-
Made it this far
Well its has been awhile as been very busy with Chemo and moving to different town also changing Drs but things going ok so far. Had some side effects like nausea diahrea and various infections but they keeping close watch and treating quickly so all I have to try to handle is the weakness and temper. Also lost 80 lbs…
-
Old guard here....busy with life....10 years later....
I am thankful for being able to post this.... 10 years ago, November 27, I was told I needed to "get my affairs in order, you have 6 months to live". I do not follow directions very well (although I DID get my will finished, trust for my disabled daughters established, etc) and so I come to this anniversary I was not…
-
Looking for the truth about life after colectomy
I am a 6 year survivor of uterine papillary serous cancer. i am positive for Lynch Sydrome. I have radiation damage to my sigmoid causing discomfort among other problems. Surgeon has advised me to consider coloctemy. I have been doing at least yearly colonoscopies for the last 6 years... Any words of wisdom, pros, cons.....
-
New Introduction: Stage 4- starting Folfiri and praying for a miracle
Hi all- Well, this is certainly one heck of a disease and one unbelievable fight. My mother was diagnosed with stage 3C colon last April. She had a colon resection and we went through 6 months of Folfox - finished in October. Unfortunately, after many visits to try to source the extreme pain she was in, we finally had a…
-
Who to see at MD Anderson Houston?
Whom are the great Docs to see at MD Anderson Houston? I have ran out of options here in Phoenix. I can go to UCSD in Sand Diego (La Hoya) but it is expensive for my wife to stay down there. We have family and Houston is less expensive place to live. I will need posible Hospice Care while getting Chemo for a few months.…
-
Folfiri
I will be starting folfiri after christmas, what are the side effect? Did you lose your hair,
-
Can't sleep. Too much anxiety.
i will be in my 7th surgery at 7:30 am today. And I can't sleep. We will head out to Ann Arbor UMHS AT 4:20am (about three hours from now). Check in is at 5:30 am. I wish I could sleep right now. my wife is snoring. :-). She says she doesn't snore. Haha.
-
Biopsy on lymph node positive***UPDATE
for cancer, looks like colon cancer but cant be sure until we get pathology report~usually 48 hrs. Even though we pretty much knew this before the biopsy, it was still hard to hear. I had my meltdown while Robert was in recovery and when I went to drive around to pick him up, a transformer had blown in the dental school…
-
The Clear Scan Happy Dance!
Yesterday was pretty much a disaster, though a new record! It took them ELEVEN tries to get the IV in for my CT scan. After all of their "experts" gave up after multiple tries, they actually called the doctor to make sure she was really REALLY sure I needed the contrast. I did. Finally, a very lovely 25-year old tech came…
-
Recurrence? After 6 Months? How Do We Fight?
My husband was diagnosed 12/2013 with stage IIIC colon cancer... After surgery to remove the tumor we completed seven rounds of chemo... Before his surgery we were told his CEA level was 9 and then after chemo (07/2014) it was down to 2.2 but now we just got the test results and it has elevated to 74 (12/2014)... We…
-
CA 19 9 marker, with CAPOX plus Avastin questions
1)How many CAPOX (Capecitabine plus Oxaliplatin) plus Avastin cycles we can expect it to begin lowering? what's your experience, or what did you read or the oncologist you trust more said? 2)Does that test requires, (or is better made) stopping taking some kind of pills for some hours or days, to avoid false marker values?…
-
Ice on mouth (avoiding sores, etc) while Avastin, before Oxaliplatin?
Hi, my mother is now receiving CAPOX (Capecitabine and Oxaliplatin) plus Avastin: first she receives Avastin, then Oxaliplatin Before this treatment she used other drugs, and with the first treatment for her the best way to avoid mouth sores and mucositis is the ice while the intravenous treatment (she tried mouthwashes…
-
Disappointing Oncologist Appointment
Hello All: Here we go again...Been on a holiday for some months and CEA has jumped from 2.5 to 51.8...Scan was seemingly clear but Onc feels there is something growing just can't see it yet...Back on Chemo next week new scan in eight weeks or so. Had my physical for a potential new position yesterday and they were already…
-
60 minutes 60 Minutes. Billionaire Dr. Patrick Soon-Shiong shows a way of treating the deadly dise
http://www.cbsnews.com/news/billionaire-doctor-fights-cancer-in-unconventional-way/
-
Questions for a friend recently diagnosed
I have been on this site for over three years (Lymphoma Board) and am thankful for the good and caring folks here and all the support we give each other. I am writing here for a friend who was recently diagnosed with stage 2 colon cancer. Evidently the tumor is outside the rectum near the anus and not attached to any…
-
For what it is worth...
