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Recommend Reading
Did any of you have any books that seemed to really help you while going through your cancer journey? I read Crazy Sexy Cancer Tips while in the infusion chair. I found it to really help to read of others struggles with cancer. I also really like watching the Crazy Sexy Cancer dvd, even though her kind of cancer was not…
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has anyone gone back on folfiri after a year off?
HI, I was on folfiri with Avastin for 12 cycles in 2008. Went off for about a year and now showing signs of more growth. so onc wanted me to go into a clinical trial only insurance has denied it. It's in appeal now. If I can't go into the trial I'm thinking of asking to go back on folfiri with Avastin. Has anyone gone back…
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Hoping someone out there can answer questions
When I received my written PET and CT results there are a couple of things the doctor didn't mention, but are troubling me. This is the PET report that I have a question about: I have a subcutaneous collection right paramidline location at the level of the pelvis with a measurement of 4.3 x 1.8 cm up from 3.0 x 1.2 cm in…
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CryoStim Cancer Treatment/Vaccine
I happened on this article and had not heard anything about it. It sounds very promising and was wondering if anybody had heard anything about this. I had a liver resection last year and just found out I have had a recurrence in the liver. So back on treatment I go to prepare for another liver resection in January…
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Suggestions for doctors or treatment centers in the Chapel Hill\Raleigh, NC area
I am currently going to the Cancer Centers of NC in Raleigh but I feel like I need a second opinion. Does anyone have any experience with a good doctor or center near or around the Chapel Hill\Raleigh\Durham NC area? I have thought about the new cancer center at UNC. I have visited their website and read through it but I…
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Shayenne
Donna, Went to the neuropathy web site you metioned..I have 5 out of the 12 symptons. I will call oncologist to get in sooner than my appointment in Dec..Thanks alot for the help..It didn't dawn on me that all of it was related to the neuropathy..I new the tingeling and coldness but not the sever pain and balance loss and…
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Surgery on Monday
Hi All, Please keep my husband in your prayers. He is going into surgery at 7:30am EST on Monday for a right hemi-colectomy. He feels good and has a great attitude - ready to get the surgery over with and move onto whatever treatment will happen next. I want to thank all of you for welcoming me to this board several weeks…
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donna????
where are you darlin????????????
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Just want to say thanks
Hi everyone, It is just over a year now that my husband was DX stage4 crc. It has been so full of ups and downs. He just finished his first cycle of Xeloda and is off for a week and will have the avastin next Friday. He has a CT on Tuesday. I am always scared! He is doing pretty good on the treatment. I hope it is…
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Anyone have elevated CA 125
Hi-Wondering if anyone on here also has their CA 125 checked? My sister dx 03/09 mets to liver, ovaries and peritoneum. Ovaries removed and colon resection during emergency surgery. Was on Erbitux and 5FU now on Avastin and 5FU. Numbers went up but the CEA really sky rocketed. One specialist thought to have the tissue…
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Here I am again...
Sorry I've been off the board, but I have been traveling for two weeks, and for two weeks prior to that I had the H1N1 virus. Man, that sucked! I've now met with all 3 doctors (oncology, gastro and surgeon) and they are all in agreement that the radiation damage to my colon is too severe to correct. it just won't heal. 9…
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liver resection
My mom just had liver resection yesterday.she is in ICU,till now no complication.65%of the liver has been removed! any recommndation for her after surgery?
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17 months
NED!! My CEA this week was 2.3 Next up? Colonoscopy and blood tests in Feb 2010 Until then? Surgery on 11-24 on ulna nerve entrapment at my elbow and on arthritis in my thumb joint!
