Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

I'm still hanging in there -- no chemo
I just wanted to give everyone an update that I feel my health has continued to improve. A little background, diagnosed stage 4, at age 34, after nearly 10 years of surgeries, radiation to the lymph nodes in my neck, and years of endless on and off again chemo, I finally had enough. Not only had my oncologist ran out of…
The short focus
"Living in the now" has been a valuable technique for many on this board, and I strive to accomplish that goal every day. However, I want to share another technique that helps me, and that is what I call "the short focus." I set daily goals and on some days I limit my focus on the future to a date certain. For example, I…
New article on Cimetidine
Here's a new article on Cimetidine (the antacid, Tagamet) reducing cancer recurrence (sorry, abstract only): https://www.ncbi.nlm.nih.gov/pubmed/29630589 Despite being a very small sample, the results are interesting: Twenty-six percent (10/38) received perioperative cimetidine (mean daily dose, 750 mg; mean duration, 369…
Adjuvant chemo
My wife was diagnosed with colon cancer, stage IIA in June. Surgery was successful, and no lymph node involvement or metastatis. CEA 2.4 post op Her first oncologist appointment was today, he recommends surveillance, but we asked about adjuvant chemo just in case. He said he doesn't recommend it as it would only make a 1…
Can chemo alone remove liver mets?
Has anyone had small liver mets go away with treatment when they can't be removed?
To the Ft. Meyers FL Patient:
I am so sorry I can't remember your handle but I just have to say THANK YOU!!!!! I reached out to your oncologist and he still has a couple of HAI pumps left and is switching to a new one. I have reached out to so many centers to no avail and Thank God this doctor is doing this in our state. We are scheduling a consultaion…
Have your views on death and dying changed?
I'm curious because mine certainly have. If someone or something is suffering I am much more for a quick death than a long drawn out, miserable death. We've lost two people in the past week, on the same day, and I realized how much my views have changed. I no longer want to have someone hang in there as long as possible…
When to find new oncologist
Looking for advice --Stage 4 colon cancer with lung mets here--had all surgery and biopsies done at a fantastic hospital in Virgina, was there visiting my daughter and my appendix ruptred leading to discovery of tumor in cecum. Surgery was awesome, all moargins clean, no nodes, one mets to omentum that was removed. 2 mets…
Have any of you had success with immunotherapy for recurrence?
Have any of you had success with immunotherapy for recurrence? My recurrence is the first post scan chemo, only 6 weeks later. I am currently in 3 stages of grief, denial, depression, and anger. Angry that the last 5 months on the new drug didn't work. So I dealt with the side effects, gained weight, have brown hands, lost…
Searching for free/lesser cost cancer mutation test
Hi guys. I know you all have heard of testing our cancer tissues to know what type of cancer mutation we have (I know there's the KRAS wild, the BRAF, etc.). Do you know of any place that offers that for free or for a minimal cost and how much if you know? And do they allow overseas sampling? Because I want to test what…
Soldiering on.....
Hi all, I am a bit of a lurker. I was diagnosed with Stage 4 colon cancer last year, and posted on this board, which was immensely welcoming and supportive. This Is an amazing resource for folks thrust into the scary world of cancer. My question to folks who have been dealing with this for a while: Do you ever get tired of…
Newbe
i had a colonoscopy June 4th and they informed me I have cancer. I just had a ct scan and now they are sending me for a MRI. Is that normal? It was a flat polyp so they could only remove part of it. Seems to be taking forever to get any answers.
Got the biopsy results after surgery
This is like a nightmare we can't wake from. My hubby had his colon resection on Wednesday and the results from the biopsies of the lymph nodes came back- 10 out of 15 are cancer. So Stage 3C. We are just in shock. He was asymptomactic. Just went for his first screening. I'm still trying to process. Met an oncologist…
new member
Hi Everyone! First time posting...we love a long history dealing with Stage 4 colorectal cancer. My husband was 45 at diagnosis, he was a stage 1 initially and 10 month later became a stage 4 with multiple lung metastasis on both longs. He is 53 now and he is on the second line of treatment. He had 44 rounds of Folfiri and…
Post Chemo scan without contrast
Did anyone have their post chemo scan without contrast? My scheduled one is without contrast and seems odd to me. I am glad, but surprised. And hoping it was not scheduled incorrectly.
