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Adrian....
You and John doing ok? I miss you :( Hugsss! ~Donna
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New treatment strategy
I wasn't able to get any copies of my study today. I'm going to get one on Wed when I get my avastin. Here is what I found out and my new strategy. I have two significant protein overexpressions. I have the maximum overexpression of SPARC: secreted protein acidic and rich in cysteine. It is calcium binding macroprotein.…
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GREETINGS!
Hi, Just joined this site and found it useful in about the first thirty seconds. Stage 1 rectal tumor removed with neg margins. Dr. said " your good to go". Stage 4 cancer mets to liver appeared in Jan. 5 months of chemo then liver resection and the fight goes on. All tumors from liver were removed with neg margins. All…
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2010 Colondar - A Must See!
Our friends at the Colon Club are at it again with the 2010 Colondar. This from their website... "The 2010 Colondar is another stunning take on fourteen colorectal cancer survivors all diagnosed under the stereotypical age of 50. As with every Colondar, the featured survivors proudly show off their surgical scars and share…
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Advice needed from the board
The last day or two I have not felt very good. (I had my last chemo treatment last wed Nov 4th). Now I feel like I'm getting a cold or something. My question is. Do you think I should cantact my Ong and let him know? Or wait a day or two and see if this thing passes? My next chemo treatment is this Wed. Life is funny…
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Pathology Reports
Good morning all! We just got the pathology reports from my husband's Monday surgery. The surgeon removed 35 lymph nodes and ALL were cancer free! The surgeon staged him at an early stage 2. As you can imagine, we're both breathing a big sigh of relief. Now we're thinking ahead to treatment and what comes next. We do plan…
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Feeling so frustrated
Hi everyone, I am feeling very frustrated because I can't seem to talk my sister into getting a colonoscopy. Both my mom and her mom died from colon cancer, I was diagnosed last December shortly after turning 40, so there is a strong family history. She will be 45 in December, so really she should have gone 5 years ago. I…
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Good Scan results
I just received my offical MRI scan results. The liver was clear! No indications whatsoever. I had originally had 2-3 suspect spots and 2 of them were biopsied and were indeed cancerous. These have now disappeared after chemo. My oncologist has now recommended 2 months more of chemo. (5FU Avastin, Lucevorin) I do not want…
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For Holdtight - re stitch
Hi, My husband, Brian, has permanent stitches on the inside. He has had two infections in the incision because of a knot (same thing doc said to you) working its way to the surface. They opened and drained twice, and the second time the doc snipped the knot and said he should be good to go. The infection cleared, but he…
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Couldn't breathe!
Hi everyone! I went to chemo last week, they did the zofran, oxyaplatin then when they put the avastin in, a few minutes later, I couldn't breathed! After they did the avastin I went to the bathroom and the air conditioner is right there, I did have it a little cool in the room, ( I am alone) My mom and dad were with me…
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NUDGIE
Where did you find that picture that you are using? The colon Cancer Surviror one, just love it and it would make a great tatto. Beth
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Navajo honors and blesses cancer survivors and Veterans
My wife and I are involved in a movement called Adopt A Native Elder. It raises funds and provides for food drives several times a year to the Navajo Reservation in Arizona. It is a marvelous group. Check it out www.anelder.org. They hold a big weaving sale in Deer Valley Resort outside of Salt Lake City each year at…
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Thanks to everyone!
Well, Everyone, I go in for pre-operative stuff today. Then Prep tomorrow and surgery on early Friday morning. To everyone here who somehow made things easier for me just by being here with your support, humor (especially the bag stories Brooks--we'll see if I have to have one, I love sailing and asparagus), hugs and…
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CAT on Thursday
Dear Friends, As Rob so beautifully wrote we are all somewhere on this journey and this week brings something new. **** has had 3 rounds of Folfori + Avastin since they found that 1 nasty lymph node in September (3 weeks after finishing 12 rounds of Folfox 6). He will have a CAT scan on Thursday to see if the new chemo has…
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I HATE Cancer "Rough day" :o(
I hate cancer!!! F%&K YOU CANCER!!!!! I HATE YOU, I HATE YOU, I HATE YOU!!! I hate what you have done to my friends, my family, and to me!! I will fight you with all I have. I will win.. I will be okay. My friends will fight and they will win!! Your days are numbered!!…
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anyone in boston ?
