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Update on my husband
i posted a month ago that he would be starting lonsurf aka tas102. He did one round ( or half a round?...first two weeks out of the month) he was supposed to start again yesterday. his blood counts and calcium tanked. Been going for infusions and transfusions weekly and feeling lousy. Friday he went in for calcium and…
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Happy Birthday Marbleotis
I hope you are having a super duper day, filled with wonderful things like family, life, cake, and gifts of love . Thinking of you!
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Bugs me...surgeon that doesn't have much conversation...
hi everyone, I have a prior post regarding my concerns at having an APR, and am grateful for all the responses, regarding my fears of having this radical surgery. i am really uncomfortable with the procedure, and maybe someone can give me some insight as to my main concerns. A little background: I have a very low, but…
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Diet
Hi all ! It's been a long time since I been on here but I really need some advice from people going through the same issues and from non cancer patients who don't underst what we go through! I was diagnosed with colon cancer in 2110 , had a foot of my colon removed, Two liver rejections. And a tumors removed from my…
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HIPEC Procedure
My husband has had a recurrence of cancer in his colon at the same location of the surgery and a couple of tumors where spotted on the abdominal wall... Once we found out the cancer had returned, the Oncologist recommended a new cocktail and to complete four treatments of chemotherapy, then we will rescan to determine how…
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Musing
i just read an article about David Bowie and a sentence jumped out at me ... 'It was a fight not against death, but a fight to live' That really resonated with me. Just thought I'd share. Sue - Trubrit
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Cancer Fear, an article
I just read this and really liked it. I hope you all enjoy it, too. http://www.curetoday.com/community/dana-stewart/2016/01/breaking-up-with-fear-life-after-a-cancer-diagnosis
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Possible Colorectal cancer
HI I am a 21 year old male and I am new here. I have no family history of colon cancer or colon problems but my grandfather had kidney cancer got his kidney removed and caught lymphoma and ended up dying from it at 61. About 2 weeks ago, I was on vacation and I noticed red streaks in my stool and I thought nothing of it…
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Not exactly the results we'd hoped for
Met with both the medical oncologist and radiation oncologist today and got the results of the CT scan I had on Friday. Everything that showed up on the previous scans is stable except for the liver mass in the right lobe. It went from 1.5 cm to 1 cm after 8 rounds of FOLFOX plus Avastin, but after being only on the 5-FU…
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Blue Star Lapel Colon Cancer Pin
Hi all, I seen on this site that this is colon cancer awareness month and that the cancer society is supposed to have lapel pins that you can get for a $5.00 donation. I called my local agency and the national one that had their number listed here and they are all out of pins and don't expect to get anymore. Does anyone…
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Not NED
Sorry I have been away for awhile. On 1/19/16 I had an MRI and on the 20th my oncologist told me the cancer is now in my liver. He said it is 4.8 cm x 4.1 cm in size. When he told me I felt like I had been hit in the face with a brick. I am still Dazed and Confused. They have not decited to do 3 months chemo before and 3…
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Sleep Apnea and cancer. How many have both?
There are unsubstanitated connections between sleep apnea and cancer, research still going on. Debates rage. I have noticed a few people on here have said they have it. Out of curiousity, how many have sleep apnea? I am one.
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"Top 9 behaviors and attitudes"...just a little insightful thing
hey everyone, a while back I saw this little list in a magazine. It is supposed to be a recovery type thing, and I just found it helpful and so I am sharing it here. I believe that even if positive thinking and meditation stuff doesn't take something away physically, I still believe in, and find hope and strength in…
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TRIAL RUNS
HAS ANYONE BEEN CONSIDERED FOR TUMOR MARKER BIOPSY STUDIES - FOX CHASE WANTS TO GATHER ALL MY PAST BIOPSIES TO SEE IF THERE IS ANOTHER FASTER WAY TO TREAT MY LIVER TUMOR - NOT SURE WHAT TO DO ANY HELP OR ADVISE WOULD BE GREATLY APPRECIATED! Thank u
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Facing surgery LAR for rectal
Hi everyone. It has been a while, but I really appreciate the support here and so I would love some insight on my upcomimg surgery. Don't scare me, I am not sure I won't chicken out--lol. I see the surgeon this thursday and he will do a sigmoidoscopy to check on the tumor. I had neoadjuvant chemoradiation, and a follow-up…
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Caregiver Question
I hope its okay that I have joined you all. I really truly appreciate all the stories you have posted - your successs give me strengthened hope. My husband was diagnosed with liver cancer a year ago. He had a chemo embolization and SBRT? radiation. It worked. He went thru a million tests to get on the transplant list -…
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Anyone diagnosed with Lynch Syndrome?
