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This is a tad graphic, but I'm desperate!
I'm so at the end of my rope. Yes, I've had IBS since my 20's, which is over 30 years. I've pretty much been able to manage it. Since my colon resection (it'll be 2 years in Nov.), I've had even worse problems than ever. So much pain, so much constipation. This week has been HORRIBLE. Especially the past few days. I feel…
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Husband is stage 4 survivior going strong!! (2 1/2 years)
I wanted to share.. I think there have really been some cure advancments in this disease. My husband is going on 2 1/2 years NED since his stage4 colon cancer diagnosis & liver resection. He had 13 lymph nodes removed.6 inch of colon,and 60% of his liver. He is a happy patient at USC Norris Hospital. He has not had any…
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CT Scan Results - Hopeful News
I haven't posted in awhile as I've been waiting for my three month scan results since I began Folfiri and Avastin. My oncologist and my VATS surgeon both told me that chemo wouldn't work on my lung mets. They wanted me to radiate my lungs. My second opinion, Dr. Lenz at Norris USC Cancer Center, said that it would work and…
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Lisa 42 questions cpt-11
Hey Lisa, was wondering about the side effects of this drug. I am on Folfox with avastan so I am not even sure if this is changed out completely or cpt-11 added in place of something. will your hair fall out with this one? I do think he said he would stop the Oxi. and replace this, not for sure. We still have another…
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Liver questions
Has anyone had their onc. say that the liver tumors may be dieing but not shrinking? My ct scan showed two nodules slightly larger and two slightly smaller. The lumpy bumpys in my belly had melted away. So, I am just wondering if my Dr. is giving me lipservice or if this is what he really thinks. He said that in the…
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Chemo port in the arm?
Have any of you had the chemo port in your arm? I understand they can put it either in the chest or the arm. I’m having it put in my arm next Tuesday and I’m just wondering what the advantages of one over the other might be.
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Update on PET/CT-good news!
My oncologist called me this morning after the tumor board at which the liver surgeon and he and other docs looked at the scan from last Tuesday which showed a spot on the liver that lit up on the PET scan. After they looked at it this morning, there is consensus that it is most probably scar tissue from where the surgical…
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Angelsbaby
Hey Michelle, Just wanted to check in and see how you are making out...Did you move yet???? How are you feeling on the new meds????? Thinking of you often............. JULIE
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The Reading Room: Colon Cancer Stopped In Its Tracks In Swiss Study
The headline on this one caught my eye. Link: Colon Cancer Stopped In Its Tracks In Swiss Study Hatshepsut
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Send money not Meat
OMG, my crazy step grandmother just sent us a box of meat, Isn't meat what got us into this mess in the first place. I would have rather her sent money, not Meat!! Winney
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Friday Riddle
NO GOOGLING OR INTERNET SEARCHING ALLOWED!! RIDDLE: This is an unusual paragraph. I'm curious how quickly you can find out what is so unusual about it? It looks so plain you would think nothing was wrong with it! In fact, nothing is wrong with it! It is unusual though. Study it, and think about it, but you still may not…
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Difference between surgical colonoscopy and colonoscopy
Was going through paper work from my health insurance plan today and noticed two terms, and wonder if anyone knows what the difference is between surgical colonoscopy and colonoscopy?
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The Reading Room: Colon Cancer May Yield to Cellular Sugar Starvation
While the researchers discount any benefit from dietary sugar restriction, this is an interesting research finding: Link: Colon Cancer May Yield to Cellular Sugar Starvation Hatshepsut
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FYI - John Hopklins Article
Johns Hopkins Update - Good article AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY. Cancer Update from Johns Hopkins: 1. Every person has cancer cells in the body. These cancer cells…
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anybody have ?? about their dr?
Hi, I'm a newbie, kind of shy, just like to read what all you nice people have to say, but lately I've been feeling so confused. I decided to get a 2nd opinion from this surgeon who came from M.D Anderson in my town. Well my first visit was like heaven he was so nice and attentive, then he went over my scan and said that…
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Abdominal pain with chemo
I am currently on Folfiri and Erbitux every 2 weeks and then Erbitux alone alternate weeks. Anyway i have been on this for about 3 months and getting ready for my PET scan. I just had Erbitux this week, and my upper right quadrant is giving me like spasms. It is hard to discribe and wonder if this is normal. Almost like a…
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Shayenne Where are you?
