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1st Oxyplatin Treatment & started Zeloda - anyboday take L-Acetyl Carnitine
Had my first Oxplatin treatment and started Zeloda pills. I have neuropathy and wondered if anyone takes L-Acetyl Carnitine? If so - where to get it? Need something for sure. Also have jitters from the steroids I take. So far no nausea - just had my 3rd day of Imend and also take prylosec. Hope it continues to keep it…
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New Diagnosis
Hi-I have been diagnosed with a carcinoid tumor with one lymph node involved, or possibly involved. I had a ct on the 9th, followed by, visits to surgeon, oncologist and GI specialist; then PET scan one day and Endo/colonoscopy the next; waiting today to find out about surgery scheduling. I was kind of worried about the…
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Harp Music
Dear folks, The Sunday after my resection on friday was the worst. My colon started waking up and they took me off the button release pain medication. I had horrible cramps and things were going badly for me. I couldn't think of anything to take my mind off of it and the painrelievers they gave me orally weren't working as…
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cea test
Hi folks, I am new in this journey call colorectal cancer!!!! What is a cea test?? I have surgery a week from today. I have stage 3 and am starting to realize that this is more serious than I thought!!!! Just read about the lymph nodes and how the cancer spreads. So far I have had 6 weeks of chemo and radiation. After…
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confusion now------HELP
I just got a email from the doctor who told me two days ago that I had a new tumor in liver, that now says that he had a special radiologist look at it and maybe it nis not a tumor and he will let me know later. He says maybe I can have surgery now? What else would light up on a PET if not a tumor?? Any ideas would be…
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I'm wired for sound!!!
As I write, I have been hooked up to my holter monitor...and, for the next 24 hours, my cardiologist will know all of my activities...lol...he always teases Hans and I about "You know, a minimum of once a week means good heart health!!!" Hummmmmm, how would THAT entry look in my little 'diary'???? Do you think he would…
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CEA Numbers
Hi! Last tx I was told my Cancer numbers dropped from 27 to 5 and again this tx from 5 to 2.2 with a white blood count of 6.8. I have no idea what this all means does it mean that if my count stays below 5 I will be considered in remission. I still have 6 more tx to go so things could change along the course but for now it…
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Treatment decisions & PET scan
Hi All, I read & research on this site but don't often post. This time, I thought I would post to see if you've experienced this..... Thoughts??? Blake had an appt with the Palliative doc yesterday. He broke down & told her he was DONE. He does not want any more chemo. He's sick & tired of being SICK & TIRED! This doc is…
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Friday Riddle
I hope no one gets offended by this week's riddle No googling or searching the internet for the answer. RIDDLE: What do you do with 365 used condoms?
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prolonged chemo
Hi my name is Deb and I am wondering if there is anyone out there receiving chemo for 26 cycles like I am
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Anyone on Folriri with Avastin?
Hi, I don't know if you remember me or not.. but I had colon cancer 6 yrs ago, Stage IV.. you can read my story under Everyday is a Gift. I wrote about my hubby who now has colon cancer .. he was dx last July he took Folfox for 6 mo.. had a PET/CT it showed small spot on liver. He had his liver rescetion in April of 09.…
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New Oldie
I am not sure if I'm doing this right. Hope so, would like some support. I am new to this, at least in my body. I had surgery last Tuesday / 10th to remove cancer from my colon. I came home Saturday. I'm doing well but starting to feel like a brat because I have never had surgery and I thought when I came home, well it…
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Juicing Question
Hi Juicers! Happily my mom's husband just gave us her juicer (a Juiceman) and we're getting ready to start juicing in addition to whatever treatment we decide to go with after meeting with the oncologists in the coming weeks. My husband just had a right hemi-colectomy on Nov. 9th. He's doing great so far! Has been walking…
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Shayenne
Shayenne, I sent you a PM. This is the first time I have done this, so please let me know if it didn't work.
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Scan Resuls
Today we had a visit with the oncologist to get the results of the first scan after completing the 12 rounds of Folfox, Avastin, etc. The news, at this point, ,could not be better, onc's words. The lung mets - some have disappeared and the rest have shrunk down considerably. Doc said this was really good news. The liver…
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ARE CHEMO PILLS EFFECTIVE?
