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My brother finally had a colonoscopy this week
I was dx'd 20 months ago with stage 3B colon cancer. 2 days after I was dx'd my identical twin sister had a colonoscopy- it was totally clean. I have 3 other siblings who for some reason would not. Truly, I think it is denial to the core. Like they would look at me and not hear a fricken word I was saying- wish I had a…
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Friday Riddle
Remember NO Googling or searching the Internet allowed, and good luck ! RIDDLE: What starts at red and stops at green?
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JohnSFO and round 3 of chemo (it went well)
Just thought I'd post an update that wasn't all bad news - John started his third round of chemo yesterday (Irinotecan and 5FU) and it went really well. He had done Irinotecan back in the fall and it was awful - the first dose laid him out for 10 days in addition to making him vomit copiously. This time they administered a…
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Liver Surgery On
Hi All, I do not post much, I try to respond to those that I can and offer words of encouragement. Every time I read the posts here, my heart breaks! My sister was given the green light to have liver surgery! She will have it next week. This is a BIG step, as despite chemo since April of last year, her numbers have not…
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what to eat ?
It seems to be the same old problem, what foods to eat. Since my surgery in May 2007 I've have had diarreah, (you know the runs) more times after surgery then I had before the surgery. I'm getting pretty damn frustrated with it. It makes me not want to eat anything I like. I'm getting sick of yogurt and applesauce. Maybe I…
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New TX plan/Onc thoughts...
I have a new treatment plan that includes stereotactic radiation to my 2 lung mets followed by 3 months of 5 fu. My oncologist sited a study with 2 groups of stage IV cc patients that had exhausted all available chemos. One group got 5 fu and the other nothing. The 5fu group lived 1 1/2 years longer. I had not heard/read…
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Results
Well i took chris to the ER today after we could not get his colostomy to stop bleeding and we did not get good news:( They did a CT and found several lessions on his liver and a blood clot in the main vein that filters the abs... So I guess being done with chemo in March is a dream in the past.. Thanks all for being here…
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lesions??
So what exactly are lesion? Been looking it up all day and cant get a real clear answer?/ Thanks Mel
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DX UPDATE..... HUMMMM.....
Hey Everybody!! Seen Onc. today. He has changed things up a bit. NO MORE CHEMO!!!!! Well, drip form anyway...and no more wearing that black bag for 46 hours every 2 weeks!!! YEAH!!!!.... No more Nuelasta shots. I will be starting Xeloda on Feb. 8th with Avastin every 3 weeks. Thats it!!! I thought he would want a PET/CT…
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Emmed??
Not sure if I spelled it correctly, but I've had a hell of a time dealing with nausea. I only have 5 more treatments to go, but that's about 15-20 days of feeling like total crap. Since I've gone back to work, I really can't afford those off days. My onc. nurse has made it her personal mission to resolve this. (Gotta love…
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infection
I got a call from radiologist moments ago saying they thought they saw possible infection on ct of liver. Has anyone been told this? What does it mean and how dob they treat?
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Radiation choices
I went to the Radiation Onc today. My "regular onc" sent me because she wanted to make sure we were covering all our bases. The radiation onc said that people that have colon cancer low in the decending side of the colon and if the tumor has left the bowel are often given radiation where the tumor was because of the chance…
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really good burritos
I read an article on Yahoo that rated the quality and taste of grocery store burritos. I love burritos but I haven't eaten many lately. Mostly because the fast food ones aren't very good and the ones at burrito specialty places are $6 and up. I refuse to pay more than $3 for a burrito. My favorite mexican restaurant sells…
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ONC appt tomorrow, them off to CABO SAN LUCAS
Do I ever need a break! Will talk with my ONC tomorrow, that is today about LTD. Life with Stage 4 cancer is too short to debate whether to work or not. I have to find a way to manage, to be able to spend quality time with my family before I meet my maker. And I don't need this stress. Take Care, hugs.....Raquel
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Need Your Advice
Hello Everyone, I am new to the network. Have been following your supportive stories for a while and decided to join. Need your advice. Diagnosed with colon cancer in Feb 09, softball sized tumor and 20 lymph nodes (all removed), discovered small liver mets, did Folfox, liver mets died, discovered small lung mets, did…
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Any idea what to expect....
