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I've missed you all.....
Hello there semi-colons! How is everyone? It has been awhile since I last visited the message board but I pray for all of us daily! I hope everyone is well and healthy! I am visiting in Tulsa this week, with new doctors and treatment options. I have a bone scan tomorrow ....they are thinking this wonderful disease has…
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My Stage IV Story
First of all, let me apologize for waiting so long to post. I posted almost a month ago and then did not post again. I was offered a job that will require me to relocate across the country, so things are very hectic right now! I really appreciate the warm welcome everyone gave me on my initial post. I was diagnosed when I…
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re: Radiation and other cancers
I hate to bring up an unpleasant topic but I need the truth. (Thanks, by the way, to those that responded to my post regarding Xeloda. Very helpful.) I read that radiation for one cancer most likely leads to the development of another cancer. Can I get some feedback about this? Again I'm inquiring for a friend that is not…
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Long term cancer survival
I have been cancer free for years, but now have lots of symptoms of multible Sclerosis, just wondering if anyone out there has the same problem. Also had momo years ago. Foxy.
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Missing Scott
Hi all, hope things are well for everyone struggling with this horrible disease. Today is one month since Scott left us for a better place. I guess I'm just feeling down. Last night I took the kids trick-or-treating for the 1st time without Scott. For some reason, I keep expecting him to call me at work today. Maybe it's…
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"there is LIFE after being dx'd!!!!!
Hi all...this topic is for ALL who are NED right now. Please post your NED status and the length of time you have been blessed with meeting him. I have posted this here to give our friends and newbies a glimmer of hope. There are many of us that are doing well, but not everyone here is able to keep track of the many of us…
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My Mom
Hey everyone. My mom has had 4 sessions of Folfiri and has a cat scan tomorrow to see the progress. She is taking 2 weeks off from chemo because the diarrhea and dehydration has really caught up with her. More importnantly she is REALLY down and discouraged and wondering if she will make it. She has finally said she would…
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cat scan tomorrow
Hi to all, It sounds like Vegas was a great time for all. I wish I could have been there. Hopefully some pictures will be coming soon. I go for a routine cat scan tomorrow. It has been 6 months since my last one. I am really nervous. It has been 2 1/2 years since my cancer diagnosis. Stage 3 with 2 nodes positive. I have…
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port o cath inserted
Thank you all for sharing your experiences and advice- he had it put in late yesterday and all went well...CAT scan next week then start on folfiri + avastin in a clinical trial- having previously gone through 5FU adjuvant treatment (and finding out after it was finished that he is now stage 1V) we are praying that this…
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port o cath/ decision needed
As you may have guessed by the recent posts -my husband has to make a decision by Monday- we live in Canada and at present avastin ,while approved, is not widely available so his 2 options are 1) enroll into a clinical trial with FOLFIRI + avastin every 2 weeks and in order to do that he needs a port a cath put in with a…
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Hello - needed someone to talk to!
Hello Everyone!!! I know that I haven't been in touch with you guys for a while. I have logged on and check things out from time to time and just can't read everything. I am sorry for that. I wish I could say that I am doing better. I didn't want to contact you guys and vent but I just don't know what else to do. I am…
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Natural remedies/Alternatives
Emily, Sue - I understand you are the gals to "speak to" about a healthy cancer diet. Currently stage III colon cancer, 2/27 lymph nodes involved. Just finished #5/6 treatments and I am interested in augmenting my chemo (and my life & diet after) to beat this thing. You both come highly recommended and your help & insights…
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48 hour chemo
Hi everyone, I am starting chemo on Wednesday and will be on it for 48 hours and then have to go back to the onc's office to be unhooked. Please tell me what to expect. Will I be restricted in any way in what I can do during those 48 hours? Thank You, Jamie
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Having a pity party
I am having a pity party and I probably shouldn't vent here. I know that there are many people who are worst off than I am, but I have been pretty down lately. I had surgery in 6/03 for stage 3 rectal cancer. 2 positive nodes. I had a temporary ileostomy which was reversed 8 weeks later. Since then I have never been able…
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calling all ostomy patients! help needed
My pa has an ileostomy. He had surgery 10-27-05 for rectal cancer. My pa started liqueds 10-28-05.On 10-29-05 he had nausea he then had profuse vomitting. The Dr. inserted a tube up his nose and down his throat to his stomach to empty it. The liqued that was emptied from his stomach via the tube is green. I asked the nurse…
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Vegas was great!
