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New and Scared
I am new to posting, but have been reading the board for several months. My husband was dx 10/09 with Stage IV rectal cancer with mets to the liver. Surgery is not an option as he absolutely refuses to consider a colostomy! I should mention that he has been wheelchair bound for 9 years as the result of a stroke. We did 5…
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new here, colorectal mets to liver
Hello, my name is Debbie. i was diagnosed with renal cell carcinoma 2 years ago and had my right kidney removed, then 6 months later was found to have a second primary cancer of colorectal and had colon resection with permanent colostomy. Had chemo and radiation and have been clear odf cancer for 2 years, then my CEA…
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worried and need to vent
I don't post a lot but do read the discussion boards daily. I'm just really bummed and worried as I sit here alone at my computer. I was dx in August of 09 with stage IV colon cancer with mets to liver. Started on Folfox Sept. 2 2009. After 6 rounds dr stopped oxi because of severe neuropathy and I continued on the rest of…
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life
Some weeks ago I was scared that my cancer had returned due to some higher than normal tests. My CT scan and pet scan came back normal. Yesterday, in the blink of an eye my one year old grand daughter felt down my basement stairs. We don't know how she opened the door and my wife was a half-step behind her when it…
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Reading Room - "Colon 101" - "You have to look before you flush!"
"Colon 101" The colon is one of the most important organs in the human body, but what does it do and why is it so important to make sure it's healthy? Gastroenterologist Dr. Anish Sheth breaks down what you need to know that could save your life. The colon Also known as the large intestine, the colon makes up the last 4 or…
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CPT11
My CEA was up again for the eighth time in a row. It is up to 8.4 now so the onc decided to add CPT 11 to my Avastin, 5FU, and my Flolic Acid. He was telling me to expect early onset diarrhea, but didn't say a thing about nausea. I am so sick again, just like when I was on oxy. I don't want to move, I don't want to eat and…
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Lost my job! Bummer
Lost my job on Monday, so, I have a pet and ct scan scheduled for tomorrow afternoon. All I can say is that my ex major big employer is insane and I am coming after them fully loaded!!!
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Back with a vengeance
Well everyone, I had my 3 month scans over the past 2 weeks (pet/ct). The cancer is back in my liver and lungs. I'm being enrolled in a phase II study. All prayers are welcomed! -Sheri
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update on Louann
well I have my room reserved in Houston and my angel flight will be set next week and started pain patch last week and supposed to get pain block shot Tuesday but patch made b/s go sky high ended up in ER stopped the patch and now I can't get the shot or pump so I will deal with it am excited about going for 2nd opion and…
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normal and have a great weekend.
I went to my GP yesterday and for the first time in 6 years she had done "normal" blood work....you know cholesterol and good and bad cholesterol and blood pressure and stuff...she laughed and said we had been so concentrating on cancer that she didn't want me sick with some other middle-aged disease.....hah...everything…
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Emotional support needed
MY mom Has colon cancer. She's 83 and before this in perfect health. Tied of people saying she's old and lead a good life ever time she was in a critical situation. Unless you've gone through it people can't understand, but I try not to fault them because before this I too said those same words at times. My problem is that…
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****'s home & Anniversary is Friday!
Hi Everyone, Well I picked **** up at the airport this evening and it is so good to have him home. My parents took great care of him in So Cal but it is wonderful having him home. The girls are happy to see their daddy and the dogs are thrilled. :) Tomorrow (Friday, 5/28) we will celebrate our 22nd anniversary. In the…
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Frustrated, sad, worried...you name it
I havent been on here the last few weeks, as mom ended up back in the hospital with her obstruction from her original resection surgery April 14. She had another major surgery Thursday to correct the problem and is now in SICU again. Good news is the dr. fixed the problem and the spots on the liver hadnt changed since the…
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Reading Room: The Role of Probiotic Cultures in the Prevention of Colon Cancer
For those interested. http://csn.cancer.org/node/add/forum/128 Although research exists that links the consumption of probiotics and prebiotics with decreased risk of colon cancer, the studies can be sorted into those that most directly link consumption inversely with aberrant crypts or tumor development (animal studies)…
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Kathryn in Mn
Hey, I don't want to spook you, but I was curious if you've had any run ins with ticks lately. The symptoms you described and their durations sound eerily close to Lyme Disease. I have some experience with it and it is easily treated with antibiotics if you begin treatment during or immediately after phase 1 of it's…
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can being in sun a lot make CEA spike up a lot
Just a quick question my CEA went up from 25 to 179 in 3 weeks could being in the sun a lot make it spike like that Sheri22
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Friday Riddle
Remember NO gooolging or SEARCHING the Internet allowed and good luck !! RIDDLE: My age is half of a perfect square. My age is 2 times a perfect square. My age is one-eighth of a perfect square. Reverse the digits of my age to get a perfect square.
