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First colonoscopy since April 2017 when I was diagnosed
Hi All: Just feeling a bit anxious, but confident in a positive result. Tomorrow will be my first colonoscopy since my stage 3C diagnosis, surgery and 6 months of Folfox 5FU. All of the blood works appears to be where it should be as of 2 weeks ago. But as I sit hear and begin the prepping for the colonoscopy (yechhhhh!),…
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My husband has a blockage in his bile duct
AGAIN! I am so furious right now, we spent 6 months apr-sept of last year dealing with a tumor causing this. This time it’s most likely a stricture caused by that stupid hai chemo pump. One stupid mop up dose and everything ruined. He is so yellow and itchy and being a stubborn ****. Refusing to go to Sloan waiting for the…
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side effects
6 days out since my first infusion of folfiri / avastin. I wore my pump for 46 hours. Day 1 was not too awful. Day 2 was pretty good. I figure all the steroids and meds were still working. The rest of the time I'm tired, nauseous, blah. yesterday I was vomiting a little. When does it get better? It's like I've had a…
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Removing Oxipltin good or bad??
good afternoon, I am my husband caregiver and I was wondering if anyone else went on maintence chemo? He has colon cancer which metisized to lungs and kidneys. He was on oxiplatin,avastin, levarocon, 5fu pump, the 48 hr bag of 5fu wore home, then we would return to remove bag and get neulasta. He has had 12 treatment, his…
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Nausea
I am starting my third folfox treatment tomorrow. I am suffering from nausea I feel seasick everyday, I have to try to get back to work any solutions
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Gilbert's Syndrome increases toxicity from chemo
I found out why I've had so many problems from chemo. I was diagnosed with Gilbert's syndrome, a genetic deficiency that means in part my liver does not filter out toxins like most people's livers. So I tend to get more ill from chemo and have an increased risk of jaundice and other problems from the chemo. I could never…
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New therapy cures cancer with just one injection
<Content removed by CSN Support Team>
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First HAI pump chemo and he is jaundice
his numbers for his liver are horrible, ast 444 alk 268 alt 218 Bilirubin 3.7 lactate dehydrogenase 333 so bad! This is chemo toxicity not cancer he is still NED obviously directly infusing his liver is not good for him, since this is mop up chemo he is telling them no more, and having them fill the pump with glycerin.…
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Psychotic Episodes and Chemotherapy
Hi, Yesterday i witnessed my dad who has stage 4 colon cancer and is on Flurocil 5-FU have a pasychotic episode. Does anyone know if this medicine is known to do this. Thanks, Rafia
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Cyberknife done
Hi all, I finished my Cyberknife treatment yesterday afternoon. I guess they say 2-3 months to see if it worked. They are also going to have the head radiologist at the hospital look at my scans to see if he can put a marker on the tumor near my heart. If so, we can cyberknife that one as well, if not, well, who know what…
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stage4 colorectal -- advice welcomed
Hi Everyone, I'm just discovered this board about a month ago, and could really use some advice. I really admire all of you providing support and fighting this frustrating disease. First, a little background. Not that its related but I was first diagnosed with a rhabdomyosarcoma (tumor) at six months old as a (infant) boy…
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Surgery or No Surgery??
My husband has Stage 4 rectal cancer. He has a rectal mass and one lung nodule. He has had 5 1/2 weeks of chemo pills/radiation, finishing up 5 radiation treatments to the lung nodule next week, and is now looking at surgery and 6 months of chemo afterward. He will have an iliostomy bag until the chemo is completed. We…
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How long does it take to recover from Chemo and Radiation?
I know my Onc and Rad Onc told me that recovery could take up to a year or more, but still I thought that I would bounce right back. I didn't! I am seven months out from treatments, and still work through several side effects. - Neuropathy in both hands and feet. There has been great improvement in the hands, the numbness…
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Laz’ 5 year Anniversary!
