Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Childhood Cancers

Nausea after treatment
My daughter just completed a 15 month treatment protocol for medulloblastoma. She was diagnosed at age 13, had surgery to remove the tumor, had 6 weeks of proton radiation, and her major chemo drugs were cytoxin, cisplatin, and vincristine. All through treatment she had very severe nausea and vomiting. She just stopped…
Seeking Optimism.
I am looking to be connected to survivors of Stage IV Wilms tumor. My 4 year old twin son was diagnosed with stage IV Wilms last week Monday & had his kidney removed on Tuesday. He has mets to both lungs, the flank, and a tumor bed in an artery to his heart. It seems that most survivors survived because of early detection.…
Neuroblastoma
Why is Neuroblastoma such a common cancer for children ages newborn to seven?
interesting childhood cancer suvivor 'marriage' facts :)
Approximately 270,000 of the 10 million cancer survivors alive in the U.S. were diagnosed and treated before they were old enough to buy themselves a drink, according to the National Cancer Institute. Thanks to scientific advances, as many as 80 percent of children treated for cancer go on to live full lives, but the…
Adult Survivors of Childhood Cancers wanted
I am a student at North Dakota State University and I am taking class called Social Research methods. As part of this class we have to do a research paper. I have decided to do a case study on how surviving cancer changes a person's social role. I am looking to doing a case study on this. If you are interested in…
intraocular melanoma in a child years old ( IPILIMUMAB)
Hello:. i can tell you about my nephew. His name is Alvaro and he is 2 years old. He lives in Madrid (spain) and he has 2 brothers and sisters. the doctor diagnose him an intraocular melanoma 6 months ago. They say this kind of cancer is extremely rare in children. In spain, doctors didn´t know almost anything about it. In…
Wilm's cancer survivor post bone marrow transplant late effects
I have a daughter that is 21 yrs old, cancer childhood survivor of Wilm's tumor. Underwent a bone marrow transplant and have had late effects, we don't know if as a results of hormone therapy or lesions on her vital organs due to chemotherapy, radiation and experimental drugs. Want to know if there are anybody out there…
Cancer Survivor looking for some help.
I am hoping someone can relate to me as I am a 22 yr childhood cancer survivor of HD. In 1988 I had MOPP, ABVD and Radiation. I have had a lot a problems with legs / feet pains to the point that I can not walk. I was told I do have nerve damage in my legs. They think that it is from the Chemo. I also have Hypothyroidism…
neuroblastoma
hi my son (3.5 yrs) was diagnosed with stage 4 neuroblastoma earlier this week. the surgery was today and it looks like he will start Chemo sometime this coming weekend. is there anyone out there that is facing the same stuff (or has been)? Also looking to hear from parents of survivors (with similar staging/age) thank you
Hello Everybody!
Hello Everybody! I would just like to introduce myself since I am new here... I was 16 when I was diagnosed with testicular cancer... received my chemo treatments (total of 6) at CHOP, and had my first big surgery at HUP (Hospital University of PA), then at CHOP, I had lung surgery. I would really appreciate it if you all…
Can My son have children?
My son recently had a sperm count done, he and his wife are in there mid 20's. My son had childhood cancer non hodgekin t-cel lymphoma. He was 3 when first diagonosed. He had all the current treatments avail. at that time. 1987. His cancer came back and had a bonemarrow transplant at age 7. He has just found out that he…
need help please
my lilttle daughter (6years old) was diagnosed with an anaplastic astrocytoma in the brain stem . the docters said we cant do any surgery in this area so we start a radiation for 1.5 month and we finished for more than 1 month now shes became very very lazy what i can do next?
Opinion wanted.
When my son was two years off treatment I was working at a boarding school and we lived there as well. My son had spent from year 2 on living at that campus. As the economy took a dive I was being told I might not have a job for long. I stressed mostly about what this would do to my son, having to move from the only home…
My daughter had ALL Two and a half years ago
My daughter had ALL on Oct.2006 at5 1/2 yrs.old and after two and a half years, she survived. Now we are dealing with the late effects of chemotherapy. Is there anyone else that had this childhood cancer at a young age and dealt with this after affect or a parent of a young child who is or had this late effect problem.
Camp Hope for kids who have or had cancer ages 7-17 in RI, FREE
Camp Hope, sponsored by the American Cancer Society is a weeklong camp for kids who have or had cancer, ages 7-17, and their siblings, free of charge. Located in Northern RI, transportation is not provided, but welcomes patients from all over New England. For more information www.cancer.org/camphoperi.
