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Brain Cancer

Astrocytoma grade 4 loving mother
Hello everybody, I'm new to this but I wanted to share my story, my mother, who is 45 years old, was recently diagnosed with astrocytoma grade 4, she went through surgery about a month ago and they took out 90% of the tumor. She is now going through radiation therapy 5 days a week and the chemotherapy pill. She's had no…
My husband passed away
My husband passed away July 31. It was so fast. He never lost hope.............I missed him every second............. But he is not suffering anymore. Our oncologist told us there is not reason to continue chemo. It is not working and 2 weeks later. He passed away. I thought we had more time to enjoy. I took days off in my…
The battle is over
Hi everyone. It has been a long time since I have been on this board as I have been spending most of my time on a different site. I also didn't really know where to add this update so I decided to post a new discussion. Finally, I know people come here looking for survival stories, but I felt obligated to let some of you…
Brain Stem Glioma on the 3rd Ventricle in adult male
My uncle has recently been diagnosed with a brain stem glioma on the 3rd ventricle. He is 55 years old and has had 2 other tumors that have been operated on. He also has a shunt from the very first surgery he ever had as a child. The doctors said today that the brain stem glioma is inoperable and he cannot even receive…
brain metastases survivors
Hello all, I'm new to this board today and I'm sorry if I'm posting in the wrong section. After several months of headaches which have got progressivley worse my close friend had a scan this week to be given the devastating news she has a tumor on her brain. On Wednesday an MRI confirmed she also had a tumor on her lung.…
Pre-Surgery Nerves
Getting ready for another surgery -- you would think I would be a pro as we approach another surgery. However, as like in the beginning of this journey, I am now trying to "pack" our "full" life together in a day/week/month. I am thankful we have gotten through 5 surgeries already since March. Thankful he beat the first…
Does anybody has heard about stem cell treatment for cancer?
There is an alternative treatment for cancer patients in Tijuana, Mexico. Issel treatment. Has anybody heard about this treatment? Thank you, Nubis
Acrylic bone flap
My husband is due to have an acrylic bone flap put in to replace his infected bone flap after two craniotomies and a surgery to "clean out" the infection and finally bone flap removal. Has anyone had an acrylic bone flap put in? Complications? Thanks!
brain tumors
just want to say thank you for the support you gave me unfortunely my husband passed after eightt months. we tried just about all. all i can say is spend every moment you can trying t o make your loved one happy as possible. keep praying to god to help you he will answer. thank you once again for alll your help and prayers.
Father in Ireland with GBM
Hello There: My Dad (who lives in Ireland) had surgery for GBM on Sept. 24, 2010 & just started a 2-week course of radiotherapy. As he is 66 years old & had complications after surgery, his doctors decided that he was too weak for chemotherapy. After the radiotherapy he'll go to a convalescent home. I just wish there was…
High white blood cell count during chemo?
Hi fellow brain people, I'm curious to know if anyone has ever experienced an increase in their WBC count while taking chemo, and what they went through. I'm currently taking Temodar for my Grade II Oligodendroglioma (with co-deletion) and my bloodwork at the end of Round 4 showed a high WBC count that my nurse said is…
Brain Cancer Survivor T-shirt
Hey everyone! I just wanted to share my t-shirt for today... I have been wearing a different t-shirt everyday this year, and at the end of the year I am going to sell them and donate the money to Worcester's Hope Lodge - a house (run by the ACS ) I am Night Manager at that provides free rooms to cancer patients to stay in…
grade 3 anaplastic astrocytoma.....spread throughout my brain
I was diagnosed july 2010 with grade 3 anaplastic astrocytoma. I had surgery to remove part of my temporal lobe and some white matter. My surgeon also did a resectioning. My tumor is not a well encased blob. It's mostly in my temporal lobe but fingers over to the frontal lobe. And then there are other abnormal cells spread…
Need to Flag dorisEknight
spam..........spam..........spam
astrocytoma grade 3--treatment not working--Has anyone tried the clinical trial route?
