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introducing myself
Hi,my name is Ayarna Wilson and i was diagnosed with wilms tumor at the age of 3 iam 20 years old know. I had my surgery done at University my doctor had sent me there i thank god that i have not had any problems since then because i see children dying every day from it. I use to go to a camp called camp rainbow where i…
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watchful waiting
his name is aaiden he tried to enter in this world on the fourth of july but instead held on 3wks only to be 3wks early after a very difficult pregnancy with different surgeries for kidney issues but he is 2 1/2 now and has been experiencing my different ills with no diagnosis in september a biopsy revealed he had…
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Barbie doll
This is going around Facebook and I think it's a wonderful idea. I love this idea!! Mattel should make a Barbie with no hair so that every little girl fighting cancer feels beautiful!! Put her in pink, name her HOPE and send the proceeds to St. Jude. I watched my daughter battle melanoma and I just finished my chemo for…
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ganglioneuroblastoma at 2 + spinal decompression + instrumentation
Just wondering if there is anyone out there with similar medical history to my daughter's who would like to share their experiences, please? 1. Diagnosed at 21 months with ganglioneuroblastoma (massive tumour in her chest, left lung mostly compressed, stretching along most of her spine and also inside her spinal…
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ganglioneuroblastoma at 2 + spinal decompression + instrumentation
Just wondering if there is anyone out there with similar medical history to my daughter's who would like to share their experiences, please? 1. Diagnosed at 21 months with ganglioneuroblastoma (massive tumour in her chest, left lung mostly compressed, stretching along most of her spine and also inside her spinal…
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Chemo and radiation side affects on pelvic area
hi.. I am a mom of a survivor of Rabdo.. she is 6 yrs out.. she was diagnosed at age 4 with stage 4..her tumor sat on her uterus and was all over her abdomine area... she was treated for two yrs.. did the national protocal.. she and her tumor were so responsive to her chemo and radiation we blessed.. we are now having side…
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Brain Cancer Surviver
Hey all I am new here and am looking for some friends, My name is Kevin and I am a Childhood Brain Cancer surviver, I was diagnosed on May of 92 and now am 23. Been in remission for going on 12 years now. I am from a small town in NW Alabama, and I have a Support group for Teens and Young adults Survivers in Muscle shoals…
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Survivors of grade 2 malignant (cancerous) brain tumor
I was diagnosed at age 10 and have been in remission for nearly 19 1/2 years. I just want to know i am not the only one who survived a cancer so severe.
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Oligodendroglioma in 10 year old
My 10 year old son Alex, has been diagnosed as having an oligodendroglioma originating from his hypothalamus this week. The biopsy has narrowed things down but now there is a recommendation of a partial resection and chemo by his medical team since total resection would be impossible due to the location of the tumor. I…
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My 3 year old daughter was diagnosed with Grade III Oligodendrogiloma possibly Mixed Tumor
From what I've researched, this type of tumor is very rare in children and also among females. The location of the tumor was in the spinal chord, she had 95% resection surgery back in March 2010. She is currently on the 11th cycle of oral Temozolomide. I would like to learn from others going through similar situations.
