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PET Scan Yesterday - Waiting on results
I had a PET scan yesterday, waiting on results. I know the radiologists read them and fax at least a puliminary report same day. It is so aggravating to wait when I know my results are there. I called and left nurse message, nothing yet. Does anyone have access to results online? i also have a job interview Monday. My…
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Special Day Today
Although I have been around these parts for many years, today was the first time I've ever had the pleasure of meeting another warrior face to face. I was able to visit with Thxmiker while he is recovering from his latest bout in the hospital. What a nice guy he is. We hugged like long lost friends. Although he lives in…
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Neuropathy and Walking
Hi Everyone, I posted about neuropathy a couple weeks ago. If you happened to read, I was debating whether to do the final 12th round of FOLFOX because I had finally developed neuropathy in my feet. Well I went ahead and did the final round at the urging of my oncologist. Now I'm done...Woohoo! My neuorpathy isn't too…
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CYBERKNIFE
I just found out about a procedure called cyberknife and it performed locally. My Oncology surgeon says the tumor could not be removed because the risk was too high that I would bleed out due to the chemo induced cirrhosis my lier tends to let me bleed. He stopped because he though the risk was too high to continue. I…
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cancer wins
I went in for surgery on Friday to remove what we though was a cancerous node by my small intestine; maybe remove my gall bladder and fix a large umbilical hernia. The doctor did repaire my hernia ; decided the gall bladder was fine; but closed up my abdomen. He stated the cancer was too close to the small intestine and he…
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Irinotecan (from the ovca board)
Hi, I am coming over from the ovca board. I am currently on irinotecan (3 weeks on 1 week off). This is my 9th drug. This is also the first time I have eperienced loss of appetite, nausea and vomiting. Have any of you tried this drug? (I know it's most commonly used for colon cancer). Any suggestions for dealing with these…
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Cancer has metastasized to the brain
We got the results on Wednesday evening. My Dad has 2 tumours on his brain. To say the least we are devastated. My Dad's scans have continued to show NED everywhere else in his body. It's just so frustrating that his fight has been going so well and now this. We will meet with neurologists and radiation specialists this…
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12/10 Creating Christmas Card list tonight, PM Name, Address, Email. Will distribute tomorrow.
I never got to meet Sheyene but she did a Christmas card list for the boards in 2011. The post was reopened and a few people asked that they be added to the list. As Sheyene has passed, in her honor, I'm doing the list. If you would like to send cards, or if you're under the weather and would like to receive cards, please…
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New member; mother diagnosed with stage IIIB
Hi all, What a rough past couple of weeks it has been for me. My single mother of 2 was recently diagnosed with colon cancer. CEA levels were normal, CT and MRI were negative, and there was no evidence of distant metastases. She had a colectomy on her ascending colon about 10 days ago and is currently recovering from the…
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UPDATE - Trubrit meets Yolllmbs meets Easyflip & Winter Marie
Today I had the pleasure of meeting with our very own Yolllmbs. What a treat! What a woman! And now I can say, 'What a friend!'. My husband and I met with Yolanda and her wonderful husband at The Cheesecake Factory, where we enjoyed not only good food but excellent company. We got on like a house on fire, which was really…
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Scan Today, Results Tomorrow, Nervous As All Get Out, and a New Record
I had my every six month CT scan today after much ordeal and a new record - 11 needle sticks. Two to get the blood work, NINE to get the IV in. I never thought I'd be missing the mediport (not that they ever used it for the CT scans anyway, but I think they might have made an exception today). I'm in a fair bit of pain…
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How many people don't finish their chemo regimen?
I'm back to seriously considering stopping the chemo early. I've done four of eight and will do the fifth on Monday. I'm seriously thinking about just doing six. I want to give this my best shot but I'm so sick and miserable I just can't imagine still being this sick at the end of January. Have all of you finished your…
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It's Been Six Years Today
After this long you would think that I'd just move on with life and get over it especially when you are NED, but I've never been able to leave these boards. I'll have a break from the board usually at the beginning of the year promising myself and my husband that taking a three month break away is my gift to myself and him…
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Positive scan results, ablation next
Scan from Yesterday showed the chestwall tumor on my back that is causing me the rib pain is unchanged and the liver tumor had more significant shrinkage for the third straight scan since y90. It shrunk another 1.4cm for a total of 4cm since y90. I has been 5 months since y90 so I think we are hitting the window of…
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Leg pain from chemo?
