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I haven't wanted to post this - but I had my CEA done last week and it is 4.5
I was diagnosed stage 3A in January 2007 - 2 positive lymph nodes - clean scans. I had surgery, folfox, radiation with 5 fu, I have been ned since October 2007. My normal CEA doesn't vary much - 2.0 -3.2 at Mass General anything over 3.5 is suspect (not the normal 2.5). This week my CEA showed up at 4.5 - had the CEA…
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tennislover
Lisa Rose just circulated an email announcing the passing of Heather Maes, known here as tennislover. She was a beautiful person both inside and out with a heart of gold. She posed in the colondar 2008 as Miss December. She has been absent from these boards for quite sometime, but mainly due to working on legislative tasks…
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Hello, I'm new...
Hi everyone, It's quite shocking to me that I've found myself here, being a chronically underweight, active 32 year old. It is comforting to find that I'm not as alone as I thought I was in this crappy experience. I was diagnosed with stage 3b colon cancer on May 27 after having emergency surgery to remove a bowl…
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Cimetidene (tagamet) before and after colorectal surgeyr
Hello all I am new to this site, and appreciate that you a e all here. I have stage 4 rectal cancer with one met to the liver which so far is resectable. I will be having a LAR surgery 9/10 to remove the primary tumor which shrunk to ulcer size after chemo/radiation, then after PET scan to liver 10/17 and all is a go, will…
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HEADING BACK
SemiColon Family - I will be heading back to join my ship in Eastern Europe tomorrow. The last two weeks have been a rollercoaster of emotions, but I wouldn't have been anywhere else in the world. I want to thank each and every one of you who held Katie in your thoughts and prayers, provided her support and encouragement,…
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Dad-Stage IV
Hello everybody. I hope this e-mail finds everyone well. It's been a while since I posted. My dad was diagnosed at the end of June with stage IV colon cancer with peritoneal seeding. Nothing to the liver or lungs. He is scheduled to have a port placed tomorrow under his collarbone for the chemo. Regimen will be 5Fu,…
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Reassurance about the "M" word
Hi gang, I don't post too often here, but I do read the messages and I actually get a lot of comfort and confidence from soooo many of you and your posts!! What I would like to know and I'm not sure anyone can answer this but, here's my situation. As some of you know, I was diagnosed with Colon Cancer, Stage III in…
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Uneasy feeling
So, I'm feeling a bit uneasy right now - I really need to hear from people that are Stage 4 with mets to liver and lungs. I need to hear survivors because it is becoming increasly difficult to imagine my husband surviving. It is additionally difficult when I have people coming into my work that i have known for a while and…
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Friday Riddle
You do not want to have it, But when you do have it, You do not want to lose it? What is it?
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Devestated - Dad has pnemonia (sp) - Doctor ordered MRI of brain??
My dad has not been feeling well since the beginning of August (stage IV cancer - diagnosed 2002. He has had multiple surgeries and treatments. Was in remission till October 2006 when cancer came back with avengence. Has mets in liver and lungs and possible lymph node near esophagus. He was diagnosed with pnemonia on…
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COLONPALOOZA 6 UPDATE
Ahoy everyone - Wanted to give you all an update on CP6 and reach out for some input: Kick-off party: Thursday night, November 6th at a WAY COOL venue steps from the hotel. This is a great opportunity to finally meet the folks you have chatted with here on CSN and sites like My CRC Connections and Colon Club or catch-up…
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USAKAT
Hi Katie: I must have missed the update while I was in the hospital. Did I read correctly that you can keep your stomach? Is everything okay? Thinking and worrying about you. Monica
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Update on my husband's situation
So, we went to see the surgeon today. We feel a bit better having a plan now, but we were kind of blindsided by the news - it has definietly spread to the liver and now we find out that it has spread to the lung. They want him to have the colon tumor surgery first then do chemo to attack the liver and lung. So, now we have…
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ONE YEAR
Hi to all- As some of you may remember, my mom (62 years old) passed away one year ago today from stage 4 CC. She battle last only 15 months. It seemed as if nothing we tried could slow that terrible train down. I know that many people are able to embrace their cancer experience and I admire them for that, because I am not…
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Friday Riddle - ANSWER
This weeks winner is Krystiesq. CONGRATS !!!!! :) :) :) RIDDLE: I am mother and father, but never birth or nurse. I'm rarely still, but I never wander. What am I? ‹ New to this abdominal pain & 2nd opinion › ANSWER: Tree
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A song for my husband
