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35 months... Update added
Husband had his CT 35 month after Stage 4 Diagnosis (then mets to liver) today... seems to be all clear - detail appointment with onc next monday but for the moment... breaaaaaaaaaaaaaath!!!! Seems still to be NED... UPDATE 20.10.14: Appointment was delayed - finally had our onc-talk today. They found nothing to worry…
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Working out!
I've been doing it to the best of my ability. It feels REALLY good. Just thought I'd share this and encourage anyone who can. I can make it up 5 flights of stairs now although I'm severely winded and then I walk the floors all the way back down (I'm at work, our floors go in a full octagonal "circle" which makes for a…
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Lower stage cancers and less aggressive treatments
It seems to me like I'm seeing a trend on here where people who are initially diagnosed with lower staged cancer, say stage two, are not surviving as long as people with higher stages or are having more severe relapses. Am I correct? This has me wondering if the professionals aren't treating them as aggressively as they…
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Brain met survivors
I woul love to hear stories of survival from brain mets and your duration. Searching for timeline answers and accepting all data....weeks...months,,,,years of survival? Mike
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Irinotecan
My brother has been off chemo for 6 weeks because of a low ejection fraction rate (25%). His cardiologist felt that his body needed a rest. He put him on digoxin to see if it helps to strengthen the heart muscle. Thee will restart chemo in another week. They are going to give him irinotecan. For now, they will start at a…
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Maxicat - you there?
Maxicat, I haven't heard from you in a while? You doing ok? From another stage 3b signet cell......... Anybody hear from her? Thanks
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It is nice to be home again
I have had a difficult month. The side effects of Chemo (Folfiri w/Avastin), nausea, and not being able to consume calories. (I was able to ingest some calories, just not enough to keep me fueled up.) My colon shut down again. That was the third time in a month! I had Laurie drive me to the local Cancer Center, it is a…
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Pro/cons of colostomy bag?
Not new to CSN but joining but the wonderful people on the colonrectal board! History Diagnosed with Endometrial Adenocarcinoma (Uterine Cancer) Stage 3A, Grade-2 December/2009 Hysterectomy,Chemo- Taxol/Caroplatin and 26 treatments of radiation and 2 internal Brachy therapy Started Chemo March/ 2011 & Radiation…
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Not ready for people yet.....but this has potential
www.stockhouse.com/news/newswire/2014/11/12/theralase-v-tlt-further-demonstrates-phenomenal-cancer-immunity-response-testing and then there's this www.news-medical.net/news/20141111/High-absorption-BCM-95-Curcumin-can-reduce-spread-of-cancer-cells.aspx
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Good piece from NYT on restoring appetite during chemo
http://bittman.blogs.nytimes.com/2014/11/12/pickling-and-chemotherapy/ This letter suggests using pickled vegetables and/or vinegar in food can counter loss of appetite resulting from chemotherapy. Does anyone have specific experience who can attest to the effectiveness of the technique (or not?) I'd like to try it for my…
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Any Folks working w/ MD Anderson? Oh and Juicers
Gut tells me I've seen one or more folks here that interacted with MD Anderson as primary or consult. Heading there this weekend for a 5 day oncology work-up. Hoping to get some pointers from anyone with experience. Maybe two years back there was a multiple day/month thread about juicing and juicers.... which one came out…
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9 years and counting
Today officially marks 9 years since I was diagnosed stage IV. I am going to buy a big steak for us to cook on the grill to celebrate making it 9 years but first a long mountain bike ride followed by a long motorcycle ride.
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hoping for advice
Hi All, first timer and not to accomplished on the whole website forums etc. However, found you guys :) We live in Australia. At aged 71 my husband Marto, was found to have a large growth in his lower bowel in September 2012. At that time, it was inoperable. He had an ileosotomy bag He was given treatment of Xeloda (1 day…
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Back to chemo
seen the oncologist today, they found 5 spots on my scans, two in my lungs, one by my liver, one in my abdomen, and one on my thyroid lymph node. Now they are going to figure out what chemo to give me. Not happy at all, not ready to do this again!
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today - 3 years ago...
