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My husband is in surgery right now
i have not posted in while, this summer was a wild roller coaster. I will condense rising CEA (15) and spots on the liver we were told last year were fatty focal sparing prompted a pet scan. The liver had 3 spots, but a biopsy was negative for cancer. We met with the liver surgeon anyway and he said any spots that appear…
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Stage 4 survivors for 5+ yrs
Just got this email about the upcoming summit in dc. They are looking for stage 4 survivors. I know we have a few here! http://conquercrc.org/summit_info.html
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"Therapeutic Advances in Metastatic Colorectal Cancer:" with info on current trials(UPDATE 10/20/14
Unfortunately, i missed this when it first came out and to access it now you have to join site (i used one of my email addresses, my initials and simple ID to join for free just to get this-it IS worth reading) clinicaloncology.com/CancerArticles.aspx?c_id=47&c=Colorectal Only 4 pages including footnotes, brief discussion…
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Winter marie
Just wandering how you are doing?
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this sound weird
has any one seen triple numbers months ago i woke up in the middle of the night i usaly sleep throught the night and the clock displayed 444 i could not go back to sleep the 444 was in my brain first i thought lottry numbers and then i thought april 4th 2014 nothing made any sense to me but i could not let it go i thought…
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Updating with a happy dance
I met with my oncologist today. I am officially NED and chemo is finished. I did 10 of the 12 Folfox scheduled. His take was i have reached my peak toxicity level. He doesn't think there is a benefit in continuing the Folfox. The job now is to heal from the side effects. I'm so grateful for all the prayers, love and…
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Gerson Cancer Therapy Question
My wife was recently diagnosed with Stage 4 Metastatic Colon Cancer. Has anyone out there used the Gerson Cancer Therapy out of Mexico? If so, could you tell us about the experience and the overall results. Thanks
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Spoon Theory - If Only I Could Make Them Understand
While lamenting this rather frustrating and unfortunately common occurrence in my life, a friend shared this article on the Spoon Theory: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ This totally made me cry, and I absolutely wish I could make everyone who loves me or gets frustrated…
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Frustrated...
I took my brother to the oncologist on Thursday. They want him to take a break for a few weeks to give his heart a chance to become adjusted to the digoxin. In 4 weeks they will figure out if his heart can take anymore chemo. They were considering putting him on irinotecan, but it can cause diarreah and he already has…
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Superficial blood clot
I went to my chemo oncologist yesterday and it turns out I have a superficial blood clot. She said it's not uncommon when we're on chemo but I don't remember reading about it on here and I've looked at a lot of old posts. Maybe I've forgotten, god knows my memory is bad enough. Has anybody else had this? If so, what gave…
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Out of Africa
My husband and I just got back from safari in Africa. We visited South Africa, Zambia, Zimbabwe and Botswana. Amazing amazing trip. The people we met, the animals we saw, the food we ate...all incredible. Such an experience. We were celebrating our 40th anniversary and my big milestone...5 years NED POST treatment!!! I was…
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body hurt
just wondered if anyone else had body pain stopped chemo oct 2nd lately my knees hips legs hurt big time i worked in construction during my chemo got tired but didn't hurt like i do now taking pain pills feel better but i don't want to take them all the time
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CSN Admin
I'm not sure how to reach CSN, but I would like to ask for a discussion group on nutrition and cancer, a Vegan Board. Can we get this? The body has a way of healing itself and I think we should all share our findings, thoughts, and ideas Thank you.
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NED for now, no more chemo woo hoo!
Saw my docs today and they all agree no adjuvant chemo after my liver resection! Whew! Folfox kicked my butt and didn't really slow down my cancer and the alternative folfiri with and without avastin has not shown itself to be effective. Sooo I'm 35-50% chance of being cured right now. If something returns they'll probably…
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Heels of feet, body cramping
I've finished my treatment and been NED now for 18 months. My feet are hurting especially at the heels and I'm having trouble with cramping body parts again. I am cramping in muscles I didn't even know I had especially right underneath the breast bone. Does anyone have permanent foot damage and cramping? If so what is your…
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Biomat
Hello everybody!!! Has any of you used the Amethyst Biomat..... contains both amethyst and tourmaline stones, my acupuncturist says it is very good, that helps with neuropathy, circulation, achieving a good night sleep etc. It is expensive so I wanted to know if any of you had used it and or will recommend it before I make…
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Small bowel obstruction...
