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Brain Cancer Surviver
Hey all I am new here and am looking for some friends, My name is Kevin and I am a Childhood Brain Cancer surviver, I was diagnosed on May of 92 and now am 23. Been in remission for going on 12 years now. I am from a small town in NW Alabama, and I have a Support group for Teens and Young adults Survivers in Muscle shoals…
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Survivors of grade 2 malignant (cancerous) brain tumor
I was diagnosed at age 10 and have been in remission for nearly 19 1/2 years. I just want to know i am not the only one who survived a cancer so severe.
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Oligodendroglioma in 10 year old
My 10 year old son Alex, has been diagnosed as having an oligodendroglioma originating from his hypothalamus this week. The biopsy has narrowed things down but now there is a recommendation of a partial resection and chemo by his medical team since total resection would be impossible due to the location of the tumor. I…
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My 3 year old daughter was diagnosed with Grade III Oligodendrogiloma possibly Mixed Tumor
From what I've researched, this type of tumor is very rare in children and also among females. The location of the tumor was in the spinal chord, she had 95% resection surgery back in March 2010. She is currently on the 11th cycle of oral Temozolomide. I would like to learn from others going through similar situations.
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Need advice from parents of children with cancer
A friend of mine's daughter was diagnosed with stage 3b melanoma, she is 12. She has had surgery to remove the cancer and all the lymphnodes is her affected leg. My friend is very (over) protective of her daughter and has always done everything to sheild her daughter from any discomfort. My friend is dragging her feet on…
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Teeth problems after childhood leukemia (ALL)
Hello, I'm 28, I had ALL leukemia when I was 6. I have got 4 bottom teeth (molars) who don't have any enamel left on them at all. I think my teeth have been like that since I was 16 or maybe younger. The dentist said that I had teeth of an 80 year old. I have the feeling that it must be the chemotherapy when I was 6 years…
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SURVIVORS OF CHILDHOOD CANCER
Hello Everyone, I am the sister of a cancer survivor. My brother Chris was diagnosed at age 7 with Astrocytoma grade III. He is now 31 and continues to deal with an array of medical issues due to the aftereffects of radiation and chemotherapy. He started his own website in order to help him deal with his emotional and…
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Late Effects of Cancer Treatment
Something that I've been interested in for a long time is connecting with other survivors and finding out what they have experienced as Late Effects from cancer treatment. Late effects are the side effects of cancer treatment after it is over. I have a variety of late effects and I first learned that was a name for all…
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50 years, cancer free
I am celebrating 50 years of fantastic years since my battle with cancer of the larynx in 1959 at age six. I have lived a wonderful and blessed life. I met a beautiful lady in 2006 from Bohol, Philippines and I depart Oct. 28 to bring Gemma and her five year old daughter back with me and to plan our wedding, Feb. 21, 2009.…
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15 year old with cancer
Hi there, I am new to the site and in South Africa!!! For some reason I cannot get into the chat rooms but would love to speak to Mums..... My 15 year old daughter was diagnosed 6 weeks ago with cancer and is currently receiving chemo. I am also looking for children in her age group who are either receiving or have…
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Genetic Testing- Request advice
Hi, As I posted earlier, my 5 yrs old daughter earned her wings a week back. She was battling against the deadly ATRT brain cancer. We had only one child and at this point in time we are all shattered. She was our life and we are not able to think anything beyond her loss. While we would never be able to stop missing her,…
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Anaplastic Astrocytoma
I have been looking alot of places on the web and here on CSN to find other children or parents of children with AA3. I have talked to a few, but I find it hard to believe that there are so few. One of the oncologist from our last hosp told us that there was only a hand full of documented AA3 pedi pts in the country. He…
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Dietary advise, please help.
My son was recently diagnosed with ALL. I'm confused by dietary guidelines as most oncologists often advise to go for normal eating habits. I'm caught in dilemma, not knowing which one to go for. I ache for my son, he doesn't take any more candy bars and chips, part of his childhood has been taken away... I'm always in…
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HI
I don't know if this is the right place for this, but...I'm a kid and I have cancer so I'm just puttin two and two together. And well that makes four and this makes sence so I'm puttin this here. :) HI! :D I have cancer and was just diagnosed February 24, 2011. It's a desmoid tumor with cancerous cells inside of it. I was…
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A question for the people who don't remember...
