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The Clear Scan Happy Dance!
Yesterday was pretty much a disaster, though a new record! It took them ELEVEN tries to get the IV in for my CT scan. After all of their "experts" gave up after multiple tries, they actually called the doctor to make sure she was really REALLY sure I needed the contrast. I did. Finally, a very lovely 25-year old tech came…
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Recurrence? After 6 Months? How Do We Fight?
My husband was diagnosed 12/2013 with stage IIIC colon cancer... After surgery to remove the tumor we completed seven rounds of chemo... Before his surgery we were told his CEA level was 9 and then after chemo (07/2014) it was down to 2.2 but now we just got the test results and it has elevated to 74 (12/2014)... We…
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CA 19 9 marker, with CAPOX plus Avastin questions
1)How many CAPOX (Capecitabine plus Oxaliplatin) plus Avastin cycles we can expect it to begin lowering? what's your experience, or what did you read or the oncologist you trust more said? 2)Does that test requires, (or is better made) stopping taking some kind of pills for some hours or days, to avoid false marker values?…
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Ice on mouth (avoiding sores, etc) while Avastin, before Oxaliplatin?
Hi, my mother is now receiving CAPOX (Capecitabine and Oxaliplatin) plus Avastin: first she receives Avastin, then Oxaliplatin Before this treatment she used other drugs, and with the first treatment for her the best way to avoid mouth sores and mucositis is the ice while the intravenous treatment (she tried mouthwashes…
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Disappointing Oncologist Appointment
Hello All: Here we go again...Been on a holiday for some months and CEA has jumped from 2.5 to 51.8...Scan was seemingly clear but Onc feels there is something growing just can't see it yet...Back on Chemo next week new scan in eight weeks or so. Had my physical for a potential new position yesterday and they were already…
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60 minutes 60 Minutes. Billionaire Dr. Patrick Soon-Shiong shows a way of treating the deadly dise
http://www.cbsnews.com/news/billionaire-doctor-fights-cancer-in-unconventional-way/
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Questions for a friend recently diagnosed
I have been on this site for over three years (Lymphoma Board) and am thankful for the good and caring folks here and all the support we give each other. I am writing here for a friend who was recently diagnosed with stage 2 colon cancer. Evidently the tumor is outside the rectum near the anus and not attached to any…
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For what it is worth...
Seen this and thought I would pass it along. http://www.foxnews.com/health/2014/12/09/after-colon-cancer-activity-is-linked-to-better-survival/?intcmp=ob_homepage_health&intcmp=obnetwork
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PET Scan Yesterday - Waiting on results
I had a PET scan yesterday, waiting on results. I know the radiologists read them and fax at least a puliminary report same day. It is so aggravating to wait when I know my results are there. I called and left nurse message, nothing yet. Does anyone have access to results online? i also have a job interview Monday. My…
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Special Day Today
Although I have been around these parts for many years, today was the first time I've ever had the pleasure of meeting another warrior face to face. I was able to visit with Thxmiker while he is recovering from his latest bout in the hospital. What a nice guy he is. We hugged like long lost friends. Although he lives in…
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Neuropathy and Walking
Hi Everyone, I posted about neuropathy a couple weeks ago. If you happened to read, I was debating whether to do the final 12th round of FOLFOX because I had finally developed neuropathy in my feet. Well I went ahead and did the final round at the urging of my oncologist. Now I'm done...Woohoo! My neuorpathy isn't too…
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CYBERKNIFE
I just found out about a procedure called cyberknife and it performed locally. My Oncology surgeon says the tumor could not be removed because the risk was too high that I would bleed out due to the chemo induced cirrhosis my lier tends to let me bleed. He stopped because he though the risk was too high to continue. I…
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cancer wins
I went in for surgery on Friday to remove what we though was a cancerous node by my small intestine; maybe remove my gall bladder and fix a large umbilical hernia. The doctor did repaire my hernia ; decided the gall bladder was fine; but closed up my abdomen. He stated the cancer was too close to the small intestine and he…
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Irinotecan (from the ovca board)
Hi, I am coming over from the ovca board. I am currently on irinotecan (3 weeks on 1 week off). This is my 9th drug. This is also the first time I have eperienced loss of appetite, nausea and vomiting. Have any of you tried this drug? (I know it's most commonly used for colon cancer). Any suggestions for dealing with these…
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Cancer has metastasized to the brain
We got the results on Wednesday evening. My Dad has 2 tumours on his brain. To say the least we are devastated. My Dad's scans have continued to show NED everywhere else in his body. It's just so frustrating that his fight has been going so well and now this. We will meet with neurologists and radiation specialists this…
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12/10 Creating Christmas Card list tonight, PM Name, Address, Email. Will distribute tomorrow.
