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Colorectal Cancer

Cancer Humor
A very close law enforcement friend of mine (who is quite the character) shared his pre-treatment colonoscopy story with me: My friend was not only awake for his colonoscopy but totally alert. As the doctor began inserting the camera, he yelled "STOP" and the doc asked him what the problem was. My friend explained he was…
Two weeks in the hospital
I’ve been two weeks in the hospital and I’m getting out today and going to Rehab to regain my strength. We’ve been chasing pain in my butt for a few months. It was hard to pin down. Good news was that it wasn’t cancer. It was an infection turned into an abscess which was causing pressure pain. Finally a drainage tube was…
Six month scan results
It’s been six months since my last encounter with the University of Michigan Health System, Cancer Center. The blood draw area was all new. New design and reinvented. They had numbers now, instead of calling you by name. They also explainef that they can’t leave an IV in and use it for both the CT scan and blood draw. This…
Avastin and Xeloda
Well my oncologist is stopping the Avastin, Irinotecan and 5-fu because of low WBC. He's ordered Avastin and Xeloda. I'm not sure how long i will be taking this stuff. Probably the full 12 treatments. Has anyone been on this combination? I was on Xeloda pills and Oxiliplatin previously. I tolerated it ok. I only had a few…
Port.... How is it determined WHEN it is to be removed???
Hi All, I don't really understand "when" you get your port removed. If you get to NED status.... finish chemo.... but remain on Xeloda.... are you suppose to get your port removed then...OR ..do you wait around to see if you have recurrance...OR...being stage IV... do you not EVER get port removed because you are always…
Thank you and wishing each of you healing!
It has taken me awhile to come post on the board. My husband passed away July 30th. He fought so hard with this awful disease. The last week - things changed rapidly- and I have been going through the daily must haves since then. I cannot express how helpful this community was to both of us and how I plan to still use it…
Reseach Survey Today
My survey was over the phone today for CSN. She never asked me to download any software, was very interested in my experience on the boards, especially why my decision on becoming a member, the reason why joining, my posts, my involvement in the boards, the reason why I've stayed active after 9 years. She asked some…
trouble with port
Has anyone else had difficulty with their port getting infected? I am on my second port since May , the first one became infected after 3 rounds of Folfox, had another put in early July and now it too is infected. It is almost as if my body is rejecting it lol--but of course I am told that is "nonsense". It seems to alway…
Question unrelated to cancer
I have a question that is not related to cancer. I am posting it here because of the exposure and on the off-chance that someone here may be an amputee or know someone who is. Two weeks ago my 59 year old brother-in-law was standing inside a bank when a mentally unstable individual intentionally drove his vehicle into the…
I'm still hanging in there -- no chemo
I just wanted to give everyone an update that I feel my health has continued to improve. A little background, diagnosed stage 4, at age 34, after nearly 10 years of surgeries, radiation to the lymph nodes in my neck, and years of endless on and off again chemo, I finally had enough. Not only had my oncologist ran out of…
The short focus
"Living in the now" has been a valuable technique for many on this board, and I strive to accomplish that goal every day. However, I want to share another technique that helps me, and that is what I call "the short focus." I set daily goals and on some days I limit my focus on the future to a date certain. For example, I…
New article on Cimetidine
Here's a new article on Cimetidine (the antacid, Tagamet) reducing cancer recurrence (sorry, abstract only): https://www.ncbi.nlm.nih.gov/pubmed/29630589 Despite being a very small sample, the results are interesting: Twenty-six percent (10/38) received perioperative cimetidine (mean daily dose, 750 mg; mean duration, 369…
Adjuvant chemo
My wife was diagnosed with colon cancer, stage IIA in June. Surgery was successful, and no lymph node involvement or metastatis. CEA 2.4 post op Her first oncologist appointment was today, he recommends surveillance, but we asked about adjuvant chemo just in case. He said he doesn't recommend it as it would only make a 1…
Can chemo alone remove liver mets?
Has anyone had small liver mets go away with treatment when they can't be removed?
To the Ft. Meyers FL Patient:
I am so sorry I can't remember your handle but I just have to say THANK YOU!!!!! I reached out to your oncologist and he still has a couple of HAI pumps left and is switching to a new one. I have reached out to so many centers to no avail and Thank God this doctor is doing this in our state. We are scheduling a consultaion…
