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Colon Cancer and Exercise
I've read and heard about how being active is supposed to help with recovery from cancer many times. And certainly it's better to be active than not. But at the same time when I was first diagnosed I was told that colon cancer is the most common cancer for people who are very active and take care of their bodies. This…
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How long to get strength back?
I am on my second to last round. I said to my oncologist that I was so excited that I will soon be having energy again, because I was so tired even before the diagnosis and figured that was the cancer since I had tumors in bowel and liver. He basically said, don't want to burst your bubble, but it doesn't work like that.…
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adenomas polyps in latest Colonoscopy
They found two adenomas polyps in the colonoscopy Wednesday. These are the precancerous veriety. I don't know what to make of this. I guess I really need to change my lifestyle and get rid of every bad habit, stress, and what ever else might be contributing to cancer trying to get me again. I went through some hell this…
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Unable to taste anything !
Can anyone give me any information on not being able to taste ? Longevity, causes, things to try to correct the condition ! Boy, it is not very enjoyable eating if you can't taste anything !!! Thanks
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CT scan results tomorrow, stressed out
I get my results for the ct scan and the blood test from this week. The ct will tell me if the mets are growing again and by how much. The blood test will tell me if my CEA has gone up, if my calcium has gone up which would require another 4 hour IV, and if my kidneys are doing okay or I'll have to have another painful…
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Still clean after 6 months
Hi All, Been a while since have piped in, although I do check in occasionally. Just had my second check up since my treatment ended last November. The news was good, clean for NOW, which I'll take. Now on to my fist colonoscopy since my surgery done in June of 2017. I remember reading about others that went before me, that…
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Bone cancer
So my wife has been on chemo for a little of a year now. She just had an MRI this past week to check her pain she has been having in her rip hip area. They always suspected that she had bone cancer. The MRI did show that she has cancer in her right hip area, but the chemo seems to be working as it has shrunk. The MRI also…
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Getting on that roller coaster again, ugh - Update
Hi all - It's been a while since I've posted and I hate coming back with bad news, but here goes. I now have a suspicious nodule in my lung that is likely colon metastsis. I meet with a surgeon Wednesday to discuss possible surgical removal. No biopsy yet, but that will likely be discussed as the person that read the PET…
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3 trips to MD Anderson, and still not on clinical trial
I've traveled to MD Anderson in Houston, Texas from North Dakota 3 times since December 2017 trying to get on an immunotherapy trial that would hopefully lead to remission or possibly cure my stage 4 colon cancer. I have KRAS mutant, and MSS (stable). In April 2018 I was placed on the waitlist for a trial using MEK…
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Irinotecan andFUDR in the HAI pump
I was wondering if anyone is receivingIrinotecan as systemic and FUDR in HAI liver pump and their experience with it. Are they effective in long term survival for stage 4 colon cancer with mets to the liver?
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Mother with colon cancer
Hi. My mom had a colonoscopy this week and is having her CT today. I am unable to be at the appointments with her at the moment due to how far away I live. Her friend is taking her to to all of her appointments. Her colonoscopy did find a tumor in part of her colon, as well as some polyps. My mom is in her 70s and has…
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Envita
Hello everyone, My wife who is 44 is diagnosed with Stage 4 colon cancer with mets to the liver, andrenal, and hip bone. She has been on chemo for the last year and she has been doing really good with. They have changed up medicines a couple of times for numerous reasons. She has been told by her oncologist at Sloan…
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Interesting new article on treating lung metastasis
Here is an interesting new article on treating lung metastasis after colorectal cancer: https://www.sciencedirect.com/science/article/pii/S0168365918300683 [P]olymeric nanoparticles (PNPs) entrapping chemotherapeutic agents provide a new therapeutic option for treating CRC that has metastasized to the lung. PNPs assembled…
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Secondary Insurance
Hi Everyone, I wonder how people handling the situations I have. I am 54 and getting SSN benefits and Medicare will be activated in August 1 2018. I am currently on my wife’s insurance through her employer. Medicare might be secondary to the current insurance but it will be worthless because current insurance covers 90%…
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Kombucha to help your belly!
