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My Stage IV Story
First of all, let me apologize for waiting so long to post. I posted almost a month ago and then did not post again. I was offered a job that will require me to relocate across the country, so things are very hectic right now! I really appreciate the warm welcome everyone gave me on my initial post. I was diagnosed when I…
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worried Pa surgery
Well, I spoke with my pa tonight, he is not doing well. The Dr. is doing a ct on him tonight to make sure he is doing o:k in the abdomen. I am not sure if this is normal. The Dr. said he has an infection and they do know he has a UTI and that could have caused his WBC to elevate but they were going to do a ct of his…
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Colostomies and irrigation
I also saw the stoma nurse yesterday and she asked me about irrigation. I don't know if I am ready yet. Does anyone irrigate, is it time consuming, is it gross, and do you do it daily or every other day. If you don't want to answer here, you can email me through this site. I appreciate your in put. moe
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Question on Ned
Hi everyone, I was wondering to be NED did you have to have surgery to remove the tumor or did anyone become Ned from just Chemo? Also what is your exprience on how quick the tumors grow back after chemo. My dads tumors shrunk very small and he has stoped chemo. Im just curious how quickly they can grow again. I understand…
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What can one expect after lower rectal surgery if they did NOT have a colostomy?
In other words, does the surgery create lasting bowel problems even with a sphincter intact? I.e. pain, pressure, discomfort? I'm beginning to think the colostomy is a better deal from all the reading I'm doing. Has anyone come out of this surgery being able to use their bowels close to the way they did before? Thanks so…
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Networking
Are there any semi/colons/survivors out there who reside in the Couer D' Alene / Spokane Area? I'm new to the area, and want to connect with groups, practitioners, and/or treatment facilities, esp. alternative / CAM practitioners. Please contact me through CSN mail. Thanks, Bud (Nanuk)
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re; Scouty
Hiya all. I know that a lot of you have received the following message but you are all still in zzzzz land...so...as I am a day ahead of you I thought I would post it for all to see. I am very sure that Lisa would have posted here but I think she is better off recuperating with some sleep. From Lisa; Well ..Im a little…
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Mary Tyler Moore ( Kay Norton Edition )
Hi Semi- Colon Friends, My son Andrew made a short video from Palooza 2 in Las Vegas. Kay Norton is our own Mary Tyler Moore. So this is for you Kay.... Love, Lisa, Andy & Andrew * To View The The Video http://media.putfile.com/Mary-Tylor-Moore-Semi-Colon-Edition **To Download The Video…
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Rectal Cancer and pre-op Xeloda
My friend has stage III rectal cancer and will be doing radiation with Xeloda before the surgery to try to shrink his tumor (almost complete blockage very close to anus). Has anyone had this regimen? Pretty much everything I've read on this site has referred to Xeloda AFTER surgery and always taken with other meds…
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re; Scouty
I am not sure of the actual date but know our dear friend Lisa(Scouty) is due for surgery shortly. This is our message to a wonderfull gal we are proud to call our friend. Good luck sweetie from Ross and Jen. You are always with us!
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Pa proctectomy and ileostomy update
Well, My pa had surgery 10-27-05. He had some complications with blood loss and vomiting but he is doing much better. He started a liqued diet again yesterday and is tolerating it well. His ileostomy is now starting to eliminate fluid. I was able to meet the stoma nurse yesterday and she showed us some tapes on care. I…
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They are circling overhead!!
The vultures are beginning to circle overhead waiting for me to drop so they can come down and pick my bones clean! I am so tired of everything I am going though. I am exhausted!! This is just too much to go through alone. When my husband died I was still going though chemotherapy. I have advaned stage 3 colon/uterine…
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good news
hello to everyone.i hope all is well.my oncologist told me today that my cancer has shrunk from the previous ct. scan.it didn't sound like a huge shrinkage,but it has shrunk.after some of the news i've received,i'll take anything that's positive.i want to say thanks for keeping me in your prayers.i continue to keep all of…
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I've missed you all.....