Well, cycle 2 has been postponed for a week as I was released today after a week in the hospital for an obstruction in my small bowel. I haven't endured pain like that since I had my son! Apparently adhesions from the surgery caused the small intestine to kink and everything backed up from there. Hopefully this won't…
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Ostemy reversal, what to expect?
Hi, me posting again. It'll be a long time before I can have it reversed but I'm trying to get rid of whatever worries I possibly can. Having cancer is enough of a worry in general. I'm wondering how often the reversal goes well as far as the system starting back up again. I spoke to my surgeon about if the amount of time…
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Post-Surgery GI Issues After Ascending Colon, Cecal Valve, Partial Terminal Ileum Removal
Hello, I am posting this information to help out others and hopefully start a dialogue on what works to control SIBO, GERD, and such that occurs after surgery. I had stage 2 appendix cancer that was first diagnosed as cecum (appendix was swollen and the large tumor was in the cecum). Ascending colon, appendix, valve, and…
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Scary update on hip surgery
Well I've been in so much pain and I'm thinking that resection was easier pain because you didn't have to exercise. Monday night about 3:15 a.m. I woke up to a pounding so hard in my ears of my heartbeat and it was going so fast and I waited a moment but it did't get any better so I woke my husband and asked him to get the…
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Results from fracture
I had a gall,six weeks ago. X-rays found avulsion fracture. Have had recent ultra sound and ct on the groin and oooohhhhh boooyyyy, I'm devastated. They found a tumor at the fracture site. Haven't had chemo since February. All was looking so great. Scared, yep. See orthopaedic surgeon and oncologist this week. Praying so…
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How many lymph nodes do we have?
Maybe I'm just not good at searching things on line. I can't seem to find out how many lymph nodes we're supposed to have that can be affected by colorectal cancer. After surgery I was told that I'm stage III because three out of eleven lymph nodes were involved. I assumed this meant I had eleven lymph nodes and three…
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60 Minutes story on the high price of cancer drugs.
http://www.cbsnews.com/videos/the-cost-of-cancer-drugs/
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happy day
had my 12th treatment 2 weeks ago had ct scan yesterday results said no active disease no mestastatic disease think i'm going on a maintenance program. just had to let you know, pretty much i'm telling everyone i know and some i don't
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Radical Remission.
http://www.doctoroz.com/episode/are-you-food-addict-take-test-find-out?video_id=3445827525001 Less stress Eating veggies, juicing, eating more raw foods Supplements Spiritual Laughing Im trying!
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cemo
Here I sit here in the chemo chair getting my e bureaux I will see the Dr. After this I hope he is going to get another scan to see if this crap, is shrinking. My chemo takes about 3hrs. To drip into me, how long does any of yall take. This is my 5th. Treatment.
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Good morning. Folfox treatment 10 today
Well ladies and gentleman, I'm getting ready to go in for #10 of 12 folfox treatments. It would seem that I'd be used to it but I feel like a lamb to slaughter. Going back for more poison is tough. In any case, I will go and then there will be only two left. Thank God for family and friends. Yolanda update at bottom
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Adamray
I just stumbled across Adamray's post here, on a Dendritic Cell Therapy thread. To follow up, Adam was diagnosed with stage 4 stomach/esophageal cancer in July 2013. Esophageal and stomach cancers are more grim than most CRC, e.g. I had an uncle dx'd with esophageal cancer several years ago, lasted 3-4 months with minor…
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ileocecal valve, cecum removed
Hi, When **** had his surgery 1/12/09 the surgeon removed 75% of his colon and 7 cm of small intestine, ileocecal valve, appendix and his cecum. The tumor was in his cecum and was causing a 98% blockage. He is wondering if anyone else had those parts removed and what it means in the long run. He also is having what he…
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full plate over the next few weeks. UPDATE!!!!!!!!!!!
I have a scan on 10/7. I fly to Houston on 10/9. See Dr. Suddiah about clinical trials at MD Anderson on 10/10. See dr. Valez -Sanchez a gi specialist at MD Anderson on 10/13. Get results back from genomic testing done in Mass. On 10/14. See Dr. Conrad a radical liver surgeon at MD Anderson on 10/15. I appealed to the…