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Colorectal Cancer

new member
Hi Everyone! First time posting...we love a long history dealing with Stage 4 colorectal cancer. My husband was 45 at diagnosis, he was a stage 1 initially and 10 month later became a stage 4 with multiple lung metastasis on both longs. He is 53 now and he is on the second line of treatment. He had 44 rounds of Folfiri and…
Post Chemo scan without contrast
Did anyone have their post chemo scan without contrast? My scheduled one is without contrast and seems odd to me. I am glad, but surprised. And hoping it was not scheduled incorrectly.
Stage IV incurable Colon cancer.
Hi everyone, I am new to this and this is my first ever post. What a year it has been, at this time last year my wife who was 43 at the time was always complaining of upper right shoulder pain. At first we did not really think it was anything, so I would massage her shoulder and when I would do it it would feel like a ball…
Any Stage 4 Colon cancer Survivors here :((
Any Stage 4 Colon cancer Survivors here? my Husband was recently diganosed Stage 4 colon cancer which mets to his liver, hes only 24 and we just got married august this year, the doctor wants him to have the chemotherapy first before doing the surgery, they want to shrink first the tumor, im really worried today because…
Reacurance rectal cancer
Hi there,has any one had a reacurance rectal cancer?? My husband has just been diagnosed with another tumor in the pelvic area what was the chemo like?? Opertation?? After surgery?? Was there more chemo?? He has no cancer anywhere else.. the surgeon kept saying it will effect his quality of life as it’s near a nerve sorry…
Cured whith holistic approach
Hi I looking for people that have been cured whith holistic approach ? Or test it and failed. Thanks! Olle ps my english is maybe not perfect...I am from sweden.
Lonsurf
My husband was diagnosed with Stage 4 Intrahepatic Cholangiocarcinoma(bile duct cancer) with mets to the lungs a year and a half ago. He has done chemo and 2 clinical trials, kicked off both trials because of growth. This last trial he was on was TAS120 for the FGFR2 mutation just had CT Scan and it showed new tumors in…
Peritoneal Carcinomatosis anyone else here have a loved one dealing with this?
Hi, My husband was d'xd with Colon Cancer in April of 2016 - had surgery then 6 months of Chemo - In July of 2017, had recurrence, went to liver, had liver resection, more colon removed and some abdominal tissue as well, Margines were clear. Fast forward to This July, 3 weeks ago was diagnosed with peritoneal…
Hipec Surgery
Just a quick note that I will be having hipec and liver surgery at UPMC tomorrow. I had 10 inches of my colon removed in March, did six rounds of folfox. My one liver lesion remains unchanged and now hoping the liver lesion is not cancer. The hipec could be curative or NED! Thanks to all of you who spend time answering our…
Husband Fighting Stage 4 Colon Cancer.....HARD YEAR
Hi, On January 2018, my husband was diagnosed with Stage 4 colon cancer. In December 2016, he had a colonscopy due to blood in stool. Upto this point he had been a very healthy person. We've been married 24 years and he has never had the flu or strep. The surgeon who performed the colonscopy stated he removed polyps and he…
Articles: 1. Helicobacter pylori infection and all-cause mortality 2. Vitamin C and chemo 3. Melaton
I have always wondered if Helicobacter pylori (the ulcer bacteria) has any relationship with colon cancer. This small preliminary study seems to indicate infection may be negatively related to colorectal cancer survival. Does anyone have any experience with this? I plan to ask my doctor about it on my next visit.…
elevated ALT (SGPT)
Sitting here waithing for my 6th round of Folfox/Avastin. Has anyne had high levels of ALT and AST? Mine are sky high but Bilirubin is fine. Thanks for any input!
New to site
Not new to this cancer journey. I discovered this site a little over a year ago, right after being diagnosed with stage iv colon cancer. The information and emotional support I've received here from just reading the posts has been such a blessing. I've wanted to join numerous times, but for whatever reason never did. I…
PICC line
Is a Picc line painful? Someone told me that it was and that I should ask for a Port. Is a PICC line more painful than a port, or is it painful if you have had a PICC line?
Survey
Has anyone been approached by CSN for a survey done by a research company wanting to know about our involvement with the boards. I've been selected to do a survey and said "yes" but now I'm wondering if this is for real. Let me know. Thanks! Kim
Elevated ca27-29 need opinion
