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Met with surgeon
Well I met with my thoracic surgeon today and we agreed to schedule the surgery for the lung met the week of August 16th. This means I will be gone that week and hopefully getting home that weekend. After two of these surgeries I know that the next week at home is pretty hard. Unfortunately that is the first week of school…
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dr recommendations at NYC Sloan?
Does anyone have a good doctor at Sloan in NYC?
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Where's my free "Welcome to the club tote bag"?
First timer here. I'm a 41yo divorced mom of 4 crazy kids who was recently dx with stage IV colon cancer. Just started tx, and thought it might be nice to have a little help with all this. Any and all advice, suggestions, or someone to just chat with would be helpful. Thank you very much for reading this, and looking…
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New treatment
I have been feeling pretty lousy with this new treatment and trying to push through. This stuff has been making me into a wreck. Yesterday and today I felt like I had had enough. They checked me and and lab wise everything seemed to be ok except every treatment my ldh gets higher. Ldh is a tissue damage indicator. It's…
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Eyesight and chemo
Anyone had eyesight problems with chemo?
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Finish 12 rounds of chemo and then what?
I am curious what happens after the chemo is done and IF PET comes back NED and no tumors are present. What recommendation have people been given after they are done with chemo and everything looks okay? I have heard of some people continuing a maintenance type drug (avastin) after that. Has anyone done that? Thanks, Sara
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Donna
I was sleeping early this morning and a euphoric feeling came over me. I had a dream that I was with Donna. Since we don't remember most of what we dream, I'm not sure what we were doing until the very end of the dream. At the end we were roller skating. She was dressed in a white shirt with a loosened yellow polka dot…
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bike trip
I thought I might try to add to the good news posts. As some of you know, I am fond of motorcycles, and nothing beats a long trip through this beautiful country of ours. I have not had the ability to take such a trip in quite awhile, but that is no longer the case. A friend of mine recently bought a bike himself. He used…
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Cancer depression
So far this has been the worst part of my cancer journey. All throughout this ordeal I have been able to keep a positive attitude and I've felt very peaceful but this new treatment is putting me in a funk. I' m feeling disconnected and depressed. There are moments when I am able to get past it but overall, I just can' t…
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Tomorrow 8/3- 12:00 pm Pacific time - Good vibes to Donna
I think it would be a good idea if tomorrow at noon, we take time to think of Donna and send good vibes, say a prayer, ask for a miracle.....or what ever you want to do. If we all send our energy to her at once, she may feel it! Join me! 12:00 Pacific time!!
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Post Nasal Drip and Bloody Nose
I have had this dripping nose for a few months now. I have tried everything to stop it. No go. It's really messed up. I can squeeze the upper part of my nose and it feels squishy. I can even hear the squishy. My eyes water, I sneeze and when I go to blow my nose...nothing..BUT,,as soon as I bend over it just drips and…
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What can one say at a time like this?
What can one say to ease the pain everyone is feeling from the recent turn of events on the board? - can only refer to one of my previous posts on 7-28 . Love and blessings! Ketz
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Another surgery tomorrow...
Doing the hysterectomy tomorrow. My GYN said my surgeon is also going to be there to look over the bowel/liver and other "things", again. I really have no idea why, but oh well. Maybe he's just extra thorough. LOL Should be outta there by Thursday at the latest, I'm assuming. I don't anticipate any complications. Neither…
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Nutrition Specialist
Anyone know of a nutrition specialist in southern California that they would recommend. I would like to find someone that is very knowledgable about colon cancer and what diet would be best suited. Thanks, Sara
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mscolon
Mary, I haven't seen a post for you in a little while. How are you?
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What do y'all think?
I secretly checked the results of my last CT (and only the second scan since dx), and read that there was a 3mm (very tiny) spot on my left upper lobe. When the onc. gave me the results over the phone, he didn't mention it. Maybe he thinks the chemo will take care of it (I've only had one tx so far), didn't think it was…
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Am I the Only one who HAS NOT had a colonoscopy?