I was diagnosed with neuroblastoma at about 9 months and went into remission about two years later. I don't remember anything from my stay in the hospital. I don't remember anything at all because i was so young. When people first see my scars (one of which closely resembles a c-section scar and since this whole "16 &…
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Seeking long term Survivors of Stage IV Wilms
Please, I am looking for long term surviors specifically of Stage IV Wilms Tumor. I have 4 year old twins and we are 4 months into treatment.
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small cell cancer throat/lymph nodes (no lung involvement)
My dad was recently diagnosed with small cell cancer of the throat and lymph nodes. He was told that there is not any head or lung involvement. I have been searching for information on this type of cancer to find out the prognosis, treatments etc. The only information that I find is on small cell lung cancer. Please…
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my scars
hello there!! i am a 16 year cancer survivor, i was diagnosed with retinoblastoma at the age of 11 months. after countless surgeries i have multiple scars, and they arent just little scars either. :( my scars from all my surgeries have been seriously bothering me lately. i get like sharp pains and they get itchy an…
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grandson diagnosed with Round Cell Sarcoma
left eye
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Discussion about first treatment appointment
Hi Everyone, My name is Amanda and I was diagnosed with Stage 4 Hodgkins Lymphoma five years ago. Thankfully, I am now doing very well! This experience has inspired me to improve upon the treatment process from a patients point of view. One of the hardest times for me was the beginning of the treatment process when…
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rhabdomyosarcoma alveolar 15 y/o Stage 4 Group 4
Good morning, I am looking for like type of cancer and information. My background is a paramedic. I typically don't do long term disease processes, however, my teenager is being annoyed by ARMS cancer. I have probally spent more time learning about cancer cells, the limited research that is out there and the treatment…
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Primary Central Nervous System Lymphoma
My 10 year son has this very rare brain cancer. He was in perfect health prior to this if any one has a child with this I would love to get some information from you.
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Neuroblastoma and Fertility
Hi. I'm Julie, neuroblastoma survivor. They found my tumor in 1976 when I was 6 months old and stopped moving my legs (I live with partial paralysis as a result of the cancer). I was on chemo/radiation for 2 years. My husband and I are trying to have a child. When the natural way wasn't working, I had some tests done, and…
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Retinoblastoma
I am looking for anyone in the North Carolina area whose child has or has had Retinoblastoma. I am looking for support and trying to put a support group together. My daughter is 4 years old and was diagnosed with this cancer at the age of 2.
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Divorce rate
Does anyone happen to know where i could find the divorce rate or the % of single parents of children that have been diagnosed with a terminal illnes. Thanks for the help i'm working on information that will help to show correlation.
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cancer treatment centers of america
anyone have experience with these hospitals
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need info support groups Los Angeles
first time in website not sure if I got correct discussion board or am submitting correct subject. In August 2010 my wife pass away of breast, lung, and brain cancer. in Feb 2010 my 21 y/o son was diagnosed with colon cancer, on Sep 2, 2010 my 18 y/o son was diagnosed with bone cancer (osteomyoloma) very hard on them…
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much respect
Much respect to all of the children fighting this horrible disease. I often watch how courages the younger people are whne they are in the battle for thier lives. I can learn something from this because I dont have half the courage of many of the children who have cancer.
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Dating
This question is more for survivors around 20-25. As I hit the years of dating I find it hard to connect with someone. I always struggle between telling them about my past or just waiting and seeing if it will eventually come up. This is not something we talk openly about in my family, its more of a "past memory" that we…
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Periods, Ladies?
Hello to all here. My name is Sarah, and I was first diagnosed with ALL in 2004, relapsing in 2007. I was wondering if any childhood cancer survivors had, or rather didn't have their periods start until later on? I am asking this simply because I'm one of the only girls my age without one. Not that I'm particularly…