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Leg pain from chemo?
I've had leg pains a few times during my chemo but it comes and goes quite quickly. It feels like the bones in my calves is what hurts, not the muscles. It'll be there and just as suddenly be gone. This time is different. I can barely walk and the pain is so bad it's making me feel faint. And it's been continuous for the…
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My friend's mom is in hospice today
When I was at Sloan, I ran into an old friend from elementary school. She was there for her mom who had stage IV cancer that had spread to her brain. I was in chemo at the time and not in a very good mental place so I can't remember the original site. The fact that it was in her brain stuck with me. Today she went into…
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Antidepressants, anybody use them?
I'm having such a hard time dealing with my anger and depression about cancer I'm thinking about asking my doctor for some. I'm sure someone here has used them or is on them. Does it help at all? Are there better ones specific to what we're going through as in situational depression, not chemical imbalance depression?
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CEA goes from 57 to 125 for my mom?
My mother was diagnosed stage 3 colon cancer in September. One lymph node involved. CT scan of abdomen was clear. Her CEA prior to the surgery was 57 (Normal on the test is 4 and under) After the surgery and 2 rounds of chemo (5FU and something else--it is infused over a few days--sorry I can't remember) her CEA is 125!…
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Tulane University survey for cancer patients
Some of you might be interested in helping with this study of attitudes towards palliative care. Apparently they are especially interested in getting crc patients involved. I did it and it took about 5 minutes or so. http://www.tulanesurvey.com/
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Update
hooked up to treatment six of six (Folfixiri) yesterday. Avastin was withheld from this final treatment. Nausea is the first hurdle to overcome. Dexadran (spelling) has me up at this hour... Diarreah will be the next challenge in the next few days. We have tested CEA prior to each treatment. 18, 11, 12, 12, 9, 8. CEA and…
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Semi-Colon Roll Call
Hi Everyone, Back in 2004/2005 when I was deep in the fight I remember a thread that everyone listed where they lived and being amazed at how many people actually read this board (there are many more lurkers than posters!!!). I will start a new one with a little twist, stage and current status (in treatment, starting…
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Please Help on Genetic Testing
Can someone please give me the name of the place that does genetic testing. I'm sure that it is only one place in America that is a reputable place and most testing is done there but can't remember the name. I've tried a search on the internet and it doesn't really give me a name for testing only places that take questions…
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Cecum tumour
Hi All, I am writing from Ireland because I can't find a descent board for this topic with a .ie on it :-) hopefully I can find some help, support and answers from you guys even if we are across the water. my mam (aged53) has been diagnosed with colon cancer in the caecum. It's a moderately large Tumour according to the…
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Short lived freedom
I am back in the hospital again! ugh. Laurie checked me in to a local hospital because of my andominal pain. Our local hospital delcaires I have a colon blockage, like we have suspected for the past 4 hospital visits. They then tell us they are out of their league in dealing with this and transfer us back to Shea Medical…
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Share the love. Share the joy.
At this very moment, I am sat on my living room couch, listening to two Great-horned Owls calling outside in the desert snow. It is a wonderful sound. I confess, I ran right out there, in my robe, to see if I could locate them. For me, birds and bird watching bring me immense joy. I would love it if you would share what…
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I yelled at a Nurse today.
I am still in the hospital and an Oncology Nurse PA comes in from my Oncologist's office. She starts hammering me on making a visit t the Doc's office to receive Chemo. I ask if they will be open Thursday to remove the pump. She said no, they will close tomorrow at noon, and then be open on Monday, but if I came in today…
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Update on my mom - not great
After getting her CEA reading of 520 about a month ago, my mom's CT results are in, and they bear out pretty much what I feared and worse. My mom actually got the scan last week, but she was very evasive about sharing the information with me until I saw the papers for myself this past weekend, and I've kind of been in…
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Scanziety and Candles for You
I've been feeling kind of anxious and emotional and short-fused of late with no real idea why. When I looked at the calendar today, I saw my next CT is 08 December. My heart started racing and my breath caught and I just...yeah, instant anxiety. My appointment with the oncologist is the following day to discuss the results…
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It's Not Lymphoma
Hello All: My brother doesn't have have lymphoma. Wish it was because that can be more curable. My brother doesn't have lymphoma it's just all in the nodes from a source they are unknown to at this moment. There are spots on his lung, liver, possible pancreas, along with several nodes and possible bone. They are doing…
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What to do?