Just curious, I've yet to have a colonoscopy, and I'm just thinking, if they go ahead and do the surgeries to remove the tumors in my sigmoid, uterus and liver, should I be inquiring if there's some polyps that need to be removed as well?
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online survey with patients who have been formally diagnosed with advanced cancer (Stage 3 or Stage
At some point in the past you used one of the Profiler Treatment Option Tools for Cancer. At the time you registered for this treatment decision tool, you indicated that you would be interested in being contacted by NexCura, which operates the Profiler Tools for cancer, for opportunities to participate in market research.…
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new member
Gosh I don't really know where to start. I just want to say thank you to everyone for the warmth and kindness on your discussion board. I was diagnosed with stage 3a colon cancer in February and have been lurking on the computer reading all your posts for the past 2 weeks. I live in Switzerland, although originally I am…
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Colon Cancer 24yrs old any input shared experience .
hi i found out on the 15th of july i got colon cancer. i am a recovering alcoholic 24yrs old. my sponsor suggested i reach out to some one get some input on people dealing with my problem and survivors and share my experice maybe i have something to offer i dont kno. just going in for surgerie prep 2day cancer has not…
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Cards and letters for Donna
I wanted to put this on it's own post so nobody misses it. If anyone wants to send Donna a card or letter please send to my address (PM me for address) and I’ll forward it to her or if you already have her address just sent it to her directly. I don’t feel comfortable giving anyone's address out. I hope you all understand.…
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Need Your Opinions on What to do ***UPDATE*** Decision Made!!
Hey All.... Kinda in a dilemma and could use your input. Quick update: Was in remission for 7 months. Got scan early July and showed 5 nodules in lungs with just 2 lighting up on PET/CT. Started back on Folfiri with Avastin July 12th and every two weeks until remission is again achieved. The largest one of approx. 2.5cm…
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ColonPalooza 8
Fort Worth, TX If you haven't made your reservation yet and want to come, be sure to let the hotel know soon. The hotel sent me a reminder that the cutoff date for reservations is 9/13/2010. After this date, any unused portion of the group room block will be released for general sale and room reservations will be accepted…
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question stage IV
Dad was dx with stage IV colon cancer...(went to liver).... he had surgery and 6 chemo treatments, A recent pet scan shows no more liver lesions. He wants to stop chemo, doc wants him to continue. Dad is 79 and is not sure he wants o spend wht time is left sick from chemo. Any thoughts? i don't know what to tell dad.
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Scan results part 2- with whats been happening on the board recently I'm really worried
Hello my online family, You all know I was told early part of July that I had a clear scan, then on the follow up appointment was told It was clear but I had fatty lumps on liver, that they were not worried about. Now today got a call from someone asking for someone called Jackie, I said it was the wrong number but his…
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TUTORIAL: How to email a fellow member (or PM - Private Message)
Here is a link to a little video on how to send a private email (PM) to someone. Hope it helps. -phil http://screencast.com/t/2Ek7Gg0RPIg
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buzzy where are you
what's going on with the PET that was done on Wednesday?
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Sundance Update - Still in Hospital
Hi Everyone! I'm still in the hospital - the plans changed completely. DaVinci was cancelled and we ended up doing full blown thoracotomy due to the severity of the tumor. Pain I was having was real - tumor was 6cm (tangerine) and had grown into ribs and chest cavity. Much has happened - I've had a couple of ribs removed…
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for everyone on the board-pls read
Do not let the recent events on the board diminish your spirit! Love and blessings! Ketz
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First CT Scan since being told I was NED in April
I had my first CT scan and follow up exam since my doctor told me I was NED on April 6th of this year. My doctor called today and the news wasn't what I expected but I am not sure it is all that bad. Here is what he told me: 1. The CT scan showed some fluid around my heart. He is going to schedule an electrocardio gram to…