One year ago this week I began my "bad year"..I live on cape cod and was able to stay at the newly opened Astra Zeneca Hope Lodge in Jamaica Plain ,Boston... I lived there for 5 weeks (chemo/radiation) treatments.. This was and is the most wonderful place.. They will be celebrating their 1st birthday Sat.Nov.7th with an…
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Need a favor
Hi everyone, Tomorrow is chemo #8, AND we get the results of my husband's scan. Lots of "scanxiety" tonight, in addition to the usual "night before chemo blues" (just when he starts to feel better, it's time to do it again). He's tough, and has been a trouper, but it's starting to get to him. Please say a prayer, send good…
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Annabelle41415
Kim, Just wanted you to know that I have been thinking about you all day long..Hope your surgery went well.REST REST REST....Let us know how you made out when you are up to it.....Hopefully you are not in to much pain...JULIE
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Neupogen shots
For those of you that have had Neupogen, how long did it take before you felt more energy? I had a shot yesterday and one today, and I am already feeling stronger tonight. Is that just coincidence, or does it work that fast? Also, as far as the bone pain, when was it the worst? I have no pain in my lower body, but I feel…
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KRAS - Wild!
OK! I'm a 5-year veteran with this Stage 4 Colon Cancer POS and moving on to new territory. I have just learned that my KRAS is "wild" as opposed to "mutant" which makes me eligible for Erbitux. I guess that is next. I must say I am delighted to hear this. It has brought tears to my eyes to have another option at hand!!…
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Just Checking In With You – A Sundance Update
Hello Everybody! It’s good to see you all again. I’m sorry I have not been able to get on this board but just once and just to read some PM’s that I received. It’s been very hard to sit up and type at a keyboard. I can sum it up in one word, Ladies and Gentlemen – PAIN! My home email keeps notifying me of PMs on the site,…
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side effects of Oxaliplatin, Leucovorin and 5-FU
I have had two treatments of the above chemo drugs and I am having a real tough time with the side effects. Although I take anti-nausea medication I still experience dry and sometimes wet heaves. I have no appetite and have fatigue along with weight loss. I will be talking with a nutritist. I still have 10 more treatments.…
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oxaliplatin is one nasty, vile, disguisting drug
if I am allowed to HATE it, well, then I HATE it
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TGL320
Hey there, Just wondering how your hubby made out with his surgery???Hope all went well..Check in when you can and let us know....JULIE
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Mucinous Adenocarcinoma
In my obsessive reading about all the details of my husband's cc, I am finding that the characteristic of being "mucinous" is not fantastic. Are there other stage IVs out there who have this characteristic of their tumors- I would feel much better hearing from you! Thanks!
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Crazy Iliostomy bag!!!
I just though you guys who have a Iliostomy or Colostomy might get a laugh out of this. If I don’t laugh I’d cry. Well it all started last night around 7:30pm when my wife’s mother (Mom) made a plate full of fresh Asparagus. Now I don’t know about you, fresh steamed Asparagus is as close to heaven a guy can get and they…
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ok - pictures
I did it - but it was taking too long to put them all here, so there are a few pics on my expresiions page.....but gosh it was just so perfect up there. of course, there wasn't any snow yet...
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question
I have posted before about pain in my back and liver. Has anyone experienced liver pain,it even hurts to laugh. I was told that my tumors are shrinking so why do I still have pain? I also had this deep burning itchy feeling in my upper right shoulder before I went to the ER with the liver pain, I can't help but think it is…
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One Week in the Life of Semi-Colons
As I remember my many friends here in this community I am overwhelmed by what we collectively face in any given week. It is now Monday with a new week ahead of us. This week we will undergo surgery to reverse an ileostomy. We will stand by the hospital bedside of a mother in Italy, and a brother with bone mets. We will…
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Tears of Joy
Well, I don't know what is making me happier, my scan results or knowing that I have such a great support group! First I want to say thank you to Brooks and everyone else for your prayers and well wishes. I liteally cried when I saw the postings. Okay...here they come again...you guys are the best! Well, my results turned…