-
This was written by a young girl with cancer.....
This poem was written by a terminally ill young girl in a New York Hospital. It was sent by a medical doctor - Make sure to read what is in the closing statement AFTER THE POEM. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ SLOW DANCE ! !…
-
"Osteogenic Sarcoma"--a Childhood Cancer?
I am a 32 year survivor of what my doctors all called "osteogenic sarcoma." Everyone else just called it bone cancer. I was treated in Sloan Kettering at Memorial Hospital in New York, but my surgery, recovery, and subsequent chemotherapy all occurred in the child's floor. For some reason that I can't remember, the doctors…
-
OT - video
I am a member of a different board I just thought some people may not have seen this and might enjoy it! http://www.youtube.com/watch?v=ihGCj5mfCk8
-
telling it to someone important to you
Hello, I am a patient who has been diagnosed and treated in 2006 and again for a relapse in 2008-2009,,, actually, the problem was more with this disease in the family of paraneoplastic syndrome,,, but I ended up in a wheelchair in 2009… and am still using a wheelchair. It isn’t that I am completely paralyzed, but I just…
-
Advice/words/knowledge for my 2 year old !
I’m not sure if this is the right place to find some advice but I hope it is, I’m from the UK & I am finding it very difficult to find anyone who is or has been in my position as Lymphoma in children is rare. My two year old son has had enlarged lymph nodes for about nine months, it was first noticed with two in his neck…
-
Anaplastic T cell Lymphoma - any kids out there with this?
Our 9 yr old son, Evan was diagnosed with Anaplastic T cell Large Lymphoma (Non-Hodgkins Lymphoma) in Oct 2011 and still on chemo. International studies conclude there's no optimal treatment so the U.S. uses a leukemia-type protocol. Other countries use a B-cell lymphoma protocol....it's all guess work. We read that…
-
introducing myself
Hi,my name is Ayarna Wilson and i was diagnosed with wilms tumor at the age of 3 iam 20 years old know. I had my surgery done at University my doctor had sent me there i thank god that i have not had any problems since then because i see children dying every day from it. I use to go to a camp called camp rainbow where i…
-
introducing myself
Hi,my name is Ayarna Wilson and i was diagnosed with wilms tumor at the age of 3 iam 20 years old know. I had my surgery done at University my doctor had sent me there i thank god that i have not had any problems since then because i see children dying every day from it. I use to go to a camp called camp rainbow where i…
-
watchful waiting
his name is aaiden he tried to enter in this world on the fourth of july but instead held on 3wks only to be 3wks early after a very difficult pregnancy with different surgeries for kidney issues but he is 2 1/2 now and has been experiencing my different ills with no diagnosis in september a biopsy revealed he had…
-
Barbie doll
This is going around Facebook and I think it's a wonderful idea. I love this idea!! Mattel should make a Barbie with no hair so that every little girl fighting cancer feels beautiful!! Put her in pink, name her HOPE and send the proceeds to St. Jude. I watched my daughter battle melanoma and I just finished my chemo for…
-
ganglioneuroblastoma at 2 + spinal decompression + instrumentation
Just wondering if there is anyone out there with similar medical history to my daughter's who would like to share their experiences, please? 1. Diagnosed at 21 months with ganglioneuroblastoma (massive tumour in her chest, left lung mostly compressed, stretching along most of her spine and also inside her spinal…
-
ganglioneuroblastoma at 2 + spinal decompression + instrumentation
Just wondering if there is anyone out there with similar medical history to my daughter's who would like to share their experiences, please? 1. Diagnosed at 21 months with ganglioneuroblastoma (massive tumour in her chest, left lung mostly compressed, stretching along most of her spine and also inside her spinal…
-
Chemo and radiation side affects on pelvic area
hi.. I am a mom of a survivor of Rabdo.. she is 6 yrs out.. she was diagnosed at age 4 with stage 4..her tumor sat on her uterus and was all over her abdomine area... she was treated for two yrs.. did the national protocal.. she and her tumor were so responsive to her chemo and radiation we blessed.. we are now having side…
-
Brain Cancer Surviver
Hey all I am new here and am looking for some friends, My name is Kevin and I am a Childhood Brain Cancer surviver, I was diagnosed on May of 92 and now am 23. Been in remission for going on 12 years now. I am from a small town in NW Alabama, and I have a Support group for Teens and Young adults Survivers in Muscle shoals…
-
Survivors of grade 2 malignant (cancerous) brain tumor
I was diagnosed at age 10 and have been in remission for nearly 19 1/2 years. I just want to know i am not the only one who survived a cancer so severe.
