young adult survivors of childhood leukemia

kerrie
kerrie Member Posts: 12
edited March 2014 in Childhood Cancers #1
I am 22 yers old and had all when i was 3 and a half. I was womdering if there was anyone out there who had the same thing i did and would like to talk.does anyone know of any support groups for young adult survivors?

please write.

Comments

  • terato
    terato Member Posts: 375
    You might try calling your local chapter of the Leukemia and Lymphoma Society of America (formerly Leukemia Society of America) concerning their psycho-social support groups. There may be one in your area designed for young adults. Also, contact the social work department of your treatment centers. Many hospitals offer patient support groups.

    Good luck!
  • elizabethe
    elizabethe Member Posts: 5
    WOW!!! I ALSO was around 3yrs when i was diagnosed with ALL. I received Chemo and radiation. Im now 29. and I'd LOVE to talk. Im in central NY. Email is [email protected] ID LOVE TO HEAR FROM YOU!!
  • frantik
    frantik Member Posts: 20
    terato said:

    You might try calling your local chapter of the Leukemia and Lymphoma Society of America (formerly Leukemia Society of America) concerning their psycho-social support groups. There may be one in your area designed for young adults. Also, contact the social work department of your treatment centers. Many hospitals offer patient support groups.

    Good luck!

    Hi Kerrie:

    I am a 32 year old survivor of Wilms and lung mets. I was 2 when first diagnosed. I have looked long and hard for a survivor support group. I have had no luck in my area. I have been told only about groups for those currently in treatment or shortly thereafter. Since I had it so long ago and my issues are so different, that doesn't interest me at all.

    The best thing I've found is an online group of long-term survivors. It's a VERY active list. And I think that Elizabeth might be interested as well. Follow this link to find out more:
    http://listserv.acor.org/archives/lt-survivors.html

    Not only are there survivors of many types of cancers, but also physicians and other types of specialists knowledgeable about late effects. I mean no disrespect to this list, but I can't keep this resource to myself.

    Also, as I told Elizabeth on another post, if you don't have this book, GET IT:
    "Childhood Cancer Survivors-A Practical Guide to your Future" by Nancy Keene, Wendy Hobbie, and Kathy Ruccione.

    Best wishes,
    Fran
  • kerrie
    kerrie Member Posts: 12

    WOW!!! I ALSO was around 3yrs when i was diagnosed with ALL. I received Chemo and radiation. Im now 29. and I'd LOVE to talk. Im in central NY. Email is [email protected] ID LOVE TO HEAR FROM YOU!!

    It's nice to find someone else that had all when they were little. It's hard to find people who had it so young. Do you remember alot about it? I use to live in ny too. I lived outside of Rochester. I had two years of chemo and radiation. I'd love to talk. my email is [email protected]

    Kerrie
  • sorcharose
    sorcharose Member Posts: 15
    Hi!!! I am 24 years old and had All when I was 3 and a half. I too have been wondering if there was someone who may have had my shared experiances. I have not found any adult support groups yet. It's been a long time sence my bout with cancer however after effects are lingering. (long and short term memorie problems, graphs, and map reading skills, and math is just about impossiable for me) However, I do have an Associates degree and am now working towards a Bachelors. intrested in hearing from you, Rose
  • erica10
    erica10 Member Posts: 30
    Hi!I'm 17 years old and had ALL when I was 9 and a half. It's hard to find people with leukemia in Northern CA. I would love to talk to [email protected]. It would be nice to talk to someone who understands.
  • tfitz
    tfitz Member Posts: 4
    Hi Kerrie, I am 22 as well. I fell out of remission a month ago and am now dealing with non hodgkins lymphoma again after being in remission for 7 years. I was first diagnosed when I was 14. I have never known anyone my age who has gone through this. I am glad to know that you are doing ok. My treatment is going well and the doctors are very optimistic so far. It just really sucks and its really unfair. Nobody should have to go through this once, nevermind twice. My friends and family are being really great about it though. Write back and tell me more about you. (:
  • tfitz
    tfitz Member Posts: 4
    Hi Kerrie, I am 22 as well. I fell out of remission a month ago and am now dealing with non hodgkins lymphoma again after being in remission for 7 years. I was first diagnosed when I was 14. I have never known anyone my age who has gone through this. I am glad to know that you are doing ok. My treatment is going well and the doctors are very optimistic so far. It just really sucks and its really unfair. Nobody should have to go through this once, nevermind twice. My friends and family are being really great about it though. Write back and tell me more about you. (:
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