Stage IV incurable Colon cancer.
Hi everyone, I am new to this and this is my first ever post. What a year it has been, at this time last year my wife who was 43 at the time was always complaining of upper right shoulder pain. At first we did not really think it was anything, so I would massage her shoulder and when I would do it it would feel like a ball…
Any Stage 4 Colon cancer Survivors here :((
Any Stage 4 Colon cancer Survivors here? my Husband was recently diganosed Stage 4 colon cancer which mets to his liver, hes only 24 and we just got married august this year, the doctor wants him to have the chemotherapy first before doing the surgery, they want to shrink first the tumor, im really worried today because…
Reacurance rectal cancer
Hi there,has any one had a reacurance rectal cancer?? My husband has just been diagnosed with another tumor in the pelvic area what was the chemo like?? Opertation?? After surgery?? Was there more chemo?? He has no cancer anywhere else.. the surgeon kept saying it will effect his quality of life as it’s near a nerve sorry…
Cured whith holistic approach
Hi I looking for people that have been cured whith holistic approach ? Or test it and failed. Thanks! Olle ps my english is maybe not perfect...I am from sweden.
Lonsurf
My husband was diagnosed with Stage 4 Intrahepatic Cholangiocarcinoma(bile duct cancer) with mets to the lungs a year and a half ago. He has done chemo and 2 clinical trials, kicked off both trials because of growth. This last trial he was on was TAS120 for the FGFR2 mutation just had CT Scan and it showed new tumors in…
Peritoneal Carcinomatosis anyone else here have a loved one dealing with this?
Hi, My husband was d'xd with Colon Cancer in April of 2016 - had surgery then 6 months of Chemo - In July of 2017, had recurrence, went to liver, had liver resection, more colon removed and some abdominal tissue as well, Margines were clear. Fast forward to This July, 3 weeks ago was diagnosed with peritoneal…
Hipec Surgery
Just a quick note that I will be having hipec and liver surgery at UPMC tomorrow. I had 10 inches of my colon removed in March, did six rounds of folfox. My one liver lesion remains unchanged and now hoping the liver lesion is not cancer. The hipec could be curative or NED! Thanks to all of you who spend time answering our…
Husband Fighting Stage 4 Colon Cancer.....HARD YEAR
Hi, On January 2018, my husband was diagnosed with Stage 4 colon cancer. In December 2016, he had a colonscopy due to blood in stool. Upto this point he had been a very healthy person. We've been married 24 years and he has never had the flu or strep. The surgeon who performed the colonscopy stated he removed polyps and he…
Articles: 1. Helicobacter pylori infection and all-cause mortality 2. Vitamin C and chemo 3. Melaton
I have always wondered if Helicobacter pylori (the ulcer bacteria) has any relationship with colon cancer. This small preliminary study seems to indicate infection may be negatively related to colorectal cancer survival. Does anyone have any experience with this? I plan to ask my doctor about it on my next visit.…
elevated ALT (SGPT)
Sitting here waithing for my 6th round of Folfox/Avastin. Has anyne had high levels of ALT and AST? Mine are sky high but Bilirubin is fine. Thanks for any input!
New to site
Not new to this cancer journey. I discovered this site a little over a year ago, right after being diagnosed with stage iv colon cancer. The information and emotional support I've received here from just reading the posts has been such a blessing. I've wanted to join numerous times, but for whatever reason never did. I…
PICC line
Is a Picc line painful? Someone told me that it was and that I should ask for a Port. Is a PICC line more painful than a port, or is it painful if you have had a PICC line?
Survey
Has anyone been approached by CSN for a survey done by a research company wanting to know about our involvement with the boards. I've been selected to do a survey and said "yes" but now I'm wondering if this is for real. Let me know. Thanks! Kim
Elevated ca27-29 need opinion
Had breast cancer in 1984, 1.8 cm no nodes. Had lumpectomy and radiation. Recurrence in 1999 in scar tissue. Had mastectomy and reconstruction. Five years of tamoxifen. 2013 stage 3 colon cancer with one node in 8 taken, left colon. Surgery followed by Folfox. Cea and scans all good each year and colonoscopy good last…
CT Virtual Colonoscopy Results
Hi All, 54 yr old male. First colonoscopy. My mother passed away from Colon Cancer at the age of 65. I decided on the CT Virtual Colonoscopy. In Northern CA, only Stanford Health Care and UC San Francisco off this service. The amount of medicine you have to swallow seems to be less with CT Virtual than traditional. The…

Colorectal Cancer

Discussion List

Discussion Boards