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Caregivers

Oh Boy - He's Getting Better
Praise the Lord and pass the biscuits!! Bob is getting better. The last couple of days he seems to have turned some sort of corner. He is still very, very weak and has a long way to go but feels well enough to complain and pace back and forth between the bedroom, the kitchen and the patio. He sits in the bedroom recliner a…
stage4
im a caregiver for my husdband who has stage4 liver colon cancer i dont know how to do all of this and is there any caregiver out there that knows of anyone who has won with this satge of cancer .
Don't get discouraged
Almost 7 months after this tumor reared it's ugly head, after being initially told it was in-operable, after 2 craniotomies, 1 infection surgery and 1 bone flap removal, after 8 weeks of a Picc Line, after 7 months of broken up sleep (mine), the 4.8 cm tumor that was reduced to 5 mm after sugeries, is now NOT EVENING…
Rollercoaster!
Well, last week was full of the wonderfulness of cancer. A trip to the ER,my car got towed while at the hospital, a one day hospital stay, my neighbors tree fell on my porch during a storm, an advanced liver MRI, dinner out for both of us Saturday night : ) , and then a complete decompensation on Sunday, Mike was not able…
Just plain tired
There's nothing really unnerving or spectacular about where we are in our journey with Jim's cancer. I am just plain old worn out. He's finished his treatments, had (good) preliminary checkups with both oncologists, PET scan is scheduled for next week, finances are levelling out, the kids are all good - and yet, I just…
Preparing
Tomorrow my husband will be having his first MRI (been 3 months) since his bone flap removal. At that time the tumor was 5mm (down from 4.8cm). We will find out the results on Wednesday. So many emotions, feelings and thoughts. Depending on what results are, will make some decisions on what is ahead for "us". I am trying…
Consumed
Consumed -- that is exactly how I feel and I am not even the one with the brain tumor. My whole life has been surrounded by it -- my Godfather died at age 24, uncle age 45 and Godmother at age 56. I have always wondered if it would be MY fate. However, never thought the fate of my healthy, young (36 yrs old), newlywed…
The day the music died.
My wonderful wife of 52 years passed at 08:46 today.What a fighter but she went peacefully.See you in Heaven Babe,Love dave
Came Home for Hospital Today!
Much to our surprise, Bob was released from the hospital today, only six days post-op. Originally told 7-10 day hospital stay but docs say he is doing so well, they kicked him out. He came home with a trache, feeding tube, donor site skin graft (gross), rebuild wrist area with skin from donor site (thigh), and of course…
Frustration!!!
Ugh. We had an argument last night because he is refusing to leave maessages when he calls the doctors office, and is angry that he can't get thru to speak to a person. (Veterans Affairs)So I told him that I didn't think he was proactive enough in trying to communicate with the doctors, that he has to leave voicemails and…
Feeling kind of numb
Hey all, I have been thinking about you all and hoping you are doing ok. My husband has Liposarcoma in his leg.. I posted before, but we went to Roswell Park in Buffalo to meet with a Sarcoma specialist. He said the odds are 85 percent that he will be alive in ten years. (5 percent of that is with disease) so 80 percent…
New to all of this...
My fiance was diagnosed with testicular cancer 18 months ago and after having surgery was deemed "cancer free". He continued with his regulary scheduled follow up appointments and we recently found out he had a recurrence. He has stage 3 testicular cancer and is now beginning his chemo treatment. He goes for 5 days, for…
Chat.are you using it?
davexx Posts: 25 Joined: Sep 2010 September 27, 2010 - 9:08am I would think more people would be on thruout the nite.When your up and alone it's a good way to get a quicl response.I,m sure there are people here from all over the world that are up at any given time.It took me severay lonely days to find it and I am…
Lung cancer
Hi, I am new to the site. I found this website very interesting. I thought I was the only one (well you know what I mean) going through the hard times as a caregiver. I am taking care of my Mom. She has had a 2nd lung cancer removed this Spring. The one before was in 2007. She is not very strong and has zero energy. We met…
Acceptance
I've been working real hard to find this in my life lately. The feelings that come with it pass through me in great waves and there are days that I find myself kneeling on the floor with deep emotion. This life shouldn't be filled with so much suffering. At least not in 1 year. This man, my husband who for 10 years has…
Horrible Guilt Justified?