Had breast cancer in 1984, 1.8 cm no nodes. Had lumpectomy and radiation. Recurrence in 1999 in scar tissue. Had mastectomy and reconstruction. Five years of tamoxifen. 2013 stage 3 colon cancer with one node in 8 taken, left colon. Surgery followed by Folfox. Cea and scans all good each year and colonoscopy good last…
CT Virtual Colonoscopy Results
Hi All, 54 yr old male. First colonoscopy. My mother passed away from Colon Cancer at the age of 65. I decided on the CT Virtual Colonoscopy. In Northern CA, only Stanford Health Care and UC San Francisco off this service. The amount of medicine you have to swallow seems to be less with CT Virtual than traditional. The…
Bladder and radiation
This only applies if you've had radiation treatment. After treatment I've had a bladder problem wihere I don't have as much control as I used to. I'm supposed to see a urologist in a couple of weeks but I'm concerned if what they suggest might do more harm than good. I've also got regurgitating ejactulation. That's when…
Gas Pains
I'm posting this in case it's helpful to anyone. I get gas cramps sometimes. They can be quite painful and unpleasant. I assume it has something to do with all the internal scarring and things that are going on in my tummy. Recently I had had it for a few days. Not sure why I get it more so these days, I chew slowly and…
More articles
Vitamin D again (second to, or perhaps equal to exercise, in my opinion Vitamin D is the best non-chemo strategy to combat colon cancer): https://www.sciencedirect.com/science/article/pii/S0960076018302954?via=ihub [C]alcitriol [Vitamin D] has an array of potential protective effects against CRC by acting on carcinoma…
Xeloda
Hello everyone, my wife has been given Xeloda 500mg to be taken everyday twice a day from her oncologist. Just wondering if anyone is on this and what I can expect from it.
Terribly worried about NewHere
He is not answering my messages, which is unusal. Mods, can you help me track him down, please. He has not posted since February. Tru
Trubrit
See that you posted on another thread and just want to welcome you back. Hope you had a wonderful visit with family and it was all that you hoped for. Amazing story you shared with us. Welcome back and glad that you had a safe trip. Kim
Interesting book you may be interested in
I just started reading Radical Remissions by Kelly Turner. I am sure many may have already read it but my husbands oncologist's nurse practioner mentioned it to us. The author researched and interviewed people who had radical remissions and writes about the nine things in common that they all did to aide in the fight…
Anybody here have or had a stricture in the colon?
After a trip to the ER by way of having some pretty nasty abdominal pain, and one colonoscopy later my G.I. doc is telling me he found a stricture in my colon and they plan on placing a stint in there to widen the passageway in a week or so. Has anybody actually experienced this? I'm not really apprehensive about the…
Non-surgical..!?!?
Well what a blow. My husband saw his oncologist today and she told him she will rescan him after 2 more sessions of chemo. She also just told him that she does not want to put him through surgery as his mets are everywhere on his liver. Well we knew it was devasting at diagnosis, he had 30 mets. But as treatment has…
Fantastic article of survival and how to LIVE with Cancer
http://www.dailymail.co.uk/news/article-6026433/Wildlife-photographer-told-avoid-sunlight-captures-stunning-pictures-car-backseat.html As a bird watcher, I love this article. We all need to find and or follow our passion, when we're feeling up to it. If we're not feeling up to it, do a little something, anything that…
Erbitux + Folfoxiri
I have had 29 cycles of Folfoxiri, so the Dr. Started me on Erbitux as well as keeping the Folfoxiri on this last infusion. The Folfoxiri has lost some effectiveness, but my CEA actually went down a bit yesterday. just wondering if anyone else has same treatment, if so how was Erbitux? * how bad was the rash * did it…
Immunotherapy does work
Although this is concerning breast cancer it still has an impact on Colorectal cancer. Our bodies can kill cancer cells once it knows what they are. http://www.thejakartapost.com/life/2018/06/05/immunotherapy-cures-late-stage-breast-cancer-in-world-first-study.html
Cytometric Cancer profiling
Hello everyone, I was wondering if anyone has done cytometric cancer profiling of their cancer cells. From what I’ve heard and read this is a molecular testing also called gene testing. What they do is take the cancer cells from the patient and use chemo drugs and determine which chemo is most effective against the cancer.…

Colorectal Cancer

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