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Brain Cancer

craniopharyngioma anyone? My 6 year old does.
My 6 year old has one of these growing in her pituitary gland, She had about 95% of the cyst portion of it removed last may via surgery. She's a rare case where the pituitary gland is still functioning and we've been holding off on radiation which will destroy it for certain. We're thinking about proton therapy at MD…
Astrocytoma - Long Term Effects?????????????
I was diagnosed with a brain tumor in Sept of 2006. After two resections within 5 weeks, 6.5 weeks of radiation and 20+ months (extra just to be sure) of Temodar.....lingering symptoms of fatigue. My oncologist told me it would take me up to a year to get my energy back, it is going on 20 months. I was an avid exerciser,…
Anyone have problems with absence seizures with grade II Astrocytoma?
Hi Everyone! Well, I've been having some issues and thought I'd see if anyone else has had anything similiar....To make a long story short, I have a grade II Astrocytoma in my left temporal lobe. Had a partial resection in August 2009, stereotactic radiosurgery in December. No chemo or anything else. I recovered really…
inoperable GBM survivors
My husband is 43 and diagnosed on July 8th. He has been having seizures since January and now has short term memory loss other than that you would not be able to tell he is sick. Because of his memory loss he has no clue he is sick. It's better this way as not to cause any depression. I am writing to find survivors of…
anyone have problems/infections/headaches with ommayra resevoir?
My wife had an ommayra resevoir put in for chemo. On the same day she had a med port put in internal jugular. For 2 days in ICU she had severe headaches and vomiting. Turns out she has a staff infection (not mrsa) in her IJ med port which was removed. 2 weeks after the Ommayra resevoir was put in her headaches are…
Brain
My name is Carlos I reside in San francisco California and my father of te age of 62 was diagnosed with a grade IV tumor in his head. He has gone thru 2 surgeries plus 2 more surgeries for just infection in his wound. He's also gone thru chemos and radiation , unfortunately they did a scan on his head to see wether the…
Now Dad has a nasty Staph infection
my dad was diagnosed in mid april with lung cancer with 3 mets to the brain. the spot on his lung could not be biopsied because of the close proximity to his heart. he had to go back to the hospital last week because his incision started leaking spinal fluid. they repaired it and now he has a nasty staph infection. i have…
Left Lobe brain cancer metastasized from small cell lung cancer--prognosis?
My wife was treated for small cell lung cancer for six months beginning in January, 2008. She had a combination of chemo and radiation therapy that finished off with brain radiation. Last week, a brain MRI revealed a 1.5 cm tumor. The neurosurgeon says it is operable, easily accessible, and can be fully removed. Operation…
mom's bleeding due to critical lab results..this is so frustrating.!!
my mom was bleeding vaginally a few days ago..took her to er and they said it was just vaginitis and sent her home...i didnt believe thats what it was..i told them 3 times to check her blood counts..they wouldnt do it....then i find out today that the most recent lab results she just had were critical...they asked me if…
Are headaches after treatment for GBM normal?
My mom finished treatment with flying colors. Her only side-effect (some hearing loss) is beginning to resolve. Things were looking up, until her headaches returned a few days ago. And, the headaches are in the same place they were when she began having symptoms of GBM. Also, before she started radio/chemo and six weeks…
Chemo Wafers
My husband was taken to surgery yesterday for his 2nd crainiotomy in 9 months. We went to see the Dr for his follow up MRI and they saw that the tumor was growing again. We had a physician tell us there was nothing else they could do. Then another physician told us about something called Chemo Wafers, they implant these on…
why is my mom having a period after having a hysterectomy 30 years ago? Does brain cancer cause this
today my mom had a period...she had a full hysterectomy 30 years ago she hasnt had a period since....today she had something that looks like a period and smells like it....anyone experienced this with brain cancer? could it be the temodar..she also started taking procrit for her red blood cells...wondering if that causes…
RELAY FOR LIFE-ADVICE
Has anybody participated in a Relay for Life??. I was reading the web site but I'm confused. To participate you need to creat a team? I would like to get an advise of what I need to take or to do. The next event in my community is in one week. Thank you!!
UP Date on my MRI
We got to read the MRI report today on-line on the DUKE Web site that was done on 11-11-09 the last MRI. And even though they said not really any change and that it was stable.The numbers were a little different. Sept 30. MRI was 7cm x 3cm and Nov 11th shows 6.6cm x 2.2 cm. they said it was a good scan but they werent that…
GBM IV, Left Frontal Lobe- many questions