My husband just had treatment #11. Last treatment #12 will be Feb 9....YEAH! Scheduled to have scan week after last treatment and follow up with onc. He has stage iv rectal cancer (mets to liver) was stable (no shrinkage)at last scan. He is really tired now but after recovering from treatments he does great! He has not had…
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Leukoplasts (?)
Has anyone ever heard/dealt with leukoblasts/leukoplasts (?) on the underside of their tongue? I had one before I was diagnosed - it was a somewhat large, white, "blister" on the underside of my tongue. It didn't really hurt - but wouldn't go away. I thought it was an ulcer - but as I said - it didn't really hurt. My…
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Rescheduled - NOW Conference Call! February 17. 8 PM EST Dr. Axel Grothey-Professor Oncology; Medi
Talk with Dr. Laura about Colorectal Cancer chat has been rescheduled due to a time conflict with Dr. Grothey. The good news is that we have rescheduled and the Mayo Clinic has generously offered to pay for a conference call so we can all call in and hear Dr. Grothey speak! The new information follows: February 17, 2010, 8…
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Friday Thought of the Day
“A real friend is one who walks in when the rest of the world walks out.” Walter Winchell
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Brake Failure
When I was 24 I was driving across San Francisco to meet a friend at the movies. As I crested a particularly steep hill above Chinatown, my brakes suddenly failed with no warning. If you've ever visited here you know how steep the hills are and how crowded Chinatown is. I careened down the hill, gathering both speed and…
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Glad to have your help
Hello Everyone, I have finally been able to log on which took me 3 weeks so I used a different E-Mail acct. First of all I want to say how helpful your posts have been in helping me with preparing me for this journey. I’ll tell you about my medical Hx. I had blood in my stool for approx. 3 months. I finally got a reference…
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Had my check up
I had my surgical check up for my anterior cerival fusions. Doctor says things are looking good. Still won't remove bandages for another week and then I still have to steri strip. My long neck has seemed to stop the healing process abit. I guess they usually hide the incision in a fold or crease in your skin in the neck. I…
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Scope Done Today
I went to the surgeon today to have a flex sig scope done because I was still having bleeding (but getting better). He said that colon looked healthy and j-pouch looked great the only part was right near the anus where the radiation was targeted so extensively and because I'm am going to the bathroom so much. You could see…
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I'll pray for you...
I have initiated a thread over on the "Spirituality, Prayer, and Meditation" board on my experience of prayer and meditation as "relational" phenomena. I want to encourage the use of that board for dialogue on matters of spirituality and prayer and I invite you to join me and others there. The thread is titled "I'll pray…
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Drop in Platlets
Hi! Can someone tell me what Platlets do? Mine keep dropping and I am bottoming out like a huge block of cement. I can't move for 1-2 days in a row. Has anyone had this experience - I am trying to go into my 10th tx but my platlets dropped about 45,000 within 2 weeks so he postponed my tx. Can anyone share their experience…
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sorry its been a while
I haven't posted in a while but I have been trying to keep up with the reading. I too am praying for everyone wilth their battle and their procedures coming! I had the theraspheres a month ago and I go for a PET today and a CT tomorrow. I am praying for good news. I have a appointment with Dr Curley on the 10th for…
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Is this a cause for concern?
Okay - I hope I am just being silly but wondered if anyone knows anything about high neutrophils. I had a CBC done on 1/8 and everything was in normal range except my neutrophils %. Normal range is 40 - 74% and mine was 78.4%. I asked the nurse and she said I may just be fighting an infection. Then I went to my new bone dr…
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I've got my arm back!!!!! Dancing!!!!
The cast came off today, I'm a bit sore, but started exercises to get the arm back...wow! in only a 10-day period, I lost strength!!! But, it's VERY cold here again... -3 celcius (26.6F) was the HIGH today!! There was snow on Saturday night. It sent this southern California gal scrambling for the longjohns!!!! I am also on…
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Good-by 2009: and good riddance!
Hello my fellow semi's! It's been a long time since i've been able to post, but i think i have my time managed now to where i can get more serious on the board again. 2009 was a nightmare for many of us. The last few months of it, for me, were disastrous. My four year relationship suddenly ended out of the blue; i don't…
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Life and Death Here in “Our World”
There have been dark clouds hanging over our community this month. Like a storm that won’t pass, we’ve all been feeling this heaviness in our hearts as we check the Board each day, hoping for news that we don’t want to see, but fearing and knowing that we will. Just like all of you, the grief and sorrow has been almost too…