... Thorsten had his app with the gastro-doc which confirmed he had cancer. So today 3 years ago his,our journey stared. In the following weeks and months he had surgery to remove the tumor and 2 mets on his liver,got an temporary Ileostomy, had 6 months of Oxi and Xeloda and finally got his ileo taken dow. Since then he…
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Update from Laz
Dear Friends, I was away for a couple of weeks looking for work after more than a year of hiatus. I was going to interviews, working interviews like crazy and far away, because there is no dentist jobs where I live. Finally I have work 4 days a week even though it's 1 hour 45 minuts away. I was excited and anxious to start…
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Checking in
Sorry I have not been on lately , I had all summer off of chemo so I was feeling good and was busy with my children, But looks like I I'm back on my cea level keeps riseing and two spots showed up on my last chest ct, Going to see the doc on Monday to find out about the pet scan results. I'm just not ready for more bad…
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Gizzyluv
Kris lost her beloved husband yesterday. I have followed her posts on facebook, Jason fought so hard and suffered so much these past couple of months. Her story has brought tears to my eyes. Sending out Hugs from George & Diane
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Off topic - Pictures from my trip to England (and Wales).
As requested, I will add a few pictures from my trip to England and Wales. Just a few of the highlights. I will post a couple at a time in this thread. First off, a little background. I'm 55 (56 next month), and as a teenager I was 'In Love' with The Osmonds, especially Jay. Fast forward 40 odd years and here I am,…
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Been a while - some positive updates
Hi all... It's been a while since I've posted. I was trying to stay away from the internet for a bit and it's helpful with not freaking myself out. My dad is doing well so far. He had two different types of cancer - rectal and colon, but the rectal disappeared. Yes, they can't find the primary tumor or the mets anymore…
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Warning...negative ranting post
I just hate hate hate cancer and wanted to let out some of the anger. Like many of you, I go through my days with a smile and try to keep life normal and when people say how are things, I say fine. But they aren't fine. My oldest is a senior in hs and while others are choosing colleges she resigned to the fact that she's…
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hipec
i am posting this on behalf of my father who has recently been diagnosed with colorectal cancer he underwent the surgery today in delhi ( India) )( 13-12-2012) ( Right hemocolectomy,removal of mesentry and omentum) the surgeon said that they saw subcentimeter 2 seeds in peritonium also and removed those also along with the…
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Red flush face and chest after chemo
I've been on chemo every other week since March of this year and today (just got my pump off) my wife is concerned about what started as red under my eyes like a sunburn which then moved to my face and chest. I read online that some people have a similar reaction to some chemo drugs or steroids. Anyone experience this?…
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CEA questions
I see my chemo doctor tomorrow morning and I have some questions for her. One is what my CEA level is. I've never been told what it is. And what am I looking for as far as those levels go? What's good and what's bad? Is it possible to have zero? If I have zero is there any point in doing the mop up chemo? I tried looking…
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No chemo due to malnourishment?? ANYONE?
Hi everyone, haven't been on here in quite a while. As a lot of you know, my husband Jason was diagnosed with Stage 4 colon cancer w/ mets to the liver, as well as other abdominal areas on Janurary 29, 2013. Without going into a lot of details, I'll just ask the question I really need answered & not go into all thats gone…
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IL-2 + vitamin A
" a significant improvement, with respect to NCI SEER data (*), could be observed in the 5-year OS rate for the most common treated metastatic cancers: Breast cancer 42.7% vs. 23.3% *, lung cancer 26.4% vs. 3.6% *, colorectal cancer 43.6% vs. 11.7%*, renal cancer 23% vs. 11% *. No WHO grade 3 or 4 toxicity was observed,…
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matestisized colon cancer in perotineal cavity/omentum, etc
hello, seeking help/advice regarding colon cancer spread to omentum and perotineal cavity. my sister had colon cancer-surgery-chemo, 6 months after it showed in uterus, surgery+chemo. after months of peace, it now showed in her perotenial cavity. We are seeking advice regarding HIPEC and also IP chemo. Has anyone…
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My love passed away today
My DH passed away at 2 am today after 10 days inpatient at the hospice facility. The last 7 days he was totally unresponsive. It was very difficult to watch although he appeared peaceful and no longer in pain those last 7 days. Every night there I would pull up the pull out bed/chair and sleep next to him holding his hand.…
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Off topic - I'm back in the U.S.A. And celebrating 30years of marriage
I arrived in Reno late last night After a long haul trip from England. You would have been pleased seeing me, stage IV patient, running full tilt through San Francisco airport hoping to catch my internal flight. I would have put a teenager to shame. Today hubby and I spent shopping, and tonight we are going out to eat to…
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The loss of another friend
While it has been some time since he posted here, some of you will remember our favorite member from Barcelona, Spain - Pepebcn. He has passed away. He was 56. He was a wonderful friend to many on this board. May he rest in peace and may wonderful memories help his family to endure his loss. Love you Pepe. Marie who loves…