Dear Friends, Tomorrow will be the 5 year anniversary of my diagnosis. Clearly remember the dreaded phone call I received from my doctor in my office’s bathroom. I kind of knew, but was still shocked and went back to work. 10 months of treatment: radiation, chemo, surgery, more chemo. After I felt better divorce and hit…
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need infor about high-dose IV vitamin C
Hi dear all, I read a few articles about high-dose IV vitamin C, I believe it will at least help with reducing the side effects from chemo. Since my husband will start chemo soon, I would like to have him give a try. So if you had experiences with high dose IV vitamin C, please help me with these questions: 1, what dosage…
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Question about Polyps
Hi Guys, Had my 6th colonoscopy today...My GI guy turns to his assistant and said , she is an Old Pro...she knows the drill (AR AR)...Anyway, I have a question. I had two new polyps (History: Diagnosed May 05 with Stage three colon cancer, 6 out of 13 nodes. Had surgery and six months of folfox with Avastin every other…
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Freezing cancer in lung
I have met cancer in my left lung from my colon. The onco said they were thinking about using a freezing procedure on the growth. Does anyone know anything about this procedure ?
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On capecitabine, fast heart rate
Okay, I am four days away from ending capecitabine and last night I experienced a heart "flutter" then an elevated heart rate (109bpm) for a few hours. I considered going to the emergency room, but made it through the night. I have a call in to the doctor and the nurse said this is a known side effect to capecitabine.…
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Greece/RGCC test
Hello all, Has anyone used the Greece/RGCC test to direct their treatment? It seems to be very informative on the sensitivities of circulating tumor cells or stem cells to chemo and natural substances. What I can't figure is whether this also reflects the sensitivity of the tumors themselves. We are coming to a crossroads…
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Question about colonoscopies/cancer risk
I just had my first colonoscopy at age 51. Had 9 polyps removed,which sounds like a lot. We're waiting for biopsy results but doc seemed certain they were not cancer. That said,with the number of polyps putting me in a higher risk category, I need to have my next colonoscopy in 3 years. Here's what i'm trying to figure out…
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Salk Institute - Circadian Rhythm and Health
Here is a presentation by Prof. Satchin Panda of Salk on how maintiaining a good circadian rhythm can have profound benefits to overall health. This would include health of the immune system which has implications for cancer. https://www.youtube.com/watch?v=t0NI0jELuF4&t=6s Some simple actions: Get morning light - natural…
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More articles
Have some red rasberries on your breakfast: https://academic.oup.com/jn/article/148/5/667/4979589 [Red rasberry] supplementation reduced DAI score and the risk of CRC development during recurring colitis in mice, suggesting that RB is a possible dietary supplement for patients with ulcerative colitis and related gut…
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Fatiuge
Hello, I have just fininshed week 2 of 5 1/2 of chemo and radiation and I am experiencing major fatigue. I never take naps and now i find myself falling asleep at all hours of the day. I always feel drained. What tips do yall have for battling this?
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Chemo done, scanxiety sets in
Everyone is telling me how happy I must be to have finished chemo. And that is true. I don't know what normal is going to be like after I finish with the side effects of this last round, but am looking forward to figuring it out. BUT, I am terrified of the post scan. Even though the expectation is that it will be clean, I…
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Interesting article for any control freaks
Just read this on Twitter today and it hit home as my husband may be starting more chemo. Some how it relieved some stress for me. https://www.psychologytoday.com/us/blog/finding-purpose/201806/finding-purpose-in-the-randomness-cancer?
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Worried
My father has colon cancer stage IV. He was diagnosed in October 2016 after a complete bowel obstruction. He had an irreversible colostomy, then 2 months of radiation, mon-fri, then biweekly folfox February - July. This past April he was told the cancer had spread to his left lung, a 4cm mass. He started avastin folfox…
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Anger as a side effect of chemo?
hello again everyone. My aunt had her first chemo session on Thursday the 8th of June. I'm just wondering if anger is a side effect. She's so mad all the time but has sudden outbursts of really bad temper. :( I don't know how to deal with those or what to think. After a temper outburst she'll apologize and say she's not…
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Ugur
I wonder has anyone heard from Ugur, 28 years old. He is not writing in the forum for a long time. I hope he is doing fine with his treatment.
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Smoking
Hi everyone, As you may know I have colon cancer mets to liver and lungs and currently continuing treatment at MD Anderson, so far so good. Unfortunately, I have bad habit of smoking one cigar a day although I have MD background from overseas(not practicing in the State) I wonder has anyone have input to this title. I am…
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Alberta, Canada—coverage for Capecitabine (Xeloda)?
Hi all, We are in Alberta and found out today that my husband will have to take Capecitabine for 5.5 weeks. Anyone in Alberta know if Alberta Blue Cross covers this drug?