Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Caregivers

Feeling alone and scared
My husband of 37 yrs was diagnoised with a recurrance of metatasic liver cancer on Aug. 31st 2010 my birthday. He had colon cancer in 2003/2004 and thought he had a full recovery. As of today he is so weak and barely eating or drinking. He is barely able to be mobile and hasn't showered in a week. He can no longer help…
Tomorrow will be better...
So most days I do ok, but today this post is for one thing and one thing only. To vent, to complain to say all the things I won't say to him as he needs my strength so here it goes... I am exhausted. I worry 24/7 and I am drained. My body aches and I find myself wanting to cry all day long. I dont want him to lose his…
It's so lonely.
Man this is getting harder, I'm glad she's doing ok.My inner strength 5%,holidays coming, more work.For those of you who can get help take all you can. God bless and prayers to you all.
I Saw the Future This Weekend
and it was a horrible sight. Since her dx with the tumors on neck, ribs and hip this was her worst episode of excruciating pain. At one point she was on the verge of hyper-ventilating trying to breath through the pain. No warning, instant pain. It seemed so long for the oxy pills to take enough effect so she could at least…
My mom's birthday is today :(
My mom passed away a little over a year ago and still to this day the pain is unbearable. I am still suffering from a broken heart and constantly have a heart ache. I feel so empty and lost without her. I have a repetitive blank feeling that seems to never get better on days like today. I was only 14 when she was diagnose,…
new here
Hello everyone ! My name is Pam and my step dad ( who I love more than life )has been diagnosed ( june 29th , 2010) with stomach and esophagus cancer . Just a llittle history here.... so please be patient with me. sorry if this is so long! June 29th my dad underwent endoscope to check to see why he was having so much…
Dad has Stage 4 tonsil cancer
Hello everyone! I'm so happy to have found this group. To make a long story short (I'm a little short on time right now), my father was diagnosed with cancer about 3 months ago. It originated in his tonsil and he now has an inoperable tumor in his neck. He is starting his 4th week of chemo/radiation. He is also facing some…
News is not good
My brother just got his ct scan back and it was not good. They said that his numbers had doubled and that the cancer is spreading to all of his organs. I don't really know what all of this means but the doctor said that there really is no need for him to continue the chemo. I am so very sad don't know what to do I am…
Has Anyone Experienced This?
I had to go to the breast surgeon today to see if everything was okay. My sister has breast cancer and my doctor said something didn't look right on one side. Anyway, the good news is that the surgeon said everything was okay - no cancer. The strange part: Whie I was waiting in the examining room waiting for the doctor, in…
New Traditions........
Most know my story, lost my mom to SCLC 9/23, just dx 3/1. Lost my mother in law to EC 10/24, dx late June. Holidays are coming. My family ALWAYS got together at mom's, husbands family never had anything....Plus the fact mom's bday is Nov 27th. I have 2 boys..17 and 21, we need to create our own new traditions, but it is…
Chemo trial waiting list????
What do you do when you are on a trial waiting list? How long do you sit and wait? My 35yr old fiance has been diagnosed with stage IV parotid gland cancer (salvitory gland cancer) in Aug 2010. The Dr pulled us off conventional chemo after 2 rounds and put us on a trial waiting list. What do we do if there are no trials…
Children of survivors often the overseen victims of cancer
Many of you have read my story. You may already know that while this is my sweetheart's second battle w/ cancer it is my first as his caregiver. Between us we have five children ranging ages between 9-17. Anyone on the caregiver or the survivor side knows what I mean when I say that if you have not gone through a long term…
Where do I start?
My father just had a biopsy today and has been told by two doctors that it appears he has stomach cancer. We do not yet have the results but information gathered from a scan and visually by the doctor doing the biopsy seems to point in that direction. We have an appointment on Thursday to get the diagnosis and although I…
hello
hello i'm a caregiver my husband has stage 4 colon liver cancer he's on his 7th chemo this weekend .Jorge was dx in june 2010 we have 3 kids 20;19'12 now our son who is 19 has been fighting with his dad everytime his dad has chemo i feel so bad for him his dad is his world i don't know what to do my son told me that he…
Robbed
I really feel this tumor has robbed me of my ability to "see things clearly" and I'm not even the one with the brain tumor. My husband has/had a left frontal lobe Oligodendroglioma. It was 4.8 cm and we were told 5mm they couldn't retreive. However on the past two MRI's no tumor at all is showing. We do thank God for this…
It's time to wage the battle again
