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no appetite and bloating
Hello everyone! I have now completed 10 Folfox treatments. I did 7 with full dose and 8-10 treatments were with reduced dose oxaliplatin. I am planning the last two treatments to be 5FU only. Over the last couple of weeks I have had a new epigastric pain, bloating and nausea. These symptoms seem all to familiar to my small…
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New to colostomy and embarassing gas
I recently had to have APR surgery with permanent colostomy and I was wondering if anyone has any advice about how to deal with gas in social situations. I have always been a very prideful person and this is the hardest part of the whole ordeal for me. Any suggestions?
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One Year All Clear
Oncologist went back through all the scans, says he sees no changes. (Reports have +/- 1 or 2 mm between them all, just variance of technique and too small really to size anyway.) Tomorrow is the one year anniversary of my surgery. Time to schedule next scan and colonoscopy. (Yes even the thought of a colonscopy is pretty…
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Scans for NewHere and many others
I hope your scan went well today, New. When do you get your results? There have been a slew of us with scans these past few weeks. Hope to hear from everyone when the results are in. Sue - Trubrit
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CEA 1.0 and CLEAR SCANS - WOO HOO!
Bring on the Dancing Man for me - YAY! And this is what I actually feel like doing , but at my age, I'd better stick with the . I confess, with all of the recent Cacner related deaths in the news, and friends here struggling so, this set of tests was especially hard for me, and I was very apprehensive about the results.…
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Low magnesium
My brother was on Vectibix but his magnesium levels have dropped to .9 and his heart function has gone down to 25% (ejection fraction rate). They had to take him off Vectix for now until they can get his magnesium under control and the heart function up. They need to figure out whether it's the low magnesium causing the…
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Sickness and PET Scan
i am going have him call tomorrow and ask, but my husband went to the dr yet again for this ongoing cold. His throat was really bad, his ear were full of fluid, his glands in his neck are all swollen but his chest and lungs are clear. Due to how long it's been going on and that he can't shake it they gave him an…
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Does your grade change?
So when I originally had the cancer two years ago and had the surgery, etc. I was graded at 3B with three out of eleven lymph nodes involved. Now that I have mets in my lung am I a stage 4? Or does the grading stay the same as it was originally? I can ask my onc but I don't have an appointment for a few weeks and I'm just…
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So,mething some might want to consider (and act upon)
"Single-lesion biopsy may be insufficient to choose therapy targeting resistance mutatiions" http://medicalxpress.com/print373897561.html
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Looking for Support
Hi, new to these boards. I am a 59 year old male in good health, late last year I found I was short of breath and tired, more than normal (no other symptoms). To make a long story short(er), after several tests, colonoscopy and CT scan, I had surgery to remove the tumor and 34 lymph nodes, of which about half were…
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Elevated CEA levels
My mother, a 89-year old in a very good physical and mental state, underwent curative surgery (right hemicolectomy) for stage II (T3N0M0) moderately differentiated cecal adenocarcinoma on September 21st 2015. The tumor was found accidentally during a routine colonoscopy screen. The operation was not followed by…
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Ken "The Snake" Stabler In HOF. One of us
He should have been in the Football H.O.F. a long time ago. I did not realize that he had colon cancer until the announcement today of his induction.
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Met to lung possibly
I am sorry I only come here to ask for help and to be talked off the ledge so to speak but I honestly have no place else to go. So my husband after having his CEA go from 2.24 to 4.88 in november ins refused a pet ct, covered a regular ct scan which showed nothing. Except a reactive cardiophrenic angle node. Since it was…
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Its that time again
I see a pattern, and I don't know how to break it. My CT Scan and bloods are on the 27th. I feel myself slipping from the happy, carefree, positive person I am as I approach the scans and blood work. It feels like their is cotton wool in my head and I can't get it out. I want to smile and be happy, I do smile and I am…
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Need some advice....port removal
Ok...so in a nutshell...I just finished my 12 rounds of folfox and 6 weeks of chemo/radiation after surgery in spring to remove tumor (staged at 3a - one lymph node, scans clear). I was told by my oncologist that I would get a cea test, 3 months follow up. I had a cea of 7.5 in the beginning of all of this and a 6 month…
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My friend just told me her 1 spot on the lungs is now 3. I'm looking for helpful info, posts
My friend at work had 1 teeny tiny lung spot, now she has 3. The doctor is not opting to do chemo, says there is no point and you just watch these spots. Anyone go through this same experience who can share their opinion/experience?