I am beyond grateful to find this website. My mother, 67, was diagnosed w/ a GBM in October, 09 and my family has been going through this alone w/ a ton of questions. We noticed some thing was not right w/ her b/c she could not retrieve her words, names and communication became increasingly difficult. On 10/26/09 she had…
GBM IV - how's the battle going?
Hi Just trying to touch base with anyone else battling or caring for someone who is battling GBM IV and who is in their first or second year since diagnosis. Wondering how everyone is going and what's working and what's not. My husband was diagnosed in Feb 09, had his op in Mar 09 and had a recurrence in July 09. We now…
Anybody here diagnosed with Terminal Cancer (given up by dr)?
Anybody here diagnosed with Terminal Cancer (given up by dr)? Please leave a message thanks!
Cancer Treatment HELP!
A close friend of mine has cancer and it is near the 3rd to 4th stage of the cycle. We are looking into alternative methods and also traditional methods of fighting cancer. The doctors have not given us much hope but we are being optimistic and are not going to give up. We have recently come across a method called…
changes in personality...
lately my mom has been quiet and withdrawn..and her voice is very raspy and she whispers when she talks...if you ask her anything she says no..but usually means yes..like i have to make her do things like shower, etc..or else she wouldnt do it..does anyone know what this could be? could it be the temodar? she has gbm grade…
mom only 38, mother of 9
I just found out today, my moms cancer has spread to her brain. It started out as just cervical cancer, I can not believe this. I am only 23 and she is only 38. I am the oldest of 9, my youngest sister is only 7 months old. They are moving her to hospice today, they don't even think she has a month left. Last night she had…
urinary and bowel incontinence?
has anyone experienced urinary and bowel incontinence with brain cancer??my mom started out with urinary incontinence...the doctor gave her pills for it and it was helping for awhile...now she cant control her bowels either...she says she cant feel when she has to go.....i dont know why this is happening...it seems like it…
Physical Therapy for GBM patient?
My mom was dx'd with GBM IV in June 2009. She is 68. The tumor was debulked, leaving a mass approx the size of a walnut near her motor strip. Chemo (Temodar) reduced the tumor to the size of a dime. She is starting her 5th round of Temodar 5/23 today. Her last 3 MRI's have shown no tumor growth and she has done incredibly…
Temodar
Hi. My friend's mother is being treated with Temodar for brain cancer. They got her nausea and vomiting under control, but now she's very, very tired. I know that is to be expected, but listed in the side effects it says, tired, nausea, constipations........ and please call your doctor for unusual drowsiness. She seems to…
Information please
In 2007 my boyfriend found out he had a brain tumor. I'm not sure the type, it was removed with surgery and he went through chemo and radiation. It was gone. We recently found out it was back. I didn't know him the first time around. I met him right after his surgery and then again a year later-when we fell in love. We…
glioblastoma multiforme
Does anyone know if this is genetic? It is scary to not have the answers. Mom was told November 2, 2009 and 70 days later January 11, 2010 I no longer have her. I have lost my dad (46) of a heart attack, my brother (50) heart attack now my mother (75)of GBM. I have read so many of these post and cannot figure out why she…
How much longer?
I am sure it has been discussed before a hundred times, but I just can’t seem to find an answer- HOW MUCH LONGER? My dad was diagnosed with an inoperable GBM IV in May of 2009. We had about 2 good months after diagnosis and while he was receiving Temodor and radiation. Since mid-July of 2009 my dad’s quality of life has…
GBM - any advice appreciated!
Last May (2009) my brother (age 51 and in excellent health) was diagnosed with GBM - Grade 4. It was removed at St Thomas in Nashville. Dr said he got all that he could find. Since then he has completed radiation and continues a week of chemo (Temodar) each month. Last week Dr saw something on MRI - thought it most likely…
anaplastic astrocytoma stage 3 ..... 5yrs +
Anyone out there that falls into this group?
which family history counts breast cancer
I am trying to find out which members of your family do you count if they have died of breast cancer. Is it just our parents and their parents or would my grandmothers sister and her daughter both passing away from breast cancer have any bearing on the risk factor for my sisters and myself? I was not aware of these…
Long term brain tummor survivor
Hello everyone I have not been on this site for a while but back to tell you what I have been doing. Well I do not work and have social security disability and my big hobby is photography and I do alot of senic and nature photography but like to photograph anything. I had a brain tummor removed at Childrens Hospital of…

Brain Cancer

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