I've had leg pains a few times during my chemo but it comes and goes quite quickly. It feels like the bones in my calves is what hurts, not the muscles. It'll be there and just as suddenly be gone. This time is different. I can barely walk and the pain is so bad it's making me feel faint. And it's been continuous for the…
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My friend's mom is in hospice today
When I was at Sloan, I ran into an old friend from elementary school. She was there for her mom who had stage IV cancer that had spread to her brain. I was in chemo at the time and not in a very good mental place so I can't remember the original site. The fact that it was in her brain stuck with me. Today she went into…
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Antidepressants, anybody use them?
I'm having such a hard time dealing with my anger and depression about cancer I'm thinking about asking my doctor for some. I'm sure someone here has used them or is on them. Does it help at all? Are there better ones specific to what we're going through as in situational depression, not chemical imbalance depression?
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CEA goes from 57 to 125 for my mom?
My mother was diagnosed stage 3 colon cancer in September. One lymph node involved. CT scan of abdomen was clear. Her CEA prior to the surgery was 57 (Normal on the test is 4 and under) After the surgery and 2 rounds of chemo (5FU and something else--it is infused over a few days--sorry I can't remember) her CEA is 125!…
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Tulane University survey for cancer patients
Some of you might be interested in helping with this study of attitudes towards palliative care. Apparently they are especially interested in getting crc patients involved. I did it and it took about 5 minutes or so. http://www.tulanesurvey.com/
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Update
hooked up to treatment six of six (Folfixiri) yesterday. Avastin was withheld from this final treatment. Nausea is the first hurdle to overcome. Dexadran (spelling) has me up at this hour... Diarreah will be the next challenge in the next few days. We have tested CEA prior to each treatment. 18, 11, 12, 12, 9, 8. CEA and…
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Semi-Colon Roll Call
Hi Everyone, Back in 2004/2005 when I was deep in the fight I remember a thread that everyone listed where they lived and being amazed at how many people actually read this board (there are many more lurkers than posters!!!). I will start a new one with a little twist, stage and current status (in treatment, starting…
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Please Help on Genetic Testing
Can someone please give me the name of the place that does genetic testing. I'm sure that it is only one place in America that is a reputable place and most testing is done there but can't remember the name. I've tried a search on the internet and it doesn't really give me a name for testing only places that take questions…
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Cecum tumour
Hi All, I am writing from Ireland because I can't find a descent board for this topic with a .ie on it :-) hopefully I can find some help, support and answers from you guys even if we are across the water. my mam (aged53) has been diagnosed with colon cancer in the caecum. It's a moderately large Tumour according to the…
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Short lived freedom
I am back in the hospital again! ugh. Laurie checked me in to a local hospital because of my andominal pain. Our local hospital delcaires I have a colon blockage, like we have suspected for the past 4 hospital visits. They then tell us they are out of their league in dealing with this and transfer us back to Shea Medical…
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Share the love. Share the joy.
At this very moment, I am sat on my living room couch, listening to two Great-horned Owls calling outside in the desert snow. It is a wonderful sound. I confess, I ran right out there, in my robe, to see if I could locate them. For me, birds and bird watching bring me immense joy. I would love it if you would share what…
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I yelled at a Nurse today.
I am still in the hospital and an Oncology Nurse PA comes in from my Oncologist's office. She starts hammering me on making a visit t the Doc's office to receive Chemo. I ask if they will be open Thursday to remove the pump. She said no, they will close tomorrow at noon, and then be open on Monday, but if I came in today…
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Update on my mom - not great
After getting her CEA reading of 520 about a month ago, my mom's CT results are in, and they bear out pretty much what I feared and worse. My mom actually got the scan last week, but she was very evasive about sharing the information with me until I saw the papers for myself this past weekend, and I've kind of been in…
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Scanziety and Candles for You
I've been feeling kind of anxious and emotional and short-fused of late with no real idea why. When I looked at the calendar today, I saw my next CT is 08 December. My heart started racing and my breath caught and I just...yeah, instant anxiety. My appointment with the oncologist is the following day to discuss the results…
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It's Not Lymphoma
Hello All: My brother doesn't have have lymphoma. Wish it was because that can be more curable. My brother doesn't have lymphoma it's just all in the nodes from a source they are unknown to at this moment. There are spots on his lung, liver, possible pancreas, along with several nodes and possible bone. They are doing…
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What to do?
I had a polyp, which turned out to be cancerous, removed in October. According to my CT scan and ultrasound, there is now no evidence of cancer. However, the radiation oncologist recommends either a low anterior resection or a transanal excision with possible radiation. He said that's the usual approach to my type of…