-
My Brother-in-law is delaying treatment to pursue Alternative therapies. Help!
My brother-in-law has colon cancer. He has Kaiser Permanente insurance and has not been treated well so far by the doctors there. His little sister, who is in Florida is into "alternative medicine." So Tom now is more disposed to seek “alternative treatment” than continue pursuing getting help at Kaiser, especially because…
-
Fighting/Scared for the Future
So, while my husband and I are waiting for him to have his colon tumor removal surgery, it has given me plenty of time to think. And I know I'm supposed to be lifting my husbands spirits right now - and I do that, whenever he needs it. But you know when I'm alone and driving to work I get thinking, what's going to happen…
-
Standing Up 2 Cancer
Nice to know that there are lots of folks out there fighting for us. Ads to promote Stand Up 2 Cancer. The big cancer fund raiser on TV Sept 5th. Enjoy! Cancer interrupting your life? http://www.youtube.com/watch?v=kGFBf8Budmw&feature=user Forgive me: A bit crude....but definitely what I feel like shouting sometimes....…
-
elevated cea
My mom's onc suggested to redo her cea level. She is on treatment 3 of her second round. First 12 were 5fu+avastin+oxiliplatin. After 12 her cea went from 189 to 8.1. The last few cea tests have fluctuated between 8-11. This last cea was 11 something and my mom is scared. Her onc ordered another cea and said that he might…
-
Not sick enough??
I've read (and heard before) that the sicker you feel from chemo the better it's working to rid your body of residual cancer. This worries me because I don't feel like I'm getting "sick enough" from the chemo. Granted, during the infusion, I feel pretty sick, but it's not debilitating. I still go to work every day (except…
-
Anybody have throat paralysis with Oxaliplatin
Just had my 3rd round of chemo Wed afternoon. Early Wed. evening I could not breath and had to call 911, chemo Dr. said I had a rare throat paralysis reaction to Oxaliplatin and now have to get allergy tested to see what my sensitivity is and next chemo treatment I have to stay overnight for monitoring. Anbody have this…
-
Great presentation to Dr.
At another site that I check regularily, a heroic colon cancer survivor who has dealt with a lot has used this form to chart his treatments. He says he used this when he had to change Dr.'s. I loved the simplicity and pacing of it and he made it available to others. http://hewletts.org:8080/archives/One Guy's Treatment…
-
DR VISIT
WE WENT TO THE DOCTOR UESTERDAY HUSBAND TOLD THE DOCTOR THAT IF HE IS GOING TO BE SO SICK VOMITING 4 DAYS HE DOSN'T WANT IT.HE IS GETTING ERBITUX AND CAMPTOSAR. HE SAid they could lower dosage maybe change chemo drugs ect. doc did say that his cea maker is 4 the chemo could be working i let into him sayiNg you can't…
-
A little healthy dose of inspiration...
Check it out... http://www.thesurvivormovie.com/
-
ileostomy reversal
Hi! I am a 42 year old woman who was diagnosed and operated on for rectal cancer in June of 2008. I have a temporary ileostomy and after a couple bumps in the road during recovery including the need to have scar tissue removed at the area of my resection I am scheduled for a reversal at the end of September. I was…
-
Advice needed:Gas buildup
Hello,it's the 1st time am accessing this site and it looks really nice.I badly need some advice,please help.My dad was operated upon 2 yrs back coz doctors suspected beginning of colorectal cancer.Since then he's been doin chemeo and he was alrite.But since the last 3 mths,his food is not gettin digested at all,he's…
-
cancer has returned?
hello, At 41 years old I had stage III colorectal cancer in the spring of 2006. Went through radiation, chemo, had a colostomysurgery. Then adjuvant chemo until Feb of 2007. They removed 13 lymphnodes 7 were positive. I finally got my strength back and returned to work. I even got used to my ostomy. The first of August we…
-
Interesting Article on Vitamin C
http://www.nbc4.com/health/17359784/detail.html
-
2 years NED!!
Hi all. I haven't posted for a while as I don't have an internet connection all the time now but wanted to share my good news and I hope give hope to all who are in the fight. I just had bloodwork done and saw my onc and I'm NED and I'm two years out from my diagnosis and surgery. I was stage 2, had surgery and four rounds…
-
rising bilirubin levels from chemo or meds??
Anyone seen there bilirubin levels go up from either their chemo treatments or any of the nausea meds...?? Ive read that xeloda can make some peoples bilirubin levels go up but that isnt a medication that is in the mix right and have seen a SLOW but steady rise in bilirubin levels, especially after the first round of…
-
Friday Riddle Answer
Unfortunately no one provided the correct answer this week :( RIDDLE: You do not want to have it, But when you do have it, You do not want to lose it? What is it? ANSWER: Lawsuit
-
Anyone ever had KRAS testing?
