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i have got shrinkage
well i went for my first onc appt after having my ct scan last thursday.all tumors(3 on liver and 2 on lung)are actually getting smaller.so i am going to stay on iritatican+avastin for 2 more months and have another scan.thanks everyone for your support and prayers.love you all.you are the peeps that keep me going and my…
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Vectibix
Good evening, My husband has been on Erbitux since last July. At one point, his CEA was a 5. It did not last long. It quickly rise and now is at 216. The onc is switching him to Vectibix next week. Can anyone please share their experiences with this drug for us? There is alot of talk on Erbitux but not so much on Vectibix.…
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24 hours results, I can type without lead fingers, neuropathy alot better
My neuropathy is alot better after 30 hours of heavy dose l-glutamine. Some feeling in my feet now, none before. My fingers feel alot better. I am feeling alot better, not sure why but glad to have some relief. the way my neuropathy was getting worse really worried me. so just recapping, about 30 hours ago, while soaking…
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A few questions about chemo options, IORT and HIPEC
Hi, I have a few questions to ask on behalf of my friend who has a large tumor pressing on his intestines and embedded in his abdominal tissue as well as some cancer in his peritoneal lining. He is being treated in Boston and had surgery back in Dec, but they were unable to remove the tumor. He has been on a combo of…
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GOLFIG, new tx cocktail
I came across this cocktail treatment that systematically adds gemcitabine, granulocyte macrophage colony stimulating factor, and low-dose aldesleukine (interleukin-2). It's supposed to be much better than FOLFOX on progression free survival, the drugs are already generally available: GOLFIG Apparently this treatment…
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Does anybody knows their SUV levels? ( PET levels)
Thanks!
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New to site- SIRT, chemo and cirrhosis
I'm new to the site. My Dad who is 77 had colon C surgery in 2009 with 2 mets to the liver. He did chemo and 2 treatments of SIRT which killed the tumors. We later found he could have had resection but was mis advised. He developed ascites within the last 6 months and now has two new tumors. We are looking for options now.…
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Just to forget C.
If you want a big fun take a look on tweeter to: "Queen_UK". then press any tweet to follow the whole thread since months ago, priceless , uproarious! just in case you need some fun !
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Im going to fire my ONC!!!
I just cant believe this doctor. I had my scans on Monday, actually saw him on Monday too. I asked him why he wouldnt write the letter in support of my compassionate transfer. He looked me in the eyes and said he had been asked to do that before but has always said no because there is no proof that stress has anything to…
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It seems my previous question was difficult to understand , here it goes again!.
What I mean is, if you got some minor Mets ,primary already sorted out and operated successfully ,We know that is very possible to make them despair just with chemo,So no tumor evidence so technically NED, not Cured,I know!.Ok if not tumor evidence ,nothing to operate!( it happened once to me).Question :Any body in this…
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Body odor?
Has anyone ever experienced body odor while on chemo and did anything help? My mom is 7 treatments in for her recurrance and is noticing an ordor (she describes it as being able to smell the chemo drugs) that did not occur the first time she was in chemo over a year ago.
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MY time to vent!!!!
Okay.....so, we have a bunch of friends up at the lake.....14 people....I went and did the shopping for the food, prepared everything.....my son did the actual b.b.q. of the meat on the grill, I did all the veggies, salads etc. Hubby sat in a lawn chair with a dumb grin on his face!!!! Like he would always do in the past,…
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my heart aches for Brenda
My daughter's best friend's mother passed away yesterday. She had been diagnosed less that 2 months ago with multiple myleoma that attacked her spinal cord and had moved into her brain. She had just started on chemo which made her so sick they took her off after the second treatment because her kidneys were in failure and…
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Avastin
I ache, I ache, I ache, my shoulders seem like the weight of the world is upon them, every movement hurts. This goes on for a couple of weeks at a time. Does anyone else have this? Winter Marie
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DOCUMENTARY TONIGHT 8pm on HBO, WHAT U NEED TO KNOW ABOUT MAKING END OF LIFE DESCITIONS&YOUR RIGHTS!