I just wanted to share my experience in the hope it may help others on this site. As as many of you know, Chemo wrecks havoc on your immune system, and your GI system, stomach, intestines, colon etc. I have been drinking Kombucha for a few months now, and it definitely has helped me maintain a more normal bathroom routine.…
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Colonoscopies now recommended at age 45
I had my annual physical yesterday and my family doctor said the recommendation for colonoscopies just changed from age 50 to 45 due to the increasing numbers of people being diagnosed. Hope this helps save some people from having to go through this fight!
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Signet Ring Cell Cancer
Hi, I am new here to this site. I am here because my father was diagnosed with Prostate Cancer on Friday. Pathology stated in the notes section: "Perineural Invasion is identified. The carcinoma cell have focal signet ring cell feature." So I wont get into the specifics of the prostate cancer score etc. I know this isnt…
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Neuropathy
Hello, I am 2 months post systematic chemo and have neuropathy on both hands and feet. What did help you manage it? Did it go away? Butt.
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Port Removal
Well, just about 18 months after I finished chemotherapy, I finally had my port removed. I had a few glitches on the way, mostly losing my job and my insurance and having to find a new oncologist so the procedure was pushed up a couple of times. I had it done under local anesthetic and like some others have said, it was…
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Chemo side effects
Hi all, It's been a while since I've been online to this site. I had my original APR surgery in May 2016. Prior to surgery I did chemo and radiation. The chemo was Xeloda pills. I had to stop because the radiation cause a fistula between my bowel and my vagina. After surgery (which included a permanent colostomy) I was…
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Just returned from rectosigmoid surgeon appt..
Ok, just got back from surgeon appointment. I’m not sure how I should feel about this news.....here goes: -CT still has to be done tomorrow and pathology report still not back, however.... -surgeon tentatively puts this at stage 3. He says T3, N? (Although he’s not a radiologist he looked up hubbys scans and said he sees…
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Fatty tissue
DH had the first of many test yesterday here at MDA, as a follow up from his last PET/CT Scan where he has some hot spots. Yesterday was lymph node in the left pelvic area. We were told it was not a lymph node, rather fatty tissue, but still was a hot spot. We will get the resulT’s next week. does anyone have similar…
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microwave
Doctor mentioned something about using microwave on my lung. Anyone know anything about this ?
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Lumbar Microdiscetomy
Hubby went to the neurosurgeon and he wants to do a lumbar miccrodiscetomy and said he could do it next week. We emailed the Dr at MDA and Hubby has an appointment to day with the local oncologist to see if they give the go ahead. Within the next few weeks he will start radiation and chemp for the cancer found in the fatty…
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Liver enzymes elevated, what does this mean?
Hello everyone, please help. My mom was diagnosed with Stage III A colon cancer. She reacted very badly to her first two chemo sessions. She experienced all the normal side effects but at a different level. Dr said she shouldn’t be feeling this bad. The oncologist has now cancelled chemo for the second time due to high…
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Just diagnosed
Hello, I just had a colonoscopy yesterday and was told I have rectal caner. They found a 8cm mass, but said they found it early. I have a follow up visit scheudled for next Tuesday to go over the biopsy and treatment options. Obvioulsy my mind is going crazy and I cant stop doing research online about treatment and…
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First Meeting done, more questions, how did you decide?
Good Morning, We had our first meeting with the oncologist for my Stage IV, mets to omentum. I am healing well from surgery, removing colon mass and omentum mass. I’m not sure what I expected, but honestly if I hadn’t found this forum beforehand, she would’ve been talking a foreign language the entire time. She used a lot…
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What happens next? New Stage IV and questions
Hello there, this is all brand new to me and I needed to reach out in hopes for some kind of understanding about the process. I just received news that sigmoid resection came back as T4aN2bM1 (to omentum) My 35 year old mind is reeling right now, first oncology appt is next week. Are there any questions to be sure and ask?…
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Itinotecan--what to expect?
Looks like this one is in the cards as a systematic chemo medication. Just got back from Jacksonville MD Anderson branch. I had folfox, liver resection and getting FU 5 form thru a HAI pump that was installed 5 weeks ago at the time of the resection. They are convinced the enemy is circulating on a cell level somewhere and…
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Just received cancer stage
First off, thank you to eveyrone who has commented on my previsous post. I am so thankful I found this page. Today I was officially diagnosed with stage 3 rectal cancer. The tumor has gone through the colon wall and has affected the lymph nodes surrounding the tumor, but thankfully it has not spread to any other organs. I…