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New to site
I just wanted to say hello. My husband was just diagnosed this week with malignant mass in his colon; discovered on a colonoscopy at 49 years old. He had a CT scan the next day which did not show mets to liver or lungs. Surgical consult was yesterday and he said the mass is in the sigmoid colon. That's all I know at this…
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newbie
Found out I was anemic back in April of this year and then diagonoised with colon cancer in May had right side surgery to remove tumor and 12 inches of colon on May 31. Pathology report came back with T3N0MO clear margins and no perforation. Surgeon and oncologist both say no chemo. However, its been 9 weeks after surgery…
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Fear
horrible dreadful fear. That’s all I have felt since finding out about my husband’s bile duct tumors. Fear for him, for me being without him, and my kids. How do you keep going without that? Does anyone have any words of wisdom to snap me out of this? Has anything helped you? This for me seems like the first time we have…
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CALLING ALL ANAL FISSURES!!!
I have periodically posted on here about my anal fissure problem and I have heard from others with the same problem. I recommended Proctofoam and a couple of other meds for the treatment of a fissure, as they seemed to be working for me. Has anyone had any luck yet with these, or any other medications? There are some days…
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Suspecting peripheral nerve damage after colorectal surgery ...
Hello to everyone here ... It was on the 3rd of December 2015 when I underwent my right hemicolectomy operation, here in Ayrshire, Scotland; that was the day that I lost most of my sense of balance. Over the time since then, two years and eight months, I have experience the feeling of being permanently "drunk", with the…
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MD ordered Genetic Testing for Mutation - genes, specific to colon ca
I noticed that there have been previous blogs about this topic but they were older. Technology connected with medicine have come along way since then. I wanted to know everyone's point of view on this. It sounds like they are making head way on it. I had questions myself of history repeats. Population control - insurance…
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Question about CEA levels -
For the life of me (pardon the pun) I can't get a read on what a low CEA level is and what is a high one. Mine have stayed steady at 0.5 - which seems low right?? Is there some chart I can see??? I know the CEA is not a definite but I want to understand it better - Thanks!
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My husband has a tumor in his bile duct
i just can’t deal anymore, he was doing so well. He just had a liver resection in May i don’t understand how they didn’t see this, or how it got there so fast. I feel like this is the beginning of the end, and I want to throw up. They simply said Adenocarcinoma but they did not say if it was colon cancer spread or a new…
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New: Lung/Liver Metastates from CRC
Hello all, Just joined the forum. I am really amazed by the care, concern, support and knowledge in the posts. Thank you so much. My dad is 72 and underwent colon resection a year and half back. His CEA spiked up recently and we did a PET/CT Scan. The radiologist's report indicate small solitary metabolically active…
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Medication from Canada?
My husband is being prescribed Capecitabine (generic form of Xeloda). 8 pills/day x7 days then 7 days off, repeat. Our cost for one month is $1,344. I see online that I can get this same drug from Canada for a lot less. Is this for real? Has anyone used medications from another country? The price difference is almost too…
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husband is now a chemo for lifer
At 47 my husband was diagnosed with rectal cancer in Dec 2016, T3N1Mo. He had the standard radiation and chemo, then surgery which resulted in a colostomy because his tumor was so low and then had Folfox. He did pretty well with that and his side effects, expect for the neuropathy, were nearly gone before the next…
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Scared of Chemo
I was just diagnosed at 38 with stage 3b colon cancer after resection and am freaking out. I have 2 small children 5 and 1. I’m meeting with an oncologist next week to make a plan. Chemo scares the Heck out of me. Anyone mind sharing experiences of first chemo round and symptoms you’ve had. Did you continue working? How…
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Mom taking Stivarga
Hi all. I am new to this site. Mom has been fighting colon cancer with Mets. She cannot tolerate Xeloda; Folfox; Or Folfiri. Now taking Stivarga with lots of side effects. Any words of wisdom would be greatly appreciated!
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BRHMichigan
Wishing you the best outcome after surgery today and complete and speedy recovery. Please let us know how you are doing. Please remember to not overdo it. It's going to be rough for rehabilitation but remember the pain is there to show you that something positive is happening. It will get easier but remember to also take…
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IV Vitamin C
Anyone with experiece with IV vitamiin C?
