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Greenwald Family
First thing you might want to convince your husband it's time for a new Oncologist. I was diagnosed Stage IV terminal non-operable over 4 1/2 years ago, had an operation the first year which they took out the tumor in my colon, my ureter and the ones in my liver all in the same day, giving me a chance at a longer life, my…
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dead man not walking
Well been quit a while since I posted. I've just been overwhelmed by all the side effects, I have been unlucky enough to endure these many years. I don't have a laptop so since I spend most of my life sitting on a toilet, it's a little difficult to get to my computer. The doctors have tried everything they know but nothing…
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Hip Surgery Outcome
Thank you Winter for starting a new post. Actually the surgery went very well. It started at 10:00 and got done about 11:30. The hospital was so full they did't have a room for me so therefore, no computer or internet. By the time the room was ready it ws so late and being tired was "an understatment". This morning the…
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CEA Results......
Well I am happy to report CEA is 1.1. It has remained very low in my almost 3 years NED. I am truely truely blessed and so grateful. As a stage 3b signet cell I constantly think something will go wrong. That's what cancer has done as I am sure with everyone else. I know alot of people in our virtual family are going…
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Still Here :)
Thank you all for your thoughts and well wishes, it sure is appreciated. Right now I'm in the OOU getting my weekly chemo, sure getting tired of every week but at the moment it is shrinking the tumors, so I'll stay the course. I have been happy that every week I had been gaining a pound, so a gain total of 6 pounds were…
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Sundance Huffed & Puffed...And Finally...
Well, I'm going in for yet another surgery for a pain relief test to see what happens. This will mark my 6th surgery this year (what a whip) and my 14th surgery to date. My trial people are letting me down and can't find any candidates (supposedly) to operate on and so I WAIT....and wait.....and wait some more. I'm in line…
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*blush*.....I am officially an author!!!!!!! *blush*
With some help from a 'self-publishing' publishing house, my 'Bald Lady' book is now a reality!!! WHEW!!! Who would have thought????? I just downloaded the Kindle verson....and am so excited!!!! For those who do not know me...I'm one of the 'old folks'....double primary...breast and colorectal... For those who DO remember…
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Annabelle(Kim)
Wondering how your surgery went, hoping to hear from you very soon. We're thinking about you. Winter Marie
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For what its worth,FDA just approved Akynzeo to treat nausea/vomiting due to chemo.......
www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm418375.htm and then there's this: www.sys-con.com/node/3207941 and this: http://medicalxpress.com/print332051357.html
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Surgery Tomorrow Morning
I'm to be at the hospital at 8:00 a.m. so I'm thinking that surgery will be about 10:30 - 11:00. They said they would have me sitting in a chair that afternoon so hopefull I'll be able to get on my computer and let you know that everything went well. Of course today on the web there was an article about problems with…
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New to CSN
Hi everybody: I am new to CSN, I was diagnosed with stage IV colon cancer with metastasis to the liver in November 2013. Since then I have been in chemotherapy FOLFOX for 3 months, then only avastin and 5FU and went back to FOLFOX in August., I am getting more side effects this time, they are giving me huge amounts of…
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rectal stents
I need to know if anyone has this, Mine was placed in August and is causing problems which very likely cause death, Was Winneypooh but forgot password so i am now againstallodds, 6 years and cancer contained doing well but rectal stent is trying to kill me
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Question
I've been busy between dad and my brother. I haven't been on in a while. I brought my brother to a new cardiologist that is closer to home and one who I respect. He sent my brother for a MUGA scan on Friday. He had one back in early Jan/Feb when he was hopspitalized. He had an ejection fraction of 45% then. He has been on…
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Went to Surgeon Today for my Hip
Went to the surgeon this morning and it went better than expected. First thing coming in the door he said well things look pretty bad bet you are in a lot of pain and of course I answered yes. They rate the scale of this condition from 1 to 6 and 6 being the worst and he said I'm definitely 6. The other leg also has this…