My 22 year old daughter was diagnosed with Stage 2 Colon Cancer and had a grapefruit sized mass removed along with the ascending colon back in September. THe surgeon felt that she had most likely removed it all. It was not through the lining of her colon and 40 lymphnodes that were tested were clear of cancer, but the size…
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Now Glenn Frey, I'm getting depressed
I guess being a boomer means more of this, more often. He was the healthy one, I thought. He used to do like Bally's fitness commercials. They say he had Rheumatoid arthritis, acute ulcerative colitis, and pneumonia at 67. Sounds like a miserable finish to an exceptional life. I always enjoyed the…
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Low dose aspirin
So I had a follow up yesterday. CEA and blood tests. Asked the doc about post chemo diet and exercise. Two take aways. Exercise 20 minutes a day, 5 days a week, enough to get your heart rate up. Second, take low dose aspirin everyday. Apparently recent studies on both items appear to improve recurrence risk and progression…
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David Bowie
Good lord, David Bowie passed away from cancer. I am shocked and saddened. I wonder what type it was. Just shows that the so-called alternative therapies don't work. I'm sure with his money he could have tried all kinds of things. What a shame.
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Clear leakage out of rump
Even tho my husband has a colostomy he is getting clear leakage that drains out of his butt. After 9 treatments, scan shows that there is no tumor left on rectum/colon area (has not had a colonostomy yet tho). He has no control over it comming out, has anyone else had this problem and what would it be from?
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Latest Update on Lung Spots
I went to see the doctor who deals with the radiation if the spots on my lungs are mets and not just scars. I met with a team of three doctors including the one I was booked to see. They figure there's about a 60 to 70 percent chance the spots are cancer. So the next step is a PET scan to see if anything lights up. If they…
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Let's Do The Time Warp Again
When I checked the board it seemed overrun with threads. I actually clicked back to Discussion Boards and back in case I somehow wound up in the wrong place. Some of them seem to be gone now, but it seems a couple of trolls and spammers may be out and about.
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A Year Ago Today
I picked up the report for a scan that my doctor called about (rather concerned saying it was urgent I call) the night before. When the conversation the night before started with "You are young in in otherwise good health," you figure it ain't going to be a fun conversation. He hedged saying he was not an expert on the…
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And now Alan Rickman dead from Cancer
Same age as David Bowie, 69. One of my favourite actors. Two celebreties in one week. So very sad to see, but of course we know so many, many more every day are taken by this insidious disease. Sue - Trubrit
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Update - not great
I should looked at what I last posted so I don't repeat myself. I started Folfiri to address two tumors in my rectum again, a tumor in between my rectum and bladder, a bunch of lymph nodes around my liver and an active tumor in my liver. Inhad a ct scan the other week and got the results last week, it looks like the lymph…
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Illeostomy reversal success rate
I'm on the list to have it reversed but it wiill be months before it would be done, possibly not until the fall. At first I thought I didn't want to do it because I've had IBS my whole life and it's been nice not to have to deal with the pain from that as well as having to live my life around it. My surgeon says that I'm a…
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Having a Down Day
I've just been on Facebook for the last hour or so. And I find that I'm sad now. Two friends are away, one in Disneyland and the other in Vegas which is her fourth time away in the past year. I haven't been anywhere in four years. I'm happy for them but I'm sick of my only positive posts being about not dying. Something…
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It comes in threes
Now Celine Dion's husband has passed away. I really do hope this is the end of, at least the celebrities. I find it very hard watching people die, knowng that its only a matter of time........ Sue - Trubrit
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liver colon resection
Hi I'm new here and I have stage 4 colan / liver. I will be going for a ct scan this week. if all goes well with that I will have colan/liver rection surgery. just wanted to know if any one has gone through this and what to expect. Thanks, Lyn