I had my second opinion consultation last week at the Vanderbilt Ingram Cancer Center. The dr I saw said I should not take oxaliplatin due to my neuropathy. As for Erbitux, she is having my pathology slides tested for KRAS mutations. Evidently it has been discovered that those with the mutations get no benefit from…
-
No chemo today!!!!!
Hi its me again, I just left my onc office today. I told her that I did not want the 5fu in the pump anymore so she wants me to take a drug called xeloda. can anyone give me some ideas about how good it will work and are the side effects any worse? She also took me off the oxalipatin and the leucovorin she says the pill…
-
treatments
Hi, again I am going back for treatment #8 on tuesday. I wasnt gonig to finish my treatments but After talking with my wife and kids I have decided to go through with it. I am going to see if my dr. will let me not take the chemo that is in the pump that I take home for 46 hrs. Has anybody out there stopped using the pump,…
-
Bitter feelings
This might turn out to be a long post. I'll try to be as brief and as pleasant as possible, but I'm having some rather dark feelings right now. My cancer diagnosis happened so very quickly, and I was immediately drugged up so much, that I didn't really have time to process all my cancer feelings until recently (I was…
-
Just diagnosed with rectal cancer
I just found out I have rectal cancer. The stage will be determined in the next few days. I just happened to find this site while searching for information about rectal cancer. I have hundreds of questions for the doctors, but Right now I am in the hurry up and wait mode with the doctors. MC
-
need advice with ssi
husband went to chemo yesterday bad day, there was about 18 people getting chemo 2 nurses only so it was a long day should of left by one but had to stay until 3 he was there at 8;30am so it was not good .did get his medical records and a letter stating , he has stage IV terminal colon cancer he is undergoing chemo therapy…
-
I haven't wanted to post this - but I had my CEA done last week and it is 4.5
I was diagnosed stage 3A in January 2007 - 2 positive lymph nodes - clean scans. I had surgery, folfox, radiation with 5 fu, I have been ned since October 2007. My normal CEA doesn't vary much - 2.0 -3.2 at Mass General anything over 3.5 is suspect (not the normal 2.5). This week my CEA showed up at 4.5 - had the CEA…
-
tennislover
Lisa Rose just circulated an email announcing the passing of Heather Maes, known here as tennislover. She was a beautiful person both inside and out with a heart of gold. She posed in the colondar 2008 as Miss December. She has been absent from these boards for quite sometime, but mainly due to working on legislative tasks…
-
Hello, I'm new...
Hi everyone, It's quite shocking to me that I've found myself here, being a chronically underweight, active 32 year old. It is comforting to find that I'm not as alone as I thought I was in this crappy experience. I was diagnosed with stage 3b colon cancer on May 27 after having emergency surgery to remove a bowl…
-
Cimetidene (tagamet) before and after colorectal surgeyr
Hello all I am new to this site, and appreciate that you a e all here. I have stage 4 rectal cancer with one met to the liver which so far is resectable. I will be having a LAR surgery 9/10 to remove the primary tumor which shrunk to ulcer size after chemo/radiation, then after PET scan to liver 10/17 and all is a go, will…
-
HEADING BACK
SemiColon Family - I will be heading back to join my ship in Eastern Europe tomorrow. The last two weeks have been a rollercoaster of emotions, but I wouldn't have been anywhere else in the world. I want to thank each and every one of you who held Katie in your thoughts and prayers, provided her support and encouragement,…
-
Dad-Stage IV
Hello everybody. I hope this e-mail finds everyone well. It's been a while since I posted. My dad was diagnosed at the end of June with stage IV colon cancer with peritoneal seeding. Nothing to the liver or lungs. He is scheduled to have a port placed tomorrow under his collarbone for the chemo. Regimen will be 5Fu,…
-
Reassurance about the "M" word
Hi gang, I don't post too often here, but I do read the messages and I actually get a lot of comfort and confidence from soooo many of you and your posts!! What I would like to know and I'm not sure anyone can answer this but, here's my situation. As some of you know, I was diagnosed with Colon Cancer, Stage III in…
-
Uneasy feeling
So, I'm feeling a bit uneasy right now - I really need to hear from people that are Stage 4 with mets to liver and lungs. I need to hear survivors because it is becoming increasly difficult to imagine my husband surviving. It is additionally difficult when I have people coming into my work that i have known for a while and…