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Need advice from parents of children with cancer
A friend of mine's daughter was diagnosed with stage 3b melanoma, she is 12. She has had surgery to remove the cancer and all the lymphnodes is her affected leg. My friend is very (over) protective of her daughter and has always done everything to sheild her daughter from any discomfort. My friend is dragging her feet on…
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Teeth problems after childhood leukemia (ALL)
Hello, I'm 28, I had ALL leukemia when I was 6. I have got 4 bottom teeth (molars) who don't have any enamel left on them at all. I think my teeth have been like that since I was 16 or maybe younger. The dentist said that I had teeth of an 80 year old. I have the feeling that it must be the chemotherapy when I was 6 years…
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SURVIVORS OF CHILDHOOD CANCER
Hello Everyone, I am the sister of a cancer survivor. My brother Chris was diagnosed at age 7 with Astrocytoma grade III. He is now 31 and continues to deal with an array of medical issues due to the aftereffects of radiation and chemotherapy. He started his own website in order to help him deal with his emotional and…
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Late Effects of Cancer Treatment
Something that I've been interested in for a long time is connecting with other survivors and finding out what they have experienced as Late Effects from cancer treatment. Late effects are the side effects of cancer treatment after it is over. I have a variety of late effects and I first learned that was a name for all…
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50 years, cancer free
I am celebrating 50 years of fantastic years since my battle with cancer of the larynx in 1959 at age six. I have lived a wonderful and blessed life. I met a beautiful lady in 2006 from Bohol, Philippines and I depart Oct. 28 to bring Gemma and her five year old daughter back with me and to plan our wedding, Feb. 21, 2009.…
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15 year old with cancer
Hi there, I am new to the site and in South Africa!!! For some reason I cannot get into the chat rooms but would love to speak to Mums..... My 15 year old daughter was diagnosed 6 weeks ago with cancer and is currently receiving chemo. I am also looking for children in her age group who are either receiving or have…
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Genetic Testing- Request advice
Hi, As I posted earlier, my 5 yrs old daughter earned her wings a week back. She was battling against the deadly ATRT brain cancer. We had only one child and at this point in time we are all shattered. She was our life and we are not able to think anything beyond her loss. While we would never be able to stop missing her,…
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Anaplastic Astrocytoma
I have been looking alot of places on the web and here on CSN to find other children or parents of children with AA3. I have talked to a few, but I find it hard to believe that there are so few. One of the oncologist from our last hosp told us that there was only a hand full of documented AA3 pedi pts in the country. He…
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Dietary advise, please help.
My son was recently diagnosed with ALL. I'm confused by dietary guidelines as most oncologists often advise to go for normal eating habits. I'm caught in dilemma, not knowing which one to go for. I ache for my son, he doesn't take any more candy bars and chips, part of his childhood has been taken away... I'm always in…
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HI
I don't know if this is the right place for this, but...I'm a kid and I have cancer so I'm just puttin two and two together. And well that makes four and this makes sence so I'm puttin this here. :) HI! :D I have cancer and was just diagnosed February 24, 2011. It's a desmoid tumor with cancerous cells inside of it. I was…
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A question for the people who don't remember...
I was diagnosed with neuroblastoma at about 9 months and went into remission about two years later. I don't remember anything from my stay in the hospital. I don't remember anything at all because i was so young. When people first see my scars (one of which closely resembles a c-section scar and since this whole "16 &…
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Seeking long term Survivors of Stage IV Wilms
Please, I am looking for long term surviors specifically of Stage IV Wilms Tumor. I have 4 year old twins and we are 4 months into treatment.
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small cell cancer throat/lymph nodes (no lung involvement)
My dad was recently diagnosed with small cell cancer of the throat and lymph nodes. He was told that there is not any head or lung involvement. I have been searching for information on this type of cancer to find out the prognosis, treatments etc. The only information that I find is on small cell lung cancer. Please…
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my scars
hello there!! i am a 16 year cancer survivor, i was diagnosed with retinoblastoma at the age of 11 months. after countless surgeries i have multiple scars, and they arent just little scars either. :( my scars from all my surgeries have been seriously bothering me lately. i get like sharp pains and they get itchy an…
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grandson diagnosed with Round Cell Sarcoma
left eye
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Discussion about first treatment appointment
Hi Everyone, My name is Amanda and I was diagnosed with Stage 4 Hodgkins Lymphoma five years ago. Thankfully, I am now doing very well! This experience has inspired me to improve upon the treatment process from a patients point of view. One of the hardest times for me was the beginning of the treatment process when…
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rhabdomyosarcoma alveolar 15 y/o Stage 4 Group 4
Good morning, I am looking for like type of cancer and information. My background is a paramedic. I typically don't do long term disease processes, however, my teenager is being annoyed by ARMS cancer. I have probally spent more time learning about cancer cells, the limited research that is out there and the treatment…
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Primary Central Nervous System Lymphoma
My 10 year son has this very rare brain cancer. He was in perfect health prior to this if any one has a child with this I would love to get some information from you.
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Neuroblastoma and Fertility
Hi. I'm Julie, neuroblastoma survivor. They found my tumor in 1976 when I was 6 months old and stopped moving my legs (I live with partial paralysis as a result of the cancer). I was on chemo/radiation for 2 years. My husband and I are trying to have a child. When the natural way wasn't working, I had some tests done, and…
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Retinoblastoma
I am looking for anyone in the North Carolina area whose child has or has had Retinoblastoma. I am looking for support and trying to put a support group together. My daughter is 4 years old and was diagnosed with this cancer at the age of 2.