HELLO, I'D LIKE TO GET TO KNOW CANCER SURVIVORS MY AGE.
My name is Lorraine and I'm 16 years old. I'd really like to get to know people who have been diagnosed with cancer and who would like to talk. Please email me at dejablu2487@hotmail.com Thanks
Paratesticular Alveolar Rhabdomyosarcoma
Just wondering if there are any people out there with this particular cancer or any long term survivors of it? My son was diagnosed at the beginning of the year and has undergone three surgeries, chemo and radiotherapy. His treatment is complete and he is in remission. I would just like to hear from anyone with any…
child hood rabdomyosarcoma
hi i had child hood rms be tween ages 5 &6 in 1977 i have never realy talk about it i am 37 now and i dont no what to gain from this
Hormone Replacement Therapy
I was diagnosed with cancer at 15. I'm 21 now and still on Birth control pills to "maintain bone density and perserve any chance of future children" according to my OBGYN. I've always felt uneasy about being on synthetic hormones, especially with all the studies out about the link to BC. My doctor claims that the link is…
child with luekemia
Hi, My name is Sandi. I am a hodgkins lymphoma survivor, and I have recently been asked to prepare a meal for a family whose one year old son is getting treatment. They travel a distance, so the dinner meal being made for them when they come home is helpful. I just wanted to know if there was something else I could do to…
survivor of childhood HD
My mom was treated for HD when she was 17 years old and was treated with radiation. She is now 49. Last Nov ('02) she found a lump in her breast which turned out to be pos for cancer. she was treated with radation again and now needs to begin taking tamoxophin. In Aug. (03) she went to the dermatologist who found and…
LT survivors of teenage cancers
Hello - I was diagnosed with Hodgkin's Disease at 17 and after 12 cycles of ABVD, was given a clean bill of health. What I wasn't prepared for was the psychosocial issues I was dealing with a year later. I experienced severe anxiety attacks and have had bouts with depression. Currently, I'm a graduate student in the…
ex abusing 3 yr old who has brain cancer
I need your help. I have a three year old son with brain cancer and a family law judge that has given his abusive father unsupervised visitation with him in the hospital which resulted in the father emotionally the child during visits. The judge has confirmed that the father has engaged in domestic violence and has ordered…
pregnancy after cancer/ovarian failure
Hi. I had CML and a bone marrow transplant at age 12. The radiation I had put me in ovarian failure/menopause. I was told I could not have children. I was put on hormone replacement therapy. On June 3, 2000, i was married and on June 30, I found out that I was pregnant with our little miracle and honeymoon baby, Randy. I…
going back to college
I am a long term survivor, 37 years. I am seriously thinking of returning to college at some time in the future. Are there any other survivors out there that have also done this and what where your experiences. Was it harder or easier the second time around. Did you find the system to accomidate you regarding late effects?…
Dating; when/how do you tell?
Is there any easy way to tell someone that you have had cancer, or at least to bring it up? I feel that I am getting to the point where I should tell, but I am hesitant and nervous to do so. I was sick during my late teens "prime dating-age" and needless to say miss some of the knowledge you would ordinarily gain. I know…
Rhabdo Survivor
Hello, everyone. This is my first time chatting as a "cancer survivor", but I have found that the disfigurement caused by my treatment has left me with more scars than the cancer itself. Please contact me if you have had a similar experience.
21 year survivor
Hey, new to the room but by no means new to the wrath of cancer. Faced with the question; "Who would cancer hurt more? A child that hasn't lived life yet; or an adult who has experienced most of what it has to offer and will lose what he/she is accustomed to?" I'm one sided on the answer, diagnosed with cancer at 12 months…
stressing that i can't remember
hi everyone, this is my first post here and i'm so grateful to have found this site as i don't have anyone to talk to that could possibly understand. i hope someone here might be able to help. I had a stage four Wilm's tumour when i was three, and have now been clear for nearly eighteen years. i've never really given being…
Adult Survivors Of Childhood Cancers Group in Houston
It well be survivor help survivor. People who understand what it like ti be a survivor. Please no Doctor or medical person or parent. You input please. Your long term survivor 38yr.

Childhood Cancers

Discussion List

Discussion Boards