Has anyone heard from Shayenne aka Donna lately? I am concerned I havent even seen her posting. I am going to try and give her a call today to make sure she is doing okay. If anyone has heard from her please let me know. Shayenne, where are ya hon, need to check in here and let us know your doing okay.. God Bless Beth
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ACS
As far as I can tell, this website is the only benefit I've gotten from the ACS. I say that because I was approached today at lowes by someone raising money for the ACS. I told them I didn't want to donate to the ACS because I didn't think they did enough to help cancer patients. She assured me the ACS provided all kinds…
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Anybody from Arkansas?
What doctor do you use and where do you go for chemo? Debbie
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MD Anderson-Advice Please
My sister was dx 03/09 with mets to liver and peritoneum. She has sought out second opinions at UCLA (bad experience) and Stanford (great experience). She had emergency surgery to remove part of colon and ovaries; that is how it was discovered. Completed 12 treatments of 5FU and Erbitux. Was scheduled for liver resection…
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Still in the hospital
They kept me longer than expected so I am still here onmy laptop, watching television, and counting ceiling and floor tiles. I guess I will have to do a recount. Eric
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I feel overwhelmed...
My husband was diagnosed with coln cancer stage IIB, it had gone thru the wall of colon but not in lymph nodes. He had surgery to remove a lrg section of the colon. It was or is a rapidly growing cancer. The original pet scan did not show it had spread, but dr's are wanting to do a very aggressive chemo treatment. We don't…
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The Reading Room: How Diarrheal Bacteria Cause Some Colon Cancers
There has been some discussion on the board in the last day or two about the myriad possible causes of colon cancer. Here is an article that speculates on yet another possible cause for some cases. This article references research at Johns Hopkins. Link: How diarrheal bacteria cause some colon cancers Hatshepsut
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Question for Pattee about stitches -
Hi Pattee! Hope you are well. Do you have permanent internal stitches? The surgeon said today that my husband's stitches won't dissolve. He had staples on the outside. Surgeon went in and snipped it just like you said, and told him no big deal now that the infection is gone. He said because he is thin it might happen (the…
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6 Month Scan
Last week I had my 6 month scan since my surgery and yesterday saw my oncologist to get the results. Good news -- still NED. So I have made the 6 month mark. I look at each scan as a small goal so now I work towards the 8/9 month scan. After that the year scan and so forth. My oncologist has told me that median time to…
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Also I year NED!
This week I will be I year NED, and it feels great! It's hard to believe a year has gone by already and it seems surreal to me when I think back on it all. I wish the same for all of you out there! Best wishes for you all. Wendy
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No appt for 4 months!! Hurrah! Port out next Wednesday
I just got in from having my blood tests and a 2 minute visit with my sweet onc. He said 'You're doing SO well that we'll see you in four months and then at 8 months with a scan the week before the 8 month visit.' I'm FREE until mid December! My surgeon is overloaded but they squeezed me in for my port removal on…
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1 Year NED
After some long and trying times through the surgeries and the chemo/rad treatments my 1 year point has finally arrived. On 8/18/09 I got it officially, 1 year NED! Just needed to share. I wish the best to everyone else that is in the process of getting to this point also. Hang in there, it will come.
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Meds
Ok, They are wanting to do the two day treament, every two weeks for 6 months...Eloxatin,Leucovorin and Fluorouracil. The onc wants the port put in this week (we meet with the surgeon tommorrow) dont know if that will happen this week, but onc wants to start chemo Mon. He is concerned because surgery was 7/9 and chemo…
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I have a question concerning my mom
Hello. I am new here. My mother is going on 82 in November. She is a breast cancer survivor. She was diagnosed with breast cancer at age 74. She went through all the common radiation and Chemo treatments and of course all the uncomfortable and terrible issues that come with the treatments but she survived it. About two yrs…