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Reversal on Monday
Well the day is finally approaching and I am going to have my ileostomy reversal on Monday. Doctor said I should be there about 4 days. I am nervous and yet excited. Really who wants to go through another surgery. Not me, but this is the end of this part of it. The doctor said everything looked good when he did my scope 2…
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Hair Color Question
Those that dye your hair did you wait 6 months after the chemo to dye it again? I have heard you should wait that long, but I want to dye it sooner. I finished chemo 6/23, do you think it is still too soon? I really did not lose much hair, but I am sick of the gray. LOL thanks in advance for you help.
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BIRTHDAYS / NEDs / DODs
I want to add as many semi-colons to my above spreadsheet, so anyone who hasn't joined, please do so. Looking for: Birthday month, day & year No Evidence of Disease month, day & year Date of DX month, day & year THANKS
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Aloha! Where are you?
This is bad, I must have chemo brain.......
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Craig....you out there?
OK, whats up with Sundance ?
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Mark continues to give....
I received an email from Limey's family that there are 2 boxes of colostomy supplies that Mark left behind. They are looking for a good home. Please PM me if you are interested, and I will give you the contact info....they are in Colorado.... Hugs, Kathi
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November Birthday
HAPPY BIRTHDAY Mom_2_3 - 10 Nov
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Scan Tomorrow - update
My six week scan is tomorrow, if it shows up clear then I don't have to have another for 3 months. Wish me luck, great vibes, prayers......you name it, and I can use it. You all know how much we think and think and think and worry about these scans!! Strange but at home, my husband treats scan days like any other day. He…
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CT Results
I had my CT done on Friday and got the results yesterday. I want to call it good news. No new tumors found (good news), Lymph nodes around my aorta have less cancer, but still some cancer (OK news), liver tumor that was 11cm X 9cm at diagnosis have shrunk to half the size (good news), can't have liver resection due to the…
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Something to Keep the Spirits up again.....
44 things that you should do and think about........ 1. Life isn't fair, but it's still good. 2. When in doubt, just take the next small step. 3. Life is too short to waste time hating anyone. 4. Your job won't take care of you when you are sick. Your friends and parents will. Stay in touch. 5. Pay off your credit cards…
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I am confused
To give a quick history, I am 39 yrs old and dx in July with Stage IV colon cancer. According to my onconlogist, it had spread to my abdomen area, lungs, lymph nodes in my neck and a quarter size spot on my liver. She told me I have too much "disease" to operate on so I started Folfox 6 with Avastin (Avastin started in…
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bunny62
Didn't want to steal the thread, but.... No, you're not the only one. I thought that last year, and until recently I thought I was! I'm not "from" here, but have been here - well, this is my 5th winter, so I'm sort of used to it now - if there is such a thing in this state! I looked up Bowen's disease, since I have never…
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Dr. Cantrell called me yesterday-update at bottom
Hi Everyone, For those of you following my discussion about Dr. Stephen Cantrell and his Neoplas Innovations clinic and treatment, I wanted to let you know that I had emailed him asking if he had any more information to share before I go to my oncologist appt today to discuss all this and me going to Nashville 1st wk of…
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Feeling sad and stressed
It is coming up on the 1 year anniversary of my diagnosis. It is hard to not relive it in my head. Did anyone else experience this? I made my first ever appointment with a therapist. My Onc. had given my her card, I guess she deals with a lot of cancer patients. When I talked to her on the phone she did say that most…
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Got thru tx #8
Got thru treatment #8....so far so good...and will get a 2 month break from chemo - and head to radiation for 25 treatments then will go back to chemo mid January for the last 4.... I really have had very few side effect from the Folifox - hand sensation with cold - does resolve after 7-10 days...fatigue does occur day…
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Mediport 1st treatment timing
I'm having my mediport implanted next Tuesday. Onc says I can start chemo the next day. The sooner the better in my opinion. Does anyone have any experiences to share?
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Senate Health Care Bill Testimony
Stephen Finan, policy expert with the American Cancer Society Cancer Action Network, spoke out against the Senate Health Care Bill's waiting period and it's effect on Cancer Patients. You can write your Senator about your concerns that a Health Care Bill include provisions to insure cancer patients who either have had…
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Life's cruel irony
My former neighbor Viktoria was struck and killed while crossing the street early this morning. She refused a ride home from her intoxicated friend Toli. Toli made it several miles to his home but was stopped and charged with DUI. Viktoria didn't make it to her home, she was run over by a sober driver, no charges are going…
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The BEST halloween 'trick' I have ever had!!!!!
We normally get many people outside of our neighborhood that come to the door on this scary night, so I lay in the 'good stuff' for all (thank 99cent only store...lol!) This year, 2 young ladies appeared at the door, and I gave them their chocolate, and my advice to 'be careful crossing the street, it's busy here'. They…
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Probiotics question.
Hi all. I started taking a probiotic almost 2 weeks ago. So far, I am very pleased with the results. Seems to have firmed things up and the frequency has slowed a bit. Unfortunately, the side effects have been gas and gas pain. Does anyone take anything for these side effects? Or do you even get the gas? Does it get…
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Cold.... So cold answer
I talked to my dr on Monday about getting "so Cold" that I just shake. He thinks it's just my body reacting to the Oxy (Chemo). Wants me to check temp before hot bath then again a 1/2 hour after the hot bath and start a log for him. But he thinks it's my body fighting to get well. Kinda of like when you have the flu. He…
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Neuropathy
I was wondering if anyone that has finished folfox treatment has tried Alpha Lipoic Acid. It is an essential amino acid and an antioxident so those of us who are currently taking chemo might not be able to use it. My brother is a diabetic and has taken this for his neuropathy and it really helped him. The information that…
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Only 2nd day of treatment
Well, it's only the 2nd day of treatment (radiation and oral Xeloda after transanal excision for stage I, T2 rectal cancer) and surprised at how crappy I feel. Nausea, tired. When I had seen the oncologist prior to this, it sounded like this dosage of Xeloda (500 mg, 3 pills, twice daily) was not a big deal. I force myself…
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Scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
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CP7 in Key West CP8 Fort Worth TX
I have to tell you that the trip to Key West for colon cancer survivors was wonderful. I haven't laughed that hard so long. The weather was so beautiful for the entire trip. It was a lovely time to look forward and to remember those dear friends who have passed. There isn't a group who really knows like this one does, the…
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Diet pre and post liver surgery?
hey i was just wondering does anyone have any tips for getting the liver in shape pre surgery and helping it heal afterwards--- thanks lisa
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KRAS mutanted Help
I have read what hasn't worked for kras mutated gene, and I know what didn't work for me. Can anyone tell me of a FDA approved treatment that they have had that is or has worked for them ???? I'm sure this list is short if it exist at all. Please let me know. Thank You Semi colons! Cyndi2323
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JONinAPPLEVALLEY
JONinAPPLEVALLEY, Have been hoping you would post as I was thinking you just had surgery recently. Please update us when you can. Thanks! Amy
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Pray for good results for luv3jay's PET scan
Just read where luv3jay will be getting the results of her PET scan today at 4pm. I’ll be sending a prayer your way for GOOD NEWS!! I'll be thinking of you today Sheri. Keep us posted. Life is funny sometimes Brooks
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PET scan results
Well, my husband was able to get the PET scan after radioactive shot number 2. I would love some help interpreting the results: A photopenic defect is identified in the right hepatic lob with a rim of hypermetabolism corresponding to a hypodense mass on the low-dose CT scan measuring 5 x 6.6 cm in size. Intensity of…