Seen this and thought I would pass it along. http://www.foxnews.com/health/2014/12/09/after-colon-cancer-activity-is-linked-to-better-survival/?intcmp=ob_homepage_health&intcmp=obnetwork
-
PET Scan Yesterday - Waiting on results
I had a PET scan yesterday, waiting on results. I know the radiologists read them and fax at least a puliminary report same day. It is so aggravating to wait when I know my results are there. I called and left nurse message, nothing yet. Does anyone have access to results online? i also have a job interview Monday. My…
-
Special Day Today
Although I have been around these parts for many years, today was the first time I've ever had the pleasure of meeting another warrior face to face. I was able to visit with Thxmiker while he is recovering from his latest bout in the hospital. What a nice guy he is. We hugged like long lost friends. Although he lives in…
-
Neuropathy and Walking
Hi Everyone, I posted about neuropathy a couple weeks ago. If you happened to read, I was debating whether to do the final 12th round of FOLFOX because I had finally developed neuropathy in my feet. Well I went ahead and did the final round at the urging of my oncologist. Now I'm done...Woohoo! My neuorpathy isn't too…
-
CYBERKNIFE
I just found out about a procedure called cyberknife and it performed locally. My Oncology surgeon says the tumor could not be removed because the risk was too high that I would bleed out due to the chemo induced cirrhosis my lier tends to let me bleed. He stopped because he though the risk was too high to continue. I…
-
cancer wins
I went in for surgery on Friday to remove what we though was a cancerous node by my small intestine; maybe remove my gall bladder and fix a large umbilical hernia. The doctor did repaire my hernia ; decided the gall bladder was fine; but closed up my abdomen. He stated the cancer was too close to the small intestine and he…
-
Irinotecan (from the ovca board)
Hi, I am coming over from the ovca board. I am currently on irinotecan (3 weeks on 1 week off). This is my 9th drug. This is also the first time I have eperienced loss of appetite, nausea and vomiting. Have any of you tried this drug? (I know it's most commonly used for colon cancer). Any suggestions for dealing with these…
-
Cancer has metastasized to the brain
We got the results on Wednesday evening. My Dad has 2 tumours on his brain. To say the least we are devastated. My Dad's scans have continued to show NED everywhere else in his body. It's just so frustrating that his fight has been going so well and now this. We will meet with neurologists and radiation specialists this…
-
12/10 Creating Christmas Card list tonight, PM Name, Address, Email. Will distribute tomorrow.
I never got to meet Sheyene but she did a Christmas card list for the boards in 2011. The post was reopened and a few people asked that they be added to the list. As Sheyene has passed, in her honor, I'm doing the list. If you would like to send cards, or if you're under the weather and would like to receive cards, please…
-
New member; mother diagnosed with stage IIIB
Hi all, What a rough past couple of weeks it has been for me. My single mother of 2 was recently diagnosed with colon cancer. CEA levels were normal, CT and MRI were negative, and there was no evidence of distant metastases. She had a colectomy on her ascending colon about 10 days ago and is currently recovering from the…
-
UPDATE - Trubrit meets Yolllmbs meets Easyflip & Winter Marie
Today I had the pleasure of meeting with our very own Yolllmbs. What a treat! What a woman! And now I can say, 'What a friend!'. My husband and I met with Yolanda and her wonderful husband at The Cheesecake Factory, where we enjoyed not only good food but excellent company. We got on like a house on fire, which was really…
-
Scan Today, Results Tomorrow, Nervous As All Get Out, and a New Record
I had my every six month CT scan today after much ordeal and a new record - 11 needle sticks. Two to get the blood work, NINE to get the IV in. I never thought I'd be missing the mediport (not that they ever used it for the CT scans anyway, but I think they might have made an exception today). I'm in a fair bit of pain…
-
How many people don't finish their chemo regimen?
I'm back to seriously considering stopping the chemo early. I've done four of eight and will do the fifth on Monday. I'm seriously thinking about just doing six. I want to give this my best shot but I'm so sick and miserable I just can't imagine still being this sick at the end of January. Have all of you finished your…
-
It's Been Six Years Today
After this long you would think that I'd just move on with life and get over it especially when you are NED, but I've never been able to leave these boards. I'll have a break from the board usually at the beginning of the year promising myself and my husband that taking a three month break away is my gift to myself and him…
-
Positive scan results, ablation next
Scan from Yesterday showed the chestwall tumor on my back that is causing me the rib pain is unchanged and the liver tumor had more significant shrinkage for the third straight scan since y90. It shrunk another 1.4cm for a total of 4cm since y90. I has been 5 months since y90 so I think we are hitting the window of…