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A Dream To Come True....
I just wanted to let everyone know my kids will be seeing the beach for their first time this weekend, and I can't wait! My brother has paid for us to go to Myrtle Beach to meet him and his family, so the cousins and all us can be together again. We'll be leaving for my brothers in Virginia on Thursday, and will arrive at…
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total colectomy/j-pouch
Hello Everyone, It's been quite a while since I've posted last, but here is my story in a nut shell. . . June '03 I had surgery for what I thought was just a routine procedure for some female problems.I ended up having a total hysterectomy and a bowel resection. Thank God for a very thorough surgeon. Cancer was found on…
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Off Xeloda for 2 wks..maybe forever - UPDATE
Just an update: I was dx'd in Oct. stage II.Surgery & resection. I have finished 9 tx chemo in all...5 Folfox and 4 Xeloda. I have had just about every side effect from both regimens EXCEPT the common diarrhea & nausea. My eyes are dim, my ears are deaf, I have chemobrain, red *spots* on various areas of my body, peripheal…
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Clinard Bernard (CB) Hinson, Jr
CB passed away on Monday night at 9:28pm. I am now laying in bed with our granddaughter sleeping beside me. I didn't know it would happen tonight, but several friends commented earlier in the day that I sounded good. I advised them that I had shut down emotionally because I knew this day was coming and I couldn't continue…
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Quilt Squares finally going out
I am finally mailing the quilt squares! Yippee. There seems to be some simple things that just take time. Well, I finally have a few minutes to get this done. If you would like to receive a square to decorate (or sign) just let me know. Those who have pm'd me with information will receive their squares this week. I would…
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Folfori with Avastin vs Folfox with Avastin
I know everyone is different but I just wanted to get an idea what to prepare for. I start my round of chemo next Tuesday with Folfori and Avastin. I completed Folfox with Avastin - 8 rounds in September 2009. i did okay but that OXY is the devil's drug. I have read that if I made it through Folfox, Folfori will be a 'walk…
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CA-19-9 level
My father had his follow up with onc dr. As I have said before he has IV colon cancer with mets to liver and lungs, no possibility of resections. The chemo has worked very well with few side effects, his bilirubin has gone from 8.8 to 1.1, his CA 19-9 marker has dropped from 2500 to 800. How bad is this CA-19-9 AT 8OO…
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What does it for you?
I've been thinking about something lately. As a cancer patient, what makes you feel most vulnerable? For me, it's any test where I have to stretch my arms over my head. It makes me feel like I'm giving up control of what's going to happen to me. It's a feeling of submission that makes me feel very small and scared. I'd be…
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New and Scared
I am new to posting, but have been reading the board for several months. My husband was dx 10/09 with Stage IV rectal cancer with mets to the liver. Surgery is not an option as he absolutely refuses to consider a colostomy! I should mention that he has been wheelchair bound for 9 years as the result of a stroke. We did 5…
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new here, colorectal mets to liver
Hello, my name is Debbie. i was diagnosed with renal cell carcinoma 2 years ago and had my right kidney removed, then 6 months later was found to have a second primary cancer of colorectal and had colon resection with permanent colostomy. Had chemo and radiation and have been clear odf cancer for 2 years, then my CEA…
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worried and need to vent
I don't post a lot but do read the discussion boards daily. I'm just really bummed and worried as I sit here alone at my computer. I was dx in August of 09 with stage IV colon cancer with mets to liver. Started on Folfox Sept. 2 2009. After 6 rounds dr stopped oxi because of severe neuropathy and I continued on the rest of…
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life
Some weeks ago I was scared that my cancer had returned due to some higher than normal tests. My CT scan and pet scan came back normal. Yesterday, in the blink of an eye my one year old grand daughter felt down my basement stairs. We don't know how she opened the door and my wife was a half-step behind her when it…
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Reading Room - "Colon 101" - "You have to look before you flush!"
"Colon 101" The colon is one of the most important organs in the human body, but what does it do and why is it so important to make sure it's healthy? Gastroenterologist Dr. Anish Sheth breaks down what you need to know that could save your life. The colon Also known as the large intestine, the colon makes up the last 4 or…
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CPT11
My CEA was up again for the eighth time in a row. It is up to 8.4 now so the onc decided to add CPT 11 to my Avastin, 5FU, and my Flolic Acid. He was telling me to expect early onset diarrhea, but didn't say a thing about nausea. I am so sick again, just like when I was on oxy. I don't want to move, I don't want to eat and…
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Lost my job! Bummer
Lost my job on Monday, so, I have a pet and ct scan scheduled for tomorrow afternoon. All I can say is that my ex major big employer is insane and I am coming after them fully loaded!!!