I never got to meet Sheyene but she did a Christmas card list for the boards in 2011. The post was reopened and a few people asked that they be added to the list. As Sheyene has passed, in her honor, I'm doing the list. If you would like to send cards, or if you're under the weather and would like to receive cards, please…
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New member; mother diagnosed with stage IIIB
Hi all, What a rough past couple of weeks it has been for me. My single mother of 2 was recently diagnosed with colon cancer. CEA levels were normal, CT and MRI were negative, and there was no evidence of distant metastases. She had a colectomy on her ascending colon about 10 days ago and is currently recovering from the…
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UPDATE - Trubrit meets Yolllmbs meets Easyflip & Winter Marie
Today I had the pleasure of meeting with our very own Yolllmbs. What a treat! What a woman! And now I can say, 'What a friend!'. My husband and I met with Yolanda and her wonderful husband at The Cheesecake Factory, where we enjoyed not only good food but excellent company. We got on like a house on fire, which was really…
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Scan Today, Results Tomorrow, Nervous As All Get Out, and a New Record
I had my every six month CT scan today after much ordeal and a new record - 11 needle sticks. Two to get the blood work, NINE to get the IV in. I never thought I'd be missing the mediport (not that they ever used it for the CT scans anyway, but I think they might have made an exception today). I'm in a fair bit of pain…
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How many people don't finish their chemo regimen?
I'm back to seriously considering stopping the chemo early. I've done four of eight and will do the fifth on Monday. I'm seriously thinking about just doing six. I want to give this my best shot but I'm so sick and miserable I just can't imagine still being this sick at the end of January. Have all of you finished your…
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It's Been Six Years Today
After this long you would think that I'd just move on with life and get over it especially when you are NED, but I've never been able to leave these boards. I'll have a break from the board usually at the beginning of the year promising myself and my husband that taking a three month break away is my gift to myself and him…
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Positive scan results, ablation next
Scan from Yesterday showed the chestwall tumor on my back that is causing me the rib pain is unchanged and the liver tumor had more significant shrinkage for the third straight scan since y90. It shrunk another 1.4cm for a total of 4cm since y90. I has been 5 months since y90 so I think we are hitting the window of…
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Leg pain from chemo?
I've had leg pains a few times during my chemo but it comes and goes quite quickly. It feels like the bones in my calves is what hurts, not the muscles. It'll be there and just as suddenly be gone. This time is different. I can barely walk and the pain is so bad it's making me feel faint. And it's been continuous for the…
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My friend's mom is in hospice today
When I was at Sloan, I ran into an old friend from elementary school. She was there for her mom who had stage IV cancer that had spread to her brain. I was in chemo at the time and not in a very good mental place so I can't remember the original site. The fact that it was in her brain stuck with me. Today she went into…
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Antidepressants, anybody use them?
I'm having such a hard time dealing with my anger and depression about cancer I'm thinking about asking my doctor for some. I'm sure someone here has used them or is on them. Does it help at all? Are there better ones specific to what we're going through as in situational depression, not chemical imbalance depression?
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CEA goes from 57 to 125 for my mom?
My mother was diagnosed stage 3 colon cancer in September. One lymph node involved. CT scan of abdomen was clear. Her CEA prior to the surgery was 57 (Normal on the test is 4 and under) After the surgery and 2 rounds of chemo (5FU and something else--it is infused over a few days--sorry I can't remember) her CEA is 125!…
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Tulane University survey for cancer patients
Some of you might be interested in helping with this study of attitudes towards palliative care. Apparently they are especially interested in getting crc patients involved. I did it and it took about 5 minutes or so. http://www.tulanesurvey.com/
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Update
hooked up to treatment six of six (Folfixiri) yesterday. Avastin was withheld from this final treatment. Nausea is the first hurdle to overcome. Dexadran (spelling) has me up at this hour... Diarreah will be the next challenge in the next few days. We have tested CEA prior to each treatment. 18, 11, 12, 12, 9, 8. CEA and…
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Semi-Colon Roll Call
Hi Everyone, Back in 2004/2005 when I was deep in the fight I remember a thread that everyone listed where they lived and being amazed at how many people actually read this board (there are many more lurkers than posters!!!). I will start a new one with a little twist, stage and current status (in treatment, starting…
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Please Help on Genetic Testing
Can someone please give me the name of the place that does genetic testing. I'm sure that it is only one place in America that is a reputable place and most testing is done there but can't remember the name. I've tried a search on the internet and it doesn't really give me a name for testing only places that take questions…