Hi all! Just got back from Vegas around 2:30 this morning and thought you'd all enjoy a little glimpse of how things went.... Kerry and her husband were gracious enough to reserve a suite as their room, which allowed us all to meet in the evenings prior to heading out into the Vegas night. The first night, Lisa Rose and…
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Prayers please
I was just hoping everyone could say a little prayer for my friend. Her son, a Marine, was just killed in Iraq on Thursday. She is divorced and this was her only son. She is my daughters teacher. I can't even begin to imagine how she feels. God grant her strength and peace to some how get thru the pain. Barb
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proctectomy/ileostomy complete
My pa was dx with rectal ca June 2005. He had multiple scans and five weeks chemo/radiation. Surgery was done October 27, 2005, I just left my pa today. My pa surgery was about 5 hrs. The surgeon told us it was a very difficult procedure and it took longer then planned. He lost about 1.5 units of blood. There was some…
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folfiri
Can all survivors or caregivers who have experience with FOLFIRI (5FU + irinotecan- aslo referred to as CPT-11 or camptosar) please answer some questins for me please?? -does the pump make a noise as it is infusing -is it difficult to sleep with the "bottle" around your waist -what is the average amount of time being on it…
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FOLFOX side effect and Artery infusion of Chemo agent
My brother has stage IV and he finished his first chemo 2 wks ago using 5-FU/Leucovorin. After talking to some doctors we think it might be more effective to resume with addition of Oxaliplatin, which will be the FOLFOX regimen. If you have taken this therapy before can you tell me what are the major side effects and how…
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Thank-you soooo much Kanga!!
Hey Kanga man...Xena here. I want to say thanks to you and all that posted from your thread on 10-22. It inspired me so much that I cried (happy tears) and printed out the entire thread to pin up on my wall! If it inspired me.. I can only imagine how many others it inspired not to give up and to hold onto the hope and…
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LIver and Lung Mets Question
My dad was diagnosed with stage IV colon cancer in May 02. It came back to his liver in April 04 (operated and back on chemo) and October 05 (operated and starting chemo soon). According to the surgeon his tumors are slow growing. My question is about spread to the lungs. What are the odds that it will spread to the lungs…
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Good News
My Dad had his 1st scans this week since starting the camptosar/Erbitux combo in September. The tumors have shrunk 30 - 40% which the Dr. was very pleased with. Particularly with the progress in his liver. The Dr. is going to keep him on this combo for 4 more cycles and do scans again. Once the tumors have shrunk…
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Vegas update
Hiya all. I phoned the Aladdin and got thru 7.30pm Vegas time. Kerry had a speaker phone set up so all could talk and hear. There were a lot of people in Kerry's room so there was lots of noise in the background but they sounded like one major party was happenin. I talked to Kay(kanort), Kerry, Merriman(Kerry's hubby)Lisa…
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Question about CPT-11 + Erbitux
Hello everyone. Well, once again my oncologist decided today that I am too sick to do another chemotherapy cycle. He was uncomfortable with the fact that I have had excessive diarrhea for a week. So, we are stopping the 5FU + Oxaliplatin + Avastin, and after a two week break I will switch to CPT-11 + Erbitux. We are hoping…
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xeliri + avastin
Hey all: If anyone on this board is on xeliri and avastin can they let us know? My husband has to make a treatment decision of folfiri plus avastin OR xeliri plus avastin. We have heard folfiri and xeliri work about the same but he much prefers the thought of taking the 5FU orally rather than have a continuous infusion…
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Blood test Result questions
Well my mom finished 4 treatments of folfiri and had bllod tests one week after the treament. Her CEA went from 20 to 30 and the CA 19-9 went from 5000 to 1200. So one is up and one is down. Please any feedback on understanding this!!
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Radiation for liver mets anyone?
I just read an interesting article about a new targeted radiation treatment for the liver that accurately pinpoints the tumor and leaves other areas undamaged by the radiation. Apparently it's a new technique just developed and 88% successful in controlling liver tumor growth. Here's the link…
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Opinons Please
Hi Everyone. My dad had his last chemo treatment yesterday. He had a cat scan in July which showed the tumors shrunk. (some in his lungs and one un operatable one in Abdomon) The Dr took him off oxiplitan in July because of bad rash. The last cat scan in October showed the tumors didnt shrink more but they also didnt grow.…
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LiveStrong??
I say EAT STRONG!! Okay - I'm on the soap-box for nutritional work to keep cancer at bay.....'cuz every time I read of a recurrence, it scares the hell out of me (and I am really sad for the on-site person or their loved one). There are people here who have had tumors disappear; and that is amazing -- and believable. If…