Hi. I posted this in the lung cancer topic but realized I probably should have put it here in the caregivers group. Hi. I'm new here and have met some of you in chat. You all are so encouraging and generous. My husband, Gary, was dx'd with nsclc 3 wks ago. After the initial shock wore off I have been having thoughts that I…
funk day
ever have one of what I call funk days, well this is mine and I hope I don't have them to much. Like everything around me I just can't get into it. Cooking , Cleaning (With O.C.D) not a good thing. Husband is the one sick ,he laid down today .I set and worry. I just can't seam to find words or feelings. It is like why why…
How to cheer up my depressed family and myself?
Dear all, Before we found out that my mum has cancer, my family had always been depressive. We are all loners. Have no friends. Stay home all the time. My dad has always been abusive, and my mum never stopped him from hurting me. Now that my mum has cancer, I feel the huge responsibility that I have to bear to take care of…
How do you handle it?
Was told by hospice today my wonderful wife of 52 years has days to hours left.She hasn't eaten in 2 weeks.Trying to keep her comfortable.That's all we can do.I still can't beleive this day has come.Don't know what to think or say.How do you cope.dave
Caregivers using baby room monitors.
I have onlyy been a caregiver a little over 2 weeks,1 of the first things I did was by a baby room monitor so I could hear my wife call. I went thru several and they all had a lot of static etc.I fianally found one that is wireless.has a unit in the room and a portable unit you carry around and can talk back to the other…
Needed Prayer For My Mom
Hello fellow caregivers, Most of you know me here from being a caregiver for my dad. Now it is my mom's turn. She has been diagnosed with a leaking heart valve, and P A D. P A D is peripheral artery disease. This means that the arteries in her lower legs are blocked. I am reaching out to all of you for prayer. We are going…
Husband is a horrible patient
My husband finished treatment for Stage IV throat cancer. He also had a melanoma removed. Now he has to decide whether to have surgery or not for non-small cell lung cancer. I try to talk with him about the cancer but he doesn't want to discuss it. It's taken him over a month now to think about surgery or some other…
TWILIGHT ZONE
HI EVERYONE! I'M ONLY THREE WEEKS INTO THIS JOURNEY AND AT TIMES I FEEL LIKE I'M HURLING THROUGH SPACE AT LIGHTENING SPEED AND AT OTHERS TIMES JUST FLOATING AIMLESSLY. MY HUSBAND HAS BOT CANCER BUT STILL UNDIAGNOSED. GOIND IN AM FOR SECOND BX TOMORROW.I'M WRITING TO YOU TODAY BECAUSE ..... EVERYDAY I WAKE UP AND SAY TODAY…
2 down, 8 more to go
Today was the second day of brain radiation. So far, so good. My hubby has been blessed with no side-effects, just a slight headache early this evening, which was handled with Tylenol. To kick-off the treatment, our dear son took us to Dallas to see the Bears and Cowboys game. The Bears won, which is a good thing, since…
More Tests
Today: Blood tests, meeting with the oncologist, Tomorrow: Follow up CT scan to the embolization. We won't know the results of the scan until probably next week at the earliest. God, I dread going into the "no answers, don't know anything, hurry up and wait" phase again. Hopefully the tumor has started to shrink, but since…
Recovering On Schedule
My husband appears to be recovering on schedule, according to the doctors. I'm not sure what I expected, but I didn't expect THIS. Wow... this really knocked him for a loop. Surgery was Wednesday (this being Sunday I think, my days are all merged together!), and he is just now really coming around. The catheter has come…
I feel tired and alone
For the last 6 months, since my husband's sclc diagnosis, I have cried, I have been by his side through it all. I have spent endless hours on the computer searching and researching,while he sits and watches sports and re-runs, and then tells all that "we" found this, and "we found that. I kiss him, I hold him, I tell him…
how do you know it's the end?
I brought my 88 year old grandma ("Nanny") to live with me back in the end of August...just 3 weeks ago. The reason I brought her here was because she's got Alzheimer's Disease. Well, I just kept noticing things that made it seem like something else was wrong, so I took her to the doctor. After a week long hospital stay…
What Timing
Well, friends, what timing it was for your words of wisdom the past few days! Because of you I took some time to have a "me" day and refresh my soul. Thank you all. Today, we learned the results of my husband's bone scan. He has cancer in his bones. Dr. says it's too soon after his firstline chemo to start chemo again, but…
A place that tears built
Hello, We are trying to get volunteers together that would like to help with a special project for terminally ill patients and families. I had a mother and daughter that was diagnosed with cancer and sadly have lost both of them, however, my husband and I are looking to help others that are currently going through…

Caregivers

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