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COMPLIMENTARY AND ALTERNATIVE MEDICINE (CAM)
First of all, I want to thank this network and all of you for sharing all your stories. This is exactly what I've been looking for. I just joined today and already I'm learning about a lot of things. Here is my cancer story. My dad was diagnosed almost two years ago with Stage IV Colon Cancer at age 76. We were all shocked…
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Sincere thanks and some of what I did
I actually started this last weekend just as that BUTTHEAD spammer was trying to take over our board and got irritated and stopped it. I will try again. First I would like to thank you all for the wonderful and kind words you gave me to help celebrate the 5 year NEDness/cancerfree/cured mark in my journey. This board was…
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MRI Results - Met in L1 vertebrae
Hi everyone, I got my MRI results of my spine yesterday and the results were not what I was hoping for. It confirmed a met in my L1 vertebrae that had lit up on my PET scan. Has anyone else had mets to the spine? My oncologist is recommending radiation. I don't have an appointment yet with a radiation oncologist to discuss…
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operation
I am 3 weeks away from an operation to take a tumor out of my colon. I have had 6 weeks of chemo and radiation. Is there someone out there that has had a similar operation. I am interested in how much pain there is after operation, how long in the hospital etc. I am having Laprascopic (spelling????) so I am assuming it…
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Found a lump
I found a lump in my lower abdomen area, left side about 2 inches from my navel. Noticed it while in the shower. I am stage III, had resection in Aug 07, six month chemo (Folfox). Had a CT scan in September and all was clear. I called in to my oncologist at MD Anderson and waiting for the nurse to call me back. The surgeon…
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Friday Riddle
NO GOOGLING OR SEARCHING THE INTERNET ALLOWED :) RIDDLE: COUNTING TO 50 Henry and Gretchen are going to play a game. Henry explains, "You and I will take turns saying numbers. The first person will say a number between 1 and 10. Then the other person will say a number that is at least 1 higher than that number, and at most…
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Its that time of the month again anxiety taking over need wise words of wisdom.
my semi colon family sorry for posting my anxieties again where do l start have two more chemo sessions left one being on monday the last one on the 30th as with all sessions of chemo my anxiety goes into over drive a week before hand and l get the what ifs for chemo ie what if bloods are bad etc. then l have my ct scan on…
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Scan
Well after 12 treatments of 5FU and others, I am going in for a MRI scan tomorrow morning. I am hoping for good news. Wish me luck. Mike
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FYI:Colonoscopy
A study recently published suggests doing colonoscopy early in the morning as it appears thats when more polyps are uncovered, WebMD, 11/6/09.....Steve
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Reversal on Monday
Well the day is finally approaching and I am going to have my ileostomy reversal on Monday. Doctor said I should be there about 4 days. I am nervous and yet excited. Really who wants to go through another surgery. Not me, but this is the end of this part of it. The doctor said everything looked good when he did my scope 2…
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Hair Color Question
Those that dye your hair did you wait 6 months after the chemo to dye it again? I have heard you should wait that long, but I want to dye it sooner. I finished chemo 6/23, do you think it is still too soon? I really did not lose much hair, but I am sick of the gray. LOL thanks in advance for you help.
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BIRTHDAYS / NEDs / DODs
I want to add as many semi-colons to my above spreadsheet, so anyone who hasn't joined, please do so. Looking for: Birthday month, day & year No Evidence of Disease month, day & year Date of DX month, day & year THANKS
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Aloha! Where are you?
This is bad, I must have chemo brain.......
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Craig....you out there?
OK, whats up with Sundance ?
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Mark continues to give....
I received an email from Limey's family that there are 2 boxes of colostomy supplies that Mark left behind. They are looking for a good home. Please PM me if you are interested, and I will give you the contact info....they are in Colorado.... Hugs, Kathi
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November Birthday
HAPPY BIRTHDAY Mom_2_3 - 10 Nov
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Scan Tomorrow - update
My six week scan is tomorrow, if it shows up clear then I don't have to have another for 3 months. Wish me luck, great vibes, prayers......you name it, and I can use it. You all know how much we think and think and think and worry about these scans!! Strange but at home, my husband treats scan days like any other day. He…