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Questions on LDN and Lufe Expectancy
Hi All, Has anyone heard of Low Dose Naltrexone (LDN) treatment here in the US? A nurse at work suggested I look into it when it was prescribed for a co-worker. Although the initial study into it was done by a doctor in the US, Internet searches seem to indicate that published treatment mostly resides in the UK. Any info…
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Proton Therapy for Lung and Liver Mets
Update- A friend of a friend contacted me last week about Proton Therapy. After looking at the information on the web and talking with me, he sent his scans to the Dr at Loma Linda, and unfortunately, he was not a candidate. A friend from Church just returned from Loma Linda where she was being treated for a Pancreatic…
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Hair loss from Folfox?
When taking Folfox, did your hair fall out and if so....about what treatment? I'll be starting chemo next week and wanted to be proactive and get a wig now. I know, it's the vanity in me but I just don't want to walk around with patches of hair missing. I told my husband since I've always been a brunette, I could get some…
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Leakage...
Hi, My husband is experiencing “anal leakage” in the form of mucous and coffee ground-like stool. I tried getting Depends and he refuses to wear them, saying it’s uncomfortable. Do any of you recommend a particular product that will catch anal leakage (and not just a product for bladder incontinence?)
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I got "that" call only an hour ago
My doctor just called to let me know the biopsy from last week's colonoscopy was positive for simple squamous cancer. His nurse is lining up the colorectal oncologist appointment now. What can I expect at the first appointment? I thought he was calling to tell me all was fine. I'm still in shock. My husband and I got back…
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Para-aortic lymph nodes in CT report....
Hello everyone, I am sincerely trying to calm my anxiety and not freak out. My husband has been diagnosed with rectosigmoid-sigmoid cancer. The CT report for “staging” says T3-4a, N2, M0. However, I’m concerned about a part of the report that mentions, “multiple, prominent para-aortic lymph nodes.” Is that what makes him…
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I hate numbers!!!
My husband had a rise in his CEA levels a few months back so he was switched from Folfox w/avastain to Folfri w/Erbitux. His CEA had dropped to 26 under the new regime, scans last came back with a lot of mets gone and the rest measurable from CM's down to MM's. Now his CEA is rising again every 2 weeks from 26 to 31 now…
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Surgery success!
Hi all - I had my VATS wedge resection to remove the tumor in my lung, which was successful! Hurrah. I was in the hospital only 36 hours. This was way easier than abdominal surgery. The surgery itself took only an hour or so. I was scheduled for 7:30 and awake in recovery by 10 am. The pain has been minimal, no pain meds…
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Pain Management...chronic rectal pain
My pain doctor wants me to try a “nuvectra spinal cord stimulator”? Anyone have any experience with this procedure? Thanks
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First colonoscopy since April 2017 when I was diagnosed
Hi All: Just feeling a bit anxious, but confident in a positive result. Tomorrow will be my first colonoscopy since my stage 3C diagnosis, surgery and 6 months of Folfox 5FU. All of the blood works appears to be where it should be as of 2 weeks ago. But as I sit hear and begin the prepping for the colonoscopy (yechhhhh!),…
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My husband has a blockage in his bile duct
AGAIN! I am so furious right now, we spent 6 months apr-sept of last year dealing with a tumor causing this. This time it’s most likely a stricture caused by that stupid hai chemo pump. One stupid mop up dose and everything ruined. He is so yellow and itchy and being a stubborn ****. Refusing to go to Sloan waiting for the…
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side effects
6 days out since my first infusion of folfiri / avastin. I wore my pump for 46 hours. Day 1 was not too awful. Day 2 was pretty good. I figure all the steroids and meds were still working. The rest of the time I'm tired, nauseous, blah. yesterday I was vomiting a little. When does it get better? It's like I've had a…
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Removing Oxipltin good or bad??
good afternoon, I am my husband caregiver and I was wondering if anyone else went on maintence chemo? He has colon cancer which metisized to lungs and kidneys. He was on oxiplatin,avastin, levarocon, 5fu pump, the 48 hr bag of 5fu wore home, then we would return to remove bag and get neulasta. He has had 12 treatment, his…
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Nausea
I am starting my third folfox treatment tomorrow. I am suffering from nausea I feel seasick everyday, I have to try to get back to work any solutions
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Gilbert's Syndrome increases toxicity from chemo
I found out why I've had so many problems from chemo. I was diagnosed with Gilbert's syndrome, a genetic deficiency that means in part my liver does not filter out toxins like most people's livers. So I tend to get more ill from chemo and have an increased risk of jaundice and other problems from the chemo. I could never…