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Trials
Yeah! I finally got a call from UCSF and the insurance co. approved the clinical trials! I was really starting to get whinney, but feel better already! I heard from the nurse that I should be there Wed. to begin! Then I got a call from the clinical research coordinator (who is on vacation out of state) to confirm the…
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Okay - I have a plan...anyone have experience with Folfori??
First of all, thank you all so much for your kind responses. We have been in the car for 10 hours now, and that is a lot of time to cry, get mad, feel hopeless, then get it together and make a plan to kick this again!! My DR in Houston caled my ONC's office in Kansas City and suggested Folfori for 3 months. Does anyone…
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Thought of the Day
“Outside show is a poor substitute for inner worth.” ~ Aesop
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Calling all Memorial Sloan Kettering (MSK) patients
I will soon become a regular visitor to NYC and the MSK facility. I hope to have liver resection surgery and a HAI pump installed. This will require a 5-7 day hospital stay and visiting every 2 weeks for pump maintenance. I live in northern Connecticut. (3hrs drive) I would love to hear any comments and advice about the…
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parenting with cancer
Something I am having a real hard time with that I would ask the board to offer thier perspective. I have a 3 1/2 year old daughter. I wont go into how much I love her and how she has changed my life and how she keeps me alive and all that. The thing that I am having a real hard time with is my energy level. I work full…
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New Babies
Check out my new babies on my expressions page.
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I CANNOT quit crying, this is stupid, i don't know what to do. I just can't friggin stop!!!! Help m
There is nothing physically wrong with me now. I can even fart with no problems. My back feels fine.... I just cry about everything...and NOTHING. This is the stupidist thing I have ever been thru. My God.... this is so dumb. The onlu time I ain't crying I am either sleeping...which I do a lot...or just stare out the…
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Scan results
Bad but not as bad as I expected. Increased activity in liver mets and new lymph activity in abdomen. The doc is talking about clinical trials but I am going to md Anderson. Time to run with the big dogs now. The positive side is that it has not spread to lungs and there are no new lesions but the ones that are there have…
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I just need to vent
Just got home from chemo an hour ago DRoffice caled said my CEA went from 25 to 179, guess the XLODIA isnt working either he set me up for CTscan tommorrow and I go back to see him Thurs I just seen him today not looking good right now I am really scared now keep me in your prayers I felt fine until now Sheri22
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What the heck does this mean?
I was reading my CT scan and came across this.... "Heart is enlarged and coronary artery calcifications are present". Am I on my way to a heart attack now? No one mentioned this to me so maybe it is no big deal but if any of you have seen this, can you let me know what it means. I emailed my Dr's nurse but I thought I…
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Pancreas?
I have an answer, which is no definitive answer, after my PET on Wednesday. I'm tired of being "unusual." Everything that lit up before on scans is gone. Nothing in the usual suspect places - liver & lungs are clear. But my pancreas lit up. I have a fever and stomach pain, so the hopes are that I have pancreatitis. Odds…
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Nerve damage from Colon resection
I have had a persistent numbness in my right hand and my left thigh and groin since surgery (April 2009). The doctors at first said it was from the placement on the operating table (8hrs long) and may subside. Many months later and I still have the numbness. I think they damaged some nerves during the surgery and cannot…
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Oncologist in the Bay Area?
I have a friend who is currently undergoing Folfiri for Stage IV CC (just like me) and is unhappy with her oncologist. She is new to all this and not a message board type, so I thought I would ask y'all. Is there anyone out there in the Bay Area that has an oncologist they can recommend? Also, what are the major cancer…