I had a polyp, which turned out to be cancerous, removed in October. According to my CT scan and ultrasound, there is now no evidence of cancer. However, the radiation oncologist recommends either a low anterior resection or a transanal excision with possible radiation. He said that's the usual approach to my type of…
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Recurring abcess
After my colon resection in June I ended up with an abcess. They put a drain in which was one of the most horrifying experiences of my life. They took it out after a few days. A week later I was back in the hospital with another abcess and another drain which I had for over a month. The first abcess had closed off so this…
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Unexpected Visit W/Oncologist (update 11/26/14)
Been having odd symptoms. Called the Oncologist's nurse and had to make a trip in to see the Oncologist today. Been having abdominal discomfort, bloating, unexplained rapid weight gain, (over 10 lbs in three weeks) and uncommon upper spine, neck and chest pains with deep breaths. I tried to hold out for the scheduled…
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HAPPY THANKSGIVING!
I am thanful for all of you. And remember, no matter what you are going through, you are much better off than than the turkeysweating grease in your 350 degree oven lol. Laz
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Happy Thanksgiving
Happy Thanksgiving! Hope you are surrounded by family and friends. Be safe.
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cat scan with barium
since i had 3 pet scans I can only have cats scans now what im wondering is they want me to drink the barium would this only show gi trac I thoufght it was strange was was not getting dye injected
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FREE. This weekend - The truth about cancer seminars - Alternative medicine
For anyone interested these webinars are free until Dect 1, 2014. They are about alternative medicine, and there may be some take aways for you. If you have a Smart TV, you can actually see them through YouTube on the big screen. I sometimes use wireless headset connected to my IPAD to just listen as I do things around the…
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2014 Christmas Card List - There you go! In honor of Sheyene.
For you Richard and Bob, a current list. I work on a computer for a living. I won't be able to work from the old list. In honor of Sheyene who I never had the pleasure of meeting, I volunteer this year. Please send me a PM (private message) with your real name, address and real email so that I can send out the list all at…
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Happy Thanksgiving Everybody!
Happy Thanksgiving everybody! I am so glad to be alive to celebrate this day. For those of you who can eat, enjoy it to the fullest. For those of you who can't, I hope you can find some way to partake. The Stivarga (or nighttime mouth breathing - I am not sure) has given me little cuts in my mouth which make chewing hard…
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Happy thanksgiving!
I am a blessed and lucky woman. I am surrounded by love and support! Our kitchen will be filled with family by blood and family by choice! All of you have given me more to show gratitude. I know I've gotten strength from your kindness and support. God is good. Being alive even with all the challenges is the best ever! Give…
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NED and traveling to Reno and San Francisco December 4-8
I have officially been told I am NED and finished with doctors until April. A little scared to be free of doctors but happy. I am hoping to meet Sue (Trubrit) in Reno on December 5th. I will be in Reno from the 4th to 7th and then San Francisco 7th and 8th. I'd love to meet anyone in those areas. My prayers and good…
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2011 Christmas Card List
Hi Everyone! It’s that time again where we all come together and share our addresses for our Annual Christmas Card list. Just a bit of history, this was started by Donna (Shayene: she passed 8/24/10) and myself way back in 2008, I believe. It has been a great success and it’s something I would like to continue in honor of…
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Who has the list....
...of frieds who passed recently. I'd love to remember them during Thanksgiving and be thankful for their company even though they are not with us. Laz
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now really concerned
I had some good news so-to-speak last week after a CT scan and then a pet scan they located only one node by my small intestine that lite up. Surgery to remove it will be in about 10 days. It all sounded very promising. But today I got up for a bowel movement and the toilet had a lot of bright red blood. Every time I've…
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Brother has Cancer
I posted this following post on lymphoma board because thought it might be that. I'm devastated because tonight found out it was cancer. Please keep him in your prayers and if anyone has any insite into this cancer, please post. Hello: I'm usually posting on colorectal cancer board, but got a call from my brother this…