Hello there semi-colons! How is everyone? It has been awhile since I last visited the message board but I pray for all of us daily! I hope everyone is well and healthy! I am visiting in Tulsa this week, with new doctors and treatment options. I have a bone scan tomorrow ....they are thinking this wonderful disease has…
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My Stage IV Story
First of all, let me apologize for waiting so long to post. I posted almost a month ago and then did not post again. I was offered a job that will require me to relocate across the country, so things are very hectic right now! I really appreciate the warm welcome everyone gave me on my initial post. I was diagnosed when I…
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re: Radiation and other cancers
I hate to bring up an unpleasant topic but I need the truth. (Thanks, by the way, to those that responded to my post regarding Xeloda. Very helpful.) I read that radiation for one cancer most likely leads to the development of another cancer. Can I get some feedback about this? Again I'm inquiring for a friend that is not…
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Long term cancer survival
I have been cancer free for years, but now have lots of symptoms of multible Sclerosis, just wondering if anyone out there has the same problem. Also had momo years ago. Foxy.
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Missing Scott
Hi all, hope things are well for everyone struggling with this horrible disease. Today is one month since Scott left us for a better place. I guess I'm just feeling down. Last night I took the kids trick-or-treating for the 1st time without Scott. For some reason, I keep expecting him to call me at work today. Maybe it's…
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"there is LIFE after being dx'd!!!!!
Hi all...this topic is for ALL who are NED right now. Please post your NED status and the length of time you have been blessed with meeting him. I have posted this here to give our friends and newbies a glimmer of hope. There are many of us that are doing well, but not everyone here is able to keep track of the many of us…
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My Mom
Hey everyone. My mom has had 4 sessions of Folfiri and has a cat scan tomorrow to see the progress. She is taking 2 weeks off from chemo because the diarrhea and dehydration has really caught up with her. More importnantly she is REALLY down and discouraged and wondering if she will make it. She has finally said she would…
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cat scan tomorrow
Hi to all, It sounds like Vegas was a great time for all. I wish I could have been there. Hopefully some pictures will be coming soon. I go for a routine cat scan tomorrow. It has been 6 months since my last one. I am really nervous. It has been 2 1/2 years since my cancer diagnosis. Stage 3 with 2 nodes positive. I have…
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port o cath inserted
Thank you all for sharing your experiences and advice- he had it put in late yesterday and all went well...CAT scan next week then start on folfiri + avastin in a clinical trial- having previously gone through 5FU adjuvant treatment (and finding out after it was finished that he is now stage 1V) we are praying that this…
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port o cath/ decision needed
As you may have guessed by the recent posts -my husband has to make a decision by Monday- we live in Canada and at present avastin ,while approved, is not widely available so his 2 options are 1) enroll into a clinical trial with FOLFIRI + avastin every 2 weeks and in order to do that he needs a port a cath put in with a…
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Hello - needed someone to talk to!
Hello Everyone!!! I know that I haven't been in touch with you guys for a while. I have logged on and check things out from time to time and just can't read everything. I am sorry for that. I wish I could say that I am doing better. I didn't want to contact you guys and vent but I just don't know what else to do. I am…
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Natural remedies/Alternatives
Emily, Sue - I understand you are the gals to "speak to" about a healthy cancer diet. Currently stage III colon cancer, 2/27 lymph nodes involved. Just finished #5/6 treatments and I am interested in augmenting my chemo (and my life & diet after) to beat this thing. You both come highly recommended and your help & insights…
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48 hour chemo
Hi everyone, I am starting chemo on Wednesday and will be on it for 48 hours and then have to go back to the onc's office to be unhooked. Please tell me what to expect. Will I be restricted in any way in what I can do during those 48 hours? Thank You, Jamie
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Having a pity party
I am having a pity party and I probably shouldn't vent here. I know that there are many people who are worst off than I am, but I have been pretty down lately. I had surgery in 6/03 for stage 3 rectal cancer. 2 positive nodes. I had a temporary ileostomy which was reversed 8 weeks later. Since then I have never been able…
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calling all ostomy patients! help needed
My pa has an ileostomy. He had surgery 10-27-05 for rectal cancer. My pa started liqueds 10-28-05.On 10-29-05 he had nausea he then had profuse vomitting. The Dr. inserted a tube up his nose and down his throat to his stomach to empty it. The liqued that was emptied from his stomach via the tube is green. I asked the nurse…
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Vegas was great!
Hi all! Just got back from Vegas around 2:30 this morning and thought you'd all enjoy a little glimpse of how things went.... Kerry and her husband were gracious enough to reserve a suite as their room, which allowed us all to meet in the evenings prior to heading out into the Vegas night. The first night, Lisa Rose and…
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Prayers please
I was just hoping everyone could say a little prayer for my friend. Her son, a Marine, was just killed in Iraq on Thursday. She is divorced and this was her only son. She is my daughters teacher. I can't even begin to imagine how she feels. God grant her strength and peace to some how get thru the pain. Barb