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i had biopsy today doc said looked malignant it is 5 by 7 cm tumor in my colon HELP HELP WHAT DO I D
My name is Bruce I am 51 year old male The army on 4 occasions told me i just had internal hemoroids in 2009 2011 2012 and 2013, now i had my first colonoscopy and i learn i have a pretty big tumor that probably began back in 2009 I am furious with the army but more important scared to death what is around the corner for…
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I'm not a religious person but
I came across this short video and really liked it so I thought I'd share it http://vimeo.com/8898059#at=0 Enjoy! Easyflip/Richard
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Chemo in three days
I start my follow up chemo of Folfox5 on Monday so I have two days to go. I've been miserable and stressed all week. I can't sleep and I'm angry and cry a lot. I'm hoping it won't be too bad but I think it's naive to think it might not be. I've had a charlie horse in my calf for days that's so bad I can't sleep well and…
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Taking care of your teeth during treatment
I went to the dentist today to have my teeth cleaned and found out I have nine fillings to do. Three are replacing old ones but still I was shocked. I've always had good teeth and take care of them. But, while I was in treatment I was too tired to care enough to brush them regularly and would go days without doing it. I…
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First cycle down...PET scan today
Made it through the first cycle. Tuesday through Thursday weren't bad, but Thursday afternoon through Saturday were miserable. Nausea, diarreaha, and feeling like I'd been run over by a truck. Just exhausted now...Surprisingly, I didn't have much of an issue with the cold with the oxi... I have a PET scan today because the…
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Scan Buddies
Scan and CEA tomorrow.....anyone else this week? Jeff, I remember you have a scan, too. Prayers and good wishes. CM
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My scan is today.
On my way to Stanford to get news on the effectiveness of the chemo augmentation. Die Tumor! Die! :)
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Spam CSN email. FYI
I received this today and of course it's a Hoax. rita44556 10/02/2014 - 1:22am Dearest one, I do sincerely apologize for my intrusion of your privacy in CSN, I have a serious concern with which I believe you might be of help and for this reason, I cannot but reach out to you. My name is,Mrs Rita Chung. A Nationality of…
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Feeling blah
I'm in the middle of FOLFOXIRI 3 of 6. Was at UMHS from 7:30am to 4:30pm yesterday. Disconnect is tomorrow. I'm beginning to get a sense of the pattern of side effects. Nausea/vomiting, followed by constipation, followed bi diabetes, then more comstipation. And exhaustion, disseyness throughout. Also jaw hurting, teethe…
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Clinical Trial - Anti KIR, Anti PD-1
Well, I am officially a rhesus monkey! I got accepted into a clinical trial and my first treatment starts... tomorrow! I am excited and scared at the same time. This is the trial: http://clinicaltrials.gov/show/NCT01714739 I found out about the PD-1 trials through Maia, who mostly posts on the Colon Club forum. Thank you…
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Interesting. Free Cancer course
Interesting. http://trulyheal.com/course/truly-heal-cancer-guide/ Anyone try Bentonite clay? I'm taking it internally and externally. If it doesn't kill toxins, it does totally relax you and clear up your face. http://youtu.be/Fp3getUzKXA
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Cut that sucker out!
Hey All, Liver resection surgery is scheduled for 7:30 am tomorrow at UCSF. Wish me luck as I hope to be NED for a long time after this! Fingers crossed again, docs are optimistic and so am I. Whatever happens I'm grateful for the support, prayers, good vibes, happy dances and swinging chickens! Who knows why things happen…
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Brecon Cathedral
Today I visited Brecon Cathedral (among other places) in Wales, and they had a book to write down the names of people who needed prayers, so I wrote down your names, collectively, knowing that the powers above knows who you are. It is a beautiful and ancient building (1093), and had a wonderful, reverent feeling. My…
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Pain in the femur
I had colorectal cancer and went through all the normal protocol, chemo, radiation, and chemo again. I have been off chemo since last September (2013). Have had a sore rectum forever. Was on a drug called canasa for 42 days - inserted into the rectum at bedtime. It did help some. But as long as there is stool in the rectum…
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Winter Marie
How are you doing, are you gaining some weight and strength back I hope.
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…