in 2 weeks. Does anyone have any suggestions on how to make the stuff you have to drink more palatable. Just thinking about it makes me gag. I wish you all a very nice Thanksgiving tomorrow. Regards, Arlene
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Lower Rectal Cancer
My friend has cancer of the rectum very close to his anus (large mass). I'd appreciate any words from those out there that have/had this condition, treatments they are doing/have had, where they're at now and/or anything else that may be useful to my friend. He is not going to any support group which I think would be good…
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I'm Planning on Survival
Hi fellow semi colon-ites. I had send an update a week or so ago about my cancer coming back and it now being stage 4 with tumors attached to the left and right side of the colon and one rotten bugger in the tissue by the colon. So far, no detections of mets to the lungs or liver. This is really quite new to me so I am…
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stage 1V's please respond
Well my hubby had his second folfiri plus avastin treatment..during which time the Onc finally shared the results of his CAt scan that he had before the trial (he thought the referring Dr had spoken to him- but it turns out he hadn't had a full CAT- just an abdominal one previously)- but anyway it showed a met in the lung…
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Good Liver Surgery Stories?
Hello : ) I am due to have surgery to remove the entire left lobe of my liver and my gall bladder sometime around the end of December or beginning of January. This is to remove a 3cm metstasis in the left lobe. My oncologist scared me a couple weeks ago by describing the surgery as being "very bloody". And then I happened…
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Thanks for replies
Thanks for all the replies to my post. had a lovely b'day and am now proud possessor of beautiful red boots. Am wondering if George Best was well known in other parts of the globe? Scan results on Tuesday next, hopefully. Tara, i am feeding the faith and starving the doubt. Thanks for the advice. Byeee Margo Byeeee
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thanks - worrying less
I want to thank all of you. You gave me some great suggestions and I'm following up on a lot of them. I've made some new appointments with the docs to look into other treatments. I can't believe that Erbitux and Cpt11 is the only treatment out there for liver mets. Also, I was told it was inoperable by one surgeon. I need…
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My Mom - 2nd opinions are good!
Well my mom was given a few weeks to live by her onc. that said her liver was taken over by cancer and going to fail soon. Thank god we got her to Georgetown and it was determined that most likely her bile duct is clogged and she will be having it opened on Monday. Apparently she will get almost instant relief and be…
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Stomach Cramps and CPT11
Hi all, I've been on Erbitux and CPT11 for 21 weeks now. I was on CPT11 and FUDR for 6 months before that. I had 60% of my liver removed a year ago in September, things are going well except I have some mets in my lungs that are responding very well to the Erbitux and CPT11 mix. the only major problem I have is with the…
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erbitux and avastin
My mom's new onc. has suggested ironetecan + erbitux + avastin. Anyone used this combo?
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BMS-582664
Anyone know anything about this trial or plan to be involved? Also what are your opinions on doing a phase one trial? Thanks!!!
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chemotheapy delivery
Has anyone ever heard of a box that the surgeon inserts under the skin that delivers chemo on a time release system?
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pain and bloating
i just came back to China to visit my brother. To fill you in he has stage IV colon cancer with peritoneal carcinomatosis. The biggest mass being in the mesentery 3.6 inch by 3.2 inch, another big one in the transverse colon about 2.5 by 2.4 inch. He went through 2 chemos already. I have started him on immunopower (the…
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Needing some prayers
Hi all, Well, you will really not believe this. At least, I don't really yet. There was this bump on my head. Given the fact that I'm on erbitux and dealing with the rash, I figured (along with my mother and oncologist) that it was a sebaceous cyst. Anyways, we biopsied it and it turns out to be cancer. Yep, I have a scalp…
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just asking for encouargement
well tomarrow will be my 10th treatment of folfiri. still no ct has been ordered. in the meantime my granny is getting worse everyday as she nears the end of her life here on earth. it has been a blessing to take care of her and i will continue until that day. i hate treatment anymore and after dealing with this since 1998…
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Giving Thanks for NED
Hi all, What a day! 2 years ago this time, I was awaiting surgery for removal of my cancerous polyp. Now, I am nearly 2 years out, (stage 3, 1 positive node, 6 months of chemo). My colonoscopy and CT scans last week came back NED!! That first year was a blur; now, I feel like a new improved me! While I would not recommend…
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Stage 4 treatments ?
Hi everyone. My friend's mom was just diagnosed with stage 4 Colon CA with mets to liver and lungs. She is in her late 70's. Any idea's what treatments may be used? I was stage 3, so am not up on the current protocols. I believe they are not looking at surgery or radiation. At least not yet. Chemo options? Thanks. I gave…
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good and bad news...please advise
Hi..if you all remember me, I was dx with colon cancer stage iv in jan. Just had a ct scan which was NED... but today i received the biopsy results from my left breast and it was positive. they still dont know if is a new cancer or not...what should i expect in either case? I'm very scared.....cant stop crying and I'm…
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naturopathic Dr in dallas ?
any recomendations ??? Thanks again Ileana
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hubby sick, coughing and sleeping
do you ever really get a day now and then of not worrying so much that as a caregiver I feel so helpless. My hubby started folfiri with avastin almost 2 wks ago- it went fairly well and we are scheduled for round 2 this week- but he seems to be getting worse during the week off and not better...??? He has a fairly steady…
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worrying about my care
Hi everyone. I have been doing Erbitux weekly and Cpt11 every other week for the past 8 weeks for mets to my liver and abdominal lymph nodes. I skipped one week because of chest and shoulder pain to go to the hospital to take a chest CAT scan and an EKG. All was found to be well. My onc said at the time that maybe the…
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Happy birthday to me.
Hello Today is my birthday. I always feel special on my birthday. i am 46 years young today. On Thursday 1st Dec, I have a scan to check progress of liver growth. Is there anybody out there who had inoperable liver mass, size c4cm, and it disappeared with Avastin? So far it has shrunk 40% from 6cm during folfiri treatment.…
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update
Hi everyone, I finally saw the alternative medicine dr. today. I got answers to my questions and they actually made sense. I will be implementing some of his suggestions, diet, supplements and accupuncture along with chemo to try to achieve a better immune system and healthier life style. I start my 3rd session of folfox…
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Would You Eat This???
hey all you Semi-Colons! So my question to you all is would you eat this? 1,6 - dichloro - 1,6 - didoxy - beta-D-fructofuranosyl - 4 - chloro- 4 deoxy-alpha - D - galactopyranoside Wow, can you even swallow the name??? Can anyone guess what this chemical is that many are ingesting every day? Did anyone guess SUCRALOSE??…
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My mom... please respond
Hi all my mom is no longer responding to any chemo related therapy. We are looking for trials that may accept her QUICKLY!! Any ideas out there? I have made some calls regarding vaccine trials. Her onc. said she may not be a candidate for any trials b/c her liver function is poor. Her bilirubin is currently 15. Anyone with…