"How to die in oregon" is a documentary that will be airing tonight on hbo at 8 pm. It follows the lives and the struggles of quality of life over quantity of life. It is definitely something to see. Best documentary at Sundance Film Festival. Tell your friends and families unfortunately this is something we will all face.…
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Asking 4 Prayers - PET Scan Tomorrow
Just asking for prayers as my Mom has her PET Scan tomorrow. To date, she has finished 8 chemo treatments. Praying for good results tomorrow. All the best - Liz
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Water retention...what do you do?
I'm having a lot of trouble with water retention after chemo treatment...so much so that I am getting stretch marks! Does anyone else have this trouble? Would you take diuretics for it?
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Port
I will get my port removed Wednesday Afternoon! Wooo Hoooo! I can not wait to have a foreign object removed. I liked the ease of use of the port and less risk of infection. I hated shaving my chest, lol, worse was forgetting to shave my chest, ouch. When I lost weight the port started to get irritated by to much body…
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Folfox X 2
I am wondering if anyone out there has done Folfox multiple times? When first dx'd I did folfox and avastin. I made it only six rounds when the neuropathy and fatique got so bad that onc dropped the oxi(it was reduced on round 4 but the neuropathy didn't improve.) I stayed on the rest of the folfox combo for 7 more rounds.…
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what a week it has been
My aunt has stage 4 colon cancer, her son has stage 3 esophageal cancer, her husband had beginning alzheimers and used a walker, his life consisted of going from bed to bathroom to dining room table and back again, he suddenly and unexpectedly passed away on May 17th, burial was Saturday the 21st, today I get a call saying…
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The Journal of Clinical Oncology, put out by the American Society of Clinical Oncology,
if you can somehow get thru the heavy science and if you have such an interest,is quite informative.... and tho it takes time to slog thru the articles (esp if, like me, you have no background in science), it might prove worth it. On their home page, look on the left and click "Top 50 Viewed Articles", where, as of today,…
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Severe Tornados - friends in affected areas please check in
Praying for all our friends who may be in the path of these terrible tornados which are or have been hitting. Have been hitting in Oklahoma, Missouri and Texas. Sounds like our Sundanceh might be right in the area of one. Please keep our friends safe.
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anyone on COBRA?
I went to social security office today to find out about options for SSDI. I told them I am working but I think my emploer is going to lay me off becasue I can't work 40 hrs a week. I am most concerened about health insurance...well he told me COBRA woull cover 18 months but that medicare wouldn't start until I had been…
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Luv3jay
I am thinking of you + wondering how you are doing.
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Meaning of life?
What is the meaning of life...? I just can't seem to find a purpose. Cancer hurt me as a child and is trying to take away everything else as it attacks my child. I feel so helpless.
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checking in !!!!!!
good evening my fellow survivors, it has been a while since i posted but i check in everyday. today my family and i came back from our family cruise to the caribbean. we had a wonderful time and i enjoy the heck out of it because my wife and kids and i are all together. i hope and pray all is well with all of you. i am…
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PX-866 with Cetuximab (Erbitux) going into Phase Two
"PX-866 is a pan inhibitor of the PI-3K/PTEN/AKT pathway, a critical cell signalling that is activated in many types of cancer"-(CRC being one of them) Its made by Oncothyreon Inc and I read about it at prenewswire.com with an upcoming meeting of ASCO expect more in the news as drug manufacturers generally present their…
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Low iron
My last two blood counts has shown my WBC, HGB and HCT lower than the normal levels. My doctor is only talking about my HGB, though. He said if it was this low or lower next times, he would hang a bag of iron during my chemo. Has anyone had a bag of iron? How is it? Does it make you sick or hurt? My doctor won't answer…
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Email from "Scary Old Woman" Kerry's Wife
Hey All, I have copied a recent email I got from Kerry's wife Susie. I will copy and paste your posts to my next email to her so if you have a message please know I will get it to her. She does not get on the boards so this way she will get your comments. Take care! Jennie Hi Jennie. I just thought I’d let you know that…
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"Most Authoritative Report on Colorectal Cancer and Diet Ever Conducted: Links With Meat,Fiber Confi
at medicalnewstoday.com/releases/226137.php Also, just came across this site:jco.ascopubs.org the Journal of Clinical Oncology of ASCO, the current (5/20) issue of which has two items on oxi plus787/ZK222584 (Vatalanib), an experimental drug that didn't seem too promising,,,,Writing is scientific but you can get the gist…