-
Oligodendroglioma in 10 year old
My 10 year old son Alex, has been diagnosed as having an oligodendroglioma originating from his hypothalamus this week. The biopsy has narrowed things down but now there is a recommendation of a partial resection and chemo by his medical team since total resection would be impossible due to the location of the tumor. I…
-
My 3 year old daughter was diagnosed with Grade III Oligodendrogiloma possibly Mixed Tumor
From what I've researched, this type of tumor is very rare in children and also among females. The location of the tumor was in the spinal chord, she had 95% resection surgery back in March 2010. She is currently on the 11th cycle of oral Temozolomide. I would like to learn from others going through similar situations.
-
Need advice from parents of children with cancer
A friend of mine's daughter was diagnosed with stage 3b melanoma, she is 12. She has had surgery to remove the cancer and all the lymphnodes is her affected leg. My friend is very (over) protective of her daughter and has always done everything to sheild her daughter from any discomfort. My friend is dragging her feet on…
-
Teeth problems after childhood leukemia (ALL)
Hello, I'm 28, I had ALL leukemia when I was 6. I have got 4 bottom teeth (molars) who don't have any enamel left on them at all. I think my teeth have been like that since I was 16 or maybe younger. The dentist said that I had teeth of an 80 year old. I have the feeling that it must be the chemotherapy when I was 6 years…
-
SURVIVORS OF CHILDHOOD CANCER
Hello Everyone, I am the sister of a cancer survivor. My brother Chris was diagnosed at age 7 with Astrocytoma grade III. He is now 31 and continues to deal with an array of medical issues due to the aftereffects of radiation and chemotherapy. He started his own website in order to help him deal with his emotional and…
-
Late Effects of Cancer Treatment
Something that I've been interested in for a long time is connecting with other survivors and finding out what they have experienced as Late Effects from cancer treatment. Late effects are the side effects of cancer treatment after it is over. I have a variety of late effects and I first learned that was a name for all…
-
50 years, cancer free
I am celebrating 50 years of fantastic years since my battle with cancer of the larynx in 1959 at age six. I have lived a wonderful and blessed life. I met a beautiful lady in 2006 from Bohol, Philippines and I depart Oct. 28 to bring Gemma and her five year old daughter back with me and to plan our wedding, Feb. 21, 2009.…
-
15 year old with cancer
Hi there, I am new to the site and in South Africa!!! For some reason I cannot get into the chat rooms but would love to speak to Mums..... My 15 year old daughter was diagnosed 6 weeks ago with cancer and is currently receiving chemo. I am also looking for children in her age group who are either receiving or have…
-
Genetic Testing- Request advice
Hi, As I posted earlier, my 5 yrs old daughter earned her wings a week back. She was battling against the deadly ATRT brain cancer. We had only one child and at this point in time we are all shattered. She was our life and we are not able to think anything beyond her loss. While we would never be able to stop missing her,…
-
Anaplastic Astrocytoma
I have been looking alot of places on the web and here on CSN to find other children or parents of children with AA3. I have talked to a few, but I find it hard to believe that there are so few. One of the oncologist from our last hosp told us that there was only a hand full of documented AA3 pedi pts in the country. He…
-
Dietary advise, please help.
My son was recently diagnosed with ALL. I'm confused by dietary guidelines as most oncologists often advise to go for normal eating habits. I'm caught in dilemma, not knowing which one to go for. I ache for my son, he doesn't take any more candy bars and chips, part of his childhood has been taken away... I'm always in…
-
HI
I don't know if this is the right place for this, but...I'm a kid and I have cancer so I'm just puttin two and two together. And well that makes four and this makes sence so I'm puttin this here. :) HI! :D I have cancer and was just diagnosed February 24, 2011. It's a desmoid tumor with cancerous cells inside of it. I was…
-
A question for the people who don't remember...
I was diagnosed with neuroblastoma at about 9 months and went into remission about two years later. I don't remember anything from my stay in the hospital. I don't remember anything at all because i was so young. When people first see my scars (one of which closely resembles a c-section scar and since this whole "16 &…
-
Seeking long term Survivors of Stage IV Wilms
Please, I am looking for long term surviors specifically of Stage IV Wilms Tumor. I have 4 year old twins and we are 4 months into treatment.
-
small cell cancer throat/lymph nodes (no lung involvement)
My dad was recently diagnosed with small cell cancer of the throat and lymph nodes. He was told that there is not any head or lung involvement. I have been searching for information on this type of cancer to find out the prognosis, treatments etc. The only information that I find is on small cell lung cancer. Please…