Have your views on death and dying changed?
I'm curious because mine certainly have. If someone or something is suffering I am much more for a quick death than a long drawn out, miserable death. We've lost two people in the past week, on the same day, and I realized how much my views have changed. I no longer want to have someone hang in there as long as possible…
When to find new oncologist
Looking for advice --Stage 4 colon cancer with lung mets here--had all surgery and biopsies done at a fantastic hospital in Virgina, was there visiting my daughter and my appendix ruptred leading to discovery of tumor in cecum. Surgery was awesome, all moargins clean, no nodes, one mets to omentum that was removed. 2 mets…
Have any of you had success with immunotherapy for recurrence?
Have any of you had success with immunotherapy for recurrence? My recurrence is the first post scan chemo, only 6 weeks later. I am currently in 3 stages of grief, denial, depression, and anger. Angry that the last 5 months on the new drug didn't work. So I dealt with the side effects, gained weight, have brown hands, lost…
Searching for free/lesser cost cancer mutation test
Hi guys. I know you all have heard of testing our cancer tissues to know what type of cancer mutation we have (I know there's the KRAS wild, the BRAF, etc.). Do you know of any place that offers that for free or for a minimal cost and how much if you know? And do they allow overseas sampling? Because I want to test what…
Soldiering on.....
Hi all, I am a bit of a lurker. I was diagnosed with Stage 4 colon cancer last year, and posted on this board, which was immensely welcoming and supportive. This Is an amazing resource for folks thrust into the scary world of cancer. My question to folks who have been dealing with this for a while: Do you ever get tired of…
Newbe
i had a colonoscopy June 4th and they informed me I have cancer. I just had a ct scan and now they are sending me for a MRI. Is that normal? It was a flat polyp so they could only remove part of it. Seems to be taking forever to get any answers.
Got the biopsy results after surgery
This is like a nightmare we can't wake from. My hubby had his colon resection on Wednesday and the results from the biopsies of the lymph nodes came back- 10 out of 15 are cancer. So Stage 3C. We are just in shock. He was asymptomactic. Just went for his first screening. I'm still trying to process. Met an oncologist…
new member
Hi Everyone! First time posting...we love a long history dealing with Stage 4 colorectal cancer. My husband was 45 at diagnosis, he was a stage 1 initially and 10 month later became a stage 4 with multiple lung metastasis on both longs. He is 53 now and he is on the second line of treatment. He had 44 rounds of Folfiri and…
Post Chemo scan without contrast
Did anyone have their post chemo scan without contrast? My scheduled one is without contrast and seems odd to me. I am glad, but surprised. And hoping it was not scheduled incorrectly.
Stage IV incurable Colon cancer.
Hi everyone, I am new to this and this is my first ever post. What a year it has been, at this time last year my wife who was 43 at the time was always complaining of upper right shoulder pain. At first we did not really think it was anything, so I would massage her shoulder and when I would do it it would feel like a ball…
Any Stage 4 Colon cancer Survivors here :((
Any Stage 4 Colon cancer Survivors here? my Husband was recently diganosed Stage 4 colon cancer which mets to his liver, hes only 24 and we just got married august this year, the doctor wants him to have the chemotherapy first before doing the surgery, they want to shrink first the tumor, im really worried today because…
Reacurance rectal cancer
Hi there,has any one had a reacurance rectal cancer?? My husband has just been diagnosed with another tumor in the pelvic area what was the chemo like?? Opertation?? After surgery?? Was there more chemo?? He has no cancer anywhere else.. the surgeon kept saying it will effect his quality of life as it’s near a nerve sorry…
Cured whith holistic approach
Hi I looking for people that have been cured whith holistic approach ? Or test it and failed. Thanks! Olle ps my english is maybe not perfect...I am from sweden.
Lonsurf
My husband was diagnosed with Stage 4 Intrahepatic Cholangiocarcinoma(bile duct cancer) with mets to the lungs a year and a half ago. He has done chemo and 2 clinical trials, kicked off both trials because of growth. This last trial he was on was TAS120 for the FGFR2 mutation just had CT Scan and it showed new tumors in…
Peritoneal Carcinomatosis anyone else here have a loved one dealing with this?
Hi, My husband was d'xd with Colon Cancer in April of 2016 - had surgery then 6 months of Chemo - In July of 2017, had recurrence, went to liver, had liver resection, more colon removed and some abdominal tissue as well, Margines were clear. Fast forward to This July, 3 weeks ago was diagnosed with peritoneal…

Colorectal Cancer

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