My husband was diagnosed with astrocytoma Grade 3 this past February 2010. The tumor is located right in the middle of his brain--the corpus collusum. Because of the location, the surgeon was not able to remove the tumor. He had the regular treatmet of Temador pills and radiation for 6 weeks. After the checkup with an MRI,…
anaplastic astrocytoma grade 3
Hi, My daughter was diagnosed with AA3 in March 2010. She has had 2 brain surgeries to remove the tumor. The Dr's feel that they removed it all. Is there anyone out there who has been or is going through this with a family member or themselves? I've read alot of grim stories and I'm looking for something positive to help…
Grade 3 astrocytoma in 28 year old
My son was diagnosed in March after having a seizure. He has had surgery which removed 95 percent of the tumour from his left frontal lobe. No bad effects from the surgery. Has had 6 weeks of radiation along with chemo (temodar). He will be starting 6 months of chemo in July-5 days on then 21 days off. He has a lot of…
Grade 2/3 AA Frontal lobe
I am writing in regards to my sister in law who had recently suffered a seizure and put her in the hospital where they discovered she had a stage 2 AA. A month ago they removed approximately 90% of her tumor. When the pathology report came back it stated that she also had some grade 3 mixed in with the 2. The 10% that was…
Brother Recently diagnosed with GBM- lives in Costa Rica
Hello there. I am needing some direction. My brother who lives in Costa Rica, was diagnosed via a brain biopsy this past Friday as having a GBM grade four. The tumor is 5.5 by 5.5cm in is frontal/temporal lobe, in the middle of his brain. They say it is inoperable and that nothing can be done. They gave him 6 months-1 year…
metastatic melanoma
I have recently been diagnosed w/metastatic melanoma, that started on my right back, moved to left shoulder, right lung and now brain. I will be having brain surgery this week, then radiation and then the chemo will start. can anybody tell me what to expect from the radiation?
tumor stable symptoms worse
My father was diagnosed with grade IV GBM on left side of his brain in May, 2010. Too large for surgery. He has been through standard 40 days of radiation & Temodar. He finished his 2nd round of "maintenance" Temodar (5 day/month treatment) about a week ago. He has not had nausea, but typical fatigue with treatments. MRIs…
11 wks pregnant diagnosed with Grade IV Glioblastoma
My sister-in-law, 38 yrs old, who lives in Argentina was diagnosed 6 weeks ago with a Grade IV GBM and at the same time she also found out she was pregnant. She has had surgery where Drs were able to remove 80% of the tumor and from which she has recovered very successfully. As you can imagine, doctors are not too…
Acrylic bone flap
Has anyone had bone flap replaced with an acrylic flap? Any complications?
Next step for GBM?
My DH was DX'd with GBM in March- he had surgery (removed 80%), then radiation and Temodar with one maintenance dose of Temodar when an MRI showed signs of growth- so we switched to CPT-11 and Avastin. He's had 4 doses of that, and will have 2 more- then the Oncologist wants to review the MRI's again and meet- to decide if…
anyone have experience with tumor in menginal layer?
My husband was DX with glioblastoma multiforme in his spine 8 mos ago. He's not doing well, is effectively paralized below the waist because he can't bear weight and has bladder bowel issues- though he can still move them some and whatnot. ANYWAY- he's been getting his butt kicked by CPT11 and Avastin, but when he was in…
i would like to talk about brain cancer
my mother is suffering from brain cancer and i would like to talk about how i am feeling and coping
ommaya reservoir -- anyone????
Anyone have an ommaya reservoir in their head for chemo? Just wondering, mine changes sizes sometimes very small other times rather large. Onc says shes not worried about it I just think its odd.
Pineal Gland Cyst
My daughter was in a car accident a few years ago and since then she has had headaches .But really awful ones in last year .To make a long story short she did have surgery on neck to replace dics's closest to her neck .Headaches are still there ..she has had shots and theraphy to releave pain and headaches ...nothing has…
Roll Call: Long Term BT Survivors
I was diagnosed in 1977 at age 7. Astrocytoma.
medulloblastoma stage 4 my 55 yr husband
My husband was diagnosed april 17th 2010. He was biopsied and were told he had stage 4 medulloblastoma that was non operable. He has a permanent shunt in the top of his head that drains to his stomach. Radiation treatment started a couple of weeks after diagnosis, full head and spine for 4 weeks, than the last 2 weeks was…

Brain Cancer

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