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one year ago today.........
One year ago today, I woke up with the most excruciating pain I had ever felt in my life. Three ago (last year) I went to the doc because I thought I was constipated. They sent me home and told me to try an enema. Two days (last year) ago there was more pain, and since I couldn't get to see the doc since they were too…
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Stuck in New York and not doing well
Well, we are in New York (going on 2 1/2 weeks now). I don't post often, so in case you missed my last post....we are here so that my husband can have a hepatic pump installed. Or so we thought. After numerous pre-surgical scans, they found something in or near the pancreas and did not want to go through with surgery until…
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Lung mets and dry cough
I have been off Folfiri and Avastin for two and a half weeks. (My scans showed progression of lung mets so chemo was stopped). A couple of days ago I started having a dry cough that is aggravated when I speak. Of course, I am immediately thinking the worst possible scenario. Has anyone else with lung mets experienced a dry…
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VickiCo Wednesday is the first day of the Rest of your Life....
Getting ready for the big day tomorrow...Today is not a day to worry, its a day to remember. It will be the last day of trouble for you. You will have freedom back, your control back, your life back. Just another short round of healing and soreness but will be worth it all. Good Luck to you in the morning and Bless you and…
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The compassion of the people on this site
in addition to providing useful info and advice has been a lifesaver for me as I have only my girlfriend,doctors/nurses/staff to talk to.I can;t properly express how vital this board has become to me. Thank you all from every healthy cell in my body...Hopefully, I will be able to help others as well..Steve
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H1N1 Question
My son is getting the H1N1 mist vaccine today. I have read that there is a slight chance that the virus can be spread after getting the mist because it is live. My onc said that I can not get H1N1 vaccine because it is live. Does anyone know if I can get H1N1 from someone who has been vaccinated, or if my 3 week old…
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Wait to hear it from the horses mouth...
So, never take the word of a pain managment doctor over that of your oncologist. I won't do a "he said, she said" thing but I thought things were stable. He did say there was some growth on the one but his idea of what's a problem and her (onc) idea is different. She's the boss lady. So I am starting TODAY with the double…
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Started my cards
Just wanted to tell you that I started working on my Christmas cards today! I'm making almost 100 this year, so time is of the essence. *grins* I just can't wait to get the cards from everyone on the list. *hugs* Gail
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Foot and leg Pain
Went to a new GP..(My normal GP was to booked up) I have been having terrible foot pain and leg pain..It hurts 24/7 and my legs get tingeling sensations plus pain...I still have naropathy in my feet...I stated a new job in Sept. and am on my feet 8 hour a day but thought the pain would get better and go away once I got…
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PET Scan Results In!
We all know how scary and anxiety-ridden scans and tests are.. My first PET scan since DX 3/2009 shows NO new cancer anywhere and no new growth in liver mets. The liver mets shrunk to about 1/2 there size in the summer,- not much shrinkage after that, but NO growth. My WB Cells have been low the past 2-3 weeks so I have…
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One Year Later
I just had my one year later colonoscopy. I am so happy to report that it looked good and the one small polyp they did remove, a type called hyperplastic, was benign and it does not have the tendency to be cancerous. I finally feel like I can breath a little easier. I still see my onc every three months and will probably…
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Research Info from NexCura
I subscribe to their news/research service. In case it can help someone. The links didn't show up in the text, but the url: www.cancerfacts.com will take you to the service. Blessings, Amy --------------- Welcome to the first issue of Profiler eNews for Colorectal Cancer, a service of NexCura, producers of the Profiler…
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6 month check up after NED/update
Hello everyone, as most of you know, I just found out the I am NED and that I don't have to go back for a scan for another 6 months. My family thinks that is a long time to go without a check up, so thought I would ask my freinds here on the board what the norm is for a followup scan after your first NED results. I know I…
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Autumn Colors at the Aboretum in Boston
I went out this morning...not on an errand, or to the doctor, or hospital, or pharmacy...but to a local Aboretum in Boston. It was suggested to me while I was doing laundry last week to go there. I love it there and hadn't been since my diagnosis. The colors were amazing, even though it is really late Fall here, the…
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Just wondering
Ok, today I went in for round 6 of my treatments. 2 weeks ago I was admitted into the emergency room for blood clots. I was told today that I would have to be on blood thinners for at least 6 months or maybe longer. Does this sound like the norm for blood clots. Anyone who knows about this please let me know. Pat
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I just want something to go "normal" just once
I am tired of being the oddball. Once again, not a "normal" day in the life of chemo for me. I thought I'd been doing better this time than first round, and I swear I've been eating more and drinking more, and should be fine. But that isn't the case. I'd lost 8 pounds this morning since infusion day - again. I've been…
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NED..