Dearest Friends, Received some sad news tonight. My hubby's Oncologist called with the results of his latest CT scan. Not good. After only 2 1/2 months since his cisplatin/etopiside chemo, with a 75% over all reduction of the masses in his lung and lesions in his liver, the cancer is progressing. The lung mass and liver…
Balance
Balance... My fiance and I met when he was already three years into remission. We became inseperable. It was truly finding my soulmate. Finally felt like I was not missing something. I was a single mom raising three boys, one of which is disabled with no financial, physical or emotional help from my ex. I had felt broken…
My story
In July of 08 I packed up my children & left a horribly abusive man. My 3 children all boys, 1 disabled & I started a new life, raising them alone, no help financially or emotionally. Not long after this I met Brian. Starting as friends, I always remember thinking, Why can't I find a man like this? It all changed 1 night,…
It gets better, then worse, then better...
Two weeks ago, last embolization went well, but was more stressful physically on Mike than the first. The nauseau was uncontrollable. The Washington transplant board is making their consideration. Last weeks colonoscopy went well, without a hitch, but the following CT scan showed enlarged lymph nodes. If the cancer mets…
Eureka!!!!!!!!!!
Following my time of feeling like I wanted to smack the crap out of people and intense insomnia, I went to have my physical. Eureka!!! I am deficient in Vitamin D, which can lead to insomnia, body aches, and mood changes. So I have vitamins to take now and back up Ambien. So I am prepared for helping my family during the…
looking for bricks
I am currently looking for bricks that I can use to beat myself over the head with. I'm sure that this will yield better results than ANY conversation I could possibly have w/ hubby right now. Does anyone have a donation? Please laugh. I can't be the only one . . . . .
Why do I feel like this?
I normally post on the head and neck board. My dad finished treatment for oral cancer 4 months ago. He did really great through the treatment, however now it is a different story. He seems to not be able to do anything by his self and it makes me so sad. But, there are times that I get really angry and mad because I can…
Pallative care extended life expectancy & Increased Quality of Life with fewer symptoms
http://www.geripal.org/2010/08/palliative-care-prolongs-life.html A study published today in the New England Journal of Medicine by Jennifer Temel and colleagues at the Massachusetts General Hospital (MGH) showed that patients with advanced lung cancer treated with early outpatient palliative care lived longer than…
Cancer Survivor working on Design Thesis: Needs your help!
Hi, my name is Amanda and I was diagnosed with Stage 4 Hodgkins Lymphoma five years ago. Thankfully, I am doing very well! I am now a graduate communication design student at Pratt Institute in Manhattan. For my thesis project I would like to create a welcome binder for new cancer patients. Inside would be information…
Whew!
What a day! Yesterday we drove the two hours to the hospital and Mike got all of the tests, this morning they started him on the meds, gave him some packed platelets, and his second embolization. This one affected him much worse than the first one, he's more sore,more nauseous, and more loopy from the meds. He also was WAY…
God it sucks!
Well , reading all your post has made me realise that there is a lot of people out there in the same boat as me! I lost my dad when i was 17, he had an heart attack and died suddenly, no previous heart problems. 13 years later we find out mum has PPC, devasted, she is having chemotherapy and has had surgery , which has…
new here.
I am a 40 yr old female and I met my BF just months ago. We hit it off and have been inseparable since. He told me his leukemia was in remission for 3 years. He went in Sept for his routine labs and they found it had returned. By the first of October he was in the hospital for his first round of chemo. He was out for 2…
Will we ever laugh?
My husband and I used to laugh. Somestimes so hard we couldn't control it. It felt so good. We haven't laughed since the diagnosis in April of this year (and since he didn't feel good before, quite some time before that). He has completed his first round of 6 chemo treatments, and still receives Avastin & Erbitux weekly as…
CA blood markers and secondary mets
My mother’s cancer (ovarian) is monitored in part with a blood marker, CA125. I know other cancers have markers with other CA numbers, so I thought some of you might know the answer to my question. When the primary cancer metastasizes and secondary cancer grows in new locations like bone, is the secondary cancer’s activity…
Personality Changes
Well - it's me - who was hopeful that my life was getting back to normal. My current opinion is - what's normal??? My husband beat his Stage IV inoperable tonsil cancer - but now he's just not him. I married one man; through out his treatments, I had another; now, I have a third. Just how much am I and my three children…

Caregivers

Discussion List

Discussion Boards