Hi Everyone, I finally went to see my onc today and I need some advice from this experienced board. He said I had a 30% chance of recurrence if I didn't have any treatment, 18% with pills and 12% with chemo drip. With only a 6% difference between the pills and drip, do you think it's worth it to do the drip? I'm not sure…
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Update and Good News
I wanted to give you all an update and add another story of hope and inspiration to everyone battling this disease. As some may know, my sister was dx in 03/09 at 39 years with Stage IV cc mets to liver, ovaries and peritoneum. She had NO symptoms, was a marathon runner and is a mother of three small children. Severe…
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Tubular Anatomy
They wasted no time in checking me out. At exactly 9:30 a.m. I was rectally invaded by a probe looking for foreign particles. It found nothing. I`m sure the probe was very disappointed but I wasn`t. Eric
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Talked to Dr. about elevated CEA
I got to talk with the Onc. today he wants me to go on Monday to repeat the lab, he thinks it may be lab error.... Please pray for this to be the case, I thank you all for making me feel better.Hopefully it is what he is thinking. If it's still high he will order a pet scan. God Bless, Patti
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Eric - I am alive and well. Better than before my diagnosis.
Thank you for all the support and concern. The last few chemo treatments were kicking my butt but I am back and better than before. I just finished my last full round of chemo and am awaiting the scan results. I find out later today what the results are and then the doc and I are going to have "THE BIG TALK" about what…
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PORT IS OUT
I didn't feel a thing, nor remmember a thing....but it feels great to have it out, I feel free! Thank you, thank you........ PS this is my better half, Steve.
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Sundance - You're Back :-))))))
Hi Craig, I checked in tonight to see how everyone was and noticed your replies to a couple of posts. So nice to see you back on the board. I hope you are feeling better and better with each passing day. You have been in my thoughts and prayers every step of the way Craig, since your first kind response to me when I first…
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My Scan Results
So I saw the doctor today before getting my chemo, and went further in discussing how bad my liver is, and what she said was I have multiple mets, which looks like shards of glass all over the liver, near arteries and vessels, and that's why I'm inoperable, it would be a very high risk surgery, but to not ever lose hope…
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A MIXED BAG OF NEWS FOR ME
It`s not great news but it`s not completely bad either. All the areas that I had before are clear but 2 new areas have popped up. At my last scan I still had some activity in the abdomen. The original activity was on the right and it is gone but there is new activity on the left but the doc said they didn`t know if it was…
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melissaincali
am hoping you pop in and see this message and know we are thinking about you. I hope the last week was a good one and pray they are able to find out more info on your husbands cancer so he can get going with getting better!
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Worse foot and leg pain
I have posted several times before about the pain in my feet going into my legs.I still have neuropathy and went to oncologist..He said chemo induced neuropathy.(No sh**) So he gave me vit.B and Gabapentin 300. Which is a seizure med..It has only been a week but nothing seems to help..The pain is worse it is shooting into…
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Waiting Game
My husband appears to have cleared all the hurdles for his Monday surgery. Blood tests are in. EKG is in. His cardiologist is signing a clearance. (I was a little surprised by the requirement that my husband have a note from his cardiologist to permit his surgery. I don't remember this happening in prior surgeries. On the…
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Recommendation from my Cancer Team In - Next Steps In Treatment- Theraspheres
The Loyola Cancer Team went over my case yesterday and recommend the following: No more chemo- it has gone as far as it can go at this point - will gain no more from it TheraSpheres- injection directly to the liver tumors to help further shrink tumors Surgery - Not an option at this point until more tumors are…
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Stoma Talk
Does anyone have any helpful tips on the keeping the noise down with a stoma. I have a dental appointment next month and I feel helpless because I will be in the chair and no place to go if it feels like talking(noise). I can deal with this at home, My little son just laughs when it happens but at the dentist I dread the…
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Current news item of interest
1010WINS.com just posted an item stating:"Poor women seeking free cancer screenings are being turned away in some parts of New York state because this year"s budget crunch has forced a $3.5 million cut to a program providing them"......What is the cost going to be to treat these woman when/if they come down with cancer,…