So, I found this song that I am going to give to my husband - if you don't mind I would like to post it here because I think it represents everyone in here to some degree. It's called Fight the Good Fight from Triumph The days grow shorter and the nights are getting long Feels like we're running out of time Every day it…
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ileostomy reversal
Hi all, I haven't posted in a little while, it's been about 6 weeks since my surgery and tomorrow I'm going in for my ileostomy reversal. I'm really nervous considering with my first surgery I had a blockage which is how I got my ileo. I would appreciate anyone's input on this. How was the surgery? Is it painful? Is…
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Peyronie's Disease
Have any other gentlemen developed Peyronie's disease after radiation, chemo and surgery? I am convinced my Peyronie's is related to the radiation that was aimed at my crotch for 6 weeks on a daily basis. I'm curious to know if any other guys have experienced the same thing and have had any luck with treatment. My surgery…
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Stage IIII C
Hi, My brother-in-law (42) has been diagnosed with stage III C of colorectal cancer. He had a successful surgery and they removed the colon and 8 lymph nodes. The doctor has indicated that the following: TNM staging - T3N2MO He also suggested three Chemotherapy options : 5-FU+ Lucovorin FOLFOX4 FOLFOX+ AVASTIN / CETUXIMAB…
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stage 4 mets
hi just need to vent i guess, nov o7 had tumor on left side it had perferated the colon wall so he started on oxy 5 fu lecovin he went threw hell with that chemo but finished at the end of may 08, he was feeling good not having chemo but his stomach area hurted him pain in left pelvic area. now when chemo finished in may…
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need advice on Camptosar and Erbitux
Hello, I'm new to this board, but I've enjoyed reading your many posts and people's answers so far. I'm getting ready to start chemo for the 2nd time this week. I'll be starting on a combination of Erbitux, Camptosar, and Avastin. After seeing how I tolerate the Camptosar and Erbitux, my onc may also then add in some…
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Looking forward
I debated about posting good news, because I'm feeling survivor's guilt, but decided many of you need to hear that we can be successfull in this fight. My husband and I just got back from our check ups. (I had stage iv colon cancer 3 years ago and my husband had an endocrine carcinoma this spring. He had part of his small…
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Inspiring book
I just finished Randy Pausch's book, The Last Lecture. I wasn't sure I wanted to read it, but it was very good and not a downer. For those who have not heard of this book, Randy Pausch, who recently died of pancreatic cancer was a virtual reality scientist and teacher at Carnegie Mellon University. The advice he gives is…
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Lymph nodes
I have been NED for just over 2 years. I was diagnosed in April 06 (age 46) with stage III colon cancer. 13 out of 26 lymph nodes were positive. All my test since have been clear, the last test was in May and next test is in Nov. I feel great and back to normal except for the worry that this might come back. My goal is to…
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Venous Invasion anyone???
Hello all! Since my diagnosis, I've been scouring the web for any information I can find. I eventually came to realize that this was a totally compulsive behavior on my part and wasn't very helpful to my mental and emotional health. It dawned on me suddenly that what I was looking for all along was something that would…
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worse than cancer.....
Well I havent been on this site in about 2 weeks. I have continued to pray for each and every one of you. This family has helped me get through cancer/chemo last year and I am forever grateful. Last Thursday my son attempted suicide, he has been addicted to drugs for several years, suffers from depression and has had…
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Colorectal cancer surgery
Hi, do they always check nodes when they do the rectal tumor removal surgery? Thank you
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Rectum reconnective surgery
I have talked with two surgeons. After removing my rectum, one will bring the sigmoid colon down and connect it directly to the remaining rectum with staples; the other surgeon will bring the sigmoid colon down and loop it back on itself in a J fashion to form a holding chamber for storage until it is convenient to go the…
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Update
I don't post often but I read what's up with everyone else. Recap: I was dx 9/04 - stage 4. I had a colon resection and my lower left lung removed. 6 months of Folfox. Recurrence in the liver 10/05, liver resection. At this time they inserted a HAI pump so I had systemtic chemo every other 2 weeks and the pump filled on…
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Post Op Chemo
I would like some input on Post Op Chemo...I have an appointment with my surgeon at Vandy Monday, and its for post surgery checkup. My oncologists suggests that I need a regimen of 6 months of post op chemo. I would go in on Monday for 4 hours of chemo then wear a fanny pack for 46 hours then back for 3 ours on Wednesday…