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RickMurtagh had a birthday Feb 2nd
Dear Rick I hope you had a wonderful Birthday, filled with the joys of life. We always appreciate you popping by and giving us encouragement and sharing your wealth of knowledge.
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Yummy
Port accessed. Chugged the contrast. Waiting to be taken in for pictures of my insides :)
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CEA 625 and no cancer signs
Dear All, My father underwent a color cancer surgery in Apr 2013 and post that he had been cancer free. We also came to know then that he has liver cirrhosis and hence his CEA levels has been high always, in range of 50-70 for last three year. Suddenly in last week of Jan, his bilirubin level just shoot up (cause of…
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Colostomy for anal cancer
I have Stage 3a Neuroendocrine carcinoma anal cancer took 6 rounds of chemo and 33 rounds of radiation and only scar tissue was left now it has return only 6 months after treatment stop facing surgery now for permanent colostomy any advice on preparing for this is appreciated
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Is Oxaliplatin the most important drug in Folfox Treatment?
My husband Tim is having a rough time with neuropathy in his hands, feet, mouth, tongue. He said he just can't take it anymore. The Onc. has cut back and he takes Gabapentin 300 mg 3 times a day but it is still bothering him. Folfox w/avastin is working and I am afraid if he stops the Oxal. meds the treatment will quit…
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Another year goes by
Anniversary today, my cancer was removed on this day in 1998 , so ends year 18 of survival , start year 19. Ron Best wishes to all still in treatment.
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A clear scan and a 2.0 CEA, good for 4 more months.
I know others are getting tested, and you have all my hopes and thoughts, that you get to move one step closer to freedom from this yoke. For those who don't get a break, I put out the idea that surviving is moving towards that treatment that will change the game with this lousy disease...............................Dave
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PET Scan, what to expect
I've always been wimpy abut things like needles and pain. Having cancer and then the PE didn't make me tougher, it made me wimpier, if anything. So I have the PET scan coming up on Thursday morning and I'm wondering what's involved. They said they inject sugar and see where the cancer grabs it and then it lights up if…
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CEA and Oncology Appointment Update
Hi all, Yesterday I met with my Oncologist. She said my CEA test showed it is staying stable. My CEA has not gone below 3 since my last rounds of chemo and yet all the scans, including PET scans show nothing. My Dr says not everyone has the same normal and we work with what seems the baseline for me. I can do that. All my…
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Liver Resection and PVE
Doctor wants to perform a Portal Vein Embolization to enlarge left lobe. Right lobe contains two cancerous lesions from Stage IV Colon cancer. I like the less invasive ablation. Any thoughts? Pros and cons?
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Update - good news
Hello all; Just got news from Stanford that my last CT scan was good - NED and the CEA is below 1. This is after a stage 4 dx nine years ago. I wish I had a magic receipe to share with all. Celebrated briefly.... took the dogs to the park... fixed dinner and now the wife and kids can breathe easier for the next year. I am…
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Surgery...rectal cancer surgery...probable apr...freaking out...eeekkkk
hi everyone, I know there are worse things than this....but, it is really even hard to write. I thought i was finally coming to terms with the idea of having an lar with tme. i had the neoadjuvant chemoradiation to shrink my tumor because it is so low. So, they are talking about the sphincter saving surgery all along and…
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Hey Folks just checking in !!!!
Good evening Semi's Just checking in today and i was going over alot of my old posts and was thiking of all the friends that i have made over the years. I miss all that were called home God bless them. For all who are in the fight may God bless you. It hasn't been easy, i have had a reoccurence in 2009, many surgeries for…
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Happy Birthday to our dear Phil (Phil64)
Happy Birthday to you! Happy Birthday to you! Happy Birthday dear Phi-il! Happy Birthday to you! - Sue - Trubrit