YEAH>>>YEAHH..We once again to do that NED Happy Dance..Stage IV and NED, Yes there is hope for all. Patti & Dennis
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My Grandson at 3 weeks old
I am a proud Grandma of 3 week old Gavin. There is a picture of him on my expressions page. He is wonderful!!!! Jan (aka Granny Jannie)
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Stage 2B (iiB) and Optional Chemo - Very interesting.
Hello all, K my Husband Denny was diagnosed with Stage iiB (2B) cancer and he was offered adjacent therapy (Chemo) at that time the Oncologist said that in this stage they cannot tell if Adjacent Therapy give the patient a better chance of survival or not as it is in a grey area and they simply do not know for sure in…
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Annabelle41415
Hey I just read you are having surgery on Monday..What is the surgery?? (If I am not being to nosey) I will keep you in my thoughts and prayers....JULIE
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Idelhunters (Jennie) and Kimby, where are you?
Jennie called and then updated us on Kimby and then SHE disappeared. I'm worried about both of them. Anyone know anything? People are asking about Kimby on all the boards she frequents. Diane
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"Living Well With Cancer" Spiritual Reflections
I have posted to a thread on the Prayer, Meditation and Spiritualty board with a link to my cancer journal and spiritual reflections on "Living Well With Cancer". Any who are interested can follow up there. The themes are... 1. Commit to Your Highest Possibility 2. Awaken Attentiveness and Appreciation 3. Cultivate a…
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Chemo round #2
Well yesterday was the scheduled start of round #2. But after seeing my labs, the oncologist said my blood work was not good. My hemoglobin dropped to 11, borderline. My WBC dropped to 3, borderline. My platelets are at 200 (ok for chemo). But my neutrophils were at 1 (too low for chemo, they don't like you to be under…
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Friday Riddle Answer
This week's winnder is PGLGreg. CONGRATS !!!!!!!!!!!! RIDDLE: COUNTING TO 50 Henry and Gretchen are going to play a game. Henry explains, "You and I will take turns saying numbers. The first person will say a number between 1 and 10. Then the other person will say a number that is at least 1 higher than that number, and at…
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Hate is not a strong enough word
to describe how I feel about chemo. Nor is abhor, detest, despise, loathe, fear, dread....But I feel even more animosity agsainst this cancer so to fight it to win I guess I have to put up with it again and hope no more chemo after this. Four months to go as of this Wed. Wishing all going thru this nightmare successful…
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stupid question probably but where does all the mucus come from
Last surgery for my husband was in April to reverse bag but he discharges lots of mucus-is this normal. Doctor does not seem concerned. Where does it come from???
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ellagic acid
I met a lady today that claimed to be a stage 4 ovarian cancer patient. She had some excellent scars so I'm gonna take her at her word. She claimed to have had mets to stomach, kidney, abdominal cavity. She says she has turned down all forms of chemo and radiation, she's had surgery only to primary site and stomach. She…
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Day Dreamer
Happy Birthday tomorrow!!!!!!!!!!!!
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dorookie
Dear Beth, I went to google and typed in chemo-induced peripheral neuropathy..Then looked through most of them..It is very interesting I mean I knew about the tingeling,the effects of the cold but I didn't know it could be this painful..I am in pain all the time.I also didn't realize that the neuropathy can effect my…
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surgery recovery
I have been recovering from surgery for the past month - had a tumor removed and 8" of my colon - which was resected. Also during this same surgery, I had my ovaries and fallopian tubes removed (had hysterectomy years ago). I am frutrated that my incisions are still soar and I cannot seem to do much before having to rest.…