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Back with a vengeance
Well everyone, I had my 3 month scans over the past 2 weeks (pet/ct). The cancer is back in my liver and lungs. I'm being enrolled in a phase II study. All prayers are welcomed! -Sheri
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update on Louann
well I have my room reserved in Houston and my angel flight will be set next week and started pain patch last week and supposed to get pain block shot Tuesday but patch made b/s go sky high ended up in ER stopped the patch and now I can't get the shot or pump so I will deal with it am excited about going for 2nd opion and…
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normal and have a great weekend.
I went to my GP yesterday and for the first time in 6 years she had done "normal" blood work....you know cholesterol and good and bad cholesterol and blood pressure and stuff...she laughed and said we had been so concentrating on cancer that she didn't want me sick with some other middle-aged disease.....hah...everything…
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Emotional support needed
MY mom Has colon cancer. She's 83 and before this in perfect health. Tied of people saying she's old and lead a good life ever time she was in a critical situation. Unless you've gone through it people can't understand, but I try not to fault them because before this I too said those same words at times. My problem is that…
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****'s home & Anniversary is Friday!
Hi Everyone, Well I picked **** up at the airport this evening and it is so good to have him home. My parents took great care of him in So Cal but it is wonderful having him home. The girls are happy to see their daddy and the dogs are thrilled. :) Tomorrow (Friday, 5/28) we will celebrate our 22nd anniversary. In the…
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Frustrated, sad, worried...you name it
I havent been on here the last few weeks, as mom ended up back in the hospital with her obstruction from her original resection surgery April 14. She had another major surgery Thursday to correct the problem and is now in SICU again. Good news is the dr. fixed the problem and the spots on the liver hadnt changed since the…
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Reading Room: The Role of Probiotic Cultures in the Prevention of Colon Cancer
For those interested. http://csn.cancer.org/node/add/forum/128 Although research exists that links the consumption of probiotics and prebiotics with decreased risk of colon cancer, the studies can be sorted into those that most directly link consumption inversely with aberrant crypts or tumor development (animal studies)…
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Kathryn in Mn
Hey, I don't want to spook you, but I was curious if you've had any run ins with ticks lately. The symptoms you described and their durations sound eerily close to Lyme Disease. I have some experience with it and it is easily treated with antibiotics if you begin treatment during or immediately after phase 1 of it's…
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can being in sun a lot make CEA spike up a lot
Just a quick question my CEA went up from 25 to 179 in 3 weeks could being in the sun a lot make it spike like that Sheri22
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Friday Riddle
Remember NO gooolging or SEARCHING the Internet allowed and good luck !! RIDDLE: My age is half of a perfect square. My age is 2 times a perfect square. My age is one-eighth of a perfect square. Reverse the digits of my age to get a perfect square.
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Trials
Yeah! I finally got a call from UCSF and the insurance co. approved the clinical trials! I was really starting to get whinney, but feel better already! I heard from the nurse that I should be there Wed. to begin! Then I got a call from the clinical research coordinator (who is on vacation out of state) to confirm the…
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Okay - I have a plan...anyone have experience with Folfori??
First of all, thank you all so much for your kind responses. We have been in the car for 10 hours now, and that is a lot of time to cry, get mad, feel hopeless, then get it together and make a plan to kick this again!! My DR in Houston caled my ONC's office in Kansas City and suggested Folfori for 3 months. Does anyone…
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Thought of the Day
“Outside show is a poor substitute for inner worth.” ~ Aesop
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Calling all Memorial Sloan Kettering (MSK) patients
I will soon become a regular visitor to NYC and the MSK facility. I hope to have liver resection surgery and a HAI pump installed. This will require a 5-7 day hospital stay and visiting every 2 weeks for pump maintenance. I live in northern Connecticut. (3hrs drive) I would love to hear any comments and advice about the…
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parenting with cancer
Something I am having a real hard time with that I would ask the board to offer thier perspective. I have a 3 1/2 year old daughter. I wont go into how much I love her and how she has changed my life and how she keeps me alive